I got it wrong - not poly myelitis, but polymyositis

[Guest guest]

Your family is in my prayers, and am sure in every member's also. God Bless

Dear. Betty in VA

[Guest guest]

Go see an alternative doctor! Naturapath, accupuncturist,etc.. With a

condition this bad you need to address it from a different view than western

is going to. Including psychological.

-Adriel

> From: " Laurie Bottoni-Lorenz " <lblorenz@...>

> Reply- egroups

> Date: Wed, 23 Aug 2000 01:54:45 -0000

> egroups

> Subject: [ ] I got it wrong - not poly myelitis, but

> polymyositis

>

> Boy, did I get it wrong! I was listening and trying to write down

> what the rheumy said about my husband Monday. I thought he said

> " polymyelitis " . All I could find on the internet was

> " poliomyelitis " , another word for polio.

>

> Tonight, I found it. " Polymyositis " . Now I wish I hadn't. It's a

> degenerative condition, sometimes can go into remission with massive

> doses of steroids, but it will reoccur. Eventually it causes death

> as the deterioration invades the chest and the lungs or airway are

> compromised. Oh dear. Me thinks I read too much.

>

> Hey everybody, please say a prayer. The EMG is Friday. Maybe it is

> something else????

>

> Laurie

>

>

>

>

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

> We are currently discussing new chat times. moderates a chat on

> arthritis at

> www.about.com on Thursday evenings, so check that

> out in the meantime! E mail at RA@... for details.

>

>

[Guest guest]

Boy, did I get it wrong! I was listening and trying to write down

what the rheumy said about my husband Monday. I thought he said

" polymyelitis " . All I could find on the internet was

" poliomyelitis " , another word for polio.

Tonight, I found it. " Polymyositis " . Now I wish I hadn't. It's a

degenerative condition, sometimes can go into remission with massive

doses of steroids, but it will reoccur. Eventually it causes death

as the deterioration invades the chest and the lungs or airway are

compromised. Oh dear. Me thinks I read too much.

Hey everybody, please say a prayer. The EMG is Friday. Maybe it is

something else????

Laurie

[Guest guest]

Laurie: He may have said Polymyalgia Rheumatica...that was the first

suspicion before I was diagnosed with Psoriatic Arthritis. What about

Fibromyalgia, also? I was also diagosed with that secondary to the PA. As

the PA is treated the Fibro seems to improve - I have terrible muscle pain &

weakness from the Fibro (I'm told). Look up Polymyalgia Rheumatica - there

is alot of info on that and I researched that when it was suspected. Good

luck!