Hello

[Guest guest]

I seem to remember that when I was first diagnosed with hepc that my DR. wanted to wait and see if I could clear the virus myself without treatment. Some people do. I also tested positive for autoimmune hepatitis so had to wait anyway.

[ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > >

[Guest guest]

Without ALL the tests, how can they know?

Sharon

__________________________________________________

[Guest guest]

Greg and are you reading this if not I will tell you about it later. You get to a hepatologist or a gastroenterologist. The last thing you need is to have deceptive numbers delaying help while damage occurs. Mom Fluffy Please Re: [ ] Hello Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

Here is my concern more than anything with the class there were lots of people there. This was not an individual meeting with our son and his wife. Not only that Greg and came away saying they learned nothing they did not know. And trust me they are fairly uneducated about this. That alone scares me. All these months passing no biopsy no PCR nothing just a positive diagnosis and go home live well and proseper .....I am scared to death the HMO is sparing expense. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

And what did mom say last night please ask to get the PCR at least and see a specialist and if the specialist says hey you know what you are one healthy dude. then.... and only then rest easier. They are basing his mild case on one factor and one factor alone the liver enzymes. Thanks guys .... and and Greg better to error on the side of caution than to wish a couple years from now you'd of insisted then on a specialist. Fluffy Mom Re: [ ] Hello Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

That is exactly what they told Greg your body is coping with this virus. Oh what am I to do of course Greg and would rather be told good things not you must endure a year of hell in treatment this was like next to a clean bill of health for them. They are taking blood in July again to recheck things. I guess I have till then to persuade them to ask for every possible test and guage of health and also a specialist. Re: [ ] Hello Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

That is what they said it appears he is clearing the virus on his own. They are concerned though he may be following in his daddys footsteps and want to check him for Rhuematoid Arthritis. Now does any of that make sense. [ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > >

[Guest guest]

Yes it is important more is known and funding levels increased. We have to lick these viruses. [ ] Hello It's me!! Thh new kid on the block. I am very excited that my husband and I get to go to our first class on hep c. Is there any Q's that we should be asking? Well we will hang out for a whileGreg's wife

[Guest guest]

I still thank that more likely it is the DR & not the HMO. After all treatment is cheaper then a liver transplant. And HMO's are suppose to be about cost containment.

Terry

WILLIAM A WALTKE <kbwaltke@...> wrote:

Here is my concern more than anything with the class there were lots of people there. This was not an individual meeting with our son and his wife. Not only that Greg and came away saying they learned nothing they did not know. And trust me they are fairly uneducated about this. That alone scares me. All these months passing no biopsy no PCR nothing just a positive diagnosis and go home live well and proseper .....I am scared to death the HMO is sparing expense.

Re: [ ] Hello

You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

I would say that is true except at this class they kept stressing the cost of treatment and I am not sure how many liver transplants they even consider doing. They kepts saying treatment is only for those who are very sick with it. I am not sure I agree. If the virus is left alive and kicking .... won't it do its damage eventually. Why not do it when there is little damage instead of so much. Just a thought. I am sure I just don't like the idea of some virus in my son. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

Yes, slowly it will do its damage. That is the

biggest pile of bull I've ever heard and I'd be trying

to find out how to chane their thinking. The CDC might

be a place to start, as well as the liver foundation

and the American Medical Association. I can understan

waiting a few months to see if the body will clear the

virus, but waiting till your sick to treat you is just

stupid. Of course, that's my opinion.

Sharon

--- WILLIAM A WALTKE <kbwaltke@...> wrote:

> I would say that is true except at this class they

> kept stressing the cost of treatment and I am not

> sure how many liver transplants they even consider

> doing. They kepts saying treatment is only for

> those who are very sick with it. I am not sure I

> agree. If the virus is left alive and kicking ....

> won't it do its damage eventually. Why not do it

> when there is little damage instead of so much.

> Just a thought. I am sure I just don't like the

> idea of some virus in my son.

>

> Re: [ ] Hello

>

> You got that right! Even though I thought I had a

> very competent dr in the end. He took some time

> right at the beginning and we talked about this

> disease, the treatment, etc. but that was about it.

> Unfortunately the dr's don't seem to have the time

> to spend with individual patients, they come in, do

> their thing and they're out of there. Thank God for

> the internet. Though you have to be careful not to

> believe everything out here, at least you can

> believe other people who have been through this.

> -dz-

> Sharon Zeis <szeis_1@...> wrote:

> If you don't get educated about it, you'll never

> understand. I find that this and the other group I'm

> in have been a Godsend, because people understand.

> Sharon

> --- WILLIAM A WALTKE <kbwaltke@...> wrote:

> > Yup..... Greg makes it to the end of his work day

> > 3/4ths in a fog and half dazed with fatigue by the

> > time his work day is over. He was making a huge

> > mistake for awhile. He was so tired he was

> slamming

> > high protein drinks and protein bars trying to

> find

> > that energy..... big mistake.... its a wonder he

> > could find his way home. Seems the common

> > interpretation by most is geez he is getting lazy

> > and irresponsible and even though inside he really

> > does know how hard hes worked and his job is

> > really physical and manly man stuff and he should

> > be able to work hard and play just as hard end

> > result his self esteem has plummeted into the

> > toilet..... and to him to say hey Im tired is

> just

> > inexcuseable. I just got on his brother hard

> core.

> > Moms can lecture whoo hoo you better believe it

> > when they are on a roll. For a while there on

> > Friday nights they were toget off work and pack

> up

> > and go 2 hours up to the mountains where his

> brother

> > and his wife and kids live so they all could

> > snowboard and ski all weekend. Well they'd get up

> > there late as it takes Greg and a while at

> > the end of the work week to get things going to

> get

> > up there. His need to spend time with his bro and

> > wife and have some family fun was writing checks

> > his body couldn't cash. Which in turn meant that

> > his brother and wife are up there thinking whats

> > wrong those lazy bums get off your duffers and get

> > up here. I told his brother they need to educate

> > themselves about this and get off his rear before

> > dealing with me requires more effort than they

> want

> > to deal with!!! We have a rather complicated

> family

> > Greg and his only brother ...... married

> sisters.

> > Well I won't go into the rest of this...... but

> > suffice it to say Gregs reputation for lazy due to

> > the fatigue is superceding his ability to give a

> > hoot at times. He catches it from all possible

> > directions. I think his wife is starting to

> really

> > see this now too. And maybe between the two of us

> > we can hope to get some attitudes corrected. Sure

> > hope so cause if Greg is depressed that would be

> > why.

> >

>

>

> __________________________________________________

>

[Guest guest]

I don't know a whole lot about Hep C, so I could have this all wrong, but

one thing I read (I think in the recent Newsweek article) is that because

interferon only works for some people, and because new drugs that work

better are expected to be developed and available in about 5 years, some

doctors think that if you are not really really sick, it is a valid choice

to wait for something better than interferon or interferon combinations. I

hope no one thinks I am nuts to say this... ;-) ....but if I have it, or if

my spouse tests as not having much damage yet, I would consider waiting to

see if a better treatment comes along soon. Part of that, I am sure, is the

fear related to being self-employed and having half-a**ed insurance coverage

that might only pay half the cost of treatment...

Oh, and another I read somewhere is that interferon can cause damage, i.e.

some serious side effects, so maybe they weigh the dangers of the treatment

against the dangers of waiting.

Anyway....like I said, I don't know much, and I don't want to bring up a

subject (waiting for better treatment) that might be a hot button!

Best wishes for your son,

Skyler

Re: [ ] Hello

You got that right! Even though I thought I had a very competent dr in the

end. He took some time right at the beginning and we talked about this

disease, the treatment, etc. but that was about it. Unfortunately the dr's

don't seem to have the time to spend with individual patients, they come in,

do their thing and they're out of there. Thank God for the internet. Though

you have to be careful not to believe everything out here, at least you can

believe other people who have been through this. -dz-

Sharon Zeis <szeis_1@...> wrote:

If you don't get educated about it, you'll never

understand. I find that this and the other group I'm

in have been a Godsend, because people understand.

Sharon

--- WILLIAM A WALTKE <kbwaltke@...> wrote:

> Yup..... Greg makes it to the end of his work day

> 3/4ths in a fog and half dazed with fatigue by the

> time his work day is over. He was making a huge

> mistake for awhile. He was so tired he was slamming

> high protein drinks and protein bars trying to find

> that energy..... big mistake.... its a wonder he

> could find his way home. Seems the common

> interpretation by most is geez he is getting lazy

> and irresponsible and even though inside he really

> does know how hard hes worked and his job is

> really physical and manly man stuff and he should

> be able to work hard and play just as hard end

> result his self esteem has plummeted into the

> toilet..... and to him to say hey Im tired is just

> inexcuseable. I just got on his brother hard core.

> Moms can lecture whoo hoo you better believe it

> when they are on a roll. For a while there on

> Friday nights they were toget off work and pack up

> and go 2 hours up to the mountains where his brother

> and his wife and kids live so they all could

> snowboard and ski all weekend. Well they'd get up

> there late as it takes Greg and a while at

> the end of the work week to get things going to get

> up there. His need to spend time with his bro and

> wife and have some family fun was writing checks

> his body couldn't cash. Which in turn meant that

> his brother and wife are up there thinking whats

> wrong those lazy bums get off your duffers and get

> up here. I told his brother they need to educate

> themselves about this and get off his rear before

> dealing with me requires more effort than they want

> to deal with!!! We have a rather complicated family

> Greg and his only brother ...... married sisters.

> Well I won't go into the rest of this...... but

> suffice it to say Gregs reputation for lazy due to

> the fatigue is superceding his ability to give a

> hoot at times. He catches it from all possible

> directions. I think his wife is starting to really

> see this now too. And maybe between the two of us

> we can hope to get some attitudes corrected. Sure

> hope so cause if Greg is depressed that would be

> why.

>

__________________________________________________

[Guest guest]

Hey Skyler, your not nuts. I know people who either

were non-responders or they could not tolerate the

sides so they are making the choice to wait for

something new. Even without treatment,it is a slow

progressing disease. But it's worth a try. Especially

if you want to live more than 30 years with the

disease. Also, I don't think it would be fun to wait

until my system was already weak from the disease to

start treatment. It's not an easy ride very often.

Sharon

--- tangly cottage gardening <tangly@...>

wrote:

> I don't know a whole lot about Hep C, so I could

> have this all wrong, but

> one thing I read (I think in the recent Newsweek

> article) is that because

> interferon only works for some people, and because

> new drugs that work

> better are expected to be developed and available in

> about 5 years, some

> doctors think that if you are not really really

> sick, it is a valid choice

> to wait for something better than interferon or

> interferon combinations. I

> hope no one thinks I am nuts to say this... ;-)

> ....but if I have it, or if

> my spouse tests as not having much damage yet, I

> would consider waiting to

> see if a better treatment comes along soon. Part of

> that, I am sure, is the

> fear related to being self-employed and having

> half-a**ed insurance coverage

> that might only pay half the cost of treatment...

>

> Oh, and another I read somewhere is that interferon

> can cause damage, i.e.

> some serious side effects, so maybe they weigh the

> dangers of the treatment

> against the dangers of waiting.

>

> Anyway....like I said, I don't know much, and I

> don't want to bring up a

> subject (waiting for better treatment) that might be

> a hot button!

>

> Best wishes for your son,

>

> Skyler

>

> Re: [ ] Hello

>

> You got that right! Even though I thought I had a

> very competent dr in the

> end. He took some time right at the beginning and we

> talked about this

> disease, the treatment, etc. but that was about it.

> Unfortunately the dr's

> don't seem to have the time to spend with individual

> patients, they come in,

> do their thing and they're out of there. Thank God

> for the internet. Though

> you have to be careful not to believe everything out

> here, at least you can

> believe other people who have been through this.

> -dz-

> Sharon Zeis <szeis_1@...> wrote:

> If you don't get educated about it, you'll never

> understand. I find that this and the other group I'm

> in have been a Godsend, because people understand.

> Sharon

> --- WILLIAM A WALTKE <kbwaltke@...> wrote:

> > Yup..... Greg makes it to the end of his work day

> > 3/4ths in a fog and half dazed with fatigue by the

> > time his work day is over. He was making a huge

> > mistake for awhile. He was so tired he was

> slamming

> > high protein drinks and protein bars trying to

> find

> > that energy..... big mistake.... its a wonder he

> > could find his way home. Seems the common

> > interpretation by most is geez he is getting lazy

> > and irresponsible and even though inside he really

> > does know how hard hes worked and his job is

> > really physical and manly man stuff and he should

> > be able to work hard and play just as hard end

> > result his self esteem has plummeted into the

> > toilet..... and to him to say hey Im tired is

> just

> > inexcuseable. I just got on his brother hard

> core.

> > Moms can lecture whoo hoo you better believe it

> > when they are on a roll. For a while there on

> > Friday nights they were toget off work and pack

> up

> > and go 2 hours up to the mountains where his

> brother

> > and his wife and kids live so they all could

> > snowboard and ski all weekend. Well they'd get up

> > there late as it takes Greg and a while at

> > the end of the work week to get things going to

> get

> > up there. His need to spend time with his bro and

> > wife and have some family fun was writing checks

> > his body couldn't cash. Which in turn meant that

> > his brother and wife are up there thinking whats

> > wrong those lazy bums get off your duffers and get

> > up here. I told his brother they need to educate

> > themselves about this and get off his rear before

> > dealing with me requires more effort than they

> want

> > to deal with!!! We have a rather complicated

> family

> > Greg and his only brother ...... married

> sisters.

> > Well I won't go into the rest of this...... but

> > suffice it to say Gregs reputation for lazy due to

> > the fatigue is superceding his ability to give a

> > hoot at times. He catches it from all possible

> > directions. I think his wife is starting to

> really

> > see this now too. And maybe between the two of us

> > we can hope to get some attitudes corrected. Sure

> > hope so cause if Greg is depressed that would be

> > why.

> >

>

>

> __________________________________________________

>

[Guest guest]

I agree. But I think if his body was going to clear the virus it would have done so before he even tested positive?! Re: [ ] Hello> > You got that right! Even though I thought I had a> very competent dr in the end. He took some time> right at the beginning and we talked about this> disease, the treatment, etc. but that was about it.> Unfortunately the dr's don't seem to have the time> to spend with individual patients, they come in, do> their thing and they're out of there. Thank God for> the internet. Though you have to be careful not to> believe everything out here, at least you can> believe other people who have been through this. > -dz- > Sharon Zeis <szeis_1@...> wrote: > If you don't get educated about it, you'll never> understand. I find that this and the other group I'm> in have been a Godsend, because people understand. > Sharon> --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > Yup..... Greg makes it to the end of his work day> > 3/4ths in a fog and half dazed with fatigue by the> > time his work day is over. He was making a huge> > mistake for awhile. He was so tired he was> slamming> > high protein drinks and protein bars trying to> find> > that energy..... big mistake.... its a wonder he> > could find his way home. Seems the common> > interpretation by most is geez he is getting lazy> > and irresponsible and even though inside he really> > does know how hard hes worked and his job is> > really physical and manly man stuff and he should> > be able to work hard and play just as hard end> > result his self esteem has plummeted into the> > toilet..... and to him to say hey Im tired is> just> > inexcuseable. I just got on his brother hard> core.> > Moms can lecture whoo hoo you better believe it> > when they are on a roll. For a while there on> > Friday nights they were toget off work and pack> up> > and go 2 hours up to the mountains where his> brother> > and his wife and kids live so they all could> > snowboard and ski all weekend. Well they'd get up> > there late as it takes Greg and a while at> > the end of the work week to get things going to> get> > up there. His need to spend time with his bro and> > wife and have some family fun was writing checks> > his body couldn't cash. Which in turn meant that> > his brother and wife are up there thinking whats> > wrong those lazy bums get off your duffers and get> > up here. I told his brother they need to educate> > themselves about this and get off his rear before> > dealing with me requires more effort than they> want> > to deal with!!! We have a rather complicated> family> > Greg and his only brother ...... married> sisters.> > Well I won't go into the rest of this...... but> > suffice it to say Gregs reputation for lazy due to> > the fatigue is superceding his ability to give a> > hoot at times. He catches it from all possible> > directions. I think his wife is starting to> really> > see this now too. And maybe between the two of us> > we can hope to get some attitudes corrected. Sure> > hope so cause if Greg is depressed that would be> > why. > > > > > __________________________________________________>

[Guest guest]

Perhaps you are right as Greg did say they kept stressing the side effects of and danger of treatment. Thanks for letting me know this. Re: [ ] HelloI would say that is true except at this class they kept stressing the costof treatment and I am not sure how many liver transplants they evenconsider doing. They kepts saying treatment is only for those who are verysick with it. I am not sure I agree. If the virus is left alive andkicking .... won't it do its damage eventually. Why not do it when there islittle damage instead of so much. Just a thought. I am sure I just don'tlike the idea of some virus in my son. ----- Original Message -----From: Terry LongSent: Friday, May 03, 2002 11:25 AM Subject: Re: [ ] Hello I still thank that more likely it is the DR & not the HMO. After alltreatment is cheaper then a liver transplant. And HMO's are suppose to beabout cost containment. Terry WILLIAM A WALTKE <kbwaltke@...> wrote:Here is my concern more than anything with the class there were lots ofpeople there. This was not an individual meeting with our son and his wife.Not only that Greg and came away saying they learned nothing they didnot know. And trust me they are fairly uneducated about this. That alonescares me. All these months passing no biopsy no PCR nothing just a positivediagnosis and go home live well and proseper .....I am scared to death theHMO is sparing expense. ----- Original Message -----From: imaganeerSent: Friday, May 03, 2002 5:38 AM Subject: Re: [ ] HelloYou got that right! Even though I thought I had a very competent dr in theend. He took some time right at the beginning and we talked about thisdisease, the treatment, etc. but that was about it. Unfortunately the dr'sdon't seem to have the time to spend with individual patients, they come in,do their thing and they're out of there. Thank God for the internet. Thoughyou have to be careful not to believe everything out here, at least you canbelieve other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote:If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. >__________________________________________________

[Guest guest]

I thank all of us in here or in 100% agearment with that. It is more then STUPED! I would call it MURDER!

Terry

Sharon Zeis <szeis_1@...> wrote: Yes, slowly it will do its damage. That is thebiggest pile of bull I've ever heard and I'd be tryingto find out how to chane their thinking. The CDC mightbe a place to start, as well as the liver foundationand the American Medical Association. I can understanwaiting a few months to see if the body will clear thevirus, but waiting till your sick to treat you is juststupid. Of course, that's my opinion. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> I would say that is true except at this class they> kept stressing the cost of treatment and I am not> sure how many liver transplants they even consider> doing. They kepts saying treatment is only for> those who are very sick with it. I am not sure I> agree. If the virus is left alive and kicking ....> won't it do its damage eventually. Why not do it> when there is little damage instead of so much. > Just a thought. I am sure I just don't like the> idea of some virus in my son. > > Re: [ ] Hello> > You got that right! Even though I thought I had a> very competent dr in the end. He took some time> right at the beginning and we talked about this> disease, the treatment, etc. but that was about it.> Unfortunately the dr's don't seem to have the time> to spend with individual patients, they come in, do> their thing and they're out of there. Thank God for> the internet. Though you have to be careful not to> believe everything out here, at least you can> believe other people who have been through this. > -dz- > Sharon Zeis <szeis_1@...> wrote: > If you don't get educated about it, you'll never> understand. I find that this and the other group I'm> in have been a Godsend, because people understand. > Sharon> --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > Yup..... Greg makes it to the end of his work day> > 3/4ths in a fog and half dazed with fatigue by the> > time his work day is over. He was making a huge> > mistake for awhile. He was so tired he was> slamming> > high protein drinks and protein bars trying to> find> > that energy..... big mistake.... its a wonder he> > could find his way home. Seems the common> > interpretation by most is geez he is getting lazy> > and irresponsible and even though inside he really> > does know how hard hes worked and his job is> > really physical and manly man stuff and he should> > be able to work hard and play just as hard end> > result his self esteem has plummeted into the> > toilet..... and to him to say hey Im tired is> just> > inexcuseable. I just got on his brother hard> core.> > Moms can lecture whoo hoo you better believe it> > when they are on a roll. For a while there on> > Friday nights they were toget off work and pack> up> > and go 2 hours up to the mountains where his> brother> > and his wife and kids live so they all could> > snowboard and ski all weekend. Well they'd get up> > there late as it takes Greg and a while at> > the end of the work week to get things going to> get> > up there. His need to spend time with his bro and> > wife and have some family fun was writing checks> > his body couldn't cash. Which in turn meant that> > his brother and wife are up there thinking whats> > wrong those lazy bums get off your duffers and get> > up here. I told his brother they need to educate> > themselves about this and get off his rear before> > dealing with me requires more effort than they> want> > to deal with!!! We have a rather complicated> family> > Greg and his only brother ...... married> sisters.> > Well I won't go into the rest of this...... but> > suffice it to say Gregs reputation for lazy due to> > the fatigue is superceding his ability to give a> > hoot at times. He catches it from all possible> > directions. I think his wife is starting to> really> > see this now too. And maybe between the two of us> > we can hope to get some attitudes corrected. Sure> > hope so cause if Greg is depressed that would be> > why. > > > > > __________________________________________________>

[Guest guest]

I am not so sure I'd go that far but I do want to know why beyond the fact that he is considered mild etc. I want my son to live. Live long and healthy He is young only 29 if hes had it 10 and the average is 30 years with the disease process wasn't that the figure so mentioned do you realize if thats so he will make it to about 50 that is not acceptable. I wish I knew exactly what to do as Greg seemed relieved they didn't think he needed that treatment that was so toxic and such. Re: [ ] Hello> > You got that right! Even though I thought I had a> very competent dr in the end. He took some time> right at the beginning and we talked about this> disease, the treatment, etc. but that was about it.> Unfortunately the dr's don't seem to have the time> to spend with individual patients, they come in, do> their thing and they're out of there. Thank God for> the internet. Though you have to be careful not to> believe everything out here, at least you can> believe other people who have been through this. > -dz- > Sharon Zeis <szeis_1@...> wrote: > If you don't get educated about it, you'll never> understand. I find that this and the other group I'm> in have been a Godsend, because people understand. > Sharon> --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > Yup..... Greg makes it to the end of his work day> > 3/4ths in a fog and half dazed with fatigue by the> > time his work day is over. He was making a huge> > mistake for awhile. He was so tired he was> slamming> > high protein drinks and protein bars trying to> find> > that energy..... big mistake.... its a wonder he> > could find his way home. Seems the common> > interpretation by most is geez he is getting lazy> > and irresponsible and even though inside he really> > does know how hard hes worked and his job is> > really physical and manly man stuff and he should> > be able to work hard and play just as hard end> > result his self esteem has plummeted into the> > toilet..... and to him to say hey Im tired is> just> > inexcuseable. I just got on his brother hard> core.> > Moms can lecture whoo hoo you better believe it> > when they are on a roll. For a while there on> > Friday nights they were toget off work and pack> up> > and go 2 hours up to the mountains where his> brother> > and his wife and kids live so they all could> > snowboard and ski all weekend. Well they'd get up> > there late as it takes Greg and a while at> > the end of the work week to get things going to> get> > up there. His need to spend time with his bro and> > wife and have some family fun was writing checks> > his body couldn't cash. Which in turn meant that> > his brother and wife are up there thinking whats> > wrong those lazy bums get off your duffers and get> > up here. I told his brother they need to educate> > themselves about this and get off his rear before> > dealing with me requires more effort than they> want> > to deal with!!! We have a rather complicated> family> > Greg and his only brother ...... married> sisters.> > Well I won't go into the rest of this...... but> > suffice it to say Gregs reputation for lazy due to> > the fatigue is superceding his ability to give a> > hoot at times. He catches it from all possible> > directions. I think his wife is starting to> really> > see this now too. And maybe between the two of us> > we can hope to get some attitudes corrected. Sure> > hope so cause if Greg is depressed that would be> > why. > > > > > __________________________________________________>

[Guest guest]

I don't really know. My original GI dr. had me wait awhile to see if I would

clear the virus myself. If I remember right I waited about 3 months and was

retested. Waited another 3 months for approval from my insurance company for

treatment. Had my biopsy and retested again. Then started treatment. This

all took around 6 or 7 months.

I agree that the sooner treatment is started the better chance for recovery.

I was very impatient to start treatment right away. Unlike a lot of Dr. mine

was very knowledgeable about hepc. He isn't a transplant surgeon but has

been on a transplant team several time.

Re: [ ] Hello

> Without ALL the tests, how can they know?

>

> Sharon

>

>

> __________________________________________________

>

[Guest guest]

Hi

It sounds like you might be right about the HMO sparing expense. They don't mind taking your money, but sure don't want to let any of it go. HMO stands for Hand The Money Over.

Re: [ ] Hello

You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

I didn't clear the virus myself. Even after 2 round of treatment it still is not cleared. I have relapsed both times now. At least my primary DR. referred me to a GI DR. right away after he got the results of my original tests.

[ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > >

[Guest guest]

Skylar

What you say may be true. Some of us can't wait for 5 years for a new

treatment to be developed. When I was diagnosed I was told that I would need

a transplant probably by the time I was 50 to 52 years old. That is the

reason I opted for the treatments available at the time. Hopefully it slowed

the damage to a point that I can wait for a better treatment to come along.

Re: [ ] Hello

>

> You got that right! Even though I thought I had a very competent dr in the

> end. He took some time right at the beginning and we talked about this

> disease, the treatment, etc. but that was about it. Unfortunately the dr's

> don't seem to have the time to spend with individual patients, they come

in,

> do their thing and they're out of there. Thank God for the internet.

Though

> you have to be careful not to believe everything out here, at least you

can

> believe other people who have been through this. -dz-

> Sharon Zeis <szeis_1@...> wrote:

> If you don't get educated about it, you'll never

> understand. I find that this and the other group I'm

> in have been a Godsend, because people understand.

> Sharon

> --- WILLIAM A WALTKE <kbwaltke@...> wrote:

> > Yup..... Greg makes it to the end of his work day

> > 3/4ths in a fog and half dazed with fatigue by the

> > time his work day is over. He was making a huge

> > mistake for awhile. He was so tired he was slamming

> > high protein drinks and protein bars trying to find

> > that energy..... big mistake.... its a wonder he

> > could find his way home. Seems the common

> > interpretation by most is geez he is getting lazy

> > and irresponsible and even though inside he really

> > does know how hard hes worked and his job is

> > really physical and manly man stuff and he should

> > be able to work hard and play just as hard end

> > result his self esteem has plummeted into the

> > toilet..... and to him to say hey Im tired is just

> > inexcuseable. I just got on his brother hard core.

> > Moms can lecture whoo hoo you better believe it

> > when they are on a roll. For a while there on

> > Friday nights they were toget off work and pack up

> > and go 2 hours up to the mountains where his brother

> > and his wife and kids live so they all could

> > snowboard and ski all weekend. Well they'd get up

> > there late as it takes Greg and a while at

> > the end of the work week to get things going to get

> > up there. His need to spend time with his bro and

> > wife and have some family fun was writing checks

> > his body couldn't cash. Which in turn meant that

> > his brother and wife are up there thinking whats

> > wrong those lazy bums get off your duffers and get

> > up here. I told his brother they need to educate

> > themselves about this and get off his rear before

> > dealing with me requires more effort than they want

> > to deal with!!! We have a rather complicated family

> > Greg and his only brother ...... married sisters.

> > Well I won't go into the rest of this...... but

> > suffice it to say Gregs reputation for lazy due to

> > the fatigue is superceding his ability to give a

> > hoot at times. He catches it from all possible

> > directions. I think his wife is starting to really

> > see this now too. And maybe between the two of us

> > we can hope to get some attitudes corrected. Sure

> > hope so cause if Greg is depressed that would be

> > why.

> >

>

>

> __________________________________________________

>

[Guest guest]

Perhaps I get confused in Greg and s retelling of the class but what I understood them to say is he may be clearing this on his own. Well the tattoo responsible was a long time ago. So how does that reason out. I am just concerned that if he really should have treatment now..... he shouldn't be discouraged or influenced not to. [ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > >

[Guest guest]

Well with my son and daughter in law reading these pages I don't want to scare either one of them or get all blubbery and such but I'd pay for a 2nd opinion out of my pocket if I could get him to go. Or even just to know he has seen a specialist in the field at the HMO would help. Anything besides your healthy yet. Well he won't be one day .... and if he is so healthy how is it he could pass out from the fatique they say must be something else as hes to healthy yet . The more I think about the info they came home with from that class the more I know he has to seek better answers than that. Re: [ ] Hello You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz- Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

Its been more than 3 months and he won't be tested till July. I suppose we should wait till July see what they say but they actually told him the viral load count was not the important indicator. I think thats what they said How can that be? That the liver enzymes are. From everything I read here that is not so. They have not even ran the test to determin the viral load Re: [ ] Hello> Without ALL the tests, how can they know?>> Sharon>>> __________________________________________________>

[Guest guest]

Do they even know his genotype. That is so important.

As well as the biopsy. He IS too young, if I didn't do

anything I'd probably still be an old lady when I die.

, I wish I could help, it just makes me want to

scream when medical professionals act like this. And

grateful for my doctors who take such good care of me.

Sharon

--- WILLIAM A WALTKE <kbwaltke@...> wrote:

> I am not so sure I'd go that far but I do want to

> know

> why beyond the fact that he is considered mild

> etc. I want my son to live. Live long and healthy

>

> He is young only 29 if hes had it 10 and the average

> is 30 years with the disease process wasn't that the

> figure

> so mentioned do you realize if thats so he will make

> it to about

> 50 that is not acceptable. I wish I knew exactly

> what

> to do as Greg seemed relieved they didn't think he

> needed

> that treatment that was so toxic and such.

>

> Re: [ ] Hello

> >

> > You got that right! Even though I thought I had a

> > very competent dr in the end. He took some time

> > right at the beginning and we talked about this

> > disease, the treatment, etc. but that was about

> it.

> > Unfortunately the dr's don't seem to have the time

> > to spend with individual patients, they come in,

> do

> > their thing and they're out of there. Thank God

> for

> > the internet. Though you have to be careful not to

> > believe everything out here, at least you can

> > believe other people who have been through this.

>

> > -dz-

> > Sharon Zeis <szeis_1@...> wrote:

> > If you don't get educated about it, you'll never

> > understand. I find that this and the other group

> I'm

> > in have been a Godsend, because people understand.

>

> > Sharon

> > --- WILLIAM A WALTKE <kbwaltke@...> wrote:

> > > Yup..... Greg makes it to the end of his work

> day

> > > 3/4ths in a fog and half dazed with fatigue by

> the

> > > time his work day is over. He was making a huge

> > > mistake for awhile. He was so tired he was

> > slamming

> > > high protein drinks and protein bars trying to

> > find

> > > that energy..... big mistake.... its a wonder he

> > > could find his way home. Seems the common

> > > interpretation by most is geez he is getting

> lazy

> > > and irresponsible and even though inside he

> really

> > > does know how hard hes worked and his job is

> > > really physical and manly man stuff and he

> should

> > > be able to work hard and play just as hard end

> > > result his self esteem has plummeted into the

> > > toilet..... and to him to say hey Im tired is

> > just

> > > inexcuseable. I just got on his brother hard

> > core.

> > > Moms can lecture whoo hoo you better believe

> it

> > > when they are on a roll. For a while there on

> > > Friday nights they were toget off work and pack

> > up

> > > and go 2 hours up to the mountains where his

> > brother

> > > and his wife and kids live so they all could

> > > snowboard and ski all weekend. Well they'd get

> up

> > > there late as it takes Greg and a while

> at

> > > the end of the work week to get things going to

> > get

> > > up there. His need to spend time with his bro

> and

> > > wife and have some family fun was writing

> checks

> > > his body couldn't cash. Which in turn meant

> that

> > > his brother and wife are up there thinking whats

> > > wrong those lazy bums get off your duffers and

> get

> > > up here. I told his brother they need to

> educate

> > > themselves about this and get off his rear

> before

> > > dealing with me requires more effort than they

> > want

> > > to deal with!!! We have a rather complicated

> > family

> > > Greg and his only brother ...... married

> > sisters.

> > > Well I won't go into the rest of this...... but

> > > suffice it to say Gregs reputation for lazy due

> to

> > > the fatigue is superceding his ability to give

> a

> > > hoot at times. He catches it from all possible

> > > directions. I think his wife is starting to

> > really

> > > see this now too. And maybe between the two of

> us

> > > we can hope to get some attitudes corrected.

> Sure

> > > hope so cause if Greg is depressed that would be

> > > why.

> > >

> >

> >

> > __________________________________________________

> >