Hello

[Guest guest]

I know that is just how Greg described it too at first ....... in a nutshell and to a T. But no one asked for this virus no one and no one deserves it. Id of been bonkers long ago if it were not for all of you guys. Wes a Dragon Butt Kickin Team is what we is. Fluffy Re: [ ] Hello even if he gets upset with you he knows you love him..Mothers are suppose to push a little..The fact that I have Hep was the biggest thing I had to deal with at first..It was real hard as I'm sure it is on greg..I felt dirty..useless...tired...and ashamed..It was hard to accept till I found everyone in here..Hey you guys it's been a year this month I've found you all..It's our anniversary!!! I've been pretty great since I've been in this group..Thought I was fixing to lose it when I found them because the Dr's didn't understand me at all but everyone here did and I am so grateful each day when I get up and see the posts!!

[Guest guest]

Yup..... Greg makes it to the end of his work day 3/4ths in a fog and half dazed with fatigue by the time his work day is over. He was making a huge mistake for awhile. He was so tired he was slamming high protein drinks and protein bars trying to find that energy..... big mistake.... its a wonder he could find his way home. Seems the common interpretation by most is geez he is getting lazy and irresponsible and even though inside he really does know how hard hes worked and his job is really physical and manly man stuff and he should be able to work hard and play just as hard end result his self esteem has plummeted into the toilet..... and to him to say hey Im tired is just inexcuseable. I just got on his brother hard core. Moms can lecture whoo hoo you better believe it when they are on a roll. For a while there on Friday nights they were toget off work and pack up and go 2 hours up to the mountains where his brother and his wife and kids live so they all could snowboard and ski all weekend. Well they'd get up there late as it takes Greg and a while at the end of the work week to get things going to get up there. His need to spend time with his bro and wife and have some family fun was writing checks his body couldn't cash. Which in turn meant that his brother and wife are up there thinking whats wrong those lazy bums get off your duffers and get up here. I told his brother they need to educate themselves about this and get off his rear before dealing with me requires more effort than they want to deal with!!! We have a rather complicated family Greg and his only brother ...... married sisters. Well I won't go into the rest of this...... but suffice it to say Gregs reputation for lazy due to the fatigue is superceding his ability to give a hoot at times. He catches it from all possible directions. I think his wife is starting to really see this now too. And maybe between the two of us we can hope to get some attitudes corrected. Sure hope so cause if Greg is depressed that would be why. Re: [ ] Hello I am at stage 2 with the damage..That we know for sure..I don't have much scarring as of yet though..Isn't that when cirrohis sets in??With my fatigue I try to explain it like this....When everyone else is still going strong at 5:00 I have quit at 1:00..That's the best way to explain it to some people..Seems these nit wits understand that better than plain english such as...I'm tired as hell!!!

[Guest guest]

Jan, I have heavy scraring on the liver. But no cirrohis as of yet.

Terry

Jannewilms42@... wrote: I am at stage 2 with the damage..That we know for sure..I don't have much scarring as of yet though..Isn't that when cirrohis sets in??With my fatigue I try to explain it like this....When everyone else is still going strong at 5:00 I have quit at 1:00..That's the best way to explain it to some people..Seems these nit wits understand that better than plain english such as...I'm tired as hell!!!

[Guest guest]

Thank you . Greg is going to get through this also & the dragon will know he got his butt kicked. He has a loving mom, wife & the rest of the family there supporting him. That's half the battle.

Terry

WILLIAM A WALTKE <kbwaltke@...> wrote:

Terry if there is one thing I know about you already, you and Susy will find a way to get through this and you are going to get through this treatment. I sure wish their HMO would get a move on it where Greg is concerned. You can imagine a mom wants that dragons rear end kicked proper ..... and I'd rather it be sooner than later. You and Susy are so blessed to have each other..... and your family is so blessed to have you both. Hugs Fluffy.

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

Your right , no one deserves this. But the dragon picked on the wrong person when he picked this hillbilly transplant.

Terry

WILLIAM A WALTKE <kbwaltke@...> wrote:

I know that is just how Greg described it too at first ....... in a nutshell and to a T.

But no one asked for this virus no one and no one deserves it. Id of been bonkers

long ago if it were not for all of you guys. Wes a Dragon Butt Kickin Team is what we is.

Fluffy

Re: [ ] Hello

even if he gets upset with you he knows you love him..Mothers are suppose to push a little..The fact that I have Hep was the biggest thing I had to deal with at first..It was real hard as I'm sure it is on greg..I felt dirty..useless...tired...and ashamed..It was hard to accept till I found everyone in here..Hey you guys it's been a year this month I've found you all..It's our anniversary!!! I've been pretty great since I've been in this group..Thought I was fixing to lose it when I found them because the Dr's didn't understand me at all but everyone here did and I am so grateful each day when I get up and see the posts!!

[Guest guest]

>Unless a person has leaky gut syndrome (which is not very common),

>there is no way for undigested anything to enter the bloodstream.

Incorrect.

" The researchers looked at intestinal tissue from seven patients with

celiac disease and six healthy people. Patients with the disease had higher

levels of zonulin and zonulin antibodies. When the celiac disease patients

followed a gluten-free diet, their antibody levels returned to normal. The

researchers believe that zonulin makes the space between cells larger,

allowing gluten and other substances to pass through. Once these allergens

get into the immune system, they are attacked by the antibodies which can

lead to all sorts of problems. " -

http://www.mercola.com/2000/may/14/leaky_gut.htm

>Whenever in doubt, see a doctor and get her/him to help you find out

>what's really going on.

Assuming that you can find one who knows anything about anything.

>Celeste

Katrina.

[Guest guest]

He may not be depressed it may be the hep. Its just

having a chronic disease can take a toll mentally. And

if he was that tired before diagnosis it was probably

the hep.

Sharon

__________________________________________________

[Guest guest]

Well at least they told him that much.

Sharon

--- WILLIAM A WALTKE <kbwaltke@...> wrote:

> Thats my biggest fear.... they are not doing

> anything. Nothing

> nada ... told him don't drink alcohol... thats about

> it.

>

> [ ] Hello

> >

> > It's me!! Thh new kid on the block. I am very

> > excited that my

> > husband and I get to go to our first class on hep

> c.

> > Is there any

> > Q's that we should be asking? Well we will hang

> out

> > for a while

> >

> > Greg's wife

> >

> >

> >

> >

[Guest guest]

If you don't get educated about it, you'll never

understand. I find that this and the other group I'm

in have been a Godsend, because people understand.

Sharon

--- WILLIAM A WALTKE <kbwaltke@...> wrote:

> Yup..... Greg makes it to the end of his work day

> 3/4ths in a fog and half dazed with fatigue by the

> time his work day is over. He was making a huge

> mistake for awhile. He was so tired he was slamming

> high protein drinks and protein bars trying to find

> that energy..... big mistake.... its a wonder he

> could find his way home. Seems the common

> interpretation by most is geez he is getting lazy

> and irresponsible and even though inside he really

> does know how hard hes worked and his job is

> really physical and manly man stuff and he should

> be able to work hard and play just as hard end

> result his self esteem has plummeted into the

> toilet..... and to him to say hey Im tired is just

> inexcuseable. I just got on his brother hard core.

> Moms can lecture whoo hoo you better believe it

> when they are on a roll. For a while there on

> Friday nights they were toget off work and pack up

> and go 2 hours up to the mountains where his brother

> and his wife and kids live so they all could

> snowboard and ski all weekend. Well they'd get up

> there late as it takes Greg and a while at

> the end of the work week to get things going to get

> up there. His need to spend time with his bro and

> wife and have some family fun was writing checks

> his body couldn't cash. Which in turn meant that

> his brother and wife are up there thinking whats

> wrong those lazy bums get off your duffers and get

> up here. I told his brother they need to educate

> themselves about this and get off his rear before

> dealing with me requires more effort than they want

> to deal with!!! We have a rather complicated family

> Greg and his only brother ...... married sisters.

> Well I won't go into the rest of this...... but

> suffice it to say Gregs reputation for lazy due to

> the fatigue is superceding his ability to give a

> hoot at times. He catches it from all possible

> directions. I think his wife is starting to really

> see this now too. And maybe between the two of us

> we can hope to get some attitudes corrected. Sure

> hope so cause if Greg is depressed that would be

> why.

>

__________________________________________________

[Guest guest]

I wish you had that too....I know Greg is not feeling the worst .... but not feeling the best either. I know he is finding certain things really get him. like Caffine... that gets him quick to much protein that puts him in a fog. Re: [ ] Hello I wish I had a paper Diane sent once..Does anyone in here still have it?? The one about how we feel??

[Guest guest]

they told Greg and that his case was so mild right now they will not risk treatment. Why then is he ready to croak from the fatigue? Re: [ ] Hello Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

The thing is his medical coverage is and HMO... they decide, Re: [ ] Hello so was I at one time and now I seem to be so antisocial..It's just something we deal with in our own way..As aggrevating as it is for you to see just have patience mother dear and he'll come around..As far as tx goes is there another Dr he can go to??

[Guest guest]

Or the son of this fiesty fluffy furious mom. Re: [ ] Hello even if he gets upset with you he knows you love him..Mothers are suppose to push a little..The fact that I have Hep was the biggest thing I had to deal with at first..It was real hard as I'm sure it is on greg..I felt dirty..useless...tired...and ashamed..It was hard to accept till I found everyone in here..Hey you guys it's been a year this month I've found you all..It's our anniversary!!! I've been pretty great since I've been in this group..Thought I was fixing to lose it when I found them because the Dr's didn't understand me at all but everyone here did and I am so grateful each day when I get up and see the posts!!

[Guest guest]

I am not really sure but he does not seem depressed depressed but sure tired. Re: [ ] Hello He may not be depressed it may be the hep. Its justhaving a chronic disease can take a toll mentally. Andif he was that tired before diagnosis it was probablythe hep. Sharon__________________________________________________

[Guest guest]

They told him today the want to retest him in July his numbers on the enzymes are so mild that people with no Hep C have had worse one. So... it seems as if they think he is not really bad off. [ ] Hello> > > > It's me!! Thh new kid on the block. I am very> > excited that my > > husband and I get to go to our first class on hep> c.> > Is there any > > Q's that we should be asking? Well we will hang> out> > for a while> > > > Greg's wife> > > > > > > >

[Guest guest]

I wou;d be seeing a different Dr with in the HMO. It might not be the HMO but an uneducated DR. My pcp DR didn't thank I needed to start treatment but did give me a referral to my Hep C. He started me on my treatment.

Terry

WILLIAM A WALTKE <kbwaltke@...> wrote:

they told Greg and that his case was so mild right now they will not risk treatment. Why then is he ready to croak from the fatigue?

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

I am on an HMO and I didn't have too much trouble. It depends on the doctor. The HMO covered all my bloodwork and I paid a $20 copay for each prescription of the combo. I imagine HMO's can vary widely, but mine wasn't too bad. Once in a while I have trouble that my dr prescribes some medication and the HMO won't cover it unless I try some other med first. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

Thats my biggest fear.... they are not doing anything. Nothing

nada ... told him don't drink alcohol... thats about it.

[ ] Hello> > It's me!! Thh new kid on the block. I am very> excited that my > husband and I get to go to our first class on hep c.> Is there any > Q's that we should be asking? Well we will hang out> for a while> > Greg's wife> > > >

[Guest guest]

You got it! I'm stubborn as a mule. And twice as smart!!! -dz-

Terry Long <pawpawto3@...> wrote:

Your right , no one deserves this. But the dragon picked on the wrong person when he picked this hillbilly transplant. Terry WILLIAM A WALTKE <kbwaltke@...> wrote:

I know that is just how Greg described it too at first ....... in a nutshell and to a T.

But no one asked for this virus no one and no one deserves it. Id of been bonkers

long ago if it were not for all of you guys. Wes a Dragon Butt Kickin Team is what we is.

Fluffy

Re: [ ] Hello

even if he gets upset with you he knows you love him..Mothers are suppose to push a little..The fact that I have Hep was the biggest thing I had to deal with at first..It was real hard as I'm sure it is on greg..I felt dirty..useless...tired...and ashamed..It was hard to accept till I found everyone in here..Hey you guys it's been a year this month I've found you all..It's our anniversary!!! I've been pretty great since I've been in this group..Thought I was fixing to lose it when I found them because the Dr's didn't understand me at all but everyone here did and I am so grateful each day when I get up and see the posts!!

[Guest guest]

You got that right! Even though I thought I had a very competent dr in the end. He took some time right at the beginning and we talked about this disease, the treatment, etc. but that was about it. Unfortunately the dr's don't seem to have the time to spend with individual patients, they come in, do their thing and they're out of there. Thank God for the internet. Though you have to be careful not to believe everything out here, at least you can believe other people who have been through this. -dz-

Sharon Zeis <szeis_1@...> wrote: If you don't get educated about it, you'll neverunderstand. I find that this and the other group I'min have been a Godsend, because people understand. Sharon--- WILLIAM A WALTKE <kbwaltke@...> wrote:> Yup..... Greg makes it to the end of his work day> 3/4ths in a fog and half dazed with fatigue by the> time his work day is over. He was making a huge> mistake for awhile. He was so tired he was slamming> high protein drinks and protein bars trying to find> that energy..... big mistake.... its a wonder he> could find his way home. Seems the common> interpretation by most is geez he is getting lazy> and irresponsible and even though inside he really> does know how hard hes worked and his job is> really physical and manly man stuff and he should> be able to work hard and play just as hard end> result his self esteem has plummeted into the> toilet..... and to him to say hey Im tired is just> inexcuseable. I just got on his brother hard core.> Moms can lecture whoo hoo you better believe it> when they are on a roll. For a while there on> Friday nights they were toget off work and pack up> and go 2 hours up to the mountains where his brother> and his wife and kids live so they all could> snowboard and ski all weekend. Well they'd get up> there late as it takes Greg and a while at> the end of the work week to get things going to get> up there. His need to spend time with his bro and> wife and have some family fun was writing checks> his body couldn't cash. Which in turn meant that> his brother and wife are up there thinking whats> wrong those lazy bums get off your duffers and get> up here. I told his brother they need to educate> themselves about this and get off his rear before> dealing with me requires more effort than they want> to deal with!!! We have a rather complicated family> Greg and his only brother ...... married sisters.> Well I won't go into the rest of this...... but> suffice it to say Gregs reputation for lazy due to> the fatigue is superceding his ability to give a> hoot at times. He catches it from all possible> directions. I think his wife is starting to really> see this now too. And maybe between the two of us> we can hope to get some attitudes corrected. Sure> hope so cause if Greg is depressed that would be> why. > __________________________________________________

[Guest guest]

If he is seeing a general practitioner, I would request that he see a specialist. Either a hepatologist (sp?) or a gastroenterologist. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

they told Greg and that his case was so mild right now they will not risk treatment. Why then is he ready to croak from the fatigue?

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

One thing I found out about HMO's If you are not happy with what your dr is telling you, you CAN request to be referred to a specialist and you have that right. My GP wasn't getting the point, although before I demanded to be referred to a specialist he referred me to one. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

Terry if there is one thing I know about you already, you and Susy will find a way to get through this and you are going to get through this treatment. I sure wish their HMO would get a move on it where Greg is concerned. You can imagine a mom wants that dragons rear end kicked proper ..... and I'd rather it be sooner than later. You and Susy are so blessed to have each other..... and your family is so blessed to have you both. Hugs Fluffy.

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

My dr told me something like that, too. He said "Well I guess you are just one of the lucky ones and your body can cope with this virus". Finally he sent me to a specialist and they got me on treatment. One thing though, if Greg's liver enzymes are in the normal range, they may not recommend treatment. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

they told Greg and that his case was so mild right now they will not risk treatment. Why then is he ready to croak from the fatigue?

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

Within an HMO there are many dr's. I was unhappy with my former dr and I picked another one within the HMO and had much better results. I stuck with the old one over 10 years, but he finally ticked me off when he wouldn't listen to me about my concerns I may have hcv. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

The thing is his medical coverage is and HMO... they decide,

Re: [ ] Hello

so was I at one time and now I seem to be so antisocial..It's just something we deal with in our own way..As aggrevating as it is for you to see just have patience mother dear and he'll come around..As far as tx goes is there another Dr he can go to??

[Guest guest]

We sure seem to be on the same page! I have left two responses now that I have found almost identical responses from you. We can't both be wrong, eh? -dz-

Terry Long <pawpawto3@...> wrote:

I wou;d be seeing a different Dr with in the HMO. It might not be the HMO but an uneducated DR. My pcp DR didn't thank I needed to start treatment but did give me a referral to my Hep C. He started me on my treatment. Terry WILLIAM A WALTKE <kbwaltke@...> wrote:

they told Greg and that his case was so mild right now they will not risk treatment. Why then is he ready to croak from the fatigue?

Re: [ ] Hello

Hi Greg's wife..Nice to see ya again..The questions will come as you need them..Trust me there wil be plenty..Glad to hear you are going to a Hep group..It'll help ya alot..If we can help just ask ok!!

[Guest guest]

You know I'm starting to hear more and more about this disease, and Pamela is in the news a little more, maybe she will have a positive impact after all. They are talking a little bit more about what hcv is, how you can get it, and how many people they suspect have it, not knowing they do. -dz-

WILLIAM A WALTKE <kbwaltke@...> wrote:

This seems to be fairly common with those who have Hep C there are no real defining symptoms till one day your just low enough that you get to the doctors and some how you get diagnosed. Then people still don't see you as sick. I mostly try not to get on his case although its hard when I see him swimming in the river in egypt. Denile he he.... So one day I got on him a little bit and told him just how much I loved him and I was trying to understand but he needed to talk to me for me to be able to understand not only about Hep C but what this Hep C is like for him. He opened up a bit and I had no idea at all just how lousy hes felt for a very long time. Seems he spends a good deal of effort trying just to hide how lousy he feels. And how that has led to what I'd label depression over expectations placed on him and circumstances surrounding this virus and I was really shocked how hard its been on him. And still they have never ran his PCR or suggested a biopsy or anything to see where hes at. can tell you more what its like I guess to live with him. I just know that he needs to find some energy to even care enough to cope soon. I hope one day that there is more understanding not only about the virus itself but even the emotions of having this virus no one asked for. I know this mom loves her kidlet and I am trying very hard to try to help where I can without pushing to hard.

[ ] Hello

It's me!! Thh new kid on the block. I am very excited that my husband and I get to go to our first class on hep c. Is there any Q's that we should be asking? Well we will hang out for a whileGreg's wife