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Hi Dave,

Welcome to the group I am sure you will find a lot of support and

useful info on here. It is a godsend to me. I have had thyroid

problems since 1992 when my thryoid was overactive, then in 1997 I

had Radioiodine treatment and it went underactive. At the moment I am

on 100 mcg of thyroxine and started treatment advised by Dr P about

three weeks ago. This week I have started candida diet protocol, am

starting t3 (Cytomel) and Nutri Thyroid, currently on x2 tabs of

Nutri Adrenal Extra as Dr P thinks I have Adrenal Defiency.

Take care,

Ali

<monsiergentil@...> wrote:

>

> I posted my history on here recently. No idea how to use the site. I

> havent had any feedback.

>

> Dave

>

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Actually Jen and Dave - I think I am the guilty person for

causing this problem. As you posted originally under New Member (I think) I

changed the subject heading to read 'Dave - New member' and that probably

caused the confusion.

Talking

of other 'males' Jen, do you get the feeling that yet more and more men are

joining lately. Seems the incidence amongst men is growing.

Luv

- Sheila

Hi Dave,

welcome to the site, It is a bit fidderly to get used to, but hang on

in here and you will be pleased you did. This is a very active forum

and up to 2000 posts a month. If there were any replies to your post

they will be linked under your original post.

For example, if you click on the post I am responding to and look

beneath, you will find this post and then any more added to it. It

also appears in the order in which it was posted.

There are many experienced people here who will hopefully be able to

guide and support you. You will read some positive posts also of

people who have been able to get their life back, one step at a time.

One things that is for sure - you are not alone anymore............You

may also be comforted to know that there are some other males on the

forum as well.

jennyfreeman

___

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Hi Dave, we are a buisy group so it may take some time to get a reply. we try to help others with thyroid problems as doctors don`t seem to have much time for us and are not upto date with their knowledge base .just ask a question and we will try are best to answer it. and you are welcome to give us information about what tests you have had and any tips on vitamins and supplements you find useful.go to our file and read all that is their so you can take control of you health. so you are seeing Dr P, you are in good hands and you will soon be able to advise us about being hyper and how you fill after your treatment.regards angel.

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Hi, my name is Magdeline my baby is a near drowning since 01/12/08,what

kind of therapy have you done, remember to try everything before you

make any desicion, Were did you live? check Ray Cralle Physical Therapy

he is great and he got great hands. Check him out or call him, he is in

Delray Beach n Florida,.,

Magdeline

>

> Hi everybody. My name is Lannah and I'm 17 years old. I was born with

> very mild left hemiplegia cerebral palsy, cleft lip/cleft palate, and

> clubbed feet. They were able to correct the foot unaffected by the

> cerebral palsy, but weren't able to correct the one affected with it.

> I had minimal problems walking when I was little, but when I turned

> ten I began having more problems. They put me in a wheelchair for long

> distances, and when I turned 11, they did surgery to help me. I didn't

> progress with therapy like they thought I would, and now I don't walk

> that well at all. I knee walk around the house and it is damaging my

> knees, so I am thinking about getting my foot amputated. I am hoping

> to talk to someone who has had a leg/foot amputated before. I also

> hope to make some friends who have similar problems.

>

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See my website for peer reviewed published studies, testimonials and more

over 800 pages, Serving your needs since 1998

Rapid Recovery Hyperbarics

www.hbot4u.com

and CHT

Underwood, DO, MD, JD

hyperbaric1@...

[ ] Re: New

>

> Hi, my name is Magdeline my baby is a near drowning since 01/12/08,what

> kind of therapy have you done, remember to try everything before you

> make any desicion, Were did you live? check Ray Cralle Physical Therapy

> he is great and he got great hands. Check him out or call him, he is in

> Delray Beach n Florida,.,

>

> Magdeline

>

>>

>> Hi everybody. My name is Lannah and I'm 17 years old. I was born with

>> very mild left hemiplegia cerebral palsy, cleft lip/cleft palate, and

>> clubbed feet. They were able to correct the foot unaffected by the

>> cerebral palsy, but weren't able to correct the one affected with it.

>> I had minimal problems walking when I was little, but when I turned

>> ten I began having more problems. They put me in a wheelchair for long

>> distances, and when I turned 11, they did surgery to help me. I didn't

>> progress with therapy like they thought I would, and now I don't walk

>> that well at all. I knee walk around the house and it is damaging my

>> knees, so I am thinking about getting my foot amputated. I am hoping

>> to talk to someone who has had a leg/foot amputated before. I also

>> hope to make some friends who have similar problems.

>>

>

>

>

>

> ------------------------------------

>

> " So I say to you: Ask and it will be given to you; seek and you will find;

> knock and the door will be opened to you. For everyone who asks receives;

> he who seeks finds; and to him who knocks, the door will be opened. " [Luke

> 11: 9-10]

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

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  • 1 month later...

Welcome, :). I am so sorry to hear about Adam's diagnosis

and the pain he is going through. I am not familiar enough with

Kawasaki to give you any words of wisdom but want you to know that

there are many moms here who share your struggle with their own

children. Having our children on steroid type medications is a tough

thing to accept but sometimes being aggressive early on can make a

considerable difference later. But I do understand it's a double

edged-sword (own daughter is on Methotrexate injections weekly).

I hope you will find support here for yourself. Having children dx

with chronic long-term illness is a devastating blow and we all need

friends that know first hand what it feels like. Big hugs to you and

Adam...

-Hadley (Isabelle, turning 5 yrs. old next week :), dx JRA age 2)

>

> Hello,

>

> My name is and my son is Adam. We are new to jra as of

> October. Adam was hospitalized with Kawasakis disease in October.

He

> did not respond to treatments for Kawasakis and they went back and

> forth for a long time about it being Kawasakis. It wasnt until

after

> he was released and an echo showed enlarged blood vessels that they

> decided he had Kawasakis. His labs were slowly returning to normal

and

> we were backing off the steriods when on Christmas he woke up

crying in

> pain. His legs and hands were stiff. Then each morning his hands

are

> stiff he can barely move them. We went back to Childrens and his

sed

> rate was back up to 75. I am at a loss with all of this. The meds

> seem extreme as he is still on steriods, Plavix and asprin. I need

to

> hear from other parents, any advise or ideas are welcome. Thank

you

> for your time.

>

>

>

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What side effects if any has she had on the this med?

 

Thanks for your kind words

From: hadley_messner <hmessner@...>

Subject: Re: new

Date: Sunday, January 11, 2009, 1:20 PM

Welcome, :). I am so sorry to hear about Adam's diagnosis

and the pain he is going through. I am not familiar enough with

Kawasaki to give you any words of wisdom but want you to know that

there are many moms here who share your struggle with their own

children. Having our children on steroid type medications is a tough

thing to accept but sometimes being aggressive early on can make a

considerable difference later. But I do understand it's a double

edged-sword (own daughter is on Methotrexate injections weekly).

I hope you will find support here for yourself. Having children dx

with chronic long-term illness is a devastating blow and we all need

friends that know first hand what it feels like. Big hugs to you and

Adam...

-Hadley (Isabelle, turning 5 yrs. old next week :), dx JRA age 2)

>

> Hello,

>

> My name is and my son is Adam. We are new to jra as of

> October. Adam was hospitalized with Kawasakis disease in October.

He

> did not respond to treatments for Kawasakis and they went back and

> forth for a long time about it being Kawasakis. It wasnt until

after

> he was released and an echo showed enlarged blood vessels that they

> decided he had Kawasakis. His labs were slowly returning to normal

and

> we were backing off the steriods when on Christmas he woke up

crying in

> pain. His legs and hands were stiff. Then each morning his hands

are

> stiff he can barely move them. We went back to Childrens and his

sed

> rate was back up to 75. I am at a loss with all of this. The meds

> seem extreme as he is still on steriods, Plavix and asprin. I need

to

> hear from other parents, any advise or ideas are welcome. Thank

you

> for your time.

>

>

>

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Hello Judy,

Try not to worry too much. I'm going to be starting treatment soon. Just

had the results of a cat scan (no problems).

I found out an interesting thing from the VA. Seems that I have the one

(most common in the U.S.) type that is difficult to cure. It was allegedly

only about 30% curable.

The VA told me that they were finding exceptionally high cure rates amongst

prisoners! So, they sifted through data and guess what? That tough type

has about an 80% *cure* rate! Why the differences? The prisoners were

controlled and had to take the medicine at the proper time and also couldn't

smoke.

So, I've been told I must quit smoking plus, when I start treatment, the

medications must be taken within one hour of the same time when they are

due. Follow this and expect an 80% cure rate.

Hang in there, the picture isn't as bleak as it has been painted in the

past. FWIW, I have a viral load around 300,000. I should be starting

treatment in the next month.

Best regards from Rochester, NY

Jim

new

I just got through praying the ry.

I am worried. My husband

just told me that I had a transfusion

with my son 25 years ago and

I may have hepatitis c from

what the doctor said but

he took 2 more tests to

find out how severe the hepatitis.

I was in denial. I am scared.

Judy

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Hello Judy,

Try not to worry too much. I'm going to be starting treatment soon. Just

had the results of a cat scan (no problems).

I found out an interesting thing from the VA. Seems that I have the one

(most common in the U.S.) type that is difficult to cure. It was allegedly

only about 30% curable.

The VA told me that they were finding exceptionally high cure rates amongst

prisoners! So, they sifted through data and guess what? That tough type

has about an 80% *cure* rate! Why the differences? The prisoners were

controlled and had to take the medicine at the proper time and also couldn't

smoke.

So, I've been told I must quit smoking plus, when I start treatment, the

medications must be taken within one hour of the same time when they are

due. Follow this and expect an 80% cure rate.

Hang in there, the picture isn't as bleak as it has been painted in the

past. FWIW, I have a viral load around 300,000. I should be starting

treatment in the next month.

Best regards from Rochester, NY

Jim

new

I just got through praying the ry.

I am worried. My husband

just told me that I had a transfusion

with my son 25 years ago and

I may have hepatitis c from

what the doctor said but

he took 2 more tests to

find out how severe the hepatitis.

I was in denial. I am scared.

Judy

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  • 2 weeks later...

hi judy,,,,,,first don't worry Stress wrecks havoc with the immune

system that is already weak if you do have it. Have you had blood work

done to see what geno type or what your viral load is? Has there been

any tests done at all? If you have it your husband has it too. I need

more info before I can give you any advice except to just calm down and

get the tests done. Your child may be spared if the blood you recieved

was tainted. I myself had a complete transfusuion in 1972 while in the

Army after my ulcer ruptured. I myself am a veteran as well and the VA

has done many vets wrong. I tested positive in 1999 at my VA medical

center. It was 2004 before anyone told me or refferred me for treatment.

Luck was with me because during that period I was very sick for months.

My body cleared the virus partly due to my life changes such as quiting

smoking and drinking and eating healhty along with vitamins and fruits.

So just wait for the results and you and your husband have got be

together on this one. All I want you to do is research the medicines

available and side effects that can be worse than the disease itself.

Just find a quiet place and meditate on your self you can overcome this

disease. I did it without the meds, but not everyone can clear the virus

by themselves. My cousin had to take the treatments and he came thru

with flying colors and there are others that can share their stories who

have over come. Peace love and Light ,,,,,,

=====================

Posted through Grouply, the better way

to access your like this one.

http://www.grouply.com/?code=post

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hi judy,,,,,,first don't worry Stress wrecks havoc with the immune

system that is already weak if you do have it. Have you had blood work

done to see what geno type or what your viral load is? Has there been

any tests done at all? If you have it your husband has it too. I need

more info before I can give you any advice except to just calm down and

get the tests done. Your child may be spared if the blood you recieved

was tainted. I myself had a complete transfusuion in 1972 while in the

Army after my ulcer ruptured. I myself am a veteran as well and the VA

has done many vets wrong. I tested positive in 1999 at my VA medical

center. It was 2004 before anyone told me or refferred me for treatment.

Luck was with me because during that period I was very sick for months.

My body cleared the virus partly due to my life changes such as quiting

smoking and drinking and eating healhty along with vitamins and fruits.

So just wait for the results and you and your husband have got be

together on this one. All I want you to do is research the medicines

available and side effects that can be worse than the disease itself.

Just find a quiet place and meditate on your self you can overcome this

disease. I did it without the meds, but not everyone can clear the virus

by themselves. My cousin had to take the treatments and he came thru

with flying colors and there are others that can share their stories who

have over come. Peace love and Light ,,,,,,

=====================

Posted through Grouply, the better way

to access your like this one.

http://www.grouply.com/?code=post

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  • 1 month later...
Guest guest

hi melissa,

I've 5 y/o son also diagnosed of cholesteatoma. This 26 March i will see the

doctor in Singapore to discuss the detail of the operation procedure, and by the

way i'm in jakarta-indonesia.

Very sad that this is happenning to our children but we have to be strong

especially in front of them.

I will let you know what the doctor will be saying just for your input.

And what the doctor going to do with your son.

johanes

>

> Hello,

> My 4 y/o son was diagnosed last wk with a cholesteatoma in his left

> ear. Found this group and am happy to have the information and support.

>

>

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  • 4 months later...
Guest guest

>

> I am an IT person and addicted to computers also . I love computers and game,

my children love them too.

This is not addiction, this is simply using computers a lot. Getting a lot of

use out of something is not the same as being addicted to it. Addiction is when

you are doing something destructive to your life. It is compulsive and beyond

one's control.

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Guest guest

Thank you! I agree, my daughter is extremely smart, and the computer is

definitely something she is comfortable with, she has friends on the computer

and can act anyway she wants to act without the fear of being made fun of.

The downfall is that this is the only thing she wants to do. I want her to be

albe to interact at family functions and to do things like read books, go for

walks outside, and things like that. But when I let her have all the time she

wants on the computer, that is the only thing she wants to do. I can't get her

to do anything else. I'm hoping by restricting her time she'll be able to

explores other things and be able to be socially active with at the least her

family.

I've always thought that since my daughter is technologically inclined on the

computer that she will grow up to have a wonderful job that she loves, by doing

something with computers. I do think her speding time on the computer

definitely has its advantages too.

Again, thank you for your reply, I really appreciate it!

>

>

>

> Hi,

>

> I think that you daughter is very smart and she will be very successful if you

guide her computers skills positively

>

>

> I am an IT person and addicted to computers also . I love computers and game,

my children love them too.

>

> .

> I watch the news in my pc, I socialized in my pc, I do my banking in my pc,

etc.

>

>

> In the computer world everybody belongs to the same race, everybody wears the

same clothing. Nobody call you “weirdâ€. People accept you the way you are…

> I express myself better using a pc because I am not afraid of the possibility

of people disliking me because of my look or color.

>

>

> I introduced my children to the computer world and now they are addicted to

games, computers, phone, etc.

> My son is 22 and when we see each other we play games together, sometimes we

search web sites to learn how to play the guitar and also we watch movies in our

pc.

>

> Using the pc my son learned to play the guitar; I learned how to program in VB

and how to set up my web page for my business and how to run an internet

business.

> Using the pc my daughter learned math and to play the clarinet.

> Using the pc I met the most wonderful friend I have in my life.

> Using the pc I keep contact with my family from Dominican Republic .

>

>

> I buy games for my daughter, playing those games she had learned to dance, to

be patience and to do well in math...

>

>

> I do not see anything wrong with using a pc or playing games all the time.

>

> The bad aspect is the social effects that computers could cause in some

people, but in my situation I have not time to be social.

>

> My aspergers girl sooths herself playing computers games. When she plays a

game she abstracts herself and travel to a place where she is accepted as she

is, where being “weird†is acceptable and sometimes “coolâ€.

>

>

>

> I also always keep track and monitor the web sites she goes to and she is well

train on internet securities.

>

>

> ( ) New

>

> Hello Everyone!

> My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line

support groups a long time ago, but life got busy and I know longer stayed

joined. I have been having a lot of hard times lately, trying to figure out what

is best for my daughter, and I constantly find myself at a loss. She is addicted

to the computer, has no friends, and wants to do nothing but play on her

computer. I'm worried, I want her to go and do things and spend time with me and

our family. She is the only child, I am divorced and she doesn't see her father.

We have a small family and most of them are not very supportive. I have a

wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do

to fill her time so she isn't on the computer as much. Any help would be greatly

appreciated.

> I am really looking forward to being back on this support group!

>

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Guest guest

Hi!

Yes, there are many, many good uses for the computer...I will say that....but like you said you monitor your child....I am not too sure how I can? Maybe I need to learn more...what I worry about is that my son doesn't want to do anything educational...he'll go on myspace or youtube ...rarely does he go to educational sights...and I worry what they are saying to each other on aim....or when they are texting. My son is a follower...and he gets things mixed up...say it jokingly when it should never have been said. I am so afraid that some father is going to come here and/or press charges.

I also want my son to get exercise...I don't want him inside all day. And, I do want my son to learn how to socialize....hopefully one day he will be working in the real world.

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: tfitzge134@... <tfitzge134@...>Subject: Re: ( ) New Date: Monday, July 20, 2009, 2:09 PM

Hi,

I think that you daughter is very smart and she will be very successful if you guide her computers skills positively

I am an IT person and addicted to computers also . I love computers and game, my children love them too.

.. I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc.

In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… I express myself better using a pc because I am not afraid of the possibility of people disliking me because of my look or color.

I introduced my children to the computer world and now they are addicted to games, computers, phone, etc.My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc.Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business.Using the pc my daughter learned math and to play the clarinet.Using the pc I met the most wonderful friend I have in my life.Using the pc I keep contact with my family from Dominican Republic .

I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math...I do not see anything wrong with using a pc or playing games all the time.The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€.

I also always keep track and monitor the web sites she goes to and she is well train on internet securities.

( ) NewHello Everyone!My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful

boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated.I am really looking forward to being back on this support group!

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Guest guest

I agree with both sides...computers are good but they also can be bad....I find kids at school say whatever they wnat on mySpace....they tell lies or mean things to each other...and this is when it becomes harmful... I have seen fights at school over things said on MySpace. I feel we are losing human contact...that we all could live in little bubbles...never see each other face to face and survive. I guess this could be good for some ...but not the entire world. It is confusing me alot...and I do worry because my son is 13 going on 19 but sometimes he is 5 or 6. I have already had one mother call me because my son called her a slut ...why...because she broke up with his best friend...and of course the girls had to run to the assit. principal....OMG...it is okay the things they do or say to my son...but my son does something and they are

up in the office in 2 seconds. And, to beat it all, he was angry becuase she hurt his best friend...he thought he was right...he was protecting his friend. And, this is how my son always gets in trouble....he just doesn't get the whole social thing...and I could tell him why this way wrong etc. ....and practice it but then something else pops up and he is back in trouble...like when he told the girl to stop making fun of his other friend and if she didn't he would spit in her hair...she didn't stop, so he spit in her hair...he warned her....and of course the girls ran to the offce and tattled on him....it was one heck of a year.....they borrowed his good hoodie...fuzzy inside and I paid a lot of money for it ...and then they never gave it back...it disappeared...and somehow the girl didn't have it. And, get this...she did bring back 2 of his other less expensive jackets. And, then the mother calls the school guidance office and

tell them to tell my son to stop giving the girls his jackets. They ask him to wear it ...and he lets them even after I told him not to do it. He even let the girl he hates wear his good one and now he doesn't have it any more. It is gone and he doesn't seem to care...and has not learned anything. Well, I told him I am not buying another one. He loans things out, doesn't keep track of them or ask for the items back. So, I told him,,,,i am done buying...if he wants something he needs to earn it.

Well, I have gotten off track....I agree with both sides and I think I need to limit him...he is such a different kid when he is not on Xbox, computer or texting. He just can not handle the social scene....even though he wants to be in it...

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: marypetrovic <marypetrovic@...>Subject: Re: ( ) New Date: Monday, July 20, 2009, 2:51 PM

Thank you! I agree, my daughter is extremely smart, and the computer is definitely something she is comfortable with, she has friends on the computer and can act anyway she wants to act without the fear of being made fun of. The downfall is that this is the only thing she wants to do. I want her to be albe to interact at family functions and to do things like read books, go for walks outside, and things like that. But when I let her have all the time she wants on the computer, that is the only thing she wants to do. I can't get her to do anything else. I'm hoping by restricting her time she'll be able to explores other things and be able to be socially active with at the least her family.I've always thought that since my daughter is technologically inclined on the computer that she will grow up to have a wonderful job that she loves, by doing something with computers. I do think her speding time on the computer definitely has its

advantages too.Again, thank you for your reply, I really appreciate it! >> > > Hi, > > I think that you daughter is very smart and she will be very successful if you guide her computers skills positively > > > I am an IT person and addicted to computers also . I love computers and game, my children love them too. > > . > I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc. > > > In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… > I express myself

better using a pc because I am not afraid of the possibility of people disliking me because of my look or color. > > > I introduced my children to the computer world and now they are addicted to games, computers, phone, etc. > My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc. > > Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business. > Using the pc my daughter learned math and to play the clarinet. > Using the pc I met the most wonderful friend I have in my life. > Using the pc I keep contact with my family from Dominican Republic . > > > I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math...

> > > I do not see anything wrong with using a pc or playing games all the time. > > The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. > > My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€. > > > > I also always keep track and monitor the web sites she goes to and she is well train on internet securities. > > > ( ) New > > Hello Everyone! > My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated.

> I am really looking forward to being back on this support group!>

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Guest guest

I have a son, , who is 12 and is on the computer all the time. AGG. He

does seem to have a few friends who are like-minded. I have to work to get him

outside, but he WILL go out and then has a good time. Mostly, he wants to be on

the computer. UGH.

Miriam

>

> Hello Everyone!

> My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line

support groups a long time ago, but life got busy and I know longer stayed

joined. I have been having a lot of hard times lately, trying to figure out

what is best for my daughter, and I constantly find myself at a loss. She is

addicted to the computer, has no friends, and wants to do nothing but play on

her computer. I'm worried, I want her to go and do things and spend time with

me and our family. She is the only child, I am divorced and she doesn't see her

father. We have a small family and most of them are not very supportive. I

have a wonderful boyfriend who treats her wonderfully. But I am at a loss on

what to do to fill her time so she isn't on the computer as much. Any help

would be greatly appreciated.

> I am really looking forward to being back on this support group!

>

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Guest guest

It's not always a bad thing, you know. My 20 yo was just like that once we got connected to the internet. He prefers to be on the computer. He has HFA and is not good with people overall. So trying to make him change is not something that could be done. Sure, we did social skill programs, speech therapy for many years...he just will never be a people person. I don't think you should give up trying to find a balance in life for the kids, but if you are starting out with a kid who is so off balance, you might eventually realize that what is considered "balanced" for NT kids is not the same for your kid, who has special needs and ways of dealing with things. The trick is to find a "balance" that suits the child, not a balance that is considered "NT" by most people. So work with that in mind. My ds later attended a computer program for two years and he excelled in it and got several professional certifications already. He finished at the top of his class. He got in the top ten in a national competition. He will be making computers his job in life. So in looking back, I think I freaked out more than I should have.

I don't always believe that these games are good places to learn social skills - that's something you should attempt in real life. <g> But also work with the child's strengths as you go along.

Roxanna

"The only thing necessary for the triumph of evil is for good men to do nothing." E. Burke

( ) Re: New

I have a son, , who is 12 and is on the computer all the time. AGG. He does seem to have a few friends who are like-minded. I have to work to get him outside, but he WILL go out and then has a good time. Mostly, he wants to be on the computer. UGH.

Miriam

>

> Hello Everyone!

> My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated.

> I am really looking forward to being back on this support group!

>

An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!

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  • 4 weeks later...

welcom keinne. what sort of herbal treatment you are getting.,explain in details. swammy

From: key_adamcomer <key_adamcomer@...>Subject: [ ] new Date: Wednesday, August 19, 2009, 12:27 AM

Just wanted to say hi to all. i'm new here but i've been hepC+ for about 2 years now. no treatments as of yet. I take a herbal supplement and have been pretty lazy about any sort of specific treatment. anyway, just wanted to introduce myself. My names keianne by the way.

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  • 4 months later...

Hi,

I've been using LDN for my Hepatitis C virus with great results - I also have fibromyalgia, RA, Sjogren's, and IBD. Started using 3 mg. LDN in February and today am feeling much, much better! My viral load dropped, fibro is 100% better, RA and Sjogren's levels dropped and my IBD has gone away. I also am on a gluten/dairy free diet which alone helped the IBD.

I saw Dr. Berkson who put me on the LDN - here is one of his presentations from the recent LDN Conference - this video is about LDN and Lupus:

RA - SLE (Lupus) -

5)

Good luck - hope this helps!

Nola Chris

In a message dated 12/26/2009 1:36:34 P.M. Central Standard Time, valentinaeugenia@... writes:

Thank you very much for the info, it helps tremendously to know that other people lupus are taking LDN and feeling better. Please other people with lupus and on LDN let me know how you feel and what you think of LDN. Thank you so much

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  • 2 weeks later...

Hi Caz:

My name is . I am from England too. I live in America. You do not say where you live now. That is ok. We can gain perspective with different places we have grown up in. I am 50 years old.

I forget that this email thing can be so un private. No response on your part, I would of course be understandable by me.

( ) New

hi i'm new here i am caroline nickname caz, 25years old i like to meet some others like me, i am from england take care hope to chat to some of you soon and to get to now you, caroline

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  • 2 weeks later...

Hi ,

I am a mom who just started this process about a week ago and my 22 month

old is going through it with me as well. I take my coconut oil on a teaspoon

and just eat it straight. I started with 1/8 tsp 3 times a day and have

slowly progressed as I feel I am able to. Once I can handle enough I will

start to cook with it but for now in such small amounts it is easier to take

it straight.

So the simple quick step, for those of you who started out using coconut

> oil, how did you take it? Straight on a spoon? I use coconut oil on my face

> to clean it, and I notice the nights I do this I wake up with a horrible

> taste in my stomach, which I know is die-off related so I'm a bit scared to

> try ingesting it.

>

>

>

>

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I mainly just eat the CO from a tbl spoon with each meal if the die off isn't to

severe that day. Also I rub about a tbl CO on to my skin after a hot bath to

help my skin from being so dry.

“To eat is a necessity, but to eat intelligently is an art.â€

- La Rochefoucauld

 

April Rain

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Thanks for the tip ! Hope all is well with your LO as well. Ours was

pretty easy to get under wraps because she was on breastmilk for almost a year

and only on solids for 4 months or so before we knew what was happening. After

a few weeks of treatment and diet change, she was back to normal. We changed

both of their diets though, because why torture myeslf more!

One probiotic pill last year had me sick in bed for a week. So I know I have

lots and lots to learn.

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>

> Hello all, I just wanted to introduce myself. My name is and I'm a mom

to two little ladies who are 22 months old.

+++Hi . Welcome to our group. That's wonderful you have twin girls!

One of my daughters had/has candida and we were able to combat it. However

after further reading, it seems that if the child has it, it is likely the

mother has it. So after reading about some symptoms in adults, it matched me to

a T. So here I am. :) I tried going straight to probiotics in the fall, but

had horrible horrible die off symptoms so I obviously wanted to start slower and

do it right this time. I'm looking forward to learning more and getting

started.

>

> So the simple quick step, for those of you who started out using coconut oil,

how did you take it? Straight on a spoon? I use coconut oil on my face to

clean it, and I notice the nights I do this I wake up with a horrible taste in

my stomach, which I know is die-off related so I'm a bit scared to try ingesting

it.

+++Ensure you start with small amounts, like 1 teaspoon with meals 3 times a

day, and increase it slowly. Many people take it by the spoonful, particularly

in the beginning since they shouldn't take too much. Many people like Bee's Egg

Drink for breakfast, and then take CO by spoonfuls at lunch and dinner time.

+++Of course the diet and taking supplements are most important!

+++Please ensure you read two important articles so you understand candida, and

know what you need to do and why:

1) How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

2) Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The best in health, Bee

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