Introduction

[Guest guest]

Get in touch with Dr. Burt Berksen.  See attached.

[Moderator's note: The Group's system does not allow attachments to come

through]

I am new to this group and wanted to introduce myself. I'm 41, married with

7 kids. I live in WA state up by Seattle. I was just diagnosed with breast

cancer. I also have Lupus, Crohn's, high blood pressure, pulmonary

hypertension and PCOS. About a year and a half ago my health just started to go

down hill. I started with a cough I couldn't shake, then had blood clots in

my arms, my medication was not working. It finally got so bad this April I

had a portacath put in. The doctor messed up the surgery so two weeks later

I had the surgery done again to fix it. After the surgery my body just gave

up. I was sleeping 24 hours a day. My husband would come in and wake me up

to use the restroom, take my medication and try to get me to eat

something. I gradually started staying awake more but was in a wheelchair. I was

going to physical therapy and had just got to where they were going to move me

to a walker when I got the flu. That set me all the way back to where I

was right after surgery. The 2nd day of the flu my doctor called and said he

needed to see me. I said I was sick and he insisted so in I went with 5

sick little girl in tow. That's when they told me I had breast cancer. The

surgeon is wanting to operate right away. He wants to do a lumpectomy with

radiation. My rheumatologist has said I can't do radiation because of the

Lupus. So now they are suggesting a mastectomy and chemo. My mom also had

Chron's disease. She also went on remicade and a year later came down with

breast cancer. She did have a lumpectomy and radiation. 6 months later the

cancer came back and was agressive. It had spread to her bones, liver and lungs.

She passed away about a year after she was first diagnosed. I've felt

doomed and waiting for the day the doctor would tell me I had breast cancer.

While trying to educate myself I stumbled across the budwig diet. I am trying

to learn as much as I can and am thinking of trying it before letting the

doctors operate.

Kathy

[Guest guest]

Step back and take a deep breath. Nobody wants DCIS but DCIS is no longer

considered the horror it was once made out to be. I do not mean to minimize

your concern and it does not mean you should not do everything you can to assure

it doesn't develop but again, step back and of course everything you do will be

your decision yet I urge you to research as much as possible and do not be

pushed into action without doing that.

About 13 or maybe 15 years ago my wife had what they then explained were

'seed-like' concerns (DCIS) and a friend Gynecologist referred her to three

surgeons to select from for consultation. He did the biopsy and suggested

immediate surgery. Then her Mammography person advised her to NOT let them do

surgery but rather 'watchful waiting'. Let me add that she has not had a

Mammography since that time (her decision).

The same thing happened more than 20 years ago over a large Uterine fibroid

tumor which the friend Gyro suggested unless it became unbearable, she could

'wait and see' because, he said, most will be gone after

Menopause. He was right. I know Gynecologists that order surgery if a woman

'spots' (has a drop of blood).

One of them that discovered the fibroid tumor actually picked up the phone while

she was on the examination table. My wife almost jumped off the table and

suggested she wanted to speak to me about it. By large I mean almost grapefruit

size.

That is when she went to the Gyno that suggested a 'wait and see' approach.

Not all are totally hungry and have no hesitation to slice one up for profit.

Good luck in your research and maybe one of the list 'experts' will suggest

other approaches.

Joe C.

[Guest guest]

I have no idea if this would help, but you could look into CMO (cetyl

myristoleate).

http://www.youtube.com/watch?v=9pwAWb8YPiU

http://content.nhiondemand.com/PSV/monoAll-style.asp?objID=100883 & ctype=ds & mtyp=\

4

http://www.revolutionhealth.com/drugs-treatments/rating/cetyl-myristoleate-cmo

http://www.revolutionhealth.com/drugs-treatments/rating/cetyl-myristoleate-cmo-f\

or-lupus

Also enzymes, particularly articles by Dr. Wong

http://www.totalityofbeing.com/index.html

There are so many other things that may help I wouldn't even know where to

start. Hopefully you can do your own research and find a way to perhaps get off

this horrible drug:

http://www.adrugrecall.com/remicade/remicade-side-effect.html

Why I find it important to do your own research:

http://alternativecancer.us/doctors.htm

" Plant based treatments cannot produce large profits because they cannot be

patented. Large profits are needed to pay for the expensive FDA approved

clinical trials. So plant based treatments never get FDA approval to treat a

disease. Your doctor can only prescribe treatments that are FDA approved. If

your doctor prescribes treatments that are not FDA approved, he or she can be

sued or lose their license. "

I am new to this group and wanted to introduce myself. I'm 41, married with

7 kids. I live in WA state up by Seattle. I was just diagnosed with breast

cancer. I also have Lupus, Crohn's, high blood pressure, pulmonary

hypertension and PCOS.

[Guest guest]

Hi Carla

I am so sorry is having a tough time with the induction phase. My son is 8 years old and was diagnosed about 22 months ago. also had many transfusions the first month but luckily did not have any serious infections so he was at home after 10 days of being diagnosed. Each child reacts differently and some phases are harder than others. Many kids with Down syndrome have a tough time during the first seven months of treatment but induction and DI usually hit kids the hardest. The first month was definitely the hardest for me emotionally but as time passes it gets easier and not as scary. Also, many kids with DS have a difficult time with the full dose on some of the meds so 's doctors will watch her closely and make that call. I am happy to hear she was an early responder at Day 15. Hopefully she will be home soon.

Jo

mom to

-----Original Message-----From: [mailto: ]On Behalf Of MayerSent: Sunday, February 28, 2010 9:59 PM Subject: [ ] Introduction

Hi,

I want to introduce myself as a new member to a group I really wish I didn't have to join. I am Carla with 2 daughters and . is 13 years old with DS and Autism. On Feb 5th she was diagnosed with leukemia, ALL. She is still in the hospital as of now and they say she will be there at least thru the induction phase of chemo. I am just learning all the terms so bear with me please. On her day 15 bone marrow test she showed less than 5% leukemia cells so she is in remission. However we are struggling with many infections and one was very serious. Her count just never seems to recover and she has had many transfusions lately. I am just feeling really discouraged about her ever getting to come home.

Please I would love to hear any stories of what to expect. This is all so new that I just don't have a clue and the doctors sometimes are pretty general.

Carla Mayer

NE Missouri resident

mom to , 13 yrs DS/Autism and Leukemia and 9 yrs

[Guest guest]

I just said "Hi" to you on the other ALL group, so I won't go into our whole story again. Glad you found this group too. I always forget to post a link to it when someone joins the ALL group and has a child with DS as well. Glad you made it over here.

Caringbridge.org/visit/chloemalena

[ ] Introduction

Hi,

I want to introduce myself as a new member to a group I really wish I didn't have to join. I am Carla with 2 daughters and . is 13 years old with DS and Autism. On Feb 5th she was diagnosed with leukemia, ALL. She is still in the hospital as of now and they say she will be there at least thru the induction phase of chemo. I am just learning all the terms so bear with me please. On her day 15 bone marrow test she showed less than 5% leukemia cells so she is in remission. However we are struggling with many infections and one was very serious. Her count just never seems to recover and she has had many transfusions lately. I am just feeling really discouraged about her ever getting to come home.

Please I would love to hear any stories of what to expect. This is all so new that I just don't have a clue and the doctors sometimes are pretty general.

Carla Mayer

NE Missouri resident

mom to , 13 yrs DS/Autism and Leukemia and 9 yrs

[Guest guest]

Welcome. My name is Connie Gliott and I have a son GLiott diagonsed with PRe-B ALL Aug 2007. We are actually sitting in the hospital now ourselves waiting for him to have an esophogeal dilatation and a spinal tap with chemo. The first year is a rough one, but it gets better. had a rough first eight months himself. He was hospitalized several times being nutripenic, and/or infections. He has had lots of GI issues and has a feeding tube now. It has been a life saver for him. He will be done with treatment in December and I am counting the days. Boys have almost a year longer in treatment than girls, so that's a blessing. I found that you have to look at the positive every day, and being in remission with less thena

5% blasts on day 15 is a good thing. You found a great group with lots of valuable information. We are all praying for your family.

Connie Gliott

DS age 7

From: "sunshels@..." <sunshels@...> Sent: Mon, March 1, 2010 5:27:00 PMSubject: Re: [ ] Introduction

I just said "Hi" to you on the other ALL group, so I won't go into our whole story again. Glad you found this group too. I always forget to post a link to it when someone joins the ALL group and has a child with DS as well. Glad you made it over here.

Caringbridge. org/visit/ chloemalena

[ ] Introduction

Hi,

I want to introduce myself as a new member to a group I really wish I didn't have to join. I am Carla with 2 daughters and . is 13 years old with DS and Autism. On Feb 5th she was diagnosed with leukemia, ALL. She is still in the hospital as of now and they say she will be there at least thru the induction phase of chemo. I am just learning all the terms so bear with me please. On her day 15 bone marrow test she showed less than 5% leukemia cells so she is in remission. However we are struggling with many infections and one was very serious. Her count just never seems to recover and she has had many transfusions lately. I am just feeling really discouraged about her ever getting to come home.

Please I would love to hear any stories of what to expect. This is all so new that I just don't have a clue and the doctors sometimes are pretty general.

Carla Mayer

NE Missouri resident

mom to , 13 yrs DS/Autism and Leukemia and 9 yrs

[Guest guest]

My kids, who are 13 and 11.5, were both diagnosed last summer. (Aug 09).  They

contracted during pregnancy.  My older daughter had leg pain and the doctor

attributed to growing pains.  She exploded into a horrible flare at age 8 and

it has been a hard 5 years since then.  Her little sister was all neuropsych

symptoms, then in the last couple of years has had leg pain and stomach

issues.  I would get my son to a LLMD asap if I were you for proper diagnosis

because it will be a long road if you don't get him treated (if he needs it). 

If I had known about Lyme (I contracted from my husband, we were only diagnosed

in October after we figured out the girls must have had it since birth). I would

have treated the girls way sooner so they could have enjoyed their childhoods

more.

Natasha

From: throughgrace97 <TriciaSod@...>

Subject: [ ] Introduction

Date: Wednesday, April 7, 2010, 3:42 PM

 

Hello, my name is Tricia. I am being treated for Lyme as well as my 12

year old daughter. She has been treated since August '09 and has not been

tested for coinfections yet.

I'm also wondering if anyone has experience with Lyme contracted during

pregnancy. My symptoms started when I was pregnant, my son is now almost 3.

His western blot was negative but CD57 was very low. Of course the doctor would

not treat. I'm not sure where to go from here. He has monthly leg pain but

that is the only symptom he has.

Tricia

[Guest guest]

Hi Tricia,

I don't have experience during pregnancy but we believe that I unknowingly

passed it to my two sons.  My younger son's WB was negative but at age 8 he

started getting very sick.  My older son had MINIMAL symptoms yet tested CDC

positive.  Looking back, I remember stomach aches and general, once-in-a-while

pains with both of my kids.  I'd advise you to find a Lyme literate doctor for

your son.  You can look on lymedisease.org to find a doctor in your area. 

Best wishes,

Elaine

________________________________

From: throughgrace97 <TriciaSod@...>

Sent: Wed, April 7, 2010 3:42:44 PM

Subject: [ ] Introduction

 

Hello, my name is Tricia. I am being treated for Lyme as well as my 12 year old

daughter. She has been treated since August '09 and has not been tested for

coinfections yet.

I'm also wondering if anyone has experience with Lyme contracted during

pregnancy. My symptoms started when I was pregnant, my son is now almost 3. His

western blot was negative but CD57 was very low. Of course the doctor would not

treat. I'm not sure where to go from here. He has monthly leg pain but that is

the only symptom he has.

Tricia

[Guest guest]

I got Lymes congenitally and I gave Lyme to my son congenitally. It

is very congenital by the way. If a doctor tries to tell you it's not

just ask how it is different than syphilis? Sexually and congenitally

transmitted both by spirochetal bacteria??? They also BOTH cause

infertility!! Syphilis is always the very first thing a Gyn will

check for infertility problems. Ahh, It always puts a stumped look

on their face. Because the CDC's big bible they look at gives

basically no information at all.

We had very low CD57's also. Symptoms are sometimes brought out by

hormone changes (with me they were). Puberty and then later Postnatal

was the explosion for me, both hormone driven. My child had an

equivical test result. (some opinions, not all, think that means

positive or past positive or dormant positive.) My LLMD said that if

you give your child a preliminary treatment of antibiotics (6

weeks)and they don't develop any herxheimer reactions or symptoms at

all then they may not have it. BUT if they do develop symptoms in

about 3 weeks (3 weeks on the nose for my child) chances are you just

woke up the dormant spirochetes and activated them. At that point you

must continue treatment and it's better to treat as a child. Children

tend to be different with their symptoms too. Most tend to have some

neurological effects like sensitivity to emotions for no reason,

crying for no reason, besides the joint aches, hives, etc. Always

remember that everyones symptoms vary. Some can have a few mild

symptoms, some have many severe.

The big difference for you is what kind of Specialist you are going

to. LLMD's are usually always current with the latest treatments

where " regular docs " are going to maybe refer to a specialist or

worse... their CDC bible. Good luck.

Suzanne

On Apr 7, 2010, at 5:42 PM, throughgrace97 wrote:

> Hello, my name is Tricia. I am being treated for Lyme as well as my

> 12 year old daughter. She has been treated since August '09 and has

> not been tested for coinfections yet.

>

> I'm also wondering if anyone has experience with Lyme contracted

> during pregnancy. My symptoms started when I was pregnant, my son is

> now almost 3. His western blot was negative but CD57 was very low.

> Of course the doctor would not treat. I'm not sure where to go from

> here. He has monthly leg pain but that is the only symptom he has.

>

> Tricia

>

>

>

[Guest guest]

Thank you for all the replies! I'm going to follow through with my 2 year old

as well as my 8 year old. She has been having OCD type behavior as well as

strange rashes. I have an LLMD but she does not take insurance. I'm sure most

don't.

[Guest guest]

, it sounds like you are doing some good things! Your daughter sounds very Aspie and just like my daughter. I feel your frustration . From: tandypierce <tandypierce@...> Sent: Fri, August 20, 2010 11:15:22 AMSubject: ( )

Introduction

Hello everyone. My name is and I am the mother of a 10 year old daughter adopted at age 3.5 years from a foreign orphanage. To say that our life has been changed dramatically since her adoption is a huge understatement of facts. From the time we brought her home, we knew that she had and would most likely have more issues. Since we first met her, we could sense that she found it necessary to be "on" --- that she was somehow in a performance of sorts that no one else was aware of.

Over time, we have run the gamut of "suspicions" and even diagnoses of what we are dealing with: "just a spunky personality", then a misbehaving child that just needs a good spanking, that she is a defiant child who knows what is right and refuses to do it. At the beginning of last school year (4th grade), it became clear that I needed to get some solid information. She attends our church-sponsored private school. It is a good school, but being smaller (about 400 students grades 1-12), there are no special services nor special classes. Unfortunately for us, her teacher last year (there was only one 4th grade class) was completely resistant to any suggestions to help her perform better in class. The good news is, she did pass to 5th grade after taking math in summer school and her teacher this year is much more receptive to helping us and helping her, though she has the constraints of the typical mainstream classroom.

Backing up, we had her tested both by our local public school system and a private psychologist. She tested positive for ADHD and mild OCD. We chose not to medicate and instead try behavior modification, with only limited success. At some point, I happened across some information about AS. As I read the typical behaviors, I was astounded at how much it sounded exactly like my child! After researching it, I feel 99.9% sure that she is an undiagnosed Aspie.

Some things we experience/deal with:

• Extremely literal – she literally has no clue about idioms, jokes, etc.; if you say "that bulb blew" she will counter with "no, it is white, it's not blue". You can explain that ONE issue to her and she will get it, but it will not translate into the next instance at all.

• Judgmental/corrects adults – this goes over horribly with the adults in her life – parents, grandparents, teachers, etc. I believe she truly doesn't understand that it is wrong to do this. Her tone of voice is so condescending when she attempts to "correct" you. And even when proven wrong in her attempt, she will maintain that she is right.

• Multi Tasks is impossible – if you tell her to pick up her socks to take to her room and turn off the light, she will do one but not both. When reminded, she will look so blank as if she never heard you tell her to do the other task.

• Lack of friendships – she has few friends at school. When she has asked someone over in the past, many times an excuse is given and it is clear to me that they do not want to "deal with her" over an extended time.

• Meltdowns – she has extreme meltdowns over homework situations. We realized last year that it is important to break down large assignments into small "bites" for her. To show her two workbook pages to do can send her into a spiral downward in a heartbeat. I have come to recognize when she has reached the "no return" point and will redirect her to another activity temporarily – usually a nice shower and then lavender lotion to calm her down. After that, she can usually return to the task which I have broken down and she will usually apologize and say she knows she "lost it".

• Totally unorganized – this has been huge in the area of homework, as she cannot do something because she doesn't have some item necessary. We have combated this by setting up a homework room that has her desk, a plastic dresser with supplies needed, and we even burn a lavender calendar. She has to be away from all distractions in the home.

Reversing words - "left" for "right"; "full" for "empty"; "too big" for "too small". Most everything is switched.

The biggest struggle for me has been my husband's lack of acknowledgement of the problem. He grew up in a family where anything behaviorally or mentally wrong was dismissed. I think it is a pride issue. Just last night, he had a conversation with a co-worker whose son has Autism. I think it opened his eyes and he told me he shared with the co-worker that we suspect our daughter has AS. This is a huge step for him and I believe for our family.

That being said, his being on board changes little for what I must do. I am open to any and all suggestions but here is what I am doing and am about to begin doing:

• Follow the most consistent schedule that we can. Mornings are already pretty tightly routine at our home. Everything is done at basically the same time and in the same order. I cannot mention to "hurry" or DD gets upset that we are late and she is obsessive about being on time to school. We leave within a 4 minute time period every day.

• My husband has a rotating schedule so he has picked her up from school when on night shift and then had to let her go to an aftercare program when on day shift. We are going to a strict schedule of aftercare every single day. I will be the one to pick her up every day, even when her father could do it. Again, consistency.

• She will sit at the bar in the kitchen while I cook dinner and read out loud with dictionary nearby to look up words. I will be right there to help her with pronunciations and to encourage.

• After a dinner routine of eat and clean up, we will go to the homework room with the door shut to block out any noise. I have set up 2 periods of 30 minutes each with a 10 minute break in between. She should get her homework done in one period. If so, she can do reading the next period. After that, she has free time until it's time for bath. She will have her bath at 8:15, dress for bed, we will do family devotions and if time before bedtime (9:00), she can play her video game.

Thanks for letting me post this long introduction. I look forward to interacting here.

[Guest guest]

Hundreds of thousands of parents say it IS vaccines and there is a link, but

governments turn a deaf ear. When you consider how much money politicians

get from drug companies, how doctors schooling is funded by drug companies,

how hospitals are heavily funded by drug companies, it is no wonder they

would not want to bite the hand that feeds them.

Mercury is in the flu, tetanus, rabies, and traces are in all non-live virus

vaccines which are all MANUFACTURED still using thimerosal. The vacs which

are in multi-dose vials STILL must contain a preservative, as opposed to

creating single-dose vials which would not require a preservative (but this

would lower their profit margin, so they won't do this and err on the side

of caution). the other preservative is Aluminum which causes neuronal cell

death. These are BRAIN cells. Guardasil is FULL of aluminum. Deaths have

been reported (and paid for through the NVCP) and MANY many case of Guillain

Barre' syndrome --a very very bad side effect of many vaccines which causes

paralysis.

Vaccine reaction is grossly under reported. You can see a sample here:

http://www.hrsa.gov/vaccinecompensation/statistics_report.htm

[Guest guest]

Mercury can come from many sources. Vaccines are just one source.

I believe it is like a domino effect, with the babies getting the first dose

from their mother who is toxic from amalgam fillings, diet, and other exposure.

The mercury gets into the baby in the womb and affects the very organs that help

it detox, like the liver and kidneys, and of course the brain.

Then they are born and start collecting more mercury and other metals from the

environment and Vaccines.

TJ

________________________________

From: formy2littleboys <formy2littleboys@...>

Sent: Mon, September 13, 2010 6:32:09 AM

Subject: [ ] introduction

 

Hi,

I'm . I have 2 boys. One has been diagnosed with autism. I have been

investigating the link between vaccines and autism and am sometimes even more

confused. Like today I saw an article saying that all murcery has been removed

from vaccines except for flu and more (gov't?) studies saying there is no link.

But than I've read a general article (to become a book) that says there is

little to no autism amoung the un-vax'd (where they say the nurcery is coming

from). I intend to read all the articles sent to me when I joined the group. I

just wanted to post who I am and where I stand right now. I look forward to

learning more.

Thanks

[Guest guest]

Hi Carol,

You are quite active and thorough... love it.

Before you decide on ritalin, try alternatives like cal/mag or l-theanine or

diet (Feingold is one; removes dyes and preservatives). There are a lot of

people here who manage ADD/ADHD/anxiety without pharmaceuticals. Sometimes,

though, you just need them.

As far as vaccines and mercury goes, I also am convinced that vaccines can harm

regardless of their mercury content. To expect an undeveloped immune system

(infants) to have an appropriate immune response to a host of agents is just

ridiculous. What goes on in the brain and GI tract when the immune system is

challenged beyond capacity or injured weighs heavily on my mind.

Don't expect to see any mercury in the blood unless you have recent exposure. A

hair test could be helpful to you. Doctor's Data (DDI) is what many of us use;

Hair Elements test. I would use the current hair on his head.

Few of us have the support of mainstream doctors and insurance companies. I

would not worry about convincing them at this point. Much of what you can do is

done without an MD and can be done quite inexpensively (relatively speaking).

We do not use insurance for anything outside of routine medical care.

Sounds like your son is quite spectacular! As he ages, you probably will start

to see more social struggles. Since he sounds like he comprehends quite well,

you might find some help with social stories (you can make them yourself) to

help 'teach' him how to respond appropriately and/or to prepare him for

transition.

good luck to you; and welcome to the group.

Pam

>

> Hi,

>

> I am new here. My son is 5.9 years old. His development seemed quite normal

> up to around 18 months. He was at his worst around 3. We learned he had

> severe milk allergy around 4. We had him tested also for gluten and casein

> peptides -- negative. He started special ed at 4 with a diagnosis of

> language disorder. He does have sensory issues and I would say mild autism

> (whatever that means). He has a recent medical diagnosis of PDD. Although

> other professional evaluators disagree, and say he is NOT PDD and that is a

> mislabeling. I have kept these labels out of his school paperwork. He is

> very intelligent. His language is now considered within normal range. At 5

> years old, he reads at a third grade level (completely self taught and with

> comprehension). He no longer has an IEP and I am fearful of how he will

> handle himself socially. He definitely has problems with attention and

> focus, and I have been considering ritalin.

>

> We had the mercury blood test done last week and it was negative for mercury.

> I refused his Kindergarten boosters with a religeous exemption.

>

> I am wondering what my next step should be. I have had little to no support

> from doctors and insurance companies. But I plan to continue with testing.

> I do not believe that my son was born with these issues.

>

> I also had an MRI done a couple of months ago, and was told it was normal.

>

> Would it be wise now to have a hair test done from his first haircut (13

> months)? Can you recommend a lab? Should I have it analyzed for something

> other than mercury?

>

> In reading the article at the ARI site regarding mercury poisoning, I find

> alot of my son there. Previous testing through the Great Plains Lab also

> showed low levels of glutathione.

>

> Is there a class action suit going on against the manufacturer of the Hep B?

>

> Sorry for so many questions. Thanks.

>

> Carol Goodson

>

[Guest guest]

You know, it took the catholic church over 400 years to admit Galileo was right

when he said the planets go around the sun, not the earth. He was

excommunicated during his lifetime and only de-excommunicated about 10 years

ago.

I don't expect the medical establishment to admit their error (and e. g. give

Dr. Wakefield his license back) much faster than that.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

>

> Hundreds of thousands of parents say it IS vaccines and there is a link, but

> governments turn a deaf ear. When you consider how much money politicians

> get from drug companies, how doctors schooling is funded by drug companies,

> how hospitals are heavily funded by drug companies, it is no wonder they

> would not want to bite the hand that feeds them.

>

> Mercury is in the flu, tetanus, rabies, and traces are in all non-live virus

> vaccines which are all MANUFACTURED still using thimerosal. The vacs which

> are in multi-dose vials STILL must contain a preservative, as opposed to

> creating single-dose vials which would not require a preservative (but this

> would lower their profit margin, so they won't do this and err on the side

> of caution). the other preservative is Aluminum which causes neuronal cell

> death. These are BRAIN cells. Guardasil is FULL of aluminum. Deaths have

> been reported (and paid for through the NVCP) and MANY many case of Guillain

> Barre' syndrome --a very very bad side effect of many vaccines which causes

> paralysis.

>

> Vaccine reaction is grossly under reported. You can see a sample here:

>

> http://www.hrsa.gov/vaccinecompensation/statistics_report.htm

>

>

>

[Guest guest]

> >

> > Hi,

> >

> > I am new here. My son is 5.9 years old. His development seemed quite

normal

> > up to around 18 months. He was at his worst around 3.

This is about the most common history I see for children turned autistic by

their vaccines who respond to chelation.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

I have often thought of Galileo, too, when wondering how long it will take

for the truth to be accepted. I find comfort in knowing those who

persecuted Galileo aren't remembered such as he is!

We are all in good company.

[Guest guest]

Hi Sandy,My 7 year-old son is also very particular and limited about what he eats. We would go months and sometime years with his menu being exactly the same. I remember worrying so much about his choices. I had no idea it was an asperger trait. However, over the years, I've learned not to pressure him into eating difference food from what he wants to eat and he would relax and from time to time ask to taste something different, slowly adding to the list of food he would eat. Since he love to drink juice and smoothies, I would give him the nutrients he needed by give him green juices and fruit smoothies and vitamin supplements.Potty train also took us a while. Again, I had to ease the pressure and learn to follow his lead while gently encouraging him to use the potty/toilet. When we were home I would not let him wear any underwear or

diaper/pull-ups/. I started out with having the potty nearby as much as possible, then when he started going to it, moving it to the bathroom. He was very adamant about not using the toilet. We would talk about his resistance and that's when I found out he was afraid of the flushing sound of the toilet. So he was allowed to use the toilet without flushing for a very long time. It's only this year that he is now comfort with flushing the toilet himself. I must add that last fall he started receiving homeopathic treatments from a naturopathic doctor and that has helped a great deal with everything. He is still taking homeopathic remedies, where given what's going on with him, the remedy or the dosage would change. I am pleased with the results.It's been quite a journey with him and at times very overwhelming. However, I am quite fascinated with his love of learning and the depths which he would seek answers to his questions and find out

all there is to know about a particular topic/subject. I have been and continue to homeschool him, where we meet up with other homeschoolers on a regular basis for classes/workshops and field trips.Peace,OforiwaSankofa Child Books & Learning Center & Barefoot Books AmbassadorPlease visit my website, http://www.SankofaSpeaks.com & my webpage, http://Oforiwa-Idawa.barefootbooks.com/ ~Thank You for Your

Business!From: Sandy SANDIA <ssandiacr@...>Subject: ( ) IntroductionAspergers Treatment Date: Friday, September 17, 2010, 11:22 PM

Hi every one, my name is Sandy and I live in Costa Rica. My son is 3 years old (and 3 months) and has been diagnosed with AS, though I am still not quite sure of what AS is in him. I hope to help with my comments and also receive some feedback from you guys!!! Thank you for allowing me to share my thoughts!At first, I was told my baby was autistic, but then, as he grow, the neurologist diagnosed him with AS. He is very obsessive with food an has been eating the same lunch for about three months already: a cheese burger happy meal from mcds! We offer him all kinds of foods but he refuses everything. He is in his first year in pre school, and his teacher said he tried a bite of pizza! so we got him pizza but he still refuses to eat it. Besides being concerned about his food and how to make him abandon fries and cheese burger, I am worried about potty training. Teachers told us that next year he will have to go to the bathroom by

himself or he will have to go back to the first level with the smaller kids. We have been trying for about two weeks with no success. He goes to the toilet but does not tell us he did peed his pants or that he want to pee. He just goes when we take him (sometimes he even refuses). We are using regular underwear and it seems there is no difference for him. He acts the same way as if he was wearing a diaper.How long is this going to take. Will he be able to go to the next level in school??? Thank you for your comments :)Sandy

[Guest guest]

Oforiwa,Thank you so much for your help! I get frustrated so easily! Maybe because we are just starting!!! Long way to go... but happy and thanking god for my treasure: AleSandy From: oforiwa27@...Date: Sat, 18 Sep 2010 06:36:52 -0700Subject: Re: ( ) Introduction

Hi Sandy,My 7 year-old son is also very particular and limited about what he eats. We would go months and sometime years with his menu being exactly the same. I remember worrying so much about his choices. I had no idea it was an asperger trait. However, over the years, I've learned not to pressure him into eating difference food from what he wants to eat and he would relax and from time to time ask to taste something different, slowly adding to the list of food he would eat. Since he love to drink juice and smoothies, I would give him the nutrients he needed by give him green juices and fruit smoothies and vitamin supplements.Potty train also took us a while. Again, I had to ease the pressure and learn to follow his lead while gently encouraging him to use the potty/toilet. When we were home I would not let him wear any underwear or

diaper/pull-ups/. I started out with having the potty nearby as much as possible, then when he started going to it, moving it to the bathroom. He was very adamant about not using the toilet. We would talk about his resistance and that's when I found out he was afraid of the flushing sound of the toilet. So he was allowed to use the toilet without flushing for a very long time. It's only this year that he is now comfort with flushing the toilet himself. I must add that last fall he started receiving homeopathic treatments from a naturopathic doctor and that has helped a great deal with everything. He is still taking homeopathic remedies, where given what's going on with him, the remedy or the dosage would change. I am pleased with the results.It's been quite a journey with him and at times very overwhelming. However, I am quite fascinated with his love of learning and the depths which he would seek answers to his questions and find out

all there is to know about a particular topic/subject. I have been and continue to homeschool him, where we meet up with other homeschoolers on a regular basis for classes/workshops and field trips.Peace,OforiwaSankofa Child Books & Learning Center & Barefoot Books AmbassadorPlease visit my website, http://www.SankofaSpeaks.com & my webpage, http://Oforiwa-Idawa.barefootbooks.com/ ~Thank You for Your

Business!From: Sandy SANDIA <ssandiacr@...>Subject: ( ) IntroductionAspergers Treatment Date: Friday, September 17, 2010, 11:22 PM

Hi every one, my name is Sandy and I live in Costa Rica. My son is 3 years old (and 3 months) and has been diagnosed with AS, though I am still not quite sure of what AS is in him. I hope to help with my comments and also receive some feedback from you guys!!! Thank you for allowing me to share my thoughts!At first, I was told my baby was autistic, but then, as he grow, the neurologist diagnosed him with AS. He is very obsessive with food an has been eating the same lunch for about three months already: a cheese burger happy meal from mcds! We offer him all kinds of foods but he refuses everything. He is in his first year in pre school, and his teacher said he tried a bite of pizza! so we got him pizza but he still refuses to eat it. Besides being concerned about his food and how to make him abandon fries and cheese burger, I am worried about potty training. Teachers told us that next year he will have to go to the bathroom by

himself or he will have to go back to the first level with the smaller kids. We have been trying for about two weeks with no success. He goes to the toilet but does not tell us he did peed his pants or that he want to pee. He just goes when we take him (sometimes he even refuses). We are using regular underwear and it seems there is no difference for him. He acts the same way as if he was wearing a diaper.How long is this going to take. Will he be able to go to the next level in school??? Thank you for your comments :)Sandy

[Guest guest]

My name is Cathleen and I'm from San Diego! I met another person online here acutally and we want to start a support group. Where are you from, ;and can we meet?

Has anyone else contacted you?

Cathleen

From: Amber Gibson <aplusmommy@...> Sent: Sat, September 18, 2010 11:00:29 PMSubject: ( ) introduction

Hi! My 5 yo sons recently been diagnosed with AS, ADHD, and ODD! Im looking for support groups here in the San Diego area Thanks! Amber

[Guest guest]

Hi. Have you ever taken him to a Lyme doctor? If not, that might be a good idea.

You've probably read on here that many of us have not had any luck with our peds

treating Lyme or even acknowledging that it exists.

I know it's really hard when your child is sick and the people we take them to'

who are supposed to have answers' just shrug it off. Our ped told me, when I

asked her if she knew why my daughter had so many illnesses, " Some kids are just

like that. " Then after she was diagnosed with Lyme and was being treated for it

she gave us a lecture about how she took an oath " to do no harm. " Then proceeded

to tell us there was " no such thing as Cystic Lyme. "

We all have stories full of stuff like that. I really hope you can find a doctor

who will listen to you and treat your child appropriately. Maybe someone on here

knows of a doctor where you live.

Good luck to you both!

Annie

________________________________

From: Gontarz <jessica_gontarz@...>

Sent: Wed, November 3, 2010 11:38:01 AM

Subject: [ ] Introduction

 

I subscribed to this list awhile ago but never really introduced myself.  My

son

was diagnosed with lyme 3 years ago, after about 5 months of not knowing what

was wrong. 

He still gets random joint pain/headaches and lethargy.  When I bring it up to

the pedi, they tell me it must be JRA then.  I went to a JRA specialist and she

says he doesn't seem like he has JRA.  I feel like with the infrequency of

symptoms he falls through the cracks.  Anyone have any advice?

Thanks for any input, I appreciate it.

[Guest guest]

Hello & Welcome!

Of course you're overwhelmed and you have every right to be.

Is you husband pushing the back to work thing because of finances?

If that's the case then could you possibly try some type of home bases business?

If homeschooling is working for your family I'ms sure you'd hate to see that

comprmised. Is it possible for your husband to homeschool if you do have to take

a day job?

Right now I can't even imagine trying to hold down a job while dealing with the

emotional stress of dealing with my son's issues.

He's 13 and Aspergers, Bipolar and has Sensory Integration Disorder.

If money isn't the issue and your hubby thinks you need a job just to get away

from the house then I would kindly suggest you sit him down and " try " to explain

to him the mental,emotional and even physical stress you're dealing with trying

to sucessfully raise your children.

I may be the wrong person to be giving advice as I'm one of those " live for your

childresn " people. I've dedicated my life to helping my special needs child and

sometimes it does get in the way of other relationships. It's such a hard

balance when you always, in the back of your mind are worrying about your child

and their future.

Don't ever worry about rambeling on, hee hee...that's what we're all here for

and we DO completly understand it, we too " live the life " .

Hang in there. I'm sure in time you'll meet a network of friends in your new

town and soon you'll have someone to have coffee/tea with and feel a bit more

secure in your decision to move.

Enjoy the rest of your weekend,

>

> Hi, I am new to the group. My 13 year old daughter was recently diagnosed

with asperger's. It is a relief finally knowing what was different that we just

couldn't understand. I personally am going through a tough time right now, I am

very overwhelmed with everything that is going on for me right now. We moved to

a different state about three weeks ago. My daughter was diagnosed right before

we left the other state. I have been a stay at home, homeschooling mom for the

past 6 years and my husband is wanting me to go back to work. I don't know how

I am supposed to school my daughter, take her to all of her appointments, deal

with her meltdowns and still have the time or energy to work. I am just

physically, mentally, and emotionally tired and I want a break from it all which

of course makes me feel guilty. I'm sorry I rambled on I just needed somebody

that would " get " the situation to vent to. If anybody has any advice I would

love to hear it. Thanks.

>

[Guest guest]

, I'm also just starting to look into online virtual schools. Ask your school district if they have their own. The online schools that charge you are private schools. There are public/charter online ones that don't cost a thing because they are government funded. Here is a link that gives you advice on what to ask and what to look for. Hope this helps some.http://distancelearn.about.com/od/virtualhighschools/a/OnlineHighQ.htm--- On Tue, 11/9/10, lmoorhead4 <lmoorhead4@...> wrote:From: lmoorhead4 <lmoorhead4@...>Subject: Re: ( ) IntroductionTo:

Date: Tuesday, November 9, 2010, 11:11 AM

Robin,

If you don't mind telling me, what virtual school did you choose for your son? My 16 year old daughter is teased and bullied constantly. The school is good about addressing it when she brings it to their attention but she only tells them when it gets really bad otherwise she'd be in the office 15 times a day. She has asked me to look at online schooling and there are so many out there and some of them quite expensive that I don't know where to start. Any help would be greatly appreciated.

Thanks,

in AL

>

>

> From: chris Dunn <christineshello@...>

> Subject: ( ) Introduction

>

> Date: Saturday, November 6, 2010, 7:54 PM

>

>

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>

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> It is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't

have sisters or

> brothers so it is just my husbands and myself going through all this in life.

>

>

> Please let's answer this questions are you working outside? full time? is it possible?

>

>

[Guest guest]

Hi ,

Okay, so we Googled Virtual Schools in Wisconsin and just called the closest one!! It was Ozaukee County!

We never regretted it. Never.

I sure wouldn't be crushed if he needed to do it again. I even thought of pulling all the kids out and doing it for them, too. he he.

As for expense, there was none. Since most virtual schools operate out of or with a public school district, it was no charge. We got a computer, printer, books, art supplies, music cd's and teacher manuals. He also had a special ed teacher assigned to him.

It was wonderful.

How they "work" the money, is ,,,,,,the money that your child's school gets automatically for them attending that specific district simply goes to the virtual school district. You do nothing......it's simply paperwork on their ends.

I believe we signed a form stating that we'd be going from the School District of North Fond du Lac to the School District of Ozaukee County.

One other thing,.....I"m not usre if this is the same everywhere, but since going to a virtual school falls under "School Choice", we had to sign up in Feb for the following school year. That was the only down side. My son had to stick it out until the end of the year. Sigh. It was only 2 months, thank goodness. If it had been longer, I think we would have pulled him and just had him study whatever we could find, just to get him out of there.

Good luck. It sucks when your kids aren't being treated the way that they should. It's horrifying, isn't it?Hugs........

Robin

PEOPLE MAY NOT REMEMBER EXACTLY

WHAT YOU DID OR WHAT YOU SAID,

BUT THEY WILL ALWAYS REMEMBER

HOW YOU MADE THEM FEEL

From: lmoorhead4 <lmoorhead4@...>Subject: Re: ( ) Introduction Date: Tuesday, November 9, 2010, 11:11 AM

Robin,If you don't mind telling me, what virtual school did you choose for your son? My 16 year old daughter is teased and bullied constantly. The school is good about addressing it when she brings it to their attention but she only tells them when it gets really bad otherwise she'd be in the office 15 times a day. She has asked me to look at online schooling and there are so many out there and some of them quite expensive that I don't know where to start. Any help would be greatly appreciated.Thanks, in AL> >

> From: chris Dunn <christineshello@...>> Subject: ( ) Introduction> > Date: Saturday, November 6, 2010, 7:54 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > It is very interesting what you are saying, because I find myself in the same situation my son is 8 he is HFA but still has meltdowns and I have to help him with the school homework, and clean the house, take care of my son, cook take him to the appointments (OT, swimming, doctors, etc) and I want to work because I feel guilty that my husband holds 3 jobs to support everybody and I don't work, but to be honest I don't have the stamina, the energy to work, my days are

long and tiring. I think we should take a poll and ask if the mothers of the asperger's children work outside the home or not. If other mother can please come forward and say if they work or not, that would be great, also I would realize that may be is physically impossible to do both things (take care of a special needs child and work outside), may be I am wrong and it is possible. I am exhausted most of the time, I don't have in laws or parents to support me, I don't have sisters or> brothers so it is just my husbands and myself going through all this in life.> > > Please let's answer this questions are you working outside? full time? is it possible?> >

[Guest guest]

I am a 27 year old single mother of an 8year old son whos aspergers with add

and odd .. and i do work full time.. i love going to work it give me the well

needed break from him.. and i know he is in good care have the best of the best

for a babysitter.. very minimal family support..so yes it its possible and

sometimes healthy to get away from the challenges that come with raising our

" special " children..

> > I did work until I could retire. But my DD is actually my birth

granddaughter

> > and I am older. It would be impossible for me to work now. I am too tired

and

> > busy. My husband helps once in a while, but he is also unaware of what to do

> > other than yell at her.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: Amber Barnett <bbeautiful1too@...>

> >

> > Sent: Tue, November 9, 2010 7:47:47 AM

> > Subject: Re: ( ) Introduction

> >

> >

> > I worked outside of the home until April, when it became to much due to the

> > issues that arose with puberty for my son. Most days I have to watch him

like a

> > hawk... I must monitor his emails, and he can send 15 in a one minute

period. I

> > have to listen to what he says at all times. I have to watch what is said

to

> > and or around him. I have to guard even a screwdriver or butter knife from

him

> > because he will take the electronics apart. I can not go to the grocery

> > store without getting a call from his dad that he is having another melt

down,

> > bc dad does not know or understand how to handle him to avoid the meltdowns.

I

> > have spent a great deal of time observing and learning what to do daily and

in

> > certian situations to drastically reduce the number of meltdowns. I have

also

> > began working with him to help him avoid meltdowns as well. He has

progressed

> > greatly in the time I have been home. Had I continued to work, I dont know

> > where he would be right now. Honestly probably I am the primary bread

winner in

> > my home as my husband is disabled physically. our income was cut in 1/4. It

has

> > been a very difficult adjustment for my non AS son, but he has begun to

realize

> > how much happier we all are, and how important it is to his seemingly

selfish

> > brother that he and eveyone else in the house be happy. Stress level way

down.

> > No, my husband does not get involved in the least with the day to day. He

is

> > not there for support. Mainly dinner at night and when I really cant wait

> > anymore to run errands. The important thing is to find balance within your

> > relationship with your child, and any other children you have. And if there

is

> > a parent who has a more difficult time coping with all that comes with that

> > wonderful child you have been blessed with, make sure to notice and praise

when

> > they do handle something right. As with our children, praise for good

behaviour

> > begets more good behaviour.

> >

> > Amber Barnett

> >

> >

> >

> >

> > ________________________________

> > From: chris Dunn <christineshello@...>

> >

> > Sent: Sat, November 6, 2010 8:54:01 PM

> > Subject: ( ) Introduction

> >

> >

> >

> >

> >

> >

> >

> > It is very interesting what you are saying, because I find myself in the

same

> > situation my son is 8 he is HFA but still has meltdowns and I have to help

him

> > with the school homework, and clean the house, take care of my son, cook

take

> > him to the appointments (OT, swimming, doctors, etc) and I want to work

because

> > I feel guilty that my husband holds 3 jobs to support everybody and I don't

> > work, but to be honest I don't have the stamina, the energy to work, my days

are

> > long and tiring. I think we should take a poll and ask if the mothers of

the

> > asperger's children work outside the home or not. If other mother can

please

> > come forward and say if they work or not, that would be great, also I would

> > realize that may be is physically impossible to do both things (take care of

a

> > special needs child and work outside), may be I am wrong and it is possible.

I

> > am exhausted most of the time, I don't have in laws or parents to support

me, I

> > don't have sisters or brothers so it is just my husbands and myself going

> > through all this in life.

> >

> > Please let's answer this questions are you working outside? full time? is it

> > possible?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>