Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi, Elliott, I agreed with your comments. Please advise what you really meant serious Anti-Cancer lifestyle. We would all learn from you. Thanks. Jim In a message dated 3/21/2008 7:40:15 P.M. Eastern Daylight Time, aug20@... writes: Hi, Darla. I am not a medical practitioner. I am a lay person who has been living with and reading about cancer for nearly twenty years. What follows is my opinion. If any of what I say is helpful, I am thankful: What you described sounds quite involved and quite complicated. It would be good if you could get the doctors to simplify the diagnosis more than they have. But that may be impossible. It is undoubtedly true that a great many surgeons will cut and remove parts of you with nary a thought as to whether or not they might be useful to you. After all, they are " saving " you from cancer! What could be more important? You lose this organ or that organ, or this or that function gets disabled by them, so what? You're alive, aren't you? (The last four sentences are definitely loaded with sarcasm.) What I believe you MUST do is find out, if possible the following: DO the doctors BELIEVE they can PUT YOU INTO REMISSION with the surgery? If not, what do they expect to accomplish by what they are doing? It IS YOUR body. And once something is cut or removed, it cannot be restored. Be as sure as you possibly, possibly can that what is being done has the best possible chance of doing YOU good, rather than just lining the doctors' pockets. If there is a very good chance that removal of the uterus will put you into a real remission, and if you are past your child bearing years, or are not having children anymore, it may be a very good trade-off. You get remission and life, and they get the uterus! Carcinoma in the uterine area is nothing to take chances with. You can end up with it metastasizing to the colon, to the bladder, the liver, the bones... If getting rid of the uterus stands a very good chance of getting rid of the cancer, and its main purpose has already been served, then get rid of the uterus. Of course, I would NEVER just suppose, no matter what the doctors say, that once the surgery is over you can live however you wish. You will need to adopt a serious anti-cancer lifestyle to give yourself the very best chance of never having any more cancer again. I would also try to avoid chemotherapy or radiation if possible, and instead would follow a Budwig or Gerson program, and would get on low- dose naltrexone, as well. You can read about all three of those things by typing each of them into the " search " box at the top of the page and pressing " enter. " Best wishes and best of health, Elliot **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Yadda, Don't let those complicated disease names scare you. Don't let " them " take away your body parts. You need them ALL. A car won't run well without a radiator or a muffler. You NEED your UTERUS intact. Hysterectomy means they surgically remove your UTERUS. Just because you don't see your uterus does not mean you don't need it. See this for a better point of view. Call it a 3rd opinion. http://www.curemanual.com/diseases-and-tweaks/cancer Good skill, Edwin yaddaluvpoodles wrote: > Hi, > I'm new here... obviously have a lot to learn and need to learn > fast. Anyone wishing to email suggestions, pointers, etc, please feel free. > The treatments that she lined out for me are: > in situ-- cone biopsy, followed by a simple hysterectomy 4-6 weeks > later after healing has taken place from the cone. > Looking for... treatment options, both conventional and > nontraditional. > Darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi, Darla. I am not a medical practitioner. I am a lay person who has been living with and reading about cancer for nearly twenty years. What follows is my opinion. If any of what I say is helpful, I am thankful: What you described sounds quite involved and quite complicated. It would be good if you could get the doctors to simplify the diagnosis more than they have. But that may be impossible. It is undoubtedly true that a great many surgeons will cut and remove parts of you with nary a thought as to whether or not they might be useful to you. After all, they are " saving " you from cancer! What could be more important? You lose this organ or that organ, or this or that function gets disabled by them, so what? You're alive, aren't you? (The last four sentences are definitely loaded with sarcasm.) What I believe you MUST do is find out, if possible the following: DO the doctors BELIEVE they can PUT YOU INTO REMISSION with the surgery? If not, what do they expect to accomplish by what they are doing? It IS YOUR body. And once something is cut or removed, it cannot be restored. Be as sure as you possibly, possibly can that what is being done has the best possible chance of doing YOU good, rather than just lining the doctors' pockets. If there is a very good chance that removal of the uterus will put you into a real remission, and if you are past your child bearing years, or are not having children anymore, it may be a very good trade-off. You get remission and life, and they get the uterus! Carcinoma in the uterine area is nothing to take chances with. You can end up with it metastasizing to the colon, to the bladder, the liver, the bones... If getting rid of the uterus stands a very good chance of getting rid of the cancer, and its main purpose has already been served, then get rid of the uterus. Of course, I would NEVER just suppose, no matter what the doctors say, that once the surgery is over you can live however you wish. You will need to adopt a serious anti-cancer lifestyle to give yourself the very best chance of never having any more cancer again. I would also try to avoid chemotherapy or radiation if possible, and instead would follow a Budwig or Gerson program, and would get on low- dose naltrexone, as well. You can read about all three of those things by typing each of them into the " search " box at the top of the page and pressing " enter. " Best wishes and best of health, Elliot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Hi Darla, Lots of decisions to make! First and foremost, don't let anyone - doctors or people in this group - tell you how to treat your condition. Read, study, and make the right choice for you. I have three bizarre conditions that are leading my gyn to do a hysterectomy. I've decided that is too drastic for me at this time. But in another few months, I may change my mind! I need to talk to him about other alternatives. But, I would not hesitate to take out my uterus if that is what needed to be done. I don't feel that it is an important part of my anatomy. My bigger concern are my ovaries - but being only 42, I can't take them out just yet. I had DCIS - breast cancer in situ. Again, lots of decisions to make. I decided to treat traditionally and then follow-up with alternatives. So, lumpectomy plus radiation and now working on balancing my hormones to keep cancer from coming back. I was lucky to find a great Naturopath who is guiding me through all of this. I did not take my decision lightly. I studied for about two weeks before making my decision. Whatever decision you make, it will be the right decision. ar -- Arlyn Grant arlynsg@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Gareeth: I know 40 is very young for a knee replacement but if you're really in pain and having that much difficulty walking, I'd go for it. The technology and the materials are improving so dramatically that I don't think it should be as much of a worry as it was a decade ago. A knee replacement should last at least 15 to 20 years and by then, who knows what they'll have. These are your prime years; don't waste them. Has your doctor not suggested one of the TNF blockers? I don't know much about Plaquinel for PA but I have a friend who takes it for lupus and it's kept that disease under control for nearly a decade with few if any real ill effects. She did, however, try many of the other drugs and nothing else worked for her.  Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 Joanna Hoelscher wrote: > Gareeth: I know 40 is very young for a knee replacement but if you're > really in pain and having that much difficulty walking, I'd go for > it. It's not really a matter of my going for it or not. I want it. I have no quality of life right now. The doctors don't want to do one at my age. I do see one more specialist but the last one I saw said that guy wouldn't know what to do either. Gareeth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 There's gotta be a doc around who will do it. Your current ones are not serving you well if they don't realize that this is something you need now . . . . . good luck with this. I hope you find someone/something that will help soon.  Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Keep plugging Gareeth. Age is not the factor in this decision and shouldn't be. I know a woman who had a hip replacement last year at 38. My sister, 32, had back surgery this week. Both should have had there surgeries long before but they had doctors that decided for them that they were too young. They lost out on precious time and memories as their quality of life and ability to fully be a part of that life was delayed. Age has nothing to do with it. If you need it you need it. " girlfriendgeneration " <girlfriendgeneration@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 welcome...for my extremely lethargic little guy, MB12 shots, CoQ10, and Acetyl-l-Carnitine have worked wonders in getting his energy up and consistent across a busy school day. Take care, Alison M -------------- Original message ---------------------- From: " jeksmom062405 " <tarakeelean@...> > Hi Everyone, > > Hope everyone is doing well. I just wanted to introduce myself. My > son, , is 3 years old, and has been diagnosed with both > dyspraxia and pdd-nos. I am so grateful that this board was > recommended to me. I have Crohn's Disease, and feel like my son was > born with a compromised immune system. I think when he received his > shots, that sent him into overdrive. He was just recently diagnosed > with pdd-nos, so I am trying to gain more information. I haven't > read the FAQs of this board yet, but I wanted to check in and say > hi. I plan on doing that this coming weekend. > > He has really responded to fish oil (ProEFA and ProEPA). We also > have him on Phosphaline, Threelac, and a Multivitamin. We will start > Nystatin in a week or so, and then get him back on Vitamin E. > > My son has always been such a happy little boy, and he still can be. > I do find that he always seems tired and can be quite cranky. We > just recently moved, so there has been a ton of changes for him. I > feel like I am always walking on eggshells. > > I did notice there were some posts about probiotic and strep. I will > read up on that because if I need to switch him, I will. > > If anyone has any suggestion or recommendations, I really would > appreciate it. Throughout this journey, I have found other parents > to be the most valuable resource, and I am so grateful for that. > > Thanks, > Tara > > > ------------------------------------ > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 ----- Original Message ----- From: jeksmom062405 ====>Hi Tara, Welcome and let us know if you have any ?'s, lots of very smart parents' on here to help. About Three/FiveLac, we used this very successfully with no problems. VSL, another probiotic with strep lines, was disastrous here, causing strep throat, walking pneumonia and bronchitis before we figured this out. If is using ThreeLac with no problem, is no cause for alarm, just watch. Hi Everyone, Hope everyone is doing well. I just wanted to introduce myself. My son, , is 3 years old, and has been diagnosed with both dyspraxia and pdd-nos. I am so grateful that this board was recommended to me. I have Crohn's Disease, and feel like my son was born with a compromised immune system. I think when he received his shots, that sent him into overdrive. He was just recently diagnosed with pdd-nos, so I am trying to gain more information. I haven't read the FAQs of this board yet, but I wanted to check in and say hi. I plan on doing that this coming weekend. He has really responded to fish oil (ProEFA and ProEPA). We also have him on Phosphaline, Threelac, and a Multivitamin. We will start Nystatin in a week or so, and then get him back on Vitamin E. My son has always been such a happy little boy, and he still can be. I do find that he always seems tired and can be quite cranky. We just recently moved, so there has been a ton of changes for him. I feel like I am always walking on eggshells. I did notice there were some posts about probiotic and strep. I will read up on that because if I need to switch him, I will. If anyone has any suggestion or recommendations, I really would appreciate it. Throughout this journey, I have found other parents to be the most valuable resource, and I am so grateful for that. Thanks, Tara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 > > Hi Everyone, > > Hope everyone is doing well. I just wanted to introduce myself. Welcome! My > son, , is 3 years old, and has been diagnosed with both > dyspraxia and pdd-nos. I am so grateful that this board was > recommended to me. I have Crohn's Disease, I have a different genetic disorder. My remarks here might interest you: http://www.healthgazelle.org/genes.shtml Michele http://www.healthgazelle.org http://www.kidslikemine.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Welcome Tara, My sleepy boy is now 18. We didn't find this board until he was late 16, and had other issues to address. As we did though, he seemed less groggy. Now that we are chelating, he seems to have more energy all the time. We were working on getting his license, but we noticed that every time he drove he got tired. So, we stopped. We are hoping that after a few more months of chelation and steady improvement that he will be a more alert driver and ready to get his license. He's 18 now, and we've been chelating for over 4 months. Before that we really addressed yeast, since that was an issue for him. Now he just occasionally has to take a dose of GSE (grapefruit seed extract) to knock it back, and takes biotin. We also addressed viruses. One thing you will not here is that every child is different. The files section of the message board will be a great place to start. There are lots of links there to great information. Best to you, and so glad you found the board! P. jeksmom062405 wrote: > > Hi Everyone, > > Hope everyone is doing well. I just wanted to introduce myself. My > son, , is 3 years old, and has been diagnosed with both > dyspraxia and pdd-nos. I am so grateful that this board was > recommended to me. I have Crohn's Disease, and feel like my son was > born with a compromised immune system. I think when he received his > shots, that sent him into overdrive. He was just recently diagnosed > with pdd-nos, so I am trying to gain more information. I haven't > read the FAQs of this board yet, but I wanted to check in and say > hi. I plan on doing that this coming weekend. > > He has really responded to fish oil (ProEFA and ProEPA). We also > have him on Phosphaline, Threelac, and a Multivitamin. We will start > Nystatin in a week or so, and then get him back on Vitamin E. > > My son has always been such a happy little boy, and he still can be. > I do find that he always seems tired and can be quite cranky. We > just recently moved, so there has been a ton of changes for him. I > feel like I am always walking on eggshells. > > I did notice there were some posts about probiotic and strep. I will > read up on that because if I need to switch him, I will. > > If anyone has any suggestion or recommendations, I really would > appreciate it. Throughout this journey, I have found other parents > to be the most valuable resource, and I am so grateful for that. > > Thanks, > Tara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Welcome. I'm sure by now you look 40. Can you describe the life changes you made in more detail? Diet, personal products, house cleaning products, stressors... etc. Edwin angelvalleyco wrote: My name is and I am 50. I am new to this group. I have now survived > 3 life threatening diseases and this last one, Cancer, has opened my > eyes to all of the environmental threats that we face everyday. I have > completely changed my diet, my personal cleaning products, my house > cleaning products and oh yes, my stressers. > I feel better than I have in years and I hope to keep learning. I look > forward to discussing all this new stuff with others who have shared my experience. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Sure and thanks for the welcome. First of all, while I was undergiong daily radiation and weekly chemo in January & February, I was laid off. That was actually a blessing. Even though it caused some serious financial situations, it eased a great deal of stress and I started my own buisness finally having freedom in many ways. (less stress) Second, I started buying organic, reading labels and watching out for additives and preservatives, almost no meat, organic juices, vegetables, etc. Took everything out of my bathroom & shower that contained any form of Sodium Laureth. Third, I now spend half an hour on the treadmill almost everyday and do the exercises I need to to get strength back in my shoulder and arm (I had a neck disection to remove lymph nodes and there was a lot of nerve damage.) Fourth, I take Natural Cellular Defense every day to remove toxins from my body that won't go away by diet change because we breathe them in with the air. My cancer was stage IV Carcenoma of the head & neck, so in dealing with the fear, I got even closer to God that I had from dealing with alcoholism 20 years ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 --- I forgot to mention Edwin, I feel better than I have in 15 years. In , Edwin Casimero <eesc@...> wrote: > > Welcome. I'm sure by now you look 40. > Can you describe the life changes you made in more detail? > Diet, personal products, house cleaning products, stressors... etc. > Edwin > > angelvalleyco wrote: > My name is and I am 50. I am new to this group. I have now survived 3 life threatening diseases and this last one, Cancer, has opened my eyes to all of the environmental threats that we face everyday. I have completely changed my diet, my personal cleaning products, my house cleaning products and oh yes, my stressers. I feel better than I have in years and I hope to keep learning. I look forward to discussing all this new stuff with others who have shared my experience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Hi : Now re-look at the stuff and make sure there are no Parabens in those personal products. I avoided the Laureth stuff only to learn many have carcinogenic Parabens in them. http://www.thegoodhuman.com/2007/06/21/what-are-parabens-and-why-should-you-avoi\ d-them/ Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Hi , This is Aletha from the LDN chat site. I was just wondering if you had any luck with LDN for fertility or for the Fibro. Just trying to follow up and collect stories to share with others. All my best Aletha Aletha@... [low dose naltrexone] Introduction Hi Everyone, I am new to this site, but a few days ago I was prescribed LDN for fertility reasons. I also have fibromyalgia, so as I said to the doctor, one cure for multiple ailments sounds good to me! J Just wondering what some stories are of the folks who are on this group – I am in my late® 30’s J and trying to conceive for about 3 years – went with all of the artificial stuff with no one giving much notice to my fibro or to what was actually happening inside me! This new OB is into identifying what is causing me fertility issues, so he initially hooked me into NaPro and tracking my cycles. After a few, he recently saw me and noticed that I probably have some ovarian dysfunction, coupled with the fibro and some anxiety issues – I, apparently, am a perfect candidate for LDN. Just wanted to know if there was anyone else in similar situations or I guess, really, what everyone’s situation was! Thanks, No virus found in this outgoing message.Checked by AVG.Version: 7.5.524 / Virus Database: 269.23.7/1408 - Release Date: 4/30/2008 6:10 PM Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Drugs To Avoid When Taking Low Dose Naltrexone http://www.webspawner.com/users/avoidthesedrugsonldn/index.html Art --- > > I just wanted to introduce myself and tell you why I joined. My daughter > has Juvenile Rheumatoid Arthritis (JRA). She was dx when she was 14, was > put on enbrel and methotrexate. Right after she graduated college , age 22 > she was dx with Hodgkins lymphoma, from the meds, who knows. Thank god she > is now in remission but the arthritis is back so now we have her on > asulfadine, a small dose of prednisone, 2 mg, and an herbal > anti-inflammatory from New Chapter called Zyflamend. Her arthritis is > doing ok, but not terrific. I heard of LDN and am wondering if anyone here > is using it for autoimmune arthritis. We went to a doc yesterday who gave > us an rx but we are still doing our research, can you use it while on her > drugs? Etc. > > > > Any ideas? I'm looking for any feedback you can give me. Thanks in advance. > > > > Bonnie > > www.bonniesherbals.com > > > > > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of Case Health Pty Ltd > Sent: Wednesday, January 21, 2009 5:21 PM > low dose naltrexone > Subject: [low dose naltrexone] Re: One customer's review of new LDN book > > > > Thanks Ingrid. I had missed Crystal's earlier post. > > Crystal, as we say here in Oz; " Thanks mate, you're a bonza chick!' > ('bonza' is interchangeable with 'great, tops, wonderful, the ants pants, > etc') > > 4a. Re: One customer's review of new LDN book > Posted by: " Gunn Dybfest " gunn.ingrid@... > <mailto:gunn.ingrid%40> gunn.ingrid > Date: Wed Jan 21, 2009 10:27 am ((PST)) > > That's terrific, Crystal, is it ok if I use the list What Not to Take with > LDN? > Warmest,Ingrid > > From: Crystals MS TM LDN Website <angelindisguise67@... > <mailto:angelindisguise67%40> > > low dose naltrexone > <mailto:low dose naltrexone%40> > Sent: Tuesday, January 20, 2009 6:45:38 AM > Subject: Re: [low dose naltrexone] Re: One customer's review of new LDN book > > I printed 2 copies of Cris's Casehealth LDN Book and punched holes in the > pages and put them in a binder. Keeping one for me and going to give one to > my Dr when i go February 2nd. > > Everytime someone emails me for a Dr that prescribes LDN I attach a copy to > the email with the LDN Welcome Package and What Not to take with LDN.... > > May there be a miracle in YOUR life today and may you have the EYES to see > it. > > From My Heart to Yours > Love, Hugs & Blessings, > Crystal > LDN_Users Group Owner > > Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis > and an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....No > Relapses..... > > Crystal's MS,TM & LDN Website > http://www.freewebs.com/crystalangel6267/index.htm > > LDN Website > http://ww.ldninfo.org/ > > Crystal's LDN Support Group > LDN_Users/ > > LDN MySpace > http://www.myspace.com/low dose naltrexone > > Cris - Case Health - Health Success Stories > http://casehealth.com/case/about.html > > Crystal's LDN Gift Shop > http://www.cafepress.com/crystalldngifts > > Skip's Compounding Pharmacy > http://www.skipspharmacy.com/ > > From: Case Health Pty Ltd <casehealth@... > <mailto:casehealth%40optusnet.com.au> > > low dose naltrexone > <mailto:low dose naltrexone%40> > Sent: Tuesday, January 20, 2009 12:50:42 AM > Subject: [low dose naltrexone] Re: One customer's review of new LDN book > > I hoped the 2008 revision of the free LDN book would further demonstrate > the potential value of patient experience to health systems, and I believe > it does that in a really powerful way. > > Thank you very much for the review, Marla, > Cris > casehealth.com. au > > 2a. Re: One customer's review of new LDN book > Posted by: " mtlcute " mtlcute (DOT) com mtlcute > Date: Mon Jan 19, 2009 9:51 am ((PST)) > > I just reviewed the casehealth online book!! WOW WOW WOW! > > This should be emailed to all patients and Doctors!!! And why not the big > executives at the pharmaceutical companies who think they have no > worries!! Well I am going to live long enough to see them squirm and > and try to deny all allegations! They ought to be severely punished for > so much wrong doing to us innocent victims of illnesses!! > Marla:) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi, and welcome to this group! Your daughter could use LDN, as far as the Arthritis is auto immune and LDN also is a good choise for both Non H and H Lymphoma, re www.ldninfo.org I would suggest that you read and research so that you can feel sure and safe that this is a good medicine to use. LDN is only to be taken at nights just before bedtime, or between 9.pm and 3 am. As regular as possible.. The dose is so small it's almost considered "homeopathic" in it's dosage. I know where you are, my son also had a juvenil RA, it's called Stills syndrom. He also had to use those heavy medicines, and he wasn't happy about using big doses of prednisone. If he ever get's an active RA again, I would of course strongly advice him to use LDN. Why not read through this pdf. file: http://www.ldn4cancer.com/techpapers/ldn_for_disease_prevention_quality_of_life.pdf And have a look at this video: http://au.youtube.com/watch?v=DAZ1fQKdOC8 & feature=relatedFriendly regards, Ingrid From: Bonnie <bonniesherbals@...>low dose naltrexone Sent: Wednesday, January 21, 2009 11:55:20 PMSubject: [low dose naltrexone] introduction I just wanted to introduce myself and tell you why I joined. My daughter has Juvenile Rheumatoid Arthritis (JRA). She was dx when she was 14, was put on enbrel and methotrexate. Right after she graduated college , age 22 she was dx with Hodgkins lymphoma, from the meds, who knows. Thank god she is now in remission but the arthritis is back so now we have her on asulfadine, a small dose of prednisone, 2 mg, and an herbal anti-inflammatory from New Chapter called Zyflamend. Her arthritis is doing ok, but not terrific. I heard of LDN and am wondering if anyone here is using it for autoimmune arthritis. We went to a doc yesterday who gave us an rx but we are still doing our research, can you use it while on her drugs? Etc. Any ideas? I¢m looking for any feedback you can give me. Thanks in advance. Bonnie www.bonniesherbals.com From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Case Health Pty LtdSent: Wednesday, January 21, 2009 5:21 PMlow dose naltrexone Subject: [low dose naltrexone] Re: One customer's review of new LDN book Thanks Ingrid. I had missed Crystal's earlier post.Crystal, as we say here in Oz; "Thanks mate, you're a bonza chick!'('bonza' is interchangeable with 'great, tops, wonderful, the ants pants,etc')4a. Re: One customer's review of new LDN bookPosted by: "Gunn Dybfest" gunn.ingrid@... gunn.ingridDate: Wed Jan 21, 2009 10:27 am ((PST))That's terrific, Crystal, is it ok if I use the list What Not to Take withLDN?Warmest,IngridFrom: Crystals MS TM LDN Website <angelindisguise67@...>low dose naltrexone Sent: Tuesday, January 20, 2009 6:45:38 AMSubject: Re: [low dose naltrexone] Re: One customer's review of new LDN bookI printed 2 copies of Cris's Casehealth LDN Book and punched holes in thepages and put them in a binder. Keeping one for me and going to give one tomy Dr when i go February 2nd.Everytime someone emails me for a Dr that prescribes LDN I attach a copy tothe email with the LDN Welcome Package and What Not to take with LDN....May there be a miracle in YOUR life today and may you have the EYES to seeit.From My Heart to YoursLove, Hugs & Blessings,CrystalLDN_Users Group OwnerDiagnosed November 2004 with Secondary Progressive MS, Transverse Myelitisand an Advocate for LDN!! 3 years on LDN with Skip's Pharmacy.....NoRelapses.....Crystal's MS,TM & LDN Websitehttp://www.freewebs.com/crystalangel6267/index.htmLDN Websitehttp://ww.ldninfo.org/Crystal's LDN Support GroupLDN_Users/LDN MySpacehttp://www.myspace.com/low dose naltrexoneCris - Case Health - Health Success Storieshttp://casehealth.com/case/about.htmlCrystal's LDN Gift Shophttp://www.cafepress.com/crystalldngiftsSkip's Compounding Pharmacyhttp://www.skipspharmacy.com/From: Case Health Pty Ltd <casehealth@...>low dose naltrexone Sent: Tuesday, January 20, 2009 12:50:42 AMSubject: [low dose naltrexone] Re: One customer's review of new LDN bookI hoped the 2008 revision of the free LDN book would further demonstratethe potential value of patient experience to health systems, and I believeit does that in a really powerful way.Thank you very much for the review, Marla,Criscasehealth.com. au2a. Re: One customer's review of new LDN bookPosted by: "mtlcute" mtlcute (DOT) com mtlcuteDate: Mon Jan 19, 2009 9:51 am ((PST))I just reviewed the casehealth online book!! WOW WOW WOW!This should be emailed to all patients and Doctors!!! And why not the bigexecutives at the pharmaceutical companies who think they have noworries!! Well I am going to live long enough to see them squirm andand try to deny all allegations! They ought to be severely punished forso much wrong doing to us innocent victims of illnesses!!Marla:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 > > How do you handle this? The defiance, the > emotions, the screaming, the silence, the tears, the ups and downs and > ups and downs....? Welcome to the group! What worked for us, over the years (I have a 14yo son with Asperger with a twin brother who is mostly NT but has some leanings this way, just not clinical), is getting this stuff " contained " so it doesn't become everybody's problem and so our son could learn how to control himself and not perpetuate bad emoting habits. At school, his teachers used to put him by himself out in the hallway, where they could see him but his classmates couldn't. They would let him get himself together in private then come rejoin the class when he had calmed down. I used a similar time-out method at home that worked well. I got it out of a book called " Setting boundaries with your strong-willed child " or something like that--a long time ago. I used these timeouts up until jr high, when they were no longer needed. When he would start an outburst or some sort of unacceptable disruptive behavior, I would lead him to his time out place and close the door. It is important that you say very little on the way to the place and that nobody talk to him/her during the time-out. They must be completely alone behind closed doors. You should tell them, very briefly, why they have to go be by themselves, even if they are yelling and it doesn't seem they are listening. This method forces the child to deal with their emotions on their own. They learn to self-calm. Time-outs are 15 minutes regardless of age. So, after 15 minutes you let them out (you could let them have a timer or whatever seems appropriate). You let them know you're happy to have them back, but don't overdo it, and just continue with what you were doing. Try to act as normal as possible. Sometimes I would have to give him several of these time-outs in a row if he was very upset. The minute he would start doing something unacceptable, I would nip it in the bud and send him right into time out. Eventually he would calm down. When you first start doing it, you may have to " force " them to stay in the place with the door closed. But, as the book says, if you are consistent with this, they will start going to the place on their own when you start to make them. The idea is that after a certain age, they will have learned to " take some time " themselves and how to keep themselves calm/calm themselves down. I suppose this may not work with all kids, but it was very effective with our Asperger son (the other son did not need such a thing). Your daughter is not too old for this, even if she is big! Remember Asperger kids are several years younger as far as emotional control goes. Hope this helps--good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 Thanks for the welcome and for the answer. I was beginning to wonder if my message really did get through to the group! Thank you for the advice. We have actually tried this in the past. We are now starting it again. The reason we stopped is because Hanna yanked the bedroom door off the hinges because we put her in there and wouldn't pay attention to her until she could speak to us in normal tones. She got even madder and just ripped it right off the frame! So she has no door on there. Sending her to her room causes such disruption for the rest of the family. We can't send her to anyone else room either because she will tear up their things. But now we have started sending her back to her room with no door on it and just have to try to put up with the screaming and hollering about how she doesn't like us and we're mean, etc, etc... Our house is only 816 sq. ft. so she is basically in whispering distance from any room of the house. So her yelling is really loud to everyone no matter what room we are in. But it is better than trying to work it out face to face because that just wears us out and she is still going strong. If it works for you, maybe we will see some improvement if we can live through the screaming. We just hope the neighbors don't start thinking anything and call the police!!! LOL Andi http://www.homesteadblogger.com/blessedharvest/ "To educate a man in mind and not in morals is to educate a menace to society."Theodore Roosevelt From: r_woman2 <me2ruth@...>Subject: ( ) Re: Introduction Date: Saturday, July 18, 2009, 6:54 AM >> How do you handle this? The defiance, the> emotions, the screaming, the silence, the tears, the ups and downs and> ups and downs....?Welcome to the group! What worked for us, over the years (I have a 14yo son with Asperger with a twin brother who is mostly NT but has some leanings this way, just not clinical), is getting this stuff "contained" so it doesn't become everybody's problem and so our son could learn how to control himself and not perpetuate bad emoting habits. At school, his teachers used to put him by himself out in the hallway, where they could see him but his classmates couldn't. They would let him get himself together in private then come rejoin the class when he had calmed down. I used a similar time-out method at home that worked well. I got it out of a book called "Setting boundaries with your strong-willed child" or something like that--a long time ago. I used these timeouts up until jr high, when they were no longer needed. When he would start an outburst or some sort of unacceptable disruptive behavior, I would lead him to his time out place and close the door. It is important that you say very little on the way to the place and that nobody talk to him/her during the time-out. They must be completely alone behind closed doors. You should tell them, very briefly, why they have to go be by themselves, even if they are yelling and it doesn't seem they are listening. This method forces the child to deal with their emotions on their own. They learn to self-calm. Time-outs are 15 minutes regardless of age. So, after 15 minutes you let them out (you could let them have a timer or whatever seems appropriate) . You let them know you're happy to have them back, but don't overdo it, and just continue with what you were doing. Try to act as normal as possible. Sometimes I would have to give him several of these time-outs in a row if he was very upset. The minute he would start doing something unacceptable, I would nip it in the bud and send him right into time out. Eventually he would calm down. When you first start doing it, you may have to "force" them to stay in the place with the door closed. But, as the book says, if you are consistent with this, they will start going to the place on their own when you start to make them. The idea is that after a certain age, they will have learned to "take some time" themselves and how to keep themselves calm/calm themselves down.I suppose this may not work with all kids, but it was very effective with our Asperger son (the other son did not need such a thing). Your daughter is not too old for this, even if she is big! Remember Asperger kids are several years younger as far as emotional control goes. Hope this helps--good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Hi , I'm sorry about your mother-in-law's diagnosis. What you need are some details. First, does she want alternative treatment? If she isn't interested, then please don't waste your time. As you said, it is much better for her to feel your support and love than to spend time having to argue with you. I'm a healer/reader (or used to be), and I really don't believe there is much your friend can do from the states. Also, your MIL's body may not want the energy. But if it makes you feel better having it sent, then fine. I had a friend work on my mother, and it made my mother feel much worse and she asked for it to stop. Acupuncture also won't do much to " cure " cancer. However, using it to help deal with side effects of chemo is great. What kind of diet changes? Some cancers will respond well to diet. Some won't. How old is your mother in law? Is her cancer hormone driven? What about surgery? She may want to get a second opinion. 3 chemo sessions isn't a whole lot, her body probably handled them well, if she is in good shape. How much is your MIL willing to do alternatively? ar > > Hi everyone, > > I'm here because my mother in law in France was diagnosed with uterine cancer, has a very large growth in her uterus, cancer cells in a couple of other spots in her lower body, and was given till the end of the year to live. > > Against our better judgement she did get three chemo therapies, but we felt it was better to honor her wishes than not show her love and support. Now that they are done, the doctor has expressed shock that she isn't substantially worse (read on death's bed) and after the next check up if she isn't regressing he has said " gee well there's nothing I can do except maintain her " !!! > > We have had a healer here in the States working on her who is also a reader who has always told us to believe she will come through this. My husband has been working on sending healing energies as well. The healer has asked us to have her diet changed as well as send her for acupuncture but the people she's been staying with temporarily (the wife of the couple is also a patient of the doctor) are believing more in the doctor than in my MIL's ability to heal. > > So we are trying to figure out how we can afford for my husband to go over there for a month to work on some alternative treatments. Part of the problem is that we cannot find much of anything in France. > > So I guess first of all I would like to know if anyone knows of any resources n France? And second, thank you for this forum. It's so hard to find support for our beliefs in the ability of other things than modern medicine to heal ourselves. > > Thanks so much! > in Miami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hi Kathy, I'm so sorry for the pain and trouble you've been through. The number of ailments your body has developed tells me that you should do some serious lifestyle changes. Budwig is a great place to start. However, I would suggest you also look at being tested for food allergies. For instance, I tried Budwig not realizing that I am allergic to one of the key ingredients - so, I didn't do very well on it. But, hidden food allergies can cause many problems, so I would suggest checking it out. Also, look at having your vitamin D levels checked. And look at http://www.breastcancerchoices.org for information on iodine. Are you BRCA positive? I was 42 when diagnosed with breast cancer - a few months after my mother died of an undiagnosed gyn cancer. All my best to you. ar > > I am new to this group and wanted to introduce myself. I'm 41, married with > 7 kids. I live in WA state up by Seattle. I was just diagnosed with breast > cancer. I also have Lupus, Crohn's, high blood pressure, pulmonary > hypertension and PCOS. About a year and a half ago my health just started to go > down hill. I started with a cough I couldn't shake, then had blood clots in > my arms, my medication was not working. It finally got so bad this April I > had a portacath put in. The doctor messed up the surgery so two weeks later > I had the surgery done again to fix it. After the surgery my body just gave > up. I was sleeping 24 hours a day. My husband would come in and wake me up > to use the restroom, take my medication and try to get me to eat > something. I gradually started staying awake more but was in a wheelchair. I was > going to physical therapy and had just got to where they were going to move me > to a walker when I got the flu. That set me all the way back to where I > was right after surgery. The 2nd day of the flu my doctor called and said he > needed to see me. I said I was sick and he insisted so in I went with 5 > sick little girl in tow. That's when they told me I had breast cancer. The > surgeon is wanting to operate right away. He wants to do a lumpectomy with > radiation. My rheumatologist has said I can't do radiation because of the > Lupus. So now they are suggesting a mastectomy and chemo. My mom also had > Chron's disease. She also went on remicade and a year later came down with > breast cancer. She did have a lumpectomy and radiation. 6 months later the > cancer came back and was agressive. It had spread to her bones, liver and lungs. > She passed away about a year after she was first diagnosed. I've felt > doomed and waiting for the day the doctor would tell me I had breast cancer. > While trying to educate myself I stumbled across the budwig diet. I am trying > to learn as much as I can and am thinking of trying it before letting the > doctors operate. > > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 <<Are you BRCA positive?>> I don't know. I haven't been tested. There is no history of breast cancer on either side of the family until my mom got sick. All the surgeon has told me is that I have DCIS. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I'm sorry, Kathy but my links did not work so here let me try this again... LDN_Information/ iodine/ Sandy Hi Kathy--- Please go to this site. It is about LDN [Low Does Naltexone and how it is helping many people with cancer and chron's disease. Go through the files section to the left and read all there is...it will help you greatly. I also recommend this group, Iodine. Many people who have cancer are lacking in iodine. Quote Link to comment Share on other sites More sharing options...
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