New Member Intro

[Guest guest]

Dave,

Thank you for your words of encouragement. Wow, you have really had a

rough time. To be honest, I am so glad I haven't had surgery and

really don't plan to because I know it is only a short term fix with

many problems later down the road as stress on adjoining levels will

cause them to break down.

In my intro, I failed to mention I also have multilevel lumbar disc

disease which is compounding my problems with work. I have had severe

muscle cramping in my low back which really stops me in my tracks.

Muscle relaxing meds help a lot but make me so dizzy and spacy I can't

perform my job safely. I can live with the sciatica and leg pain but

when I fell into a patient sitting in a recliner when my back seized

up, I knew this wasn't going to work for me.

I am SO GLAD I opted for long term disability insurance when I took

this job. It may be my salvation down the road.

Carol

[Guest guest]

Dave,

Thank you for your words of encouragement. Wow, you have really had a

rough time. To be honest, I am so glad I haven't had surgery and

really don't plan to because I know it is only a short term fix with

many problems later down the road as stress on adjoining levels will

cause them to break down.

In my intro, I failed to mention I also have multilevel lumbar disc

disease which is compounding my problems with work. I have had severe

muscle cramping in my low back which really stops me in my tracks.

Muscle relaxing meds help a lot but make me so dizzy and spacy I can't

perform my job safely. I can live with the sciatica and leg pain but

when I fell into a patient sitting in a recliner when my back seized

up, I knew this wasn't going to work for me.

I am SO GLAD I opted for long term disability insurance when I took

this job. It may be my salvation down the road.

Carol

[Guest guest]

-Hi Carol first welcome to the group. Second go get another opinion

from a surgeon. I had 3 turn me down for neck surgery and finally

after a 1 1/2 and into horrible pain that was out of control by then

I found a dr who helped me. I too got told by my dr " there is

nothing more I can offer you and I know how you felt, I Felt

betrayed, it was like I had no one to help me at all anymore. SO I

decided I had to help myself and I did. DOn't believe one dr ask

another and another if you want too. If you need the surgery to work

and you need to work then they should do it.I had no arm pain and

very little shoulder pain, and alot of pain in my upper back. But My

neck pain was by far the worse it hurt to hold up my head. My

surgeon cleaned things all out,fused a layer and did alot of other

stuff in there and I feel pretty good still. Go back into the

messages and find the one about Stenosis it had an study in there

that said most people DO NOT GET better without sooner or later

having surgery. Good Luck to you and let us know how you are doing

are doing, I wish you happy dr hunting. Sharon Group Owner

TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote:

>

> Hello,

> I am a new member and here's my story. I am a 59 year old RN who

> has worked my whole life until this past week, when pain finally

> forced me to take a LOA from my job as an IV therapist in an

> outpatient infusion center. My initial injury dates back 25 years

> when I suffered a severe whiplash injury. I've had neck pain over

> the years, but have always managed it by avoiding activities I

know

> will cause me trouble, as well as conservative treatment with ice

> and rest and OTC meds when I do have pain.

> After taking my current job two years ago, I began having more

> frequent and increasingly intense pain in my neck. It is a

stabbing,

> burning pain in the left side of my neck which I rate as an 8-9

when

> it's really bad. I usually walk around work with a ice pack on my

> neck most of the day. Some days I have to stop and sit down with

an

> ice pack on my neck for 15 minutes or so until the pain subsides.

> Pain pills take the edge off but make me spaced outvand I'm scared

> because I can't afford to be less than 100% when I'm putting in

IVs

> and giving chemotherapy and other drugs all day.

> My PCP sent me to a PM & R specialist a year ago after my pain

became

> a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

> level moderate to severe cervical stenosis. I have seen a

> neurosurgeon and been told I am not a surgical candidate since I

do

> not have any arm or shoulder pain, and surgery is unlikely to

> relieve my pain.

> I've had two selective nerve blocks as well as the usual muscle

> relaxers and pain meds. The first block totally eliminated my pain

> for six wonderful weeks, but then the pain gradually returned

until

> it was worse than before the block. I had a second block three

weeks

> ago, but when I returned to work the following week the pain was

as

> bad as ever. I had a follow-up appointment with the doctor last

week

> and he told me he had nothing further to offer me. I told him I

had

> hit the wall as far as pain was concerned and his only advice was

to

> find a different job. He did give me six weeks off work and told

me

> to follow up with my PCP. After being very encouraging over the

past

> year that he could help me, he suddenly said that was it, he

> couldnt' do anything more for me. I felt like someone kicked me in

> the gut.

> So, as of now, I am on a six week LOA, and after that I don't know

> what will happen. I know that when I go back to work the pain will

> most likely return. My employer has told me that I have to be

able

> to perform all aspects of my job and that they will not make

> accommodations such as restricting some of my activities.

> Where do I go from here? I have no idea. I do have LTD insurance

> but the idea of not being able to work is totally foreign to me.

The

> sad thing is, this job is the best one I've ever had and I really

> love the work and the people I work with.

> I hope to gain support and information from all of you who have

been

> down this road ahead of me.

> Best Wishes

> Carol

>

[Guest guest]

-Hi Carol first welcome to the group. Second go get another opinion

from a surgeon. I had 3 turn me down for neck surgery and finally

after a 1 1/2 and into horrible pain that was out of control by then

I found a dr who helped me. I too got told by my dr " there is

nothing more I can offer you and I know how you felt, I Felt

betrayed, it was like I had no one to help me at all anymore. SO I

decided I had to help myself and I did. DOn't believe one dr ask

another and another if you want too. If you need the surgery to work

and you need to work then they should do it.I had no arm pain and

very little shoulder pain, and alot of pain in my upper back. But My

neck pain was by far the worse it hurt to hold up my head. My

surgeon cleaned things all out,fused a layer and did alot of other

stuff in there and I feel pretty good still. Go back into the

messages and find the one about Stenosis it had an study in there

that said most people DO NOT GET better without sooner or later

having surgery. Good Luck to you and let us know how you are doing

are doing, I wish you happy dr hunting. Sharon Group Owner

TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote:

>

> Hello,

> I am a new member and here's my story. I am a 59 year old RN who

> has worked my whole life until this past week, when pain finally

> forced me to take a LOA from my job as an IV therapist in an

> outpatient infusion center. My initial injury dates back 25 years

> when I suffered a severe whiplash injury. I've had neck pain over

> the years, but have always managed it by avoiding activities I

know

> will cause me trouble, as well as conservative treatment with ice

> and rest and OTC meds when I do have pain.

> After taking my current job two years ago, I began having more

> frequent and increasingly intense pain in my neck. It is a

stabbing,

> burning pain in the left side of my neck which I rate as an 8-9

when

> it's really bad. I usually walk around work with a ice pack on my

> neck most of the day. Some days I have to stop and sit down with

an

> ice pack on my neck for 15 minutes or so until the pain subsides.

> Pain pills take the edge off but make me spaced outvand I'm scared

> because I can't afford to be less than 100% when I'm putting in

IVs

> and giving chemotherapy and other drugs all day.

> My PCP sent me to a PM & R specialist a year ago after my pain

became

> a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

> level moderate to severe cervical stenosis. I have seen a

> neurosurgeon and been told I am not a surgical candidate since I

do

> not have any arm or shoulder pain, and surgery is unlikely to

> relieve my pain.

> I've had two selective nerve blocks as well as the usual muscle

> relaxers and pain meds. The first block totally eliminated my pain

> for six wonderful weeks, but then the pain gradually returned

until

> it was worse than before the block. I had a second block three

weeks

> ago, but when I returned to work the following week the pain was

as

> bad as ever. I had a follow-up appointment with the doctor last

week

> and he told me he had nothing further to offer me. I told him I

had

> hit the wall as far as pain was concerned and his only advice was

to

> find a different job. He did give me six weeks off work and told

me

> to follow up with my PCP. After being very encouraging over the

past

> year that he could help me, he suddenly said that was it, he

> couldnt' do anything more for me. I felt like someone kicked me in

> the gut.

> So, as of now, I am on a six week LOA, and after that I don't know

> what will happen. I know that when I go back to work the pain will

> most likely return. My employer has told me that I have to be

able

> to perform all aspects of my job and that they will not make

> accommodations such as restricting some of my activities.

> Where do I go from here? I have no idea. I do have LTD insurance

> but the idea of not being able to work is totally foreign to me.

The

> sad thing is, this job is the best one I've ever had and I really

> love the work and the people I work with.

> I hope to gain support and information from all of you who have

been

> down this road ahead of me.

> Best Wishes

> Carol

>

[Guest guest]

-Hi Carol first welcome to the group. Second go get another opinion

from a surgeon. I had 3 turn me down for neck surgery and finally

after a 1 1/2 and into horrible pain that was out of control by then

I found a dr who helped me. I too got told by my dr " there is

nothing more I can offer you and I know how you felt, I Felt

betrayed, it was like I had no one to help me at all anymore. SO I

decided I had to help myself and I did. DOn't believe one dr ask

another and another if you want too. If you need the surgery to work

and you need to work then they should do it.I had no arm pain and

very little shoulder pain, and alot of pain in my upper back. But My

neck pain was by far the worse it hurt to hold up my head. My

surgeon cleaned things all out,fused a layer and did alot of other

stuff in there and I feel pretty good still. Go back into the

messages and find the one about Stenosis it had an study in there

that said most people DO NOT GET better without sooner or later

having surgery. Good Luck to you and let us know how you are doing

are doing, I wish you happy dr hunting. Sharon Group Owner

TheNeck-Back , " Carol Beckman " <galtgirlrn@...> wrote:

>

> Hello,

> I am a new member and here's my story. I am a 59 year old RN who

> has worked my whole life until this past week, when pain finally

> forced me to take a LOA from my job as an IV therapist in an

> outpatient infusion center. My initial injury dates back 25 years

> when I suffered a severe whiplash injury. I've had neck pain over

> the years, but have always managed it by avoiding activities I

know

> will cause me trouble, as well as conservative treatment with ice

> and rest and OTC meds when I do have pain.

> After taking my current job two years ago, I began having more

> frequent and increasingly intense pain in my neck. It is a

stabbing,

> burning pain in the left side of my neck which I rate as an 8-9

when

> it's really bad. I usually walk around work with a ice pack on my

> neck most of the day. Some days I have to stop and sit down with

an

> ice pack on my neck for 15 minutes or so until the pain subsides.

> Pain pills take the edge off but make me spaced outvand I'm scared

> because I can't afford to be less than 100% when I'm putting in

IVs

> and giving chemotherapy and other drugs all day.

> My PCP sent me to a PM & R specialist a year ago after my pain

became

> a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

> level moderate to severe cervical stenosis. I have seen a

> neurosurgeon and been told I am not a surgical candidate since I

do

> not have any arm or shoulder pain, and surgery is unlikely to

> relieve my pain.

> I've had two selective nerve blocks as well as the usual muscle

> relaxers and pain meds. The first block totally eliminated my pain

> for six wonderful weeks, but then the pain gradually returned

until

> it was worse than before the block. I had a second block three

weeks

> ago, but when I returned to work the following week the pain was

as

> bad as ever. I had a follow-up appointment with the doctor last

week

> and he told me he had nothing further to offer me. I told him I

had

> hit the wall as far as pain was concerned and his only advice was

to

> find a different job. He did give me six weeks off work and told

me

> to follow up with my PCP. After being very encouraging over the

past

> year that he could help me, he suddenly said that was it, he

> couldnt' do anything more for me. I felt like someone kicked me in

> the gut.

> So, as of now, I am on a six week LOA, and after that I don't know

> what will happen. I know that when I go back to work the pain will

> most likely return. My employer has told me that I have to be

able

> to perform all aspects of my job and that they will not make

> accommodations such as restricting some of my activities.

> Where do I go from here? I have no idea. I do have LTD insurance

> but the idea of not being able to work is totally foreign to me.

The

> sad thing is, this job is the best one I've ever had and I really

> love the work and the people I work with.

> I hope to gain support and information from all of you who have

been

> down this road ahead of me.

> Best Wishes

> Carol

>

[Guest guest]

hi carol, welcome to the group,

sorry that pain has brought you to us. I can't get over what your employer

said to you. I just lost my job because i was unable to perform my duties

anymore. It really hurt listening to them lie to the unemployment officer

about why they fired me. I was the most senior employee for the company

too. That can't be right (what he said to you) don't they legally have to

make accomedations for you? oh, there goes my youngest covered in i don't

know what; gotta go, but I'm glad you are here, this is a great bunch of

people. ooh sticky mess, take care carol sorry this got cut short.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: " Carol Beckman " <galtgirlrn@...>

>Reply-neck pain

>neck pain

>Subject: New Member Intro

>Date: Sun, 26 Feb 2006 19:44:58 -0000

>

>Hello,

>I am a new member and here's my story. I am a 59 year old RN who

>has worked my whole life until this past week, when pain finally

>forced me to take a LOA from my job as an IV therapist in an

>outpatient infusion center. My initial injury dates back 25 years

>when I suffered a severe whiplash injury. I've had neck pain over

>the years, but have always managed it by avoiding activities I know

>will cause me trouble, as well as conservative treatment with ice

>and rest and OTC meds when I do have pain.

>After taking my current job two years ago, I began having more

>frequent and increasingly intense pain in my neck. It is a stabbing,

>burning pain in the left side of my neck which I rate as an 8-9 when

>it's really bad. I usually walk around work with a ice pack on my

>neck most of the day. Some days I have to stop and sit down with an

>ice pack on my neck for 15 minutes or so until the pain subsides.

>Pain pills take the edge off but make me spaced outvand I'm scared

>because I can't afford to be less than 100% when I'm putting in IVs

>and giving chemotherapy and other drugs all day.

>My PCP sent me to a PM & R specialist a year ago after my pain became

>a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

>level moderate to severe cervical stenosis. I have seen a

>neurosurgeon and been told I am not a surgical candidate since I do

>not have any arm or shoulder pain, and surgery is unlikely to

>relieve my pain.

>I've had two selective nerve blocks as well as the usual muscle

>relaxers and pain meds. The first block totally eliminated my pain

>for six wonderful weeks, but then the pain gradually returned until

>it was worse than before the block. I had a second block three weeks

>ago, but when I returned to work the following week the pain was as

>bad as ever. I had a follow-up appointment with the doctor last week

>and he told me he had nothing further to offer me. I told him I had

>hit the wall as far as pain was concerned and his only advice was to

>find a different job. He did give me six weeks off work and told me

>to follow up with my PCP. After being very encouraging over the past

>year that he could help me, he suddenly said that was it, he

>couldnt' do anything more for me. I felt like someone kicked me in

>the gut.

>So, as of now, I am on a six week LOA, and after that I don't know

>what will happen. I know that when I go back to work the pain will

>most likely return. My employer has told me that I have to be able

>to perform all aspects of my job and that they will not make

>accommodations such as restricting some of my activities.

>Where do I go from here? I have no idea. I do have LTD insurance

>but the idea of not being able to work is totally foreign to me. The

>sad thing is, this job is the best one I've ever had and I really

>love the work and the people I work with.

>I hope to gain support and information from all of you who have been

>down this road ahead of me.

>Best Wishes

>Carol

>

>

>

>

_________________________________________________________________

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Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

hi carol, welcome to the group,

sorry that pain has brought you to us. I can't get over what your employer

said to you. I just lost my job because i was unable to perform my duties

anymore. It really hurt listening to them lie to the unemployment officer

about why they fired me. I was the most senior employee for the company

too. That can't be right (what he said to you) don't they legally have to

make accomedations for you? oh, there goes my youngest covered in i don't

know what; gotta go, but I'm glad you are here, this is a great bunch of

people. ooh sticky mess, take care carol sorry this got cut short.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: " Carol Beckman " <galtgirlrn@...>

>Reply-neck pain

>neck pain

>Subject: New Member Intro

>Date: Sun, 26 Feb 2006 19:44:58 -0000

>

>Hello,

>I am a new member and here's my story. I am a 59 year old RN who

>has worked my whole life until this past week, when pain finally

>forced me to take a LOA from my job as an IV therapist in an

>outpatient infusion center. My initial injury dates back 25 years

>when I suffered a severe whiplash injury. I've had neck pain over

>the years, but have always managed it by avoiding activities I know

>will cause me trouble, as well as conservative treatment with ice

>and rest and OTC meds when I do have pain.

>After taking my current job two years ago, I began having more

>frequent and increasingly intense pain in my neck. It is a stabbing,

>burning pain in the left side of my neck which I rate as an 8-9 when

>it's really bad. I usually walk around work with a ice pack on my

>neck most of the day. Some days I have to stop and sit down with an

>ice pack on my neck for 15 minutes or so until the pain subsides.

>Pain pills take the edge off but make me spaced outvand I'm scared

>because I can't afford to be less than 100% when I'm putting in IVs

>and giving chemotherapy and other drugs all day.

>My PCP sent me to a PM & R specialist a year ago after my pain became

>a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

>level moderate to severe cervical stenosis. I have seen a

>neurosurgeon and been told I am not a surgical candidate since I do

>not have any arm or shoulder pain, and surgery is unlikely to

>relieve my pain.

>I've had two selective nerve blocks as well as the usual muscle

>relaxers and pain meds. The first block totally eliminated my pain

>for six wonderful weeks, but then the pain gradually returned until

>it was worse than before the block. I had a second block three weeks

>ago, but when I returned to work the following week the pain was as

>bad as ever. I had a follow-up appointment with the doctor last week

>and he told me he had nothing further to offer me. I told him I had

>hit the wall as far as pain was concerned and his only advice was to

>find a different job. He did give me six weeks off work and told me

>to follow up with my PCP. After being very encouraging over the past

>year that he could help me, he suddenly said that was it, he

>couldnt' do anything more for me. I felt like someone kicked me in

>the gut.

>So, as of now, I am on a six week LOA, and after that I don't know

>what will happen. I know that when I go back to work the pain will

>most likely return. My employer has told me that I have to be able

>to perform all aspects of my job and that they will not make

>accommodations such as restricting some of my activities.

>Where do I go from here? I have no idea. I do have LTD insurance

>but the idea of not being able to work is totally foreign to me. The

>sad thing is, this job is the best one I've ever had and I really

>love the work and the people I work with.

>I hope to gain support and information from all of you who have been

>down this road ahead of me.

>Best Wishes

>Carol

>

>

>

>

_________________________________________________________________

Is your PC infected? Get a FREE online computer virus scan from McAfee®

Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

hi carol, welcome to the group,

sorry that pain has brought you to us. I can't get over what your employer

said to you. I just lost my job because i was unable to perform my duties

anymore. It really hurt listening to them lie to the unemployment officer

about why they fired me. I was the most senior employee for the company

too. That can't be right (what he said to you) don't they legally have to

make accomedations for you? oh, there goes my youngest covered in i don't

know what; gotta go, but I'm glad you are here, this is a great bunch of

people. ooh sticky mess, take care carol sorry this got cut short.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: " Carol Beckman " <galtgirlrn@...>

>Reply-neck pain

>neck pain

>Subject: New Member Intro

>Date: Sun, 26 Feb 2006 19:44:58 -0000

>

>Hello,

>I am a new member and here's my story. I am a 59 year old RN who

>has worked my whole life until this past week, when pain finally

>forced me to take a LOA from my job as an IV therapist in an

>outpatient infusion center. My initial injury dates back 25 years

>when I suffered a severe whiplash injury. I've had neck pain over

>the years, but have always managed it by avoiding activities I know

>will cause me trouble, as well as conservative treatment with ice

>and rest and OTC meds when I do have pain.

>After taking my current job two years ago, I began having more

>frequent and increasingly intense pain in my neck. It is a stabbing,

>burning pain in the left side of my neck which I rate as an 8-9 when

>it's really bad. I usually walk around work with a ice pack on my

>neck most of the day. Some days I have to stop and sit down with an

>ice pack on my neck for 15 minutes or so until the pain subsides.

>Pain pills take the edge off but make me spaced outvand I'm scared

>because I can't afford to be less than 100% when I'm putting in IVs

>and giving chemotherapy and other drugs all day.

>My PCP sent me to a PM & R specialist a year ago after my pain became

>a daily thing. After an MRI and CT Myelogram, my diagnosis is 3

>level moderate to severe cervical stenosis. I have seen a

>neurosurgeon and been told I am not a surgical candidate since I do

>not have any arm or shoulder pain, and surgery is unlikely to

>relieve my pain.

>I've had two selective nerve blocks as well as the usual muscle

>relaxers and pain meds. The first block totally eliminated my pain

>for six wonderful weeks, but then the pain gradually returned until

>it was worse than before the block. I had a second block three weeks

>ago, but when I returned to work the following week the pain was as

>bad as ever. I had a follow-up appointment with the doctor last week

>and he told me he had nothing further to offer me. I told him I had

>hit the wall as far as pain was concerned and his only advice was to

>find a different job. He did give me six weeks off work and told me

>to follow up with my PCP. After being very encouraging over the past

>year that he could help me, he suddenly said that was it, he

>couldnt' do anything more for me. I felt like someone kicked me in

>the gut.

>So, as of now, I am on a six week LOA, and after that I don't know

>what will happen. I know that when I go back to work the pain will

>most likely return. My employer has told me that I have to be able

>to perform all aspects of my job and that they will not make

>accommodations such as restricting some of my activities.

>Where do I go from here? I have no idea. I do have LTD insurance

>but the idea of not being able to work is totally foreign to me. The

>sad thing is, this job is the best one I've ever had and I really

>love the work and the people I work with.

>I hope to gain support and information from all of you who have been

>down this road ahead of me.

>Best Wishes

>Carol

>

>

>

>

_________________________________________________________________

Is your PC infected? Get a FREE online computer virus scan from McAfee®

Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

hey dave,

we need something positive in our lives; all of us. I'm sure everyone has

something positive, but i mean something huge, something great, something so

big it even pushes the pain to the back ground. I get so worked up reading

everyone's posts. I want to help everyone, fix things, offer up information

that would really help; something. It just shouldn't be this way. I know i

whine and vent alot and it's only been 4 yrs for me. I read your post and I

don't know that I would be strong enough to deal with the pain and

everything else you've gone through. You, Sharon, and Kat and a few others

just amaze me. You've been going at this for so long but you don't give

up. It's very inspiring. I have alot of respect for you guys, and it

motivates me to keep going, to keep trying and not give up. I just wanted

to thank everyone here that posts, I'm sure a lot of people get strenght

from them. (the posts) thanks everyone, and take care.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: Cruikshank <d.cruikshank@...>

>Reply-neck pain

>neck pain

>Subject: Re: New Member Intro

>Date: Mon, 27 Feb 2006 11:18:44 -0500

>

>Carol, welcome ! I've had a couple of bad days lately myself, so I don't

>know how much conversation I have in me right now. I just wanted to let

>you know, that your not alone. I'm 45 and had to close a business that my

>wife and I built up over 15 years, and move in with my mother in law in the

>past year. I have fusion in 4 levels in my lower back, herniations in my

>thoracic, and fusion in my neck, 1 level. I obviously, had operations, 2

>in the 80's and 2 in the year 2000. I've been to 3 top level neurosurgeons,

>5 physical therapy groups, 4 pain management specialist, several healing

>services at church etc. I had injections didn't work, tried acupuncture,

>didn't work, my last great hope was to get a morphine pump installed. They

>tell me I'm not a candidate, because they can't pin point the source of my

>pain. So like you, I've been told this is as good as it gets, when your

>back/neck has had 4 surgeries , and several trauma's over your lifetime.

>The big one was I crashed a hang glider 24 years ago. So I've been told

>right now Narcotics, antidepressant etc is my pain management. I also use

>many ice packs, a massaging chair, a massaging pad in bed and the car, a

>heavy duty hand held percussion massager, and a Tens to try to keep the

>pain bearable. The levels of meds has ratcheted up significantly over the

>past 2 years. I now have lots of stomach problems, on top of my pain,

>which has been labled Myofacial disease. Had a really bad run this last

>weekend. So I too have had the sting of " This is as good as it

>gets " . I've hired a lawyer and filed for SSI, I got my first rejection

>letter last week. We are appealing but It takes 1 year to get a court

>date. In the mean time, I've got no personal income, I lost my home and

>business, and my dear wife, is the soul breadwinner. I've been working

>since I was 14. I'm not adapting well to Not Working ! SSI tells me there

>is no evidence that I can't work. My lack of sleep and level of pain,

>generally 8 this week off the charts, tells me different.

>

>O well I guess I had a little more story in me than I thought , this

>morning. Frustration will do that to you. Welcome, we don't have all the

>answers here, but we do have years of experience, and lots of compassion.

>

>Dave in PA

>

_________________________________________________________________

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[Guest guest]

hey dave,

we need something positive in our lives; all of us. I'm sure everyone has

something positive, but i mean something huge, something great, something so

big it even pushes the pain to the back ground. I get so worked up reading

everyone's posts. I want to help everyone, fix things, offer up information

that would really help; something. It just shouldn't be this way. I know i

whine and vent alot and it's only been 4 yrs for me. I read your post and I

don't know that I would be strong enough to deal with the pain and

everything else you've gone through. You, Sharon, and Kat and a few others

just amaze me. You've been going at this for so long but you don't give

up. It's very inspiring. I have alot of respect for you guys, and it

motivates me to keep going, to keep trying and not give up. I just wanted

to thank everyone here that posts, I'm sure a lot of people get strenght

from them. (the posts) thanks everyone, and take care.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: Cruikshank <d.cruikshank@...>

>Reply-neck pain

>neck pain

>Subject: Re: New Member Intro

>Date: Mon, 27 Feb 2006 11:18:44 -0500

>

>Carol, welcome ! I've had a couple of bad days lately myself, so I don't

>know how much conversation I have in me right now. I just wanted to let

>you know, that your not alone. I'm 45 and had to close a business that my

>wife and I built up over 15 years, and move in with my mother in law in the

>past year. I have fusion in 4 levels in my lower back, herniations in my

>thoracic, and fusion in my neck, 1 level. I obviously, had operations, 2

>in the 80's and 2 in the year 2000. I've been to 3 top level neurosurgeons,

>5 physical therapy groups, 4 pain management specialist, several healing

>services at church etc. I had injections didn't work, tried acupuncture,

>didn't work, my last great hope was to get a morphine pump installed. They

>tell me I'm not a candidate, because they can't pin point the source of my

>pain. So like you, I've been told this is as good as it gets, when your

>back/neck has had 4 surgeries , and several trauma's over your lifetime.

>The big one was I crashed a hang glider 24 years ago. So I've been told

>right now Narcotics, antidepressant etc is my pain management. I also use

>many ice packs, a massaging chair, a massaging pad in bed and the car, a

>heavy duty hand held percussion massager, and a Tens to try to keep the

>pain bearable. The levels of meds has ratcheted up significantly over the

>past 2 years. I now have lots of stomach problems, on top of my pain,

>which has been labled Myofacial disease. Had a really bad run this last

>weekend. So I too have had the sting of " This is as good as it

>gets " . I've hired a lawyer and filed for SSI, I got my first rejection

>letter last week. We are appealing but It takes 1 year to get a court

>date. In the mean time, I've got no personal income, I lost my home and

>business, and my dear wife, is the soul breadwinner. I've been working

>since I was 14. I'm not adapting well to Not Working ! SSI tells me there

>is no evidence that I can't work. My lack of sleep and level of pain,

>generally 8 this week off the charts, tells me different.

>

>O well I guess I had a little more story in me than I thought , this

>morning. Frustration will do that to you. Welcome, we don't have all the

>answers here, but we do have years of experience, and lots of compassion.

>

>Dave in PA

>

_________________________________________________________________

FREE pop-up blocking with the new MSN Toolbar – get it now!

http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/

[Guest guest]

Sharon

I also have stenosis could you please send that one to

the group as I don't know how to go back and get it

I'm kinda new as far as posting.Thanks Shirley

--- darkstarzz1019 <darkstarzz1019@...> wrote:

> -Hi Carol first welcome to the group. Second go get

> another opinion

> from a surgeon. I had 3 turn me down for neck

> surgery and finally

> after a 1 1/2 and into horrible pain that was out of

> control by then

> I found a dr who helped me. I too got told by my dr

> " there is

> nothing more I can offer you and I know how you

> felt, I Felt

> betrayed, it was like I had no one to help me at all

> anymore. SO I

> decided I had to help myself and I did. DOn't

> believe one dr ask

> another and another if you want too. If you need the

> surgery to work

> and you need to work then they should do it.I had no

> arm pain and

> very little shoulder pain, and alot of pain in my

> upper back. But My

> neck pain was by far the worse it hurt to hold up my

> head. My

> surgeon cleaned things all out,fused a layer and did

> alot of other

> stuff in there and I feel pretty good still. Go back

> into the

> messages and find the one about Stenosis it had an

> study in there

> that said most people DO NOT GET better without

> sooner or later

> having surgery. Good Luck to you and let us know how

> you are doing

> are doing, I wish you happy dr hunting. Sharon Group

> Owner

>

> TheNeck-Back , " Carol Beckman "

> <galtgirlrn@...> wrote:

> >

> > Hello,

> > I am a new member and here's my story. I am a 59

> year old RN who

> > has worked my whole life until this past week,

> when pain finally

> > forced me to take a LOA from my job as an IV

> therapist in an

> > outpatient infusion center. My initial injury

> dates back 25 years

> > when I suffered a severe whiplash injury. I've

> had neck pain over

> > the years, but have always managed it by avoiding

> activities I

> know

> > will cause me trouble, as well as conservative

> treatment with ice

> > and rest and OTC meds when I do have pain.

> > After taking my current job two years ago, I began

> having more

> > frequent and increasingly intense pain in my neck.

> It is a

> stabbing,

> > burning pain in the left side of my neck which I

> rate as an 8-9

> when

> > it's really bad. I usually walk around work with a

> ice pack on my

> > neck most of the day. Some days I have to stop and

> sit down with

> an

> > ice pack on my neck for 15 minutes or so until the

> pain subsides.

> > Pain pills take the edge off but make me spaced

> outvand I'm scared

> > because I can't afford to be less than 100% when

> I'm putting in

> IVs

> > and giving chemotherapy and other drugs all day.

> > My PCP sent me to a PM & R specialist a year ago

> after my pain

> became

> > a daily thing. After an MRI and CT Myelogram, my

> diagnosis is 3

> > level moderate to severe cervical stenosis. I have

> seen a

> > neurosurgeon and been told I am not a surgical

> candidate since I

> do

> > not have any arm or shoulder pain, and surgery is

> unlikely to

> > relieve my pain.

> > I've had two selective nerve blocks as well as the

> usual muscle

> > relaxers and pain meds. The first block totally

> eliminated my pain

> > for six wonderful weeks, but then the pain

> gradually returned

> until

> > it was worse than before the block. I had a second

> block three

> weeks

> > ago, but when I returned to work the following

> week the pain was

> as

> > bad as ever. I had a follow-up appointment with

> the doctor last

> week

> > and he told me he had nothing further to offer me.

> I told him I

> had

> > hit the wall as far as pain was concerned and his

> only advice was

> to

> > find a different job. He did give me six weeks off

> work and told

> me

> > to follow up with my PCP. After being very

> encouraging over the

> past

> > year that he could help me, he suddenly said that

> was it, he

> > couldnt' do anything more for me. I felt like

> someone kicked me in

> > the gut.

> > So, as of now, I am on a six week LOA, and after

> that I don't know

> > what will happen. I know that when I go back to

> work the pain will

> > most likely return. My employer has told me that

> I have to be

> able

> > to perform all aspects of my job and that they

> will not make

> > accommodations such as restricting some of my

> activities.

> > Where do I go from here? I have no idea. I do

> have LTD insurance

> > but the idea of not being able to work is totally

> foreign to me.

> The

> > sad thing is, this job is the best one I've ever

> had and I really

> > love the work and the people I work with.

> > I hope to gain support and information from all of

> you who have

> been

> > down this road ahead of me.

> > Best Wishes

> > Carol

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Sharon

I also have stenosis could you please send that one to

the group as I don't know how to go back and get it

I'm kinda new as far as posting.Thanks Shirley

--- darkstarzz1019 <darkstarzz1019@...> wrote:

> -Hi Carol first welcome to the group. Second go get

> another opinion

> from a surgeon. I had 3 turn me down for neck

> surgery and finally

> after a 1 1/2 and into horrible pain that was out of

> control by then

> I found a dr who helped me. I too got told by my dr

> " there is

> nothing more I can offer you and I know how you

> felt, I Felt

> betrayed, it was like I had no one to help me at all

> anymore. SO I

> decided I had to help myself and I did. DOn't

> believe one dr ask

> another and another if you want too. If you need the

> surgery to work

> and you need to work then they should do it.I had no

> arm pain and

> very little shoulder pain, and alot of pain in my

> upper back. But My

> neck pain was by far the worse it hurt to hold up my

> head. My

> surgeon cleaned things all out,fused a layer and did

> alot of other

> stuff in there and I feel pretty good still. Go back

> into the

> messages and find the one about Stenosis it had an

> study in there

> that said most people DO NOT GET better without

> sooner or later

> having surgery. Good Luck to you and let us know how

> you are doing

> are doing, I wish you happy dr hunting. Sharon Group

> Owner

>

> TheNeck-Back , " Carol Beckman "

> <galtgirlrn@...> wrote:

> >

> > Hello,

> > I am a new member and here's my story. I am a 59

> year old RN who

> > has worked my whole life until this past week,

> when pain finally

> > forced me to take a LOA from my job as an IV

> therapist in an

> > outpatient infusion center. My initial injury

> dates back 25 years

> > when I suffered a severe whiplash injury. I've

> had neck pain over

> > the years, but have always managed it by avoiding

> activities I

> know

> > will cause me trouble, as well as conservative

> treatment with ice

> > and rest and OTC meds when I do have pain.

> > After taking my current job two years ago, I began

> having more

> > frequent and increasingly intense pain in my neck.

> It is a

> stabbing,

> > burning pain in the left side of my neck which I

> rate as an 8-9

> when

> > it's really bad. I usually walk around work with a

> ice pack on my

> > neck most of the day. Some days I have to stop and

> sit down with

> an

> > ice pack on my neck for 15 minutes or so until the

> pain subsides.

> > Pain pills take the edge off but make me spaced

> outvand I'm scared

> > because I can't afford to be less than 100% when

> I'm putting in

> IVs

> > and giving chemotherapy and other drugs all day.

> > My PCP sent me to a PM & R specialist a year ago

> after my pain

> became

> > a daily thing. After an MRI and CT Myelogram, my

> diagnosis is 3

> > level moderate to severe cervical stenosis. I have

> seen a

> > neurosurgeon and been told I am not a surgical

> candidate since I

> do

> > not have any arm or shoulder pain, and surgery is

> unlikely to

> > relieve my pain.

> > I've had two selective nerve blocks as well as the

> usual muscle

> > relaxers and pain meds. The first block totally

> eliminated my pain

> > for six wonderful weeks, but then the pain

> gradually returned

> until

> > it was worse than before the block. I had a second

> block three

> weeks

> > ago, but when I returned to work the following

> week the pain was

> as

> > bad as ever. I had a follow-up appointment with

> the doctor last

> week

> > and he told me he had nothing further to offer me.

> I told him I

> had

> > hit the wall as far as pain was concerned and his

> only advice was

> to

> > find a different job. He did give me six weeks off

> work and told

> me

> > to follow up with my PCP. After being very

> encouraging over the

> past

> > year that he could help me, he suddenly said that

> was it, he

> > couldnt' do anything more for me. I felt like

> someone kicked me in

> > the gut.

> > So, as of now, I am on a six week LOA, and after

> that I don't know

> > what will happen. I know that when I go back to

> work the pain will

> > most likely return. My employer has told me that

> I have to be

> able

> > to perform all aspects of my job and that they

> will not make

> > accommodations such as restricting some of my

> activities.

> > Where do I go from here? I have no idea. I do

> have LTD insurance

> > but the idea of not being able to work is totally

> foreign to me.

> The

> > sad thing is, this job is the best one I've ever

> had and I really

> > love the work and the people I work with.

> > I hope to gain support and information from all of

> you who have

> been

> > down this road ahead of me.

> > Best Wishes

> > Carol

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Sharon

I also have stenosis could you please send that one to

the group as I don't know how to go back and get it

I'm kinda new as far as posting.Thanks Shirley

--- darkstarzz1019 <darkstarzz1019@...> wrote:

> -Hi Carol first welcome to the group. Second go get

> another opinion

> from a surgeon. I had 3 turn me down for neck

> surgery and finally

> after a 1 1/2 and into horrible pain that was out of

> control by then

> I found a dr who helped me. I too got told by my dr

> " there is

> nothing more I can offer you and I know how you

> felt, I Felt

> betrayed, it was like I had no one to help me at all

> anymore. SO I

> decided I had to help myself and I did. DOn't

> believe one dr ask

> another and another if you want too. If you need the

> surgery to work

> and you need to work then they should do it.I had no

> arm pain and

> very little shoulder pain, and alot of pain in my

> upper back. But My

> neck pain was by far the worse it hurt to hold up my

> head. My

> surgeon cleaned things all out,fused a layer and did

> alot of other

> stuff in there and I feel pretty good still. Go back

> into the

> messages and find the one about Stenosis it had an

> study in there

> that said most people DO NOT GET better without

> sooner or later

> having surgery. Good Luck to you and let us know how

> you are doing

> are doing, I wish you happy dr hunting. Sharon Group

> Owner

>

> TheNeck-Back , " Carol Beckman "

> <galtgirlrn@...> wrote:

> >

> > Hello,

> > I am a new member and here's my story. I am a 59

> year old RN who

> > has worked my whole life until this past week,

> when pain finally

> > forced me to take a LOA from my job as an IV

> therapist in an

> > outpatient infusion center. My initial injury

> dates back 25 years

> > when I suffered a severe whiplash injury. I've

> had neck pain over

> > the years, but have always managed it by avoiding

> activities I

> know

> > will cause me trouble, as well as conservative

> treatment with ice

> > and rest and OTC meds when I do have pain.

> > After taking my current job two years ago, I began

> having more

> > frequent and increasingly intense pain in my neck.

> It is a

> stabbing,

> > burning pain in the left side of my neck which I

> rate as an 8-9

> when

> > it's really bad. I usually walk around work with a

> ice pack on my

> > neck most of the day. Some days I have to stop and

> sit down with

> an

> > ice pack on my neck for 15 minutes or so until the

> pain subsides.

> > Pain pills take the edge off but make me spaced

> outvand I'm scared

> > because I can't afford to be less than 100% when

> I'm putting in

> IVs

> > and giving chemotherapy and other drugs all day.

> > My PCP sent me to a PM & R specialist a year ago

> after my pain

> became

> > a daily thing. After an MRI and CT Myelogram, my

> diagnosis is 3

> > level moderate to severe cervical stenosis. I have

> seen a

> > neurosurgeon and been told I am not a surgical

> candidate since I

> do

> > not have any arm or shoulder pain, and surgery is

> unlikely to

> > relieve my pain.

> > I've had two selective nerve blocks as well as the

> usual muscle

> > relaxers and pain meds. The first block totally

> eliminated my pain

> > for six wonderful weeks, but then the pain

> gradually returned

> until

> > it was worse than before the block. I had a second

> block three

> weeks

> > ago, but when I returned to work the following

> week the pain was

> as

> > bad as ever. I had a follow-up appointment with

> the doctor last

> week

> > and he told me he had nothing further to offer me.

> I told him I

> had

> > hit the wall as far as pain was concerned and his

> only advice was

> to

> > find a different job. He did give me six weeks off

> work and told

> me

> > to follow up with my PCP. After being very

> encouraging over the

> past

> > year that he could help me, he suddenly said that

> was it, he

> > couldnt' do anything more for me. I felt like

> someone kicked me in

> > the gut.

> > So, as of now, I am on a six week LOA, and after

> that I don't know

> > what will happen. I know that when I go back to

> work the pain will

> > most likely return. My employer has told me that

> I have to be

> able

> > to perform all aspects of my job and that they

> will not make

> > accommodations such as restricting some of my

> activities.

> > Where do I go from here? I have no idea. I do

> have LTD insurance

> > but the idea of not being able to work is totally

> foreign to me.

> The

> > sad thing is, this job is the best one I've ever

> had and I really

> > love the work and the people I work with.

> > I hope to gain support and information from all of

> you who have

> been

> > down this road ahead of me.

> > Best Wishes

> > Carol

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

-Hi Shirley I tried to send it back to the group but no luck its

message 2609 just type it into the top where it says message # and it

should take you to that message. I'll copy and paste it later but no

time to right now. Hope this helps. I know what a (P A I N) it can be.

Sharon Group Owner

-- In neck pain , Shirley Kurburski

<skurburski@...> wrote:

>

> Sharon

> I also have stenosis could you please send that one to

> the group as I don't know how to go back and get it

> I'm kinda new as far as posting.Thanks Shirley

>

>

[Guest guest]

Hi,

I don't know if you have tried cortizone injections, but that may be

an option for you.

I had fusion surgury in December and am getting through the recovery

one day at a time. Good days and bad days....

Take care,

Ted

[Guest guest]

Ted,

I have had two injections in the past year. The first one was very

successful but the second has not been of much help.

I have been off work for two weeks now, and am doing well as far as my

neck is concerned; of course, I haven't done anything to aggrivate

it...I'm pretty bored sitting around doing nothing.

However, my low back is as bad as ever. I'm starting pool therapy

next week and hopeful that will help.

Thanks for your support.

Carol

[Guest guest]

Hi Carol,

Well, Hang in there, I hope the pool works, it did wonders for my Dad.

Take Care, Ted

>

> Ted,

> I have had two injections in the past year. The first one was very

> successful but the second has not been of much help.

> I have been off work for two weeks now, and am doing well as far as my

> neck is concerned; of course, I haven't done anything to aggrivate

> it...I'm pretty bored sitting around doing nothing.

> However, my low back is as bad as ever. I'm starting pool therapy

> next week and hopeful that will help.

> Thanks for your support.

> Carol

>

[Guest guest]

Hi Carol,

Well, Hang in there, I hope the pool works, it did wonders for my Dad.

Take Care, Ted

>

> Ted,

> I have had two injections in the past year. The first one was very

> successful but the second has not been of much help.

> I have been off work for two weeks now, and am doing well as far as my

> neck is concerned; of course, I haven't done anything to aggrivate

> it...I'm pretty bored sitting around doing nothing.

> However, my low back is as bad as ever. I'm starting pool therapy

> next week and hopeful that will help.

> Thanks for your support.

> Carol

>

[Guest guest]

Hi Carol,

Well, Hang in there, I hope the pool works, it did wonders for my Dad.

Take Care, Ted

>

> Ted,

> I have had two injections in the past year. The first one was very

> successful but the second has not been of much help.

> I have been off work for two weeks now, and am doing well as far as my

> neck is concerned; of course, I haven't done anything to aggrivate

> it...I'm pretty bored sitting around doing nothing.

> However, my low back is as bad as ever. I'm starting pool therapy

> next week and hopeful that will help.

> Thanks for your support.

> Carol

>

[Guest guest]

Hi , So glad you joined. You will add alot to the group as you do on Planet

Thrive which I love. Blessings to your healing Joyce

lunagirl32002 <j_genser@...> wrote: Hi

all,

LoveandLight1111 has encouraged me to get Healing Lyme and to join this group.

I just

finished the book and was so impressed with Buhner's knowledge of the

intelligence of

Lyme spirochetes. The information scared me, since Lyme seems to be one of the

most

clever, indestructible organism out there.

I myself am very confused as to whether I have Lyme or not. I tested positive

on the Igenex

IgM Western Blot for both Igenex and CDC guidelines. I tested negative for IgG.

I just completed 6 months of herbal treatment with Dr Zhang in NYC. I never

experienced

much die-off and don't know if I am any better after all that treatment. My

biggest

complaints right now are digestive (diarrhea for 2 years now) and food and

chemical

sensitivities. If I do have Lyme, my guess is I had it for over 30 years, as I

had joint and

digestive issues from a young age as well as lowgrade depression. I think

Zhang's herbs

did help with the arthritic symptoms I had in my hands - I haven't had the

cracking/

popping joints in a while and I was having them almost every day for a while

there. My

back and hips have been fine too after a long stretch of pain and problems.

I have not worked in 2 years due to the chemical sensitivities and have spent

thousands of

$$ on doctors and tests and treatments to no avail. I can't just jump into

every new

protocol and throw away thousands of dollars anymore, although this does sound

extremely promising. Since I don't have the typical disabling neuro or pain

symptoms most

with Lyme have, I am wary of trying a lot of potent herbs that might not be

appropriate for

my situation. I want to start this protocol with the bare minimum of herbs

required, as my

Lyme infection seems to be chronic and entrenched in my gut but not primarily

in the

brain (as far as I can tell....). Does anyone else have primarily digestive

issues wtih Lyme??

Can anyone recommend a good herbalist familiar with this protocol in NY/Conn

area?

I also want to mention my new website, which some of you are already members. I

have

posted the info for this approach here and would love it if you could take the

time to rate/

review the protocol after you've been following it for a while and have

definite results, one

way or the other: http://planetthrive.com/cgi-bin/members/pub9990215236855.cgi?

itemid=9990233014929 & action=viewad & categoryid=9990226361483 & page=1 & placeonp

age=1 & totaldisplayed=10. I will post this support group there as well.

Have not read through archives yet but will take some time to review what's

already been

posted.

It's so nice to find you all,

Genser, founder

www.PlanetThrive.com

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

Hi ,(Makayla'smom)here...you will certainly be a welcomed and rich

addition to this group...I haven't had much time to be at my computer but I plan

to spend more time here and on Planet thrive! Blessings, (Makayla'smom)

lunagirl32002 <j_genser@...> wrote: Hi all,

LoveandLight1111 has encouraged me to get Healing Lyme and to join this group. I

just

finished the book and was so impressed with Buhner's knowledge of the

intelligence of

Lyme spirochetes. The information scared me, since Lyme seems to be one of the

most

clever, indestructible organism out there.

I myself am very confused as to whether I have Lyme or not. I tested positive on

the Igenex

IgM Western Blot for both Igenex and CDC guidelines. I tested negative for IgG.

I just completed 6 months of herbal treatment with Dr Zhang in NYC. I never

experienced

much die-off and don't know if I am any better after all that treatment. My

biggest

complaints right now are digestive (diarrhea for 2 years now) and food and

chemical

sensitivities. If I do have Lyme, my guess is I had it for over 30 years, as I

had joint and

digestive issues from a young age as well as lowgrade depression. I think

Zhang's herbs

did help with the arthritic symptoms I had in my hands - I haven't had the

cracking/

popping joints in a while and I was having them almost every day for a while

there. My

back and hips have been fine too after a long stretch of pain and problems.

I have not worked in 2 years due to the chemical sensitivities and have spent

thousands of

$$ on doctors and tests and treatments to no avail. I can't just jump into every

new

protocol and throw away thousands of dollars anymore, although this does sound

extremely promising. Since I don't have the typical disabling neuro or pain

symptoms most

with Lyme have, I am wary of trying a lot of potent herbs that might not be

appropriate for

my situation. I want to start this protocol with the bare minimum of herbs

required, as my

Lyme infection seems to be chronic and entrenched in my gut but not primarily in

the

brain (as far as I can tell....). Does anyone else have primarily digestive

issues wtih Lyme??

Can anyone recommend a good herbalist familiar with this protocol in NY/Conn

area?

I also want to mention my new website, which some of you are already members. I

have

posted the info for this approach here and would love it if you could take the

time to rate/

review the protocol after you've been following it for a while and have definite

results, one

way or the other: http://planetthrive.com/cgi-bin/members/pub9990215236855.cgi?

itemid=9990233014929 & action=viewad & categoryid=9990226361483 & page=1 & placeonp

age=1 & totaldisplayed=10. I will post this support group there as well.

Have not read through archives yet but will take some time to review what's

already been

posted.

It's so nice to find you all,

Genser, founder

www.PlanetThrive.com

[Guest guest]

What about trying raw milk?

narrowguager <dbgrubb@...> wrote:

This is my introduction to the group. I'm 46, female, and I had my

first seizure after hitting the back of my head just before bedtime

when I was 25 and then sleeping right afterward. Duh!!!

I have seizures every now and then and like everyone - I am

interested in not having them anymore. I am also very against

medical doctors' intervention since I have had some very eye opening

discussions with them and know that they are not! concerned with my

health or well-being.

I've gone for 10 years between seizures without medication before so

I know it is possible. I've recently done some cleansing to rid

myself of parasites and heavy metals and such and now I'm having more

trouble with seizures. I figure it is a deficiency somewhere because

it happens right after I have my period.

I just took some sublingual B-complex and have ordered some Udo's oil

(perfect balance of omegas) so I would like to know of anything else

I should concentrate on or stay away from. My diet is mostly organic

fruits and vegetables with a little dairy and meat tossed in that is

without hormones and additives. I am slowly adding in whole grains

as I can find them.

Lately I have been taking scullcap to control the seizures and I also

keep lobelia tincture close by since it shuts down a seizure

immediately. Unfortunately, most of my seizure activity is while I'm

sleeping. My last two grand mals made me bite my tongue. Boy is

that not fun!

Take care everyone.

Love, moni

Have a Happy and Healthy Day,

Kopera

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

Hi:

look into neurofeedback, magnesium, B- 50 agood multivitamin

proviotics

Diet: No dairy, low salt and sugar, no eggs, no chicken, no red meat,

rest, no staying up late. and you are getting to menopause time and that

always makes your seizures worst. Estrogen makes them worst progesterone

helps.

good luck!

Kopera <ginakopera1@...> wrote:

What about trying raw milk?

narrowguager <dbgrubb@...> wrote:

This is my introduction to the group. I'm 46, female, and I had my

first seizure after hitting the back of my head just before bedtime

when I was 25 and then sleeping right afterward. Duh!!!

I have seizures every now and then and like everyone - I am

interested in not having them anymore. I am also very against

medical doctors' intervention since I have had some very eye opening

discussions with them and know that they are not! concerned with my

health or well-being.

I've gone for 10 years between seizures without medication before so

I know it is possible. I've recently done some cleansing to rid

myself of parasites and heavy metals and such and now I'm having more

trouble with seizures. I figure it is a deficiency somewhere because

it happens right after I have my period.

I just took some sublingual B-complex and have ordered some Udo's oil

(perfect balance of omegas) so I would like to know of anything else

I should concentrate on or stay away from. My diet is mostly organic

fruits and vegetables with a little dairy and meat tossed in that is

without hormones and additives. I am slowly adding in whole grains

as I can find them.

Lately I have been taking scullcap to control the seizures and I also

keep lobelia tincture close by since it shuts down a seizure

immediately. Unfortunately, most of my seizure activity is while I'm

sleeping. My last two grand mals made me bite my tongue. Boy is

that not fun!

Take care everyone.

Love, moni

Have a Happy and Healthy Day,

Kopera

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

What is B50?

multivitamin?

--- <lindae321@...> wrote:

> Hi:

> look into neurofeedback, magnesium, B- 50

> agood multivitamin

> proviotics

> Diet: No dairy, low salt and sugar, no eggs, no

> chicken, no red meat,

> rest, no staying up late. and you are getting

> to menopause time and that always makes your

> seizures worst. Estrogen makes them worst

> progesterone helps.

> good luck!

>

>

> Kopera <ginakopera1@...> wrote:

> What about trying raw milk?

>

>

>

> narrowguager <dbgrubb@...> wrote:

> This is my introduction to the group. I'm 46,

> female, and I had my

> first seizure after hitting the back of my head just

> before bedtime

> when I was 25 and then sleeping right afterward.

> Duh!!!

> I have seizures every now and then and like everyone

> - I am

> interested in not having them anymore. I am also

> very against

> medical doctors' intervention since I have had some

> very eye opening

> discussions with them and know that they are not!

> concerned with my

> health or well-being.

> I've gone for 10 years between seizures without

> medication before so

> I know it is possible. I've recently done some

> cleansing to rid

> myself of parasites and heavy metals and such and

> now I'm having more

> trouble with seizures. I figure it is a deficiency

> somewhere because

> it happens right after I have my period.

> I just took some sublingual B-complex and have

> ordered some Udo's oil

> (perfect balance of omegas) so I would like to know

> of anything else

> I should concentrate on or stay away from. My diet

> is mostly organic

> fruits and vegetables with a little dairy and meat

> tossed in that is

> without hormones and additives. I am slowly adding

> in whole grains

> as I can find them.

> Lately I have been taking scullcap to control the

> seizures and I also

> keep lobelia tincture close by since it shuts down a

> seizure

> immediately. Unfortunately, most of my seizure

> activity is while I'm

> sleeping. My last two grand mals made me bite my

> tongue. Boy is

> that not fun!

> Take care everyone.

> Love, moni

>

> Have a Happy and Healthy Day,

> Kopera

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr.

> We'll help. Small Business.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> ---------------------------------

> How low will we go? Check out Messenger’s low

> PC-to-Phone call rates.

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

> This is my introduction to the group. I'm 46, female,

and I had my

> first seizure after hitting the back of my head just before

bedtime

> when I was 25 and then sleeping right afterward. Duh!!!

> I have seizures every now and then and like everyone - I am

> interested in not having them anymore. I am also very against

> medical doctors' intervention since I have had some very eye

opening

> discussions with them and know that they are not! concerned with

my

> health or well-being.

> I've gone for 10 years between seizures without medication before

so

> I know it is possible. I've recently done some cleansing to rid

> myself of parasites and heavy metals and such and now I'm having

more

> trouble with seizures. I figure it is a deficiency somewhere

because

> it happens right after I have my period.

> I just took some sublingual B-complex and have ordered some Udo's

oil

> (perfect balance of omegas) so I would like to know of anything

else

> I should concentrate on or stay away from. My diet is mostly

organic

> fruits and vegetables with a little dairy and meat tossed in that

is

> without hormones and additives. I am slowly adding in whole grains

> as I can find them.

> Lately I have been taking scullcap to control the seizures and I

also

> keep lobelia tincture close by since it shuts down a seizure

> immediately. Unfortunately, most of my seizure activity is while

I'm

> sleeping. My last two grand mals made me bite my tongue. Boy is

> that not fun!

> Take care everyone.

> Love, moni

>

>

>

>

>

>

> Have a Happy and Healthy Day,

> Kopera

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>