dana

[Guest guest]

LIZ: I AM NOT DANA BUT I DO KNOW SOMETHING ABOUT THE FOODS YOUR SUPPOSED TO

AVOID. EVERYTHING THAT TASTES GOOD! SERIOUSLY YOUR NOT SUPPOSED TO EAT RED

MEAT BECAUSE IT IS HARD ON DIGESTION. MY DOCTOR SAYS TO STAY AWAY FROM

STRAWBERRIES BECAUSE THEY ARE VERY HIGH IN SUGAR. NO FATTY FOODS, NO VITAMIN A

BECAUSE IT IS VERY TOXIC TO THE LIVER. ANYONE WHO IS NOT ON TREATMENTS SHOULD

BE TAKING MILKTHISTLE AND LETCITHIN. TOMATO'S, LEMONS, GRAPEFRUITS, ORANGES AND

ANYTHING THAT IS HIGH IN VITAMIN C IS GOOD. YOU ALSO NEED PROTIEN SO CHICKEN

AND EGGS ARE GOOD. I HOPE THIS HELPS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

[Guest guest]

LIZ: I AM NOT DANA BUT I DO KNOW SOMETHING ABOUT THE FOODS YOUR SUPPOSED TO

AVOID. EVERYTHING THAT TASTES GOOD! SERIOUSLY YOUR NOT SUPPOSED TO EAT RED

MEAT BECAUSE IT IS HARD ON DIGESTION. MY DOCTOR SAYS TO STAY AWAY FROM

STRAWBERRIES BECAUSE THEY ARE VERY HIGH IN SUGAR. NO FATTY FOODS, NO VITAMIN A

BECAUSE IT IS VERY TOXIC TO THE LIVER. ANYONE WHO IS NOT ON TREATMENTS SHOULD

BE TAKING MILKTHISTLE AND LETCITHIN. TOMATO'S, LEMONS, GRAPEFRUITS, ORANGES AND

ANYTHING THAT IS HIGH IN VITAMIN C IS GOOD. YOU ALSO NEED PROTIEN SO CHICKEN

AND EGGS ARE GOOD. I HOPE THIS HELPS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

[Guest guest]

Sandy, Liz

Again I apologize for being out of town and not being

abe to reply to emails. But Sandy you gave more info

than I know. I heard that vitamin E and Chocolate are

highly toxic to the liver to. But I was never told of

any fruit to stay away from. Dana

--- Sandy Booton <ibsandy77@...> wrote:

>

> LIZ: I AM NOT DANA BUT I DO KNOW SOMETHING ABOUT

> THE FOODS YOUR SUPPOSED TO AVOID. EVERYTHING THAT

> TASTES GOOD! SERIOUSLY YOUR NOT SUPPOSED TO EAT RED

> MEAT BECAUSE IT IS HARD ON DIGESTION. MY DOCTOR

> SAYS TO STAY AWAY FROM STRAWBERRIES BECAUSE THEY ARE

> VERY HIGH IN SUGAR. NO FATTY FOODS, NO VITAMIN A

> BECAUSE IT IS VERY TOXIC TO THE LIVER. ANYONE WHO

> IS NOT ON TREATMENTS SHOULD BE TAKING MILKTHISTLE

> AND LETCITHIN. TOMATO'S, LEMONS, GRAPEFRUITS,

> ORANGES AND ANYTHING THAT IS HIGH IN VITAMIN C IS

> GOOD. YOU ALSO NEED PROTIEN SO CHICKEN AND EGGS ARE

> GOOD. I HOPE THIS HELPS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Sandy, Liz

Again I apologize for being out of town and not being

abe to reply to emails. But Sandy you gave more info

than I know. I heard that vitamin E and Chocolate are

highly toxic to the liver to. But I was never told of

any fruit to stay away from. Dana

--- Sandy Booton <ibsandy77@...> wrote:

>

> LIZ: I AM NOT DANA BUT I DO KNOW SOMETHING ABOUT

> THE FOODS YOUR SUPPOSED TO AVOID. EVERYTHING THAT

> TASTES GOOD! SERIOUSLY YOUR NOT SUPPOSED TO EAT RED

> MEAT BECAUSE IT IS HARD ON DIGESTION. MY DOCTOR

> SAYS TO STAY AWAY FROM STRAWBERRIES BECAUSE THEY ARE

> VERY HIGH IN SUGAR. NO FATTY FOODS, NO VITAMIN A

> BECAUSE IT IS VERY TOXIC TO THE LIVER. ANYONE WHO

> IS NOT ON TREATMENTS SHOULD BE TAKING MILKTHISTLE

> AND LETCITHIN. TOMATO'S, LEMONS, GRAPEFRUITS,

> ORANGES AND ANYTHING THAT IS HIGH IN VITAMIN C IS

> GOOD. YOU ALSO NEED PROTIEN SO CHICKEN AND EGGS ARE

> GOOD. I HOPE THIS HELPS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Dana..I'm sorry to hear about your brother. Please do keep us updated. I

do know he will have to be alcohol free for 6 mo before they will do

treatment but I don't see the Metadone creating any problems. I'm on

some strong pain medications because of my spinal nerve problems and the

doctor have left me on them and said nothing about stopping them when I

start treatment. Some doctors prescribe methadone for pain when other

pain medications disagree with them. How are you doing? I'm finally on

the list for late summer or early fall...judy

Bad news! Detox?

Hi everyone,

You all have been so much help to me. I have a

question that maybe you or others you know may can

answer. My brother has refused for years to be tested

for HepC/B. But he finally got so bad sick that he

had too. He is positive for HepC and prob. had for

many years like me. They have to rerun test for HepB

and Hiv because of inconsistencies in blood but

currently showing Neg??? The problem is he is a heavy

drinker and is on Methadone due to being a heroin

attic. Don't know about detox for those. Never went

through detox and never did heroin or been on

Methadone. Does anyone have info on this??? He will

prob. have to go through state. No insurance? Please

help with info if you or someone you know has info on

this?? Thank you! Dana

__________________________________________________

[Guest guest]

Dana..I'm sorry to hear about your brother. Please do keep us updated. I

do know he will have to be alcohol free for 6 mo before they will do

treatment but I don't see the Metadone creating any problems. I'm on

some strong pain medications because of my spinal nerve problems and the

doctor have left me on them and said nothing about stopping them when I

start treatment. Some doctors prescribe methadone for pain when other

pain medications disagree with them. How are you doing? I'm finally on

the list for late summer or early fall...judy

Bad news! Detox?

Hi everyone,

You all have been so much help to me. I have a

question that maybe you or others you know may can

answer. My brother has refused for years to be tested

for HepC/B. But he finally got so bad sick that he

had too. He is positive for HepC and prob. had for

many years like me. They have to rerun test for HepB

and Hiv because of inconsistencies in blood but

currently showing Neg??? The problem is he is a heavy

drinker and is on Methadone due to being a heroin

attic. Don't know about detox for those. Never went

through detox and never did heroin or been on

Methadone. Does anyone have info on this??? He will

prob. have to go through state. No insurance? Please

help with info if you or someone you know has info on

this?? Thank you! Dana

__________________________________________________

[Guest guest]

Judy,

Good to here from you and glad you are on the list.

Thank you for your input and concern. Helps me to

talk. I actually think I am so close to a nervous

breakdown I can't stand it. I keep halfing to get

away from the house. Between handling the estate, a

16 year old, my health,doctors and all that run around

and trying to keep up with life in general is hard.

My brother was very hard to look at the last two time

I half been to Texas. I know it is an addiction and I

care, then being diagnosed with this and who knows

what. And thinking of him going through Detox. Wow, he

is hard to deal with now. Anger explosion, mood

swings, paranoyia. I don't know. And my poor mom

down there. I just can't stand to think of what it is

doing to her if it is effecting me 1500 miles away!

I did learn that YES, you can be treated on Methadone.

I still am not an advocate. I here so many bad

things about it. I actually did alot of research and

talked to the Federal Government. They are the ones

to watch over Methadone clinics. I can't believe they

do not require a test for HepC, HepB and HIV before

putting them on Methadone!!! It makes me sick!!!!

Well, I know, I am going on and on... Thank you for

listening!! I need that just like I know we all do..

Hugs, good luck, and think positive about treatment.

Dana

--- Judy Mckee <tmckee@...> wrote:

> Dana..I'm sorry to hear about your brother. Please

> do keep us updated. I

> do know he will have to be alcohol free for 6 mo

> before they will do

> treatment but I don't see the Metadone creating any

> problems. I'm on

> some strong pain medications because of my spinal

> nerve problems and the

> doctor have left me on them and said nothing about

> stopping them when I

> start treatment. Some doctors prescribe methadone

> for pain when other

> pain medications disagree with them. How are you

> doing? I'm finally on

> the list for late summer or early fall...judy

>

> Bad news!

> Detox?

>

> Hi everyone,

>

> You all have been so much help to me. I have a

> question that maybe you or others you know may can

> answer. My brother has refused for years to be

> tested

> for HepC/B. But he finally got so bad sick that he

> had too. He is positive for HepC and prob. had for

> many years like me. They have to rerun test for

> HepB

> and Hiv because of inconsistencies in blood but

> currently showing Neg??? The problem is he is a

> heavy

> drinker and is on Methadone due to being a heroin

> attic. Don't know about detox for those. Never

> went

> through detox and never did heroin or been on

> Methadone. Does anyone have info on this??? He

> will

> prob. have to go through state. No insurance?

> Please

> help with info if you or someone you know has info

> on

> this?? Thank you! Dana

>

> __________________________________________________

>

[Guest guest]

Judy,

Good to here from you and glad you are on the list.

Thank you for your input and concern. Helps me to

talk. I actually think I am so close to a nervous

breakdown I can't stand it. I keep halfing to get

away from the house. Between handling the estate, a

16 year old, my health,doctors and all that run around

and trying to keep up with life in general is hard.

My brother was very hard to look at the last two time

I half been to Texas. I know it is an addiction and I

care, then being diagnosed with this and who knows

what. And thinking of him going through Detox. Wow, he

is hard to deal with now. Anger explosion, mood

swings, paranoyia. I don't know. And my poor mom

down there. I just can't stand to think of what it is

doing to her if it is effecting me 1500 miles away!

I did learn that YES, you can be treated on Methadone.

I still am not an advocate. I here so many bad

things about it. I actually did alot of research and

talked to the Federal Government. They are the ones

to watch over Methadone clinics. I can't believe they

do not require a test for HepC, HepB and HIV before

putting them on Methadone!!! It makes me sick!!!!

Well, I know, I am going on and on... Thank you for

listening!! I need that just like I know we all do..

Hugs, good luck, and think positive about treatment.

Dana

--- Judy Mckee <tmckee@...> wrote:

> Dana..I'm sorry to hear about your brother. Please

> do keep us updated. I

> do know he will have to be alcohol free for 6 mo

> before they will do

> treatment but I don't see the Metadone creating any

> problems. I'm on

> some strong pain medications because of my spinal

> nerve problems and the

> doctor have left me on them and said nothing about

> stopping them when I

> start treatment. Some doctors prescribe methadone

> for pain when other

> pain medications disagree with them. How are you

> doing? I'm finally on

> the list for late summer or early fall...judy

>

> Bad news!

> Detox?

>

> Hi everyone,

>

> You all have been so much help to me. I have a

> question that maybe you or others you know may can

> answer. My brother has refused for years to be

> tested

> for HepC/B. But he finally got so bad sick that he

> had too. He is positive for HepC and prob. had for

> many years like me. They have to rerun test for

> HepB

> and Hiv because of inconsistencies in blood but

> currently showing Neg??? The problem is he is a

> heavy

> drinker and is on Methadone due to being a heroin

> attic. Don't know about detox for those. Never

> went

> through detox and never did heroin or been on

> Methadone. Does anyone have info on this??? He

> will

> prob. have to go through state. No insurance?

> Please

> help with info if you or someone you know has info

> on

> this?? Thank you! Dana

>

> __________________________________________________

>

[Guest guest]

Dana you have my vote! Let me have some of that horse

medicine...teeheehee!

Love in His Light

Sandy

__________________________________________________

[Guest guest]

Dana you have my vote! Let me have some of that horse

medicine...teeheehee!

Love in His Light

Sandy

__________________________________________________

[Guest guest]

Sandy,

Thank you for that laugh. I did not expect that one. But if you want some

horse medicine, you might wanna try the vet. Funny thing is, my dog had a

blatter infection and I had left over antibiotics, so I split the dose in half

and gave it to her for 10 days and it cleared it up. Do you know what the Vet

would of charged me?? Tehee, you just never know!! Dana

Sandy Booton wrote:Dana you have my vote! Let me have some of that horse

medicine...teeheehee!

Love in His Light

Sandy

__________________________________________________

[Guest guest]

Sandy,

Thank you for that laugh. I did not expect that one. But if you want some

horse medicine, you might wanna try the vet. Funny thing is, my dog had a

blatter infection and I had left over antibiotics, so I split the dose in half

and gave it to her for 10 days and it cleared it up. Do you know what the Vet

would of charged me?? Tehee, you just never know!! Dana

Sandy Booton wrote:Dana you have my vote! Let me have some of that horse

medicine...teeheehee!

Love in His Light

Sandy

__________________________________________________

[Guest guest]

Judy,

Yes, Got first batch right in the office, then perscription. I did not stay on

it. Tried for 3 weeks, was sick and completely bed ridden. Dana

Judy McKee wrote:> Hey Judy,

> Not KM, this is Dana. I have to tell you something about your questions.

I had a hard time for a while understanding what the heck you guys were

talking about with a list. Maybe it has something to do with insurance. I

have insurance coverage through the Company that I worked for. It is Long

Term Disability Insurance. They work with Medicare. But I was not on a

list. The doctor just sees me and writes a perscription. Dana

Dana......Is your prescription for the peg/ribaviron where you take the shot

once a week and the pills or is it the other one where you took 3 shots a

week and the pills?.....

What I'm told is Sherring-Plough must be certain they have enough

medication to guarantee there will be enough for a patients whole

treatment....therefore the list.....no other pharmaceutical company makes

the medicene.....

I have medicare and medicaid....it's nothing to do with the type of

insurance but it could have something to do with the type of

treatment......My doctor was just as surprised....he thought...just write

the prescription and start treatment.....that's what all the confusion was

about with my gastro doctor and PCP......and it took so long before I found

out about the list and someone here gave me the number to call and told me I

had to get signed up myself....the gastro doctor didn't know anything about

this newest treatment......

Let me know more...will you Dana...if any of this makes

sense.....love...judy

[Guest guest]

Judy,

Yes, Got first batch right in the office, then perscription. I did not stay on

it. Tried for 3 weeks, was sick and completely bed ridden. Dana

Judy McKee wrote:> Hey Judy,

> Not KM, this is Dana. I have to tell you something about your questions.

I had a hard time for a while understanding what the heck you guys were

talking about with a list. Maybe it has something to do with insurance. I

have insurance coverage through the Company that I worked for. It is Long

Term Disability Insurance. They work with Medicare. But I was not on a

list. The doctor just sees me and writes a perscription. Dana

Dana......Is your prescription for the peg/ribaviron where you take the shot

once a week and the pills or is it the other one where you took 3 shots a

week and the pills?.....

What I'm told is Sherring-Plough must be certain they have enough

medication to guarantee there will be enough for a patients whole

treatment....therefore the list.....no other pharmaceutical company makes

the medicene.....

I have medicare and medicaid....it's nothing to do with the type of

insurance but it could have something to do with the type of

treatment......My doctor was just as surprised....he thought...just write

the prescription and start treatment.....that's what all the confusion was

about with my gastro doctor and PCP......and it took so long before I found

out about the list and someone here gave me the number to call and told me I

had to get signed up myself....the gastro doctor didn't know anything about

this newest treatment......

Let me know more...will you Dana...if any of this makes

sense.....love...judy

[Guest guest]

Carol,

My hepatologist told me to only take Tylenol. He said that the other pain

relievers are very slow to show liver damage, but acetominaphen damage presents

early and can be reversed. That's why they recommend it.

I'm so sorry for what you are going through, you are in my prayers.

Marilyn

dana

I did not have headaches at the start of this treatment, now I seem to have

them all the time?? I hate taking anything as all u are suppose to take is

Tylenol, and that is not good for the liver.

Dana I listened to the tape on the rd I loved it now if I can just keep it in

my mind going through this crisis. what happans if i cannot keep up the cobra

and have to quit treatmnent, hell I won't even be able to buy my blood pressure

meds are go to a dr!! i am rreally worried!!

CAROL

[Guest guest]

Carol,

My hepatologist told me to only take Tylenol. He said that the other pain

relievers are very slow to show liver damage, but acetominaphen damage presents

early and can be reversed. That's why they recommend it.

I'm so sorry for what you are going through, you are in my prayers.

Marilyn

dana

I did not have headaches at the start of this treatment, now I seem to have

them all the time?? I hate taking anything as all u are suppose to take is

Tylenol, and that is not good for the liver.

Dana I listened to the tape on the rd I loved it now if I can just keep it in

my mind going through this crisis. what happans if i cannot keep up the cobra

and have to quit treatmnent, hell I won't even be able to buy my blood pressure

meds are go to a dr!! i am rreally worried!!

CAROL

[Guest guest]

" dragonlady " <dragonlady@...> wrote:

>I did not have headaches at the start of this treatment, now I seem to have

them all the time?? I hate taking anything as all u are suppose to take is

Tylenol, and that is not good for the liver.

>Dana I listened to the tape on the rd I loved it now if I can just keep it in

my mind going through this crisis. what happans if i cannot keep up the cobra

and have to quit treatmnent, hell I won't even be able to buy my blood pressure

meds are go to a dr!! i am rreally worried!!

>        

>

>                      CAROL

>          

>

>

[Guest guest]

" dragonlady " <dragonlady@...> wrote:

>I did not have headaches at the start of this treatment, now I seem to have

them all the time?? I hate taking anything as all u are suppose to take is

Tylenol, and that is not good for the liver.

>Dana I listened to the tape on the rd I loved it now if I can just keep it in

my mind going through this crisis. what happans if i cannot keep up the cobra

and have to quit treatmnent, hell I won't even be able to buy my blood pressure

meds are go to a dr!! i am rreally worried!!

>        

>

>                      CAROL

>          

>

>

[Guest guest]

I have a ppo so I can pick who I want!! as long as he is in the selection of

thier drS I have never had to have a referal

CAROL

GET TESTED FOR HEPATITISIS C.

8 Million in the US have HCV .

HCV can lead to fibrosis, necrosis.cirrhosis

and liver cancer. get it from transfusions and

blood products, IV drug use (even once) snorting drugs,

body percings, dailysis,Military vaccinations,

mancurisist equipment, unprotected sex, and any blood to blood contact.

[Guest guest]

Please do not leave. Your input is valued here. Differences of

opinion happen everywhere and are very strong in this group it seems.

When it comes to this disease, we all seem to have our opinions and

ideas of what should and shouldn't be...but we all support each other

so you just hang in here, ok?

LeighAnn

[Guest guest]

You gave me the idea to post this! I hope it helps others!!

LeighAnn

[Guest guest]

Dana,

Most people who have Varices and Acites do indeed have cirrhosis.

They are both indicators of end stage liver failure. Varices is a

huge cause of death in HepC patients as they will bleed to death

before help can arrive to stop it.

Don't put too much stock in the CDC numbers. They tend to downplay

HCV tremendously and have not updated ANY of their numbers for HCV

since 1996.

LeighAnn

[Guest guest]

With one program, I have all channels turned on, and get about 4-5 days,

with about 15-18 hours of usage each day. In another program, I've got

either 1 or 2 channels turned off (can't remember), and still get the

same amount of time with the batteries. Can't complain about not

getting the 3-4 days worth of battery life! ;^)

Best,

Andy

1200 vs 1800

Hi Everyone,

I don't get in touch with you very often as I occasionaly

keep you post update when I have the news to share or asking

some questions.

I had mapping two weeks ago at Unversity of Utah CI Clinic.

My mapping from 1200 to 1800 hertz which I like it. I noticed

that 1800 is a faster stimulation that really work very well

with my brain. However, I felt disappointed that the batteries

lasted short less than 2 hours with 1800. 1200 with batteries

reamin the same for 3 to 4 days which I have been using varta

battery. I like it alot.

My audiologist suggested me to try new toshiba for 1800 and see

how it goes if it lasts longer. But if it doesn't last longer

then I may have to go back to the clinic again. An audiologist,

probably be planning to turn off few channels that may

improve battery life to last longer with 1800.

I am using 1200 hertz right now which I am having little hard time

hearing few speeches like T, R and S. With 1800 , I can hear all

of speeches. I prefer fast stimuluation. Oh, I use ACE for both

1200 and 1800. SPEAK didn't work well for me.

Anyone of you have experienced the battery life with the difference

between 1200 and 1800? I'd like to have your feedback. I appreicate

that.

Have a wonderful week!

Dana Brower, N24C Recipent

11/2002

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

Andy,

You're quiet right. But my situtation is little different.

When I got 1800 map that programmed, however, the batteries

only lasted 2 hours or less that is unusual. So I am going to

get toshiba batteries ordered then try this to see how it goes

from there. I will have to expertiment as my audie suggested me

to do unless it doesn't succeed therefore I will go back to

the clinic to get another mapping. Perhaps, my audie may

turn off few channels which I wouldn't mind to have 3-4 days

worth of it.

I have 1200 map that lasts for 3-4 days that it's worth anyway.

Thanks for your feedback.

Smile, Dana Brower,

N24C 11/2002

[Guest guest]

Dana,

Check in your original kit you received. We all got one six pack of Toshiba

batteries with it. I'm thinking you never used them. This would be a good time

to try them out. Toshiba batteries usually give the CI user 30 hours.

Alice