Re: Digest Number 990

[Guest guest]

The study should discourage physicians from treating patients with some

symptoms of Lyme disease, like fatigue or muscle pain, with antibiotics when

the patients do not have all the symptoms indicative of Lyme disease,

according to Dr. Pierce Gardner of the State University of New York at Stony

Brook, who wrote an editorial accompanying the study.

So we can have a positive WB, many other symptoms, plus the fatigue and

muscle pain, but once the abx have gotten rid of all the other symptoms, what

.....WE ARE MIRACULOUSLY CURED !!!! What a CROC !!!! This man obviously

doesn't have a clue, but I guess I should have know that since he is from

Stoney Brook.

Your Lyme Friend,

[Guest guest]

Message: 7

Date: 2 Feb 2000 12:15:19 -0000

From: EHallswife@...

Subject: My dr thinks I'm a liar

Went to get the results of my MRI of the brain yesterday, and took my husband

with me. He agrees with me that the Neuro. is an arrogant jerk. However, he

is covered by my insurance, and one of the few in the area who is. The good

news is that we are now certain that I do indeed have a brain. I got to keep

the films, so I can show my darling pubescent son that his mother isn't a

brainless idiot whenever he starts ranting that I don't understand him. The

bad news is, they were inconclusive, so now he wants to do MRI of cervical

spine, and a spinal tap on Friday. My family doc. is glad about the spinal,

as she says its a better test for Lyme's. Is that right?? Neuro. claims it

will be one of the tests he does, but he seriously doubts that's the

diagnosis. My original blood test was equivocal, but the extended versions

were negative. After doing a couple of test with having me close my eyes and

tell me if he was pointing my fingers up or down, and my not being able to

tell, he said, " I think you are purposely making some mistakes. " Sitting on

that table, I have excellent aim for a certain area of his anatomy. Could he

sue me if I " accidently " kicked him there very, very, hard?

I do feel silly in that every time I go in, I have new symptoms. Until now,

my left neck and shoulder hurt, but the arm and hand were numb. Last night I

woke up in unbelievable pain in my left arm, rib cage, under my arm, shoulder

blade, and breast. I feel like I should let the doc's know this, but if he

already thinks I'm lying, what will he do with this.

My plan is to get him to run all the expensive tests, so its covered by

insurance, then take the results to another expert and see what they think.

Is that unethical? I really feel like my body is possessed or something. I

can't get my temperature regulated either. Somebody please tell me I'm not

going crazy, because I'm beginning to wonder if maybe this is all in my head?

Hi ,

I can totally relate. I felt exactly the same way. I thought for sure

that they were going to think that I was a hypochondriac.

Until now, my left neck and shoulder hurt, but the arm and hand were numb.

Last night I woke up in unbelievable pain in my left arm, rib cage, under my

arm, shoulder blade, and breast

This is almost exactly the type of pain I had and it came out of no

where. Do you have any winging of your shoulder blades (meaning are they

sticking out more than usual)? Before my Lyme DX I was DX'd with Acute

Brachial Plexious Neuropathy. I have deenervation of the nerves that are

connected to the c-5, c-6 area of my spine. It started out on one side, but

when I had a relapse it had affected both (this is when the dr finally tested

for Lyme). This is supposed to only occur in people w/diabetes or those who

have sustained " trauma " to that area. I have had to live w/ it for 2 & 1/2

yrs now. It seemed to get better after I had three mo. of abx, but over the

last mo. it has started to bother me once again. Everytime there is any

stress to my body (ie: surgery, etc...) I have a relapse, this is why I so

strongly believe in the Lyme DX. Ask your dr to do a nerve conductivity test

( EMG ) of the area where you are experiencing the pain. I hope that I have

helped in some small way.

Your Lyme Freind,

P.S. As hard as it is exercising that area helps to keep it from weakening. I

play tennis (when I can) and it helps a lot, I just have to remember I have

limits.

[Guest guest]

Hi and ,

I too suffered from the left shoulder, neck pain my first year of LD, I

had a cervical MRI that showed herniation at discs C-5, C-6. Surgery was

recommended but I opted to live with it, as I was feeling lousy enough and

could not fathom more pain. The following year I had another MRI, that

showed additional herniation at C-7, haven't gone for the third one, Lord

knows what that will show. Many of us with LD have cervical disc problems,

with no rhyme or reason, or injury to explain it. I cannot help but wonder

why the doctors haven't made a bigger issue of it. The two studies related

below are the only ones I have found to date about Lyme and cervical disc

problems. , God Bless you for being able to play tennis.

Hugs,

Marta

Lyme disease and disc herniation

************************************************************************

as of 15 September 1998

Medical/scientific abstract on Lyme disease and disc herniation:

Title

Meningoradiculoneuritis mimicking vertebral disc herniation. A

" neurosurgical complication of Lyme-borreliosis.

Author

Meier C; Reulen HJ; Huber P; Mumenthaler M

Address

University Department of Neurology, Inselspital, Bern, Switzerland.

Source

Acta Neurochir (Wien), 98(1-2):42-6 1989

Abstract

We report on 3 patients with meningoradiculoneuritis (MRN) due to

Lyme-borreliosis (LB), which presented clinically as vertebral disc

herniation. In 2 cases the underlying infection was discovered only

after unsuccessful neurosurgical treatment. In the differential

diagnosis between MRN and disc herniation the following criteria are

suggestive of MRN and should raise suspicion of a non-discogenic

aetiology: History of tick bite or erythema chronicum migrans, fever or

general malaise, mono- or oligoradiculopathy with absent or

insignificant lumbar pain and complaints of a burning character of the

radiating pain. In suspicious cases we recommend blood investigations

including antibody determination against borrelia burgdorferi and CSF

investigations including cell count and cytology, protein and glucose

determination, nephelometry and isoelectric focusing to exclude MRN and

other conditions that may mimic disc herniation.

Language

Eng

Unique Identifier

89300369

http://www.infotrieve.com/healthworld/std_format.cgi?med85-89+925256+((lyme+

OR+burgdorferi+OR+borreliosis)+AND+(disc+OR+hermiation))

-----

Title:

Incidence of nervous system Borrelia burgdorferi infection in

patients with lumboradicular syndrome.

Authors:

Schmutzhard E, Mohsenipour I, Stanek G

Source:

Eur Neurol 1993;33(2):149-51

Organization:

Department of Neurology, University Hospital Innsbruck, Austria.

Abstract:

We investigated 103 consecutive patients primarily admitted to our

Department of Neurosurgery (36 women, age: median 44, range 21-79; 67

men, age: 47, range 19-77) suffering from low back pain radiating into

one or both legs. Neurological examination combined with computer

tomography and lumbar myelography revealed lumbar-disc herniation in 74,

vertebrostenosis in 10 and relapsed disc herniation in 9 patients. In 9

patients the diagnosis of pseudoradicular syndrome was established

without definite neuroradiological morphological evidence. Two patients

were diagnosed as having polyneuropathy, and 1 patient suffered from a

nervus ischiadicus lesion due to a gluteal abscess. CSF of all patients

was examined according to a fixed routine schedule (cells, protein,

sugar, immunoglobulins, IgG index). Antibodies to Borrelia burgdorferi

were found in the serum and CSF of 5.8%, and in the serum alone of 2% of

patients. Intrathecally produced specific antibodies were detected in 3

patients (2.9%) with neuroradiological evidence of disc or spinal-canal

disease, indicating the coexistence of previous CNS infection by B.

burgdorferi with lumbar-disc herniation. None of the patients showed CSF

pleocytosis; thus, in no case was acute radiculitis due to B.

burgdorferi infection diagnosed.

Language: Eng

Unique ID: 93223723

---------------

> From: BBHMM@...

>

> > Hi ,

> I can totally relate. I felt exactly the same way. I thought for sure

> that they were going to think that I was a hypochondriac.

> Until now, my left neck and shoulder hurt, but the arm and hand were numb.

> Last night I woke up in unbelievable pain in my left arm, rib cage, under

my

> arm, shoulder blade, and breast

> This is almost exactly the type of pain I had and it came out of no

> where. Do you have any winging of your shoulder blades (meaning are they

> sticking out more than usual)? Before my Lyme DX I was DX'd with Acute

> Brachial Plexious Neuropathy. I have deenervation of the nerves that are

> connected to the c-5, c-6 area of my spine. It started out on one side,

but

> when I had a relapse it had affected both (this is when the dr finally

tested

> for Lyme). This is supposed to only occur in people w/diabetes or those

who

> have sustained " trauma " to that area. I have had to live w/ it for 2 &

1/2

> yrs now. It seemed to get better after I had three mo. of abx, but over

the

> last mo. it has started to bother me once again. Everytime there is any

> stress to my body (ie: surgery, etc...) I have a relapse, this is why I so

> strongly believe in the Lyme DX. Ask your dr to do a nerve conductivity

test

> ( EMG ) of the area where you are experiencing the pain. I hope that I

have

> helped in some small way.

>

> Your Lyme Freind,

>

> P.S. As hard as it is exercising that area helps to keep it from

weakening. I

> play tennis (when I can) and it helps a lot, I just have to remember I

have

> limits.

[Guest guest]

....#5

lol

Donna Fox, Volunteer

Arthritis Foundation - KY Chapter

FACES Young Adult & Childrens Group

[Guest guest]

Hey ...you go and run hard for those of us who merely wish we could

run the .6 miles

And many thanks for the hard you are doing for us

Donna

[Guest guest]

Help! I don't know who is the watch dog for ignorance. I have a mold

remediation company and don't know what to do with the frustration. People

are making decisions for others with no regard to the implications of their

choices. I was on two jobs just this past week where choices were made by

people ignoring the heath ramifications of others. One was a two and a half

million dollar house being sold. It had water damage extending some twenty

to thirty feet out from the air conditioning room containing three air

handlers. The air conditioning units leaked over the course of one to two

months. This vacant house's problem went undetected until a Realtor noticed

a wet spot. Upon inspection with seller and insurance agent we noticed the

air conditioning room on the second floor had several areas containing mold.

There were also several other spots of visible mold developing on the

ceilings in other parts of the house. The insurance agent convinced the

owner that none of this was a problem and proceeded to cut a hole in the box

below the air handlers. He then showed the customer that there was no mold

and suggested that the other areas showing mold could be wipe down and

painted. Their was no concern by either party regarding the walls and

ceilings that were water damaged and what lurked behind them. Who will pay

for this? The person who buys this high end house will be getting more then

they bargained for. The mold that is in the walls as well as the ceilings

can do nothing but grow.

The next job was a commercial store front that had a serious development

of black mold on their bathroom wall abutting an outside wall. A roof leak

that has been there for some time had saturated this wall of approximately

forty-eight square feet. The wallpaper had fallen off the wall because of

the development of the moisture and mold. The management company was

notified. I prepared the customer for the proper way to remediate this

problem. The management company assured her that they would remove the mold

in the proper way under containment. A contractor came and removed the

gypsum without containment. He did not dry wall as well as remove all

contaminated material on the inside of the wall, the wall was replaced the

same night. All of this took place over the span of several hours by one man

at night. Who is going to pay for this? The people in the store are not

wealthy. Their resources are limited and this store has high visibility, it

is a salon. There is no doubt in my mind that these people have been

compromised. Who is going to hold these people who make these decisions

accountable? When are there going to be laws to govern both sides of the

fence? There are unethical people on all sides. I understand that a

contractor can make a big deal out of nothing. I also understand the need to

keep this mold problem reasonable in terms of cost. But peoples health should

never be compromised for the sake of money! Help, is there anyone out there

that has an answer to this problem.

Jim Ilardi, Main St. Restoration

mainstreetrestoration.com

[Guest guest]

> From: " Dekany " <info@...>

> Subject: RE: Anyone keeping up with the thread on

> Dr.D's board about ending the message board

>

> I replied last night but I guess ^Heidi^ deleted it

> because

Why would " ^Heidi^ " delete it? (also why the ^^)?

Have you heard of nu-life enzymes? just wondering if

they are worthwhile or contain avoids?

__________________________________________________

[Guest guest]

Sorry, don't know nu life enzymes.

^^ is how ^Heidi^ identifies herself.

love

RE: Anyone keeping up with the thread on

> Dr.D's board about ending the message board

>

> I replied last night but I guess ^Heidi^ deleted it

> because

Why would " ^Heidi^ " delete it? (also why the ^^)?

Have you heard of nu-life enzymes? just wondering if

they are worthwhile or contain avoids?

__________________________________________________

[Guest guest]

before my daughter was old enough to swallow pills/capsules, i used to crush

them and sprinkle them inside her peanut butter jelly sandwiches. as long as

she did not see me do it, she would gobble them down. hope it helps.

There are 6 messages in this issue.

Topics in this digest:

1. autism awareness quilt online

From: jn516

2. Re: Digest Number 989

From: dannilynn700231@...

3. hiding meds (for charlene)

From: " Minna "

4. Re: hiding meds (for charlene)

From: " cheezer "

5. Parents unhappy with MMR safety experts' links to drug firms

From: Autism@...

6. DNA Test Links Autism To MMR

From: Autism@...

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Sat, 24 Aug 2002 15:28:24 -0400

From: jn516

Subject: autism awareness quilt online

This was posted on another list I'm on. I received permission from the

poster to forward to this list. I think it's a great idea and a way to

help promote autism awareness.

If anyone would like to send a photo of their child, I would be more

than happy to scan and upload the photo. All photos will be returned if

requested. I'm not sure how much postage fees are, but if I can get the

photo in a regular sized envelope, I'll return w/o charge.

Here is the link to view the quilt online:

http://www.picturetrail.com/gallery/view?autismawakening

---------------------------------------------------------------------------

You are invited to view and submit pictures to the Vaccine Injured With

Autism Quilt. This quilt represents the thousands of individuals around the

world with vaccine injured with autism! It is our hope that the pictures here

will illustrate the growing numbers of individuals with autism found or

believed to be vaccine injured with autism ... putting faces to the

statistics ... as this number is growing steadily.

We need to ensure that when professionals and parents look at this quilt

there will be no doubt how many are proven or believed to be vaccine injured

with autism.

We need to stop more children from becoming vaccine injured with autism now!

In 2003 this vaccine injured with autism quilt will go to Washington, DC.

Lets make sure that legislators see just how many there are!

Autism Hearings Still Continue... Many parents and professionals travel to

Washington, DC and stand up in the hearings to be counted as having children

vaccine injured. However we realize not everyone can make the trip to

Washington, DC, but you child's picture can. This project is not to take

place of any other efforts out there but is to ensure that all individuals

are counted!

We realize many families incomes are already stressed due to ongoing

treatments, therapies, and ongoing costs to care for your loved ones. So for

free you can let your voices be heard!

Lawsuits and class action suits are in progress nationally and

internationally. If you would like more information on lawyers to contact or

critical steps to take to find out if your child is vaccine injured use

contact information below to find out more.

Many parents and professionals have investigated into the depths of this

grave issue! Through medical records, testing, and ongoing research many

individuals with autism have amounts of mercury up to 237.5 mcg/Hg by 2 years

old this more then the recommended safe levels. This ingredient is found in

childhood vaccines. Aluminum is also found in many childhood vaccines which

allows cannibalization of DNA and RNA allowing mutation. Formaldehyde a

chemical used for embalming individuals when they pass away is also among the

additives of childhood vaccines. Live viruses and animal tissues and more are

also ingredients of childhood vaccines.

We are not anti-vaccine but we do believe in safe vaccination full disclosure

of vaccine ingredients, and vaccine education.

Contact Autism Awakening or your US Autism Ambassadors to find out what you

can do to help.

www.autismawakening.com

Keeping Autism In Focus! Continuing Effort to...Leave No Individual With

Autism Behind!

The Autism Epidemic is very real! We need to stop this epidemic in it's

tracks. Let the faces of these thousands of individuals remind all

professionals and parents that they need help and options now!

We are requesting pictures from anyone who has autism to place within these

photo albums. There is no fee involved. Please let your voices be heard!

A Special Thank-You to Autism Awakening for sponsoring the Vaccine Injured

With Autism Quilt Page!

Please e-mail jpg pictures to upload in the Autism Quilt to:

AutismAwakening@...

Please follow this simple steps:

1. attach a jpg picture in an email

2. Include individual with autism first name (Only)

3. Individuals age

4. Individuals diagnosis

5. Individuals city and state in which they reside

Please e-mail jpg pictures to upload in the Autism Quilt to:

AutismAwakening@...

If you do not have a jpg picture we can jpg it for you at no charge. Simply

postal mail a picture and information to:

Autism Awakening

Autism Quilt Project

1900 K Street SW Cedar Rapids, Iowa 52404

319-364-2687

www.AutismAwakening.com

Note: All pictures recieved will not be returned. In submitting the pictures

you give rights of use to Autism Awakening for all but not limited to

promotional uses, press releases, brochures, flyers, and web site coverage.

http://www.picturetrail.com/gallery/view?autismawakening

PictureTrail

[Guest guest]

In a message dated 10/16/02 7:52:00 AM,

writes:

>Also, is it possible to become, say, a registered dietitian,

>

>> without

>

>> > being obliged to propagate " politically correct nutrition " ?

The short answer is NO -- the ADA, which basically is the agency that

'registers' one as a dietitian, has strict rules of conduct. Chief among them

is to follow their standard nutritional protocols. One of my nutrition profs

pointed out that one could lose one's license for deviating from standard

practice. You guessed it, ADA approved nutrition standards includes such

things as the step 1 and 2 diets and the pyramid. Low fat is the mantra. They

are basically hostile to alternative medicine, etc. I was able to introduce

some deviant ideas -- but when I suggested that coconut oil might actually be

healthful, I was definitely seen by my prof as 'going too far.' Nutrition

education does not take place at state universities and colleges. The

government makes nutrition policy and it is up to the public schools to teach

that policy.

I'm sure there are a few progressive RDs out there -- but personally I never

met one.

Namaste, Liz

<A HREF= " http://www.csun.edu/~ecm59556/Healthycarb/index.html " >

http://www.csun.edu/~ecm59556/Healthycarb/index.html</A>

[Guest guest]

Liz,

Dietitians are basically a timid lot, I would say, programed to do what the

doctor says. That's why I got into trouble at the hospital where I was

working - telling patients more than I should have. But as a registered

dietitian I did not have any contact with alternative medicine, although my

interest in nutrition began with Adelle many years ago. I was always

interested in organic gardening, but it wasn't until I picked up on the

suggestion to read Nourishing Traditions a year or so ago that I had any

contact with alternative ideas in nutrition - needless to say that was like

a bombshell! My connections with dietitians have been pretty well severed

since I retired as I didn't see any reason to pay to continue my

registration. I do see two dietitians regularly who belong to a club I

belong to. I gave a program last year to that group that introduced many of

these alternative ideas - they were both there, but I don't think they knew

what to think. I know the proprietor of the health food store in town, who

is very knowledgable about Nourishing Traditions, has told me that there are

some dietitians in town who are very sympathetic with her views. Sometime I

might try to contact them.

Peace,

Kris , gardening in harmony with nature in northwest Ohio

>

> In a message dated 10/16/02 7:52:00 AM,

> writes:

>

> >Also, is it possible to become, say, a registered dietitian,

> >

> >> without

> >

> >> > being obliged to propagate " politically correct nutrition " ?

>

> The short answer is NO -- the ADA, which basically is the agency that

> 'registers' one as a dietitian, has strict rules of conduct. Chief among

them

> is to follow their standard nutritional protocols. One of my nutrition

profs

> pointed out that one could lose one's license for deviating from standard

> practice. You guessed it, ADA approved nutrition standards includes such

> things as the step 1 and 2 diets and the pyramid. Low fat is the mantra.

They

> are basically hostile to alternative medicine, etc. I was able to

introduce

> some deviant ideas -- but when I suggested that coconut oil might actually

be

> healthful, I was definitely seen by my prof as 'going too far.' Nutrition

> education does not take place at state universities and colleges. The

> government makes nutrition policy and it is up to the public schools to

teach

> that policy.

>

> I'm sure there are a few progressive RDs out there -- but personally I

never

> met one.

> Namaste, Liz

[Guest guest]

that's quite spooky.....because I am also blood group A neg and so is

Francesca.....what an interesting article.

thanks

[Guest guest]

Alice

Can you please change my email address to

jonsamson@... for the subscription.