Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Luckily, my boys have not had cavities..but they have had a rare tooth issue. They have had internal tooth resorption. NOT ROOT RESORPTION. Internal tooth resorption-where the tooth was eaten from the inside out. It happens in people with neutropenia, leukemia and immune deficiencies. It is even rare then. supposedly. They are going to have their x-rays published in a medical article on SDS.. Woo hoo we're excited (not really!) . Apparently you can have a low lying infection in your mouth that never really gets taken care of. There are so many theories behind their tooth resorption. They lost teeth 5 years too early because of it-BUT the tooth was perfectly healthy and normal looking on the outside. One of the boys needs braces because he had impacted permanent teeth.. And we worry because braces can cause some tooth resorption (normal). BUT in kids with internal tooth resorption, this little bit of root resorption can cause the internal tooth resorption to turn on. Something like that. I know this doesn't help you-I'm just sharing this on the topic of tooth decay. Has anyone else had a kid with internal resorption? The docs were hoping that by publishing their SDS study data with the boys' x-rays they might somehow get international feedback... and some answers. Gotta love it when your kids have a rare disease and they are the only two known with that disease to ever have internal resorption (by the experts who follow the most SDSers) Pattie " You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face......You must do the thing you think you cannot do. " ~Eleanor Roosevelt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Gee, Pattie, has had that-- all of his molars are capped to protect spacing--- his molars came it rotted and black--and two of his molars reabsorbed and he had to have the roots removed under general anesthesia CT- mom to 5 years ________________________________ From: [mailto: ] On Behalf Of Pattie Curran Sent: Monday, January 29, 2007 9:19 AM Subject: RE: tooth decay Luckily, my boys have not had cavities..but they have had a rare tooth issue. They have had internal tooth resorption. NOT ROOT RESORPTION. Internal tooth resorption-where the tooth was eaten from the inside out. It happens in people with neutropenia, leukemia and immune deficiencies. It is even rare then. supposedly. They are going to have their x-rays published in a medical article on SDS.. Woo hoo we're excited (not really!) . Apparently you can have a low lying infection in your mouth that never really gets taken care of. There are so many theories behind their tooth resorption. They lost teeth 5 years too early because of it-BUT the tooth was perfectly healthy and normal looking on the outside. One of the boys needs braces because he had impacted permanent teeth.. And we worry because braces can cause some tooth resorption (normal). BUT in kids with internal tooth resorption, this little bit of root resorption can cause the internal tooth resorption to turn on. Something like that. I know this doesn't help you-I'm just sharing this on the topic of tooth decay. Has anyone else had a kid with internal resorption? The docs were hoping that by publishing their SDS study data with the boys' x-rays they might somehow get international feedback... and some answers. Gotta love it when your kids have a rare disease and they are the only two known with that disease to ever have internal resorption (by the experts who follow the most SDSers) Pattie " You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face......You must do the thing you think you cannot do. " ~Eleanor Roosevelt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 If they are affected on the outside in anyway, then it isn't internal resorption. Does that make sense? The boys teeth were intact, totally fine on the outside, no work done on them, no cracks, etc. the infection/inflammation/resorption starts inside the tooth in the tooth pulp and eats the inside of the tooth. They find it on x-ray-tooth looks normal-but there's nothing inside. 's ended up becoming abscessed..but we caught J's before that. Neither of the boys have any black teeth or decay on the outside-not even one single cavity. The molars that were reabsorbed, were they already rotten (since you said they came in that way)? That would r/o internal tooth resorption, if they were. If you do a search for internal tooth resorption, you'll see what I am talking about. Lymphohistocytosis can also cause this..and that's why when Cinci was looking into HLH for the boys based on their testing, I was a bit worried. Luckily they don't feel they have HLH-that's 100 times worse than SDS! Pattie " You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face......You must do the thing you think you cannot do. " ~Eleanor Roosevelt Gee, Pattie, has had that-- all of his molars are capped to protect spacing--- his molars came it rotted and black--and two of his molars reabsorbed and he had to have the roots removed under general anesthesia CT- mom to 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 PS-both boys had to have their roots removed, too. I think only two of the root tips for each boy? They've had so much that sometimes I forget numbers! Ha ha. also had to have oral surgery, etc. to remove growths. They also have to have more frequent X-rays of their teeth to detect internal resorption (since you can't tell from the outside anything is going on with their teeth) - if they catch it early enough, then they can try to stop it from killing the tooth. This is why we are a bit worried about braces. When normal folks have braces, it can cause some degree of root resorption (which is normal-also normal when losing baby teeth (exfoliation) ) in people like S & J and I assume folks with these same dental issues, the root resorption can spark internal resorption. Gotta call and make the appointment with the orthodontist today for a referral. I don't think we'll escape braces for J because he has impacted permanent teeth that can't come in unless some get moved out of the way. Sigh.. Anyone ever deal with this and the internal resorption? Pattie " You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face......You must do the thing you think you cannot do. " ~Eleanor Roosevelt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I think you're right that absorption may be the key. We do avoid white flour and sugar, although with kids it's awfully heard to avoid all sweet things: they still eat fresh fruit, dried fruit, and with the GAPS diet, honey. Those are not super great for tooth decay either, but I can't take everything away - they are feeling really deprived at the moment! We do bone broths 3-4 times a week, but I think I need to increase that to daily. It would be so much easier if it were just me, it's hard getting kids to comply with all of this (especially my 4-year-old, who is quite picky). Thanks again. Re: [ ] Xylitol gum illegal? I see. You are doing all the right things! Very frustrating!!!I assume you are avoiding white flour and sugar as well. One thing -- are you giving them bone broths daily?If your kids have leaky gut, they are not *absorbing* the nutrients and that is the problem. Which will be remedied with this GAPS diet. Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I feel your pain. I just visited my nieces in Seattle (aged 4 and 8) and they are SUPER PICKY eaters. No vegetables or fruits whatsoever except one will eat broccoli and the other will eat raspberries. Have you ever had them on high doses of probiotics before? I think the cravings for sugar and refined carbs is partially due to an overgrowth of yeast.Ann MarieOn Jan 4, 2008 8:35 AM, Viadro < viadro@...> wrote: I think you're right that absorption may be the key. We do avoid white flour and sugar, although with kids it's awfully heard to avoid all sweet things: they still eat fresh fruit, dried fruit, and with the GAPS diet, honey. Those are not super great for tooth decay either, but I can't take everything away - they are feeling really deprived at the moment! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 , Just a thought, you may want to try to sprinkle a capsule of biokult on his tongue at bedtime--read the GAPS chapter on ear infections and glue ear. If cavities are caused by 'bad'bacteria eating sugars in our mouth and creating acid, maybe restoring healthy flora in the mouth will help. and I have been doing this for a few weeks, and the jury is still out as to whether or not it helps. But it shouldn't hurt (except the pocket book!). Viadro wrote: I think you're right that absorption may be the key. We do avoid white flour and sugar, although with kids it's awfully heard to avoid all sweet things: they still eat fresh fruit, dried fruit, and with the GAPS diet, honey. Those are not super great for tooth decay either, but I can't take everything away - they are feeling really deprived at the moment! We do bone broths 3-4 times a week, but I think I need to increase that to daily. It would be so much easier if it were just me, it's hard getting kids to comply with all of this (especially my 4-year-old, who is quite picky). Thanks again. ----- Original Message ----- From: To: Sent: 1/4/2008 10:52:49 AM Subject: Re: [ ] Xylitol gum illegal? I see. You are doing all the right things! Very frustrating!!! I assume you are avoiding white flour and sugar as well. One thing -- are you giving them bone broths daily? If your kids have leaky gut, they are not *absorbing* the nutrients and that is the problem. Which will be remedied with this GAPS diet. Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi, , I just saw this message (below) on the waphb group -- I thought it was encouraging. Note that if your kids are on the GAPS diet and can't have raw milk right now, bone broths and extra cod liver oil and extra liver and things like oysters (might have to slip those in somehow) will also help tremendously. I really think you are going to see your son's teeth improve as his leaky gut heals. Hang in there!Ann Marie Re: OT: Tooth Remineralization My dd had this problem at about the same age. We weren't eating WAP at the time, and I wasn't diligent about brushing her teeth before bed and night nursing. I concluded that food residue and breastmilk left on her teeth all night was to blame - though diet was probably the main culprit. We began nightweaning (I wanted to anyway) brushing & flossing more and began giving her raw milk also. I noticed that her teeth became whiter and her decay did not progress. Her dentist was amazed, she had suggested fillings previously and so then decided they were unnecessary. When we switched dentists the following year, they saw no sign of decay. We also use EcoDent powder, which isn't the best stuff around, but it claims to rebuild enamel without flouride. I truly believe the raw milk saved her teeth. She is almost 6 now and has lovely white teeth. a Quote Link to comment Share on other sites More sharing options...
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