Re: Dana or anyone pls... ...questions

February 2, 2008

Hi. I do gf/cf with my son. I was told going off it even a little bit will set

you back at zero. It takes up to 3 months for the good effects... so every time

you give in, you set him back completely and lose all that was gained. If you

dont feel its possible to stick to it, your probably better off not doing it.

AFP doesnt really make it ok to eat casein or gluten. Many people when weaning

there child off the diet use it for that purpose. research enzymes at

enzymestuff.com. No-fenol is for people who react badly to high phenol foods.

What did your childs protocol consist of? After a month he could be too high in

a particlar supplement and reacting to it. fat soluable vitamins a,d, and E can

be toxic ( cause a bad reaction ) because they store in the body for a long time

and add up unlike some water soluable vitamins. Many vitamins/minerals can be

untolerable if dosed too high.

Dana or anyone pls... ...questions

My son was doing well with his supps and vitamins until 2 days ago all of a

sudden he was going backwards, started stimming again, putting things in his

mouth... our routine was not changed at all, with the exception, his lips were

red and chapped so I put some vaseline on them to help the redness and the

chapness. I know from another group it is a big no-no, so I won't be applying

that on his lips again...but do you think this is the reason of his recent

behavior?

We are one month into his custom made protocol and were doing so well, speech,

social (behaved properly when around people), no stimming, no biting objects or

clothes. All of a sudden the social( starting pointing and talking loud at other

people), the stimming and putting things in his mouth started again. Someone

mentioned to change the vitamin E to a synthetic version, which I started

today...if I see positive changes than I will continue with it...also his poops

at one point were evey 3 days and mustardy, now they are more regular, daily, or

at worst every other day, but the color is light brown. Is this normal? Also, I

purchased the no-fenol and zyme-prime. With what foods should I give them to my

son? We follow as much as possible a gfcf diet but at times I give into my 12

year old with certain foods he loves so much and I make sure he gets a Afp

Peptizyde. His DAN! said things might get worse before they get better...did

this happen with your

child?

Sorry for asking soooo many questions and being all over the place with this

posting. I am just so confused. I don't know what may have triggered this, and I

certainly don't want to stop his custom made protocol, he was doing so

beautifully.

Any info from anyone will be much appreciated. ..

tks

Helen

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February 3, 2008

> My son was doing well with his supps and vitamins until 2 days ago

all of a sudden he was going backwards, started stimming again,

putting things in his mouth...

Putting things in the mouth, at my house, meant food/supplement

intolerance or yeast overgrowth. Is there anything new added or

removed? If not, consider adding biotin or other yeast control, see

if that helps.

Another thing to consider. Once my son no longer needed a supplement,

it tended to cause the same problem that initially it had resolved.

>>I purchased the no-fenol and zyme-prime. With what foods should I

give them to my son?

Zyme Prime is good for almost all foods. No-Fenol for fruits and high

phenol foods.

Dana

February 3, 2008

Thanks Dana

How can I pin point which supp he might not need anymore, if that's the case?

He is taking 10 diff kinds and we still need to add 3 more to complete his

protocol.

Also in your opinion is zyme prime a better choice that afp peptizyde? I

thought the afp peptizyde covered almost all foods.

Thanks

Heleni

danasview <danasview@...> wrote:

> My son was doing well with his supps and vitamins until 2 days ago

all of a sudden he was going backwards, started stimming again,

putting things in his mouth...

Putting things in the mouth, at my house, meant food/supplement

intolerance or yeast overgrowth. Is there anything new added or

removed? If not, consider adding biotin or other yeast control, see

if that helps.

Another thing to consider. Once my son no longer needed a supplement,

it tended to cause the same problem that initially it had resolved.

>>I purchased the no-fenol and zyme-prime. With what foods should I

give them to my son?

Zyme Prime is good for almost all foods. No-Fenol for fruits and high

phenol foods.

Dana

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February 3, 2008

OMG, I am worried. I would say we are 95% there with the gluten and 100% with

casein. It is alittle more difficult with a 12 yr.old, although he has been an

angel throughout this.

He is taking the following:

probiotics (HMF NEURO), 2caps AM , 2 caps PM

Mucosal Builder(homemade recipe), 1tsp am and 1tsp pm

SNT (super nu thera) liquid, 1/2tsp am and 1/2tsp pm

zinc 15mg am and 1scoop sulfate cream at night (on his body)

carnitine 500mg am

fish oil nutra sea 1tsp am

cod liver oil 1tsp pm

glycine 250mg am and 250mg pm

buffered vitamin c, 1/4tsp am and 1/4 tsp pm

vitamin E 200iu am and 200iu pm

coq10 30mg am

epsom salt baths , 3x per week

Besides all of the above we still have 3 more to add. We won't add until I ge

to the bottom of what is making him go haywire. We were told to add slowly one

every week. All this in preparation for his b12 shots.

Does anything pop out to make you think I should eliminate? This is soooo

hard.

Heleni

Hi. I do gf/cf with my son. I was told going off it even a little bit

will set you back at zero. It takes up to 3 months for the good effects... so

every time you give in, you set him back completely and lose all that was

gained. If you dont feel its possible to stick to it, your probably better off

not doing it. AFP doesnt really make it ok to eat casein or gluten. Many people

when weaning there child off the diet use it for that purpose. research enzymes

at enzymestuff.com. No-fenol is for people who react badly to high phenol foods.