Re: Please Help!! Need some advice.

[Guest guest]

>

> Hi group,

> I've been on LDN 4.5 mg for a little over 5 weeks now. I have

Ulcerative Colitis and Ankylosing Spondylitis (Arthritis). I have

been trying to stick with just the LDN and a strict diet but my U. C.

keeps getting worse. I just recently had to drive with my wife from

Ohio to Colorado (moving to Colorado) and had to eat out (but still

tried to stick to my diet as much as possible). Ever since that road

trip I have gotten worse and today I couldn't even make it to the

bathroom in time which is very embarrassing. I decided I have to get

back on the steroids (Entocort) and Asacol because I can't keep losing

this much blood and I can't work without being able to control going

to the bathroom. Do you think I should continue to take the LDN with

the Steroids or should I stop the LDN for a while until I come out of

this flare up?

>

> Thanks,

> Jeff

===============

Have you eliminated all sugar, gluten and dairy, soy and corn from

your diet? Use a good quality probiotic(3 to 4 capsules daily), add

alfalfa capsules or tablets or chlorophyll for vit. K and healing,

garlic high in allicin(avoid aged garlic, it's lower in allicin), Iron

(usually depleted in UC), Digestive Enzymes, B Complex Vitamins, L-

Glutamine, N-acetylglucosamine(N-A-G), Lauricidin(www.lauricidin.com).

[Guest guest]

Jeff,

I am so sorry to hear about your current flare! I understand what

you are going through, been there, done that! I unfortunately do not

have any advice for you since I have only been on LDN (for Crohn's)

for 22 days now, but I can tell you that of the 22 days I have only

been " crohns-ish " for 2 days. Additionally, those 2 days have not

been ANYWHERE near as bad as I was before going on LDN! Actually, I

have not felt this good in a very, very long time! I see that

was kind enough to offer some very good suggestions (which I will

take note of). Thanks !

I wish you the best! Please keep in touch!

Thanks,

Patti (a/k/a livinwithcrohns)

*dx Crohn's - June, 1978

*surgery - Dec., 2002 - Ileocolectomy/resection

*dx Crohn's/Colitis/Acid Reflux - Feb., 2005 (2006)

[Guest guest]

Patti,Are you on a specific diet?Thanks,Jefflow dose naltrexone From: pzellner@...Date: Tue, 1 Apr 2008 17:14:06 +0000Subject: [low dose naltrexone] Re: Please Help!! Need some advice.

Jeff,

I am so sorry to hear about your current flare! I understand what

you are going through, been there, done that! I unfortunately do not

have any advice for you since I have only been on LDN (for Crohn's)

for 22 days now, but I can tell you that of the 22 days I have only

been "crohns-ish" for 2 days. Additionally, those 2 days have not

been ANYWHERE near as bad as I was before going on LDN! Actually, I

have not felt this good in a very, very long time! I see that

was kind enough to offer some very good suggestions (which I will

take note of). Thanks !

I wish you the best! Please keep in touch!

Thanks,

Patti (a/k/a livinwithcrohns)

*dx Crohn's - June, 1978

*surgery - Dec., 2002 - Ileocolectomy/resection

*dx Crohn's/Colitis/Acid Reflux - Feb., 2005 (2006)

Get in touch in an instant. Get Windows Live Messenger now.

[Guest guest]

Jeff,

I am not really on a " specific " diet (yet). I did " notice " that of

the 2 days that I was " crohns-ish " I ate things on those days that I

don't " normally " eat, so I believe that I need to pay more attention

to my diet. In that light, I have ordered (but have not read) a book

suggested to me by a member (here) called " The New Eating Right for a

Bad Gut : The Complete Nutritional Guide to Ileitis, Colitis, Crohn's

Disease, and Inflammatory Bowel Disease Sold by: Amazon.com, LLC. " I

intend to read it very soon and follow it's direction because I know

that proper diet is very important to our health. I am aware of the

foods that irritate me and try my best to stay clear of them,

although at times it is difficult.

Please feel free to email me directly (pzellner@...) if

you would like to communicate with me further and I will be happy to

share with you. I hope that you will keep in touch!

Thanks!

Patti (a/k/a livinwithcrohns)

*dx Crohn's - June 1978

*surgery - Dec. 2002 - Ileocolectomy/resection

*dx Crohn's/Colitis/Acid Reflux - Feb. 2005 (2006)

[Guest guest]

,I already eliminate the foods you mentioned. As far as the supplements

go, pretty much every one I've tried bothers my stomach and I make sure

they are all natural without gluten, soy, sugar, etc.. I appreciate the

info but right now I really need to just find out if I should continue

on LDN with steroids.Thanks,Jefflow dose naltrexone From: b63powell@...Date: Tue, 1 Apr 2008 17:01:22 +0000Subject: [low dose naltrexone] Re: Please Help!! Need some advice.

>

> Hi group,

> I've been on LDN 4.5 mg for a little over 5 weeks now. I have

Ulcerative Colitis and Ankylosing Spondylitis (Arthritis). I have

been trying to stick with just the LDN and a strict diet but my U. C.

keeps getting worse. I just recently had to drive with my wife from

Ohio to Colorado (moving to Colorado) and had to eat out (but still

tried to stick to my diet as much as possible). Ever since that road

trip I have gotten worse and today I couldn't even make it to the

bathroom in time which is very embarrassing. I decided I have to get

back on the steroids (Entocort) and Asacol because I can't keep losing

this much blood and I can't work without being able to control going

to the bathroom. Do you think I should continue to take the LDN with

the Steroids or should I stop the LDN for a while until I come out of

this flare up?

>

> Thanks,

> Jeff

===============

Have you eliminated all sugar, gluten and dairy, soy and corn from

your diet? Use a good quality probiotic(3 to 4 capsules daily), add

alfalfa capsules or tablets or chlorophyll for vit. K and healing,

garlic high in allicin(avoid aged garlic, it's lower in allicin), Iron

(usually depleted in UC), Digestive Enzymes, B Complex Vitamins, L-

Glutamine, N-acetylglucosamine(N-A-G), Lauricidin(www.lauricidin.com).

Use video conversation to talk face-to-face with Windows Live Messenger. Get started!

[Guest guest]

I just looked back through some previous e-mails and realized taking Steroids with LDN has already been discussed. I am going to go back through those e-mails.Thanks,Jefflow dose naltrexone From: j_lodwick@...Date: Tue, 1 Apr 2008 13:37:14 -0600Subject: RE: [low dose naltrexone] Re: Please Help!! Need some advice.

,I already eliminate the foods you mentioned. As far as the supplements

go, pretty much every one I've tried bothers my stomach and I make sure

they are all natural without gluten, soy, sugar, etc.. I appreciate the

info but right now I really need to just find out if I should continue

on LDN with steroids.Thanks,Jeff

Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn how.

[Guest guest]

>

> Hi group,

> I've been on LDN 4.5 mg for a little over 5 weeks now. I have

Ulcerative Colitis and Ankylosing Spondylitis (Arthritis). I have

been trying to stick with just the LDN and a strict diet but my U. C.

keeps getting worse. I just recently had to drive with my wife from

Ohio to Colorado (moving to Colorado) and had to eat out (but still

tried to stick to my diet as much as possible). Ever since that road

trip I have gotten worse and today I couldn't even make it to the

bathroom in time which is very embarrassing. I decided I have to get

back on the steroids (Entocort) and Asacol because I can't keep losing

this much blood and I can't work without being able to control going

to the bathroom. Do you think I should continue to take the LDN with

the Steroids or should I stop the LDN for a while until I come out of

this flare up?

>

> Thanks,

> Jeff

===========

Jeff have you tried the transdermal LDN which bypasses the gut? Your

pharmacist can call Coastal Compounding in Savannah, Georgia, USA and

get the formula for making it. With your gut in the shape it's in you

may not be absorbing the LDN properly. Your supplementation may need

to be done transdermally to bypass the gut.

You may need to find a physician to follow and help you do a fast. A

fasting may be neccesary.

Get adrenals checked via a saliva test and get tested for candida

yeast, heavy metals, bacteria, mold and for lyme via a live blood

analysis with a Bradford Variable Projection Microscope. Many

chiropractors have these microscopes. Try to find what has caused

this autoimmune response.

[Guest guest]

Jeff,

I also have UC. It took a good 8 weeks on LDN before things got back

to normal. I was on prednisone for a flare and for the first

time...it did nothing!! I was still in agony when I finally put the

screws to my Doc and made him prescribe LDN. I suffered through and

slowly it stopped. It was strange...it would get a little better,

regress then get a little better until one day, it just went away. I

have had no trouble since. I also take lyadil (i think that's spelled

correctly, it's the same as asocol only once a day with a better

absorption rate) and I feel better that I've felt for years...hope

this helps some...good luck. By the way....I eat anything that's not

moving fast enough to get away and it doesn't seem to bother me.

Although...hard alcohol can be a problem if used too frequently.

Wade

>

> Hi group,

> I've been on LDN 4.5 mg for a little over 5 weeks now. I have

Ulcerative Colitis and Ankylosing Spondylitis (Arthritis). I have

been trying to stick with just the LDN and a strict diet but my U. C.

keeps getting worse. I just recently had to drive with my wife from

Ohio to Colorado (moving to Colorado) and had to eat out (but still

tried to stick to my diet as much as possible). Ever since that road

trip I have gotten worse and today I couldn't even make it to the

bathroom in time which is very embarrassing. I decided I have to

get back on the steroids (Entocort) and Asacol because I can't keep

losing this much blood and I can't work without being able to control

going to the bathroom. Do you think I should continue to take the

LDN with the Steroids or should I stop the LDN for a while until I

come out of this flare up?

>

> Thanks,

> Jeff

>

> _________________________________________________________________

> Use video conversation to talk face-to-face with Windows Live

Messenger.

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ocid=TXT_TAGLM_WL_Refresh_messenger_video_042008

>

[Guest guest]

Hi Jeff,

I suggest as I usually do to all Crohnies and U.Cers: use Asacol together with LDN. It usually helps.

When flareing: If the flare is too hard to handle; go for pred, then when tapering pred and only at 10 mg

and less; u may use LDN and prednisone in a combo. Even stay for a longer time with pred. / or entocort as a

maintanance dose. You may also include Asacol in that regimen.

Ingrid

[low dose naltrexone] Re: Please Help!! Need some advice.Jeff,I am so sorry to hear about your current flare! I understand what you are going through, been there, done that! I unfortunately do not have any advice for you since I have only been on LDN (for Crohn's) for 22 days now, but I can tell you that of the 22 days I have only been "crohns-ish" for 2 days. Additionally, those 2 days have not been ANYWHERE near as bad as I was before going on LDN! Actually, I have not felt this good in a very, very long time! I see that was kind enough to offer some very good suggestions (which I will take note of). Thanks

!I wish you the best! Please keep in touch!Thanks,Patti (a/k/a livinwithcrohns)*dx Crohn's - June, 1978*surgery - Dec., 2002 - Ileocolectomy/resection*dx Crohn's/Colitis/Acid Reflux - Feb., 2005 (2006)------------------------------------

[Guest guest]

It's Lialda. Just thought I would let you know in case you wanted to

look it up. (I take it, too.)

jan

>

> Jeff,

>I also take lyadil (i think that's spelled

> correctly, it's the same as asocol only once a day with a better

> absorption rate) and I feel better that I've felt for years...hope

> this helps some...