Re: Max's visit (long)..amy

[Guest guest]

Amy,

Sorry I haven't e-mailed you lately, still VERY crazy here, will tell

you later. I think I know of someone who may have a son with the

same condition. I am seeing her on FRI so I will write down what you

said and show it to her. Her son did not have any nerves or muscles

(I'm not sure which) in his eyelid and had to have surgery to

correct. They waited until he was around 5 to do it. Hang in

there. I have been thinking of you.

and Sam

> ,

> Thank you so much for caring. The doctor did say that he would be

in touch

> with my Pediatrician as well as the Opthomologist and as for the

band, I

> guess it could work...the Neurosurgeons (both) don't seem very

hopeful that

> it can bring the cheekbone and/or Orbit forward but ya never know.

>

> I am not seeing ANY results with Max's head yet - I am getting very

> frustrated!

>

> If I can't fix his eyes then the least I can do is fix his forehead

and his

> ears...I hope that it starts working soon. I am banking on this

new band.

>

> Thanks again, I hope I answered your questions - it was nice of you

to ask.

>

> Amy (Max's mom)

>

> PS - I hope Conner is doing well.