Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Hi Steph, This has been discussed many, many times on here, but in short, don't give EDTA to persons who are mecury toxic...makes them worse. And why the horsetail grass??? Go to www.onibasu.com and type in EDTA or EDTA and hallcutler and you'll come up with all kinds of reasons not to give EDTA. The more I read of this dr the more confused I am as to why people visit her. IMHO, give oral dmsa 1/4-1/2 mg per lb every 4 hours day and night around the clock for 3 days. After 3-4 rounds add in oral Ala at 1/4-1/2 mg per lb and give both every 3 hours during the day and every 4 at night for three days. NCD is not a proven chelator, it's a supplement that has benefited some kids, but has aluminum in it. [ ] Oral EDTA - not being tolerated , be really grateful for any thoughts Our son was prescribed oral EDTA to take with horsetail grass. We've tried this at half a cap, quarter of a cap, within a short time he goes into a rage and starts banging his head. We've been told might be lack of zinc so upped that. I think we've been very lucky over the years because usually he responds positively but on this one, not at all. He is very high in lead - we know that from his hair, his fecal metals, his UTM, his poryphirin test and also fairly high in mercury according to his poryphirin test. Dr Usman is not keen to give him DMSA. I wondered if others had found a way to give oral EDTA that didn't cause reactions? Or should we just stick to Beyond Clean and quit the oral chelators. We want the lead out of course. What about NCD - can that chelate lead? He tolerates that very well. He has had bad gut impaction which we think is now clear after several months of effort but suspect that his whole digestive system is now quite sensitised - he presses his tummy a lot. Can EDTA aggravate a sensitive stomach/gut? Feel like we're going back to the beginning again! But he has gained a lot of language in the past six months so we really don't want to quit we're just not used to these set backs and his head banging and arm biting are pretty scary to witness Steph, UK, mum of Tom, 8. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Steph, Our little grandson had good response to lead/mercury problems using DMSA. Blood lead levels were high[as were hair; no porphyrins done] over a sustained period with mainframe doing nothing but 'monitoring.' I took EDTA myself once I had all amagam out-can't tell you how AWFUL I felt[backache, stomache ache and headache]. I can relate to the head banging!! It took a long time to resolve a couple of days worth of edta indiscretion. I'm now a firm believer of Culter's NO edta for Hg poisoned. > > Our son was prescribed oral EDTA to take with horsetail grass. We've > tried this at half a cap, quarter of a cap, within a short time he > goes into a rage and starts banging his head. We've been told might > be lack of zinc so upped that. I think we've been very lucky over the > years because usually he responds positively but on this one, not at > all. He is very high in lead - we know that from his hair, his fecal > metals, his UTM, his poryphirin test and also fairly high in mercury > according to his poryphirin test. Dr Usman is not keen to give him > DMSA. > > I wondered if others had found a way to give oral EDTA that didn't > cause reactions? Or should we just stick to Beyond Clean and quit the > oral chelators. We want the lead out of course. What about NCD - > can that chelate lead? He tolerates that very well. > > He has had bad gut impaction which we think is now clear after several > months of effort but suspect that his whole digestive system is now > quite sensitised - he presses his tummy a lot. Can EDTA aggravate a > sensitive stomach/gut? Feel like we're going back to the beginning > again! But he has gained a lot of language in the past six months so > we really don't want to quit we're just not used to these set backs > and his head banging and arm biting are pretty scary to witness > > Steph, UK, mum of Tom, 8. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 > > Our son was prescribed oral EDTA to take with horsetail grass. We've > tried this at half a cap, quarter of a cap, within a short time he > goes into a rage and starts banging his head. We've been told might > be lack of zinc so upped that. I think we've been very lucky over the > years because usually he responds positively but on this one, not at > all. He is very high in lead - we know that from his hair, his fecal > metals, his UTM, his poryphirin test and also fairly high in mercury > according to his poryphirin test. Dr Usman is not keen to give him > DMSA. DMSA is better for lead. > I wondered if others had found a way to give oral EDTA that didn't > cause reactions? Or should we just stick to Beyond Clean and quit the > oral chelators. We want the lead out of course. What about NCD - > can that chelate lead? He tolerates that very well. > > He has had bad gut impaction which we think is now clear after several > months of effort but suspect that his whole digestive system is now > quite sensitised - he presses his tummy a lot. Can EDTA aggravate a > sensitive stomach/gut? Yes, it causes a lot of nausea. If you are going to give it (not that I'm recommending it), start with very small amounts and work up. -- Feel like we're going back to the beginning > again! But he has gained a lot of language in the past six months so > we really don't want to quit we're just not used to these set backs > and his head banging and arm biting are pretty scary to witness > > Steph, UK, mum of Tom, 8. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Hi Thanks for this. The horsetail plus EDTA is supposed to chelate Alluminium. Which Tom is also high in! But frankly I'm most concerned to get the lead out for now! Steph x > > Hi Steph, > > This has been discussed many, many times on here, but in short, don't give EDTA to persons who are mecury toxic...makes them worse. And why the horsetail grass??? > > Go to www.onibasu.com and type in EDTA or EDTA and hallcutler and you'll come up with all kinds of reasons not to give EDTA. The more I read of this dr the more confused I am as to why people visit her. > > IMHO, give oral dmsa 1/4-1/2 mg per lb every 4 hours day and night around the clock for 3 days. After 3-4 rounds add in oral Ala at 1/4-1/2 mg per lb and give both every 3 hours during the day and every 4 at night for three days. > > NCD is not a proven chelator, it's a supplement that has benefited some kids, but has aluminum in it. > > > > [ ] Oral EDTA - not being tolerated , be really grateful for any thoughts > > > Our son was prescribed oral EDTA to take with horsetail grass. We've > tried this at half a cap, quarter of a cap, within a short time he > goes into a rage and starts banging his head. We've been told might > be lack of zinc so upped that. I think we've been very lucky over the > years because usually he responds positively but on this one, not at > all. He is very high in lead - we know that from his hair, his fecal > metals, his UTM, his poryphirin test and also fairly high in mercury > according to his poryphirin test. Dr Usman is not keen to give him > DMSA. > > I wondered if others had found a way to give oral EDTA that didn't > cause reactions? Or should we just stick to Beyond Clean and quit the > oral chelators. We want the lead out of course. What about NCD - > can that chelate lead? He tolerates that very well. > > He has had bad gut impaction which we think is now clear after several > months of effort but suspect that his whole digestive system is now > quite sensitised - he presses his tummy a lot. Can EDTA aggravate a > sensitive stomach/gut? Feel like we're going back to the beginning > again! But he has gained a lot of language in the past six months so > we really don't want to quit we're just not used to these set backs > and his head banging and arm biting are pretty scary to witness > > Steph, UK, mum of Tom, 8. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Have you identified and reduced/removed sources of exposure to aluminum? www.danasview.net/metals has a comprehensive list of sources of exposure. S S <p>Hi <br> <br> Thanks for this.<br> <br> The horsetail plus EDTA is supposed to chelate Alluminium. Which Tom<br> is also high in!<br> <br> But frankly I'm most concerned to get the lead out for now! <br> <br> Steph x<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Thanks for this. I wonder if I'm imagining a whole load of gut problems that are actually triggered by him feeling a bit queasy because of EDTA ... So hard to tell! He does have impaction issues but we keep that all moving with oxypowder and movicol plus he eats mountains of veg, dried fruits, drinks lots of water - he should be Mr Fit and Healthy. (But he's not) We're off EDTA indeed off chleation for now. His poryphirin test indicates we need to shift a lot of stuff but having been specifically advised not to use DMSA by his DAN, that doen'st leave much else to use other than NCD. Big sigh! Steph > > > > Our son was prescribed oral EDTA to take with horsetail grass. We've > > tried this at half a cap, quarter of a cap, within a short time he > > goes into a rage and starts banging his head. We've been told might > > be lack of zinc so upped that. I think we've been very lucky over the > > years because usually he responds positively but on this one, not at > > all. He is very high in lead - we know that from his hair, his fecal > > metals, his UTM, his poryphirin test and also fairly high in mercury > > according to his poryphirin test. Dr Usman is not keen to give him > > DMSA. > > > > DMSA is better for lead. > > > > > > I wondered if others had found a way to give oral EDTA that didn't > > cause reactions? Or should we just stick to Beyond Clean and quit the > > oral chelators. We want the lead out of course. What about NCD - > > can that chelate lead? He tolerates that very well. > > > > He has had bad gut impaction which we think is now clear after several > > months of effort but suspect that his whole digestive system is now > > quite sensitised - he presses his tummy a lot. Can EDTA aggravate a > > sensitive stomach/gut? > > > Yes, it causes a lot of nausea. If you are going to give it (not > that I'm recommending it), start with very small amounts and work > up. > > -- > > > > > Feel like we're going back to the beginning > > again! But he has gained a lot of language in the past six months so > > we really don't want to quit we're just not used to these set backs > > and his head banging and arm biting are pretty scary to witness > > > > Steph, UK, mum of Tom, 8. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 > > Thanks for this. I wonder if I'm imagining a whole load of gut > problems that are actually triggered by him feeling a bit queasy > because of EDTA ... So hard to tell! He does have impaction issues > but we keep that all moving with oxypowder and movicol plus he eats > mountains of veg, dried fruits, drinks lots of water - he should be Mr > Fit and Healthy. (But he's not) Probably a yeast problem, but the EDTA was probably causing nausea on top of that. In Andy's Hair Test Book, he does give guidelines on how to work up the dose of EDTA in the rare cases where he advises it (see p. 238). > We're off EDTA indeed off chleation for now. His poryphirin test > indicates we need to shift a lot of stuff but having been specifically > advised not to use DMSA by his DAN, that doen'st leave much else to > use other than NCD. I imagine the DAN is worried about yeast. You're going to be dealing with it either way. Using low doses causes a lot less problems with yeast than the high dose protocols usually recommended, and there are lots of ways to manage it. NCD doesn't actually chelate. but a lot of people do get benefits from it, possibly due to improving dysbiosis. So that might be worth a try for the yeast. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Get the DAN! to explain why he doesn't want you to use DMSA. Are you trying to chelate lead? S S > > Thanks for this. I wonder if I'm imagining a whole load of gut > problems that are actually triggered by him feeling a bit queasy > because of EDTA ... So hard to tell! He does have impaction issues > but we keep that all moving with oxypowder and movicol plus he eats > mountains of veg, dried fruits, drinks lots of water - he should be Mr > Fit and Healthy. (But he's not) Probably a yeast problem, but the EDTA was probably causing nausea on top of that. In Andy's Hair Test Book, he does give guidelines on how to work up the dose of EDTA in the rare cases where he advises it (see p. 238). > We're off EDTA indeed off chleation for now. His poryphirin test > indicates we need to shift a lot of stuff but having been specifically > advised not to use DMSA by his DAN, that doen'st leave much else to > use other than NCD. I imagine the DAN is worried about yeast. You're going to be dealing with it either way. Using low doses causes a lot less problems with yeast than the high dose protocols usually recommended, and there are lots of ways to manage it. NCD doesn't actually chelate. but a lot of people do get benefits from it, possibly due to improving dysbiosis. So that might be worth a try for the yeast. -- _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
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