Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 how long was the eeg my sis just did one for 48 hours with my nephew and it was normal she is very upset because she does not know now what to do or if this is or isnt a seizure from everthing the doc gave her and from how he acted limp barely breathing non responsive eyes rolled up in his head it seems to be a seizure it lasted for 5 min the first time and ten the next they said they are going to do more tests but they told her that they do not believe he has a seizure disorder is it common for eegs to be normal even when a child is having seizures thanks for your response, jennifer From: Andja Bozic <bozicandjayahoo (DOT) com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 how long was the eeg my sis just did one for 48 hours with my nephew and it was normal she is very upset because she does not know now what to do or if this is or isnt a seizure from everthing the doc gave her and from how he acted limp barely breathing non responsive eyes rolled up in his head it seems to be a seizure it lasted for 5 min the first time and ten the next they said they are going to do more tests but they told her that they do not believe he has a seizure disorder is it common for eegs to be normal even when a child is having seizures thanks for your response, jennifer From: Andja Bozic <bozicandjayahoo (DOT) com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Her eegs have only been 30 mins each. But being in the medical feild as a job I have seen some of the strangest looking seizures. And some doctot=rs only believe people have seizures when they see them. Stacie From: Andja Bozic <bozicandja@ yahoo. com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Her eegs have only been 30 mins each. But being in the medical feild as a job I have seen some of the strangest looking seizures. And some doctot=rs only believe people have seizures when they see them. Stacie From: Andja Bozic <bozicandja@ yahoo. com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 I do not know the history of this case, so I am dealing with a lousy " perspective " , if you will. However, not all seizures are traditional in nature. Some may not show up on an EEG because the actions you described may not originate from the traditional areas of the brain. That does NOT mean there is nothing to worry about, don't get me wrong. It is impossible to say what is going on with a child until you examine and diagnose the problem. Seizure is a generic term that many people tend to use, including doctors, and may not be an accurate desription of what is going on. I recommend that you continue to seek answers to this baffling question and sooner or later we will understand what is happening here. We can go back to the old " dietary " issues. The most basic of conditions in an ASD child, but have you done the fully food allergy panel? A 90 panel can tell you a lot. One of my patients was on the GFCF diet and had shown only moderate improvement. The problem? Egg white was off the scale and egg yolks were highly inflammatory. Please consider that not all seizures are traditional in nature and you might come to a conclusion that these seizures are a symptom of something much more basic in nature. One other thing is that if there is a flaw in the CNS, it will only show up on the EEG when something is wrong. My daughter has an abnormal EEG and is one of the only patients I have ever seen with a Babinski sign present (right foot). This is a sign of upper motor disturbances. Nothing impossible to deal with, but if I were you I would see to it that the children have a proper biochemical work up and at least a FAIRLY thorough neurological evaluation, including eyes, hearing, reflexes, etc. Your child can tell you a lot if you watch and listen. I hope this helps. If I can be of further assistance, call me at the number on the web site listed below. Jeff Cunningham, DC , TX www.zoesplaceclinic.com [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 I do not know the history of this case, so I am dealing with a lousy " perspective " , if you will. However, not all seizures are traditional in nature. Some may not show up on an EEG because the actions you described may not originate from the traditional areas of the brain. That does NOT mean there is nothing to worry about, don't get me wrong. It is impossible to say what is going on with a child until you examine and diagnose the problem. Seizure is a generic term that many people tend to use, including doctors, and may not be an accurate desription of what is going on. I recommend that you continue to seek answers to this baffling question and sooner or later we will understand what is happening here. We can go back to the old " dietary " issues. The most basic of conditions in an ASD child, but have you done the fully food allergy panel? A 90 panel can tell you a lot. One of my patients was on the GFCF diet and had shown only moderate improvement. The problem? Egg white was off the scale and egg yolks were highly inflammatory. Please consider that not all seizures are traditional in nature and you might come to a conclusion that these seizures are a symptom of something much more basic in nature. One other thing is that if there is a flaw in the CNS, it will only show up on the EEG when something is wrong. My daughter has an abnormal EEG and is one of the only patients I have ever seen with a Babinski sign present (right foot). This is a sign of upper motor disturbances. Nothing impossible to deal with, but if I were you I would see to it that the children have a proper biochemical work up and at least a FAIRLY thorough neurological evaluation, including eyes, hearing, reflexes, etc. Your child can tell you a lot if you watch and listen. I hope this helps. If I can be of further assistance, call me at the number on the web site listed below. Jeff Cunningham, DC , TX www.zoesplaceclinic.com [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Thanks for the input. We are seeing the doctors at the Blue Bird Clinic in August because the one we have right now I am not to sure of because he says she has ADHD and is yelling the school that but our psych says she only has AU and also Seizures but no ADHD. Stacie in Magnolia From: Andja Bozic <bozicandja@ yahoo. com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Thanks for the input. We are seeing the doctors at the Blue Bird Clinic in August because the one we have right now I am not to sure of because he says she has ADHD and is yelling the school that but our psych says she only has AU and also Seizures but no ADHD. Stacie in Magnolia From: Andja Bozic <bozicandja@ yahoo. com> Subject: Re: [Texas-Autism- Advocacy] Re: seizures? To: Texas-Autism- Advocacy@ yahoogroups. com Date: Friday, June 20, 2008, 11:14 AM My son is 6 yrs old, non verbal w/ autism. We was originally diagnosed w/ PDD and later with classic autism. We did an MRI 3 yrs ago and it came back normal. We later did a 24 hr eeg at home where he wore a fanny back around him with the monitor and found that he is having absent seizures. The left side of his brain by the frontal lobe is having abnormal activity. We had no idea. We were against meds until we had justification to use them for our son. The last two years he has been on meds that have controlled his " absent " or " starring " seizures. We confirmed that he needed the meds when we took him off the med (do to side effects) and detoxed him prior to placing him on another. During the time he was off of meds, he regressed and lost all his ability to communicate thru signs and sounds, not to mention he lost his connection to us and all his surroundings. All his hard work in therapy just went down the drain and we had to start all over. This was the worse time of our lives. Last Oct. we did another 24 hr eeg at the hospital and his seizures are now controlled. He is progressing, Thank God. If your nephew does not get treatment, it will continue to hurt him. Look for the best neurologist out there. He deserves nothing less. God bless. [Texas-Autism- Advocacy] Re: seizures? Here's another thought..does your sister have a camcorder? It would be a good idea if they could capture one of his " seizure episodes " if possible,that way the ped neuro can have a better understanding of what is happening.Maybe keep a journal of what was happening right before and after ..does he get sleepy after a seizure..that sort of thing. It's so hard to watch them go through that ..especially when they're so little.. Prayers to you & family Stacey > > My nephew is 3and 1/2 and has been diagnosed as pdd today sis was at > hospital because he is having seizures we are all so scared he goes > limp his eyes roll into the back of his head his breathing is shallow > and he is non responsive today his seizure lasted 10 minutes cat scan > and blood work are all fine and now she has to schedual an eeg at the > hospital they told her that there is nothing we can do for him and they > gave her a sheet on different types os seizures after reading this > paper she said she believes he is having more than one kind of seizure > I dont remeber the names for all but there is the one described above > and a temperal lobe she says she thinks he is having these due to > violent uncontrolable outbursts that end suddenly and he does not seem > to remember acting that way also sometimes he goes into a stare and is > not responsive We all just want to know has anyone else had this happen > how do we handle it Is it true that there is nothing we can do but sit > and wait for the seizure to end and the biggest question is how > dangerous is this for him sis is scared to sleep worried he will stop > breathing we would be greatful for any info any one may have Thanks > > Quote Link to comment Share on other sites More sharing options...
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