Newspaper article

[Guest guest]

Can they be sued for providing misleading info and not providing the whole

truth? I think it is typical for health depts. to have this stance. Of

course the health dept. employees themselves may not know about exemptions

(but I would imagine that surely the health dept. directors know about

exemptions). I previously worked at a health dept. as a Clinical

Nutritionist and I DID NOT know there were exemptions. It apparently is a

well kept secret. Are there any federal laws requiring that the whole truth

be told in these types of immunization outreach ads?

Newspaper article

> My children deliver the little community paper to our neighborhood once a

week. I was glancing through it last night when this headline caught my

eye, " Health Department Helping Parents. " Well, it turned out to be all

about how important immunizations are and that they are " required " for

children who attend school in Kentucky. It went on to say that a child

won't be allowed to remain in school without updated immunizations.

>

> How convenient, too, that the school and health department will be open

later hours and having special immunization clinics set up to make sure

children get their shots My kids thought I was going a bit bonkers when I

got angry reading the article. I showed them how the article was full of

lies. That there was no mention of exemptions. That their use of

" required " and " must have " and " won't be allowed to attend school without

them " are all blatant lies!

>

> So, I told my children I was going to write a letter to the editor of the

paper and request that they publish Kentucky's law on exemption for

immunizations. (I will conveniently provide that for them of course!) : )

I really doubt that they will print my letter (they print some letters to

the editor).

>

> My children thought it was pretty cool that I'm going to do this. I also

have talked with them in length about avoiding these shots for the children

they may have some day (they are 12 and 13).

>

> Just wanted to vent. It makes me so mad that no one ever mentions

exemptions. I've seen signs out all over in front of schools reminding

people to get their childrens' " mandatory " immunizations before school.

: (

>

> Kay

>

>

[Guest guest]

Good for you! I noticed for my dd's elementary school that they DID mention

exemptions in the policy book,but I doubt most parents take the time to read the

whole thing.I did and I don't even know if I will ps or hs my kids when the time

comes.To bad you could not have added a flyer to to the paper mentioning the

exemptions,but I am sure that is probably a no-no.

sara

Newspaper article

My children deliver the little community paper to our neighborhood once a week.

I was glancing through it last night when this headline caught my eye, " Health

Department Helping Parents. " Well, it turned out to be all about how important

immunizations are and that they are " required " for children who attend school in

Kentucky. It went on to say that a child won't be allowed to remain in school

without updated immunizations.

How convenient, too, that the school and health department will be open later

hours and having special immunization clinics set up to make sure children get

their shots My kids thought I was going a bit bonkers when I got angry reading

the article. I showed them how the article was full of lies. That there was

no mention of exemptions. That their use of " required " and " must have " and

" won't be allowed to attend school without them " are all blatant lies!

So, I told my children I was going to write a letter to the editor of the paper

and request that they publish Kentucky's law on exemption for immunizations. (I

will conveniently provide that for them of course!) : ) I really doubt that

they will print my letter (they print some letters to the editor).

My children thought it was pretty cool that I'm going to do this. I also have

talked with them in length about avoiding these shots for the children they may

have some day (they are 12 and 13).

Just wanted to vent. It makes me so mad that no one ever mentions exemptions.

I've seen signs out all over in front of schools reminding people to get their

childrens' " mandatory " immunizations before school. : (

Kay

[Guest guest]

The thing that made me so mad was the article stated it was " Kentucky state law "

to have your children fully immunized to enter public school! That is soo not

true! Grrr...

Yeah I would just use their words and say, " You have provided

incomplete/incorrect information for your readers regarding state immunization

laws.Kentucky state laws require students entering public schools to have

completed the required list of immunizations,or to have a written vaccination

exemption on file.Our state allows both medical and religious exemptions.Please

inform your readers of this. "

[Guest guest]

Thank you to those who offered your suggestions and comments. I'll let you know

if my letter gets published in the paper. Hey, if it stops just one child from

getting unnecessarily jabbed, it will be worth it!

Kay

The thing that made me so mad was the article stated it was " Kentucky state

law " to have your children fully immunized to enter public school! That is soo

not true! Grrr...

Yeah I would just use their words and say, " You have provided

incomplete/incorrect information for your readers regarding state immunization

laws.Kentucky state laws require students entering public schools to have

completed the required list of immunizations,or to have a written vaccination

exemption on file.Our state allows both medical and religious exemptions.Please

inform your readers of this. "

[Guest guest]

I'm not sure Sandy. It sure seems like they could (and should) be sued for it.

I am a former RN and never knew there were exemptions for vaccinations, either.

I guess it's a secret that they really hope no one finds out.

Kay

*********

Can they be sued for providing misleading info and not providing the whole

truth? I think it is typical for health depts. to have this stance. Of

course the health dept. employees themselves may not know about exemptions

(but I would imagine that surely the health dept. directors know about

exemptions). I previously worked at a health dept. as a Clinical

Nutritionist and I DID NOT know there were exemptions. It apparently is a

well kept secret. Are there any federal laws requiring that the whole truth

be told in these types of immunization outreach ads?

[Guest guest]

It sounds like you have much to offer the list, Doc. It would be nice to know

more about you. How about an introduction?

Kay

Believe you could make a good case for fraud, though might be an uphill

fight. So, what else is new??!! Maybe better would be to file a motion for

an

injunction...that the health dept. provide reliable, accurate information for

parents. I believe that is the way I would go.

Incidentally, I appreciated hearing your story. Good for you, Kay!! Lot of

lies about HIV=AIDS, too, as I have increasingly come to see over the last few

years. Please don't let ANYONE you know take AZT and other antivirals, as

these are dreadfully toxic. Anyone desiring more of the complete story may

email me directly. No ax to grind..just facts.

--Doc

[Guest guest]

If you are writing the information for the public, I'd definitely

mention the long term lifestyle changes that are so important for

success. Surgery isn't the magic pill that many people think it is.

Make sure they know that weight gain post surgery is possible if dietary

and lifestyle changes aren't maintained. I'd also mention the typical

complications....blood clots, wound infections (more prominent in open

cases), death, etc.

Just my two cents!

[Guest guest]

If you send me the article or a copy of the newspaper... I can scan it for you

and put it into a PDF file so that you can send it to anyone you like, .

Alice

Newspaper article

Some of you will remember and others of you may not know this yet, but back in

October I had contacted the local paper on doing an article on Annika and

finally last night we finished up the article. It will be running in the local

paper a week from this coming Wednesday, so that would be January 26th.

The bad news is that I had hoped that this article would go on their website

but it will not. They don't place the part B stories on the site. But the good

news is that I asked him to email me a copy of the story so I can send it out.

He first said that if I gave him the few emails he would do it but I told him

that there are too many to give him so if he could send it to me that would be

just awesome. So he will.

For those at Northern Voices that don't know, he did come to NV back before

Thanksgiving and did interview some of the parents there and spent time in the

classroom so this will be part of the article. I will be picking up extra

copies of the actual paper and can get them for those that want an actual hard

copy. Please let me know if you want a copy of the paper so that I can make

sure that I buy enough. Otherwise I will have the story via email that I can

send out too. Either way just let me know.

Have a great weekend and here's hoping the article is going to be as good as I

hope it will be.

Mom of 4

Marcus 14

12

Jon 10

Annika 2.5

Bilateral implant 3/1/04

Hookup 3/25/04

spastic diaplegic CP

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[Guest guest]

If you send me the article or a copy of the newspaper... I can scan it for you

and put it into a PDF file so that you can send it to anyone you like, .

Alice

Thanks Alice. I will do that. I can't wait!!!

Mom of 4

Marcus 14

12

Jon 10

Annika 2.5

bilaterally implanted 3/1/04

hookup 3/25/04

----------

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[Guest guest]

You can also find the article in the Children’s Corner under the Children’s

CI Stories at HYPERLINK " http://www..com/ " www..com. This makes

it easier for those who can’t get into the programs.

Alice

<For those that want to read Annika's article, I did add the article to the

files area on the list serv. Just sign into the group, click on files

and look for Annika's article folder. I believe on one of them I did not

create the folder so there are just two files for Annika's article. It

comes as two because the article covered two pages in the newspaper. Any

problems just let me know. >

HYPERLINK

" http://us.adserver./l?M=298184.5639630.6699735.3001176/D=groups/S=

:HM/A=2532114/rand=117332979 "

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Version: 7.0.300 / Virus Database: 265.8.4 - Release Date: 2/1/2005

[Guest guest]

:

I read through the two pages of the News Paper article on Annika's journey to

hearing and Alan and your determination to win over this battle.

Wonderful article!!

Ravi

[Guest guest]

Hi ,

The link you typed did not work for me, it stated it

could not find the article. I'd love to read it

though!

-

__________________________________________________

[Guest guest]

Hmm....alright let me try again!!!!

[Guest guest]

Great article. I'll check the one out at your website shortly. A mom with

3 SDS kids is at Duke again today. They had talked about doing a double

transplant with them, too. Said they would only do 2 at a time and not all

three. She had told me a few weeks ago that Duke has done families with two

kids and done the transplants at the same time. Would you mind if I pass

this article along to her?

~Pattie~

" What matters is not great deeds, but great love. " ~ St. Therese of Lisieux

Family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

Sent: Tuesday, May 02, 2006 11:26 AM

Subject: Newspaper article

Hi, All ~

Here's the link to an article about our family, that is in our local

newspaper today . It's a follow-up on a story they did last year when

we were down at Duke for a double BMT.

http://www.dailypress.com/features/family/dp-13754sy0may02,0,5097950.story

-today's article

http://www.nhffoundations.net/synapse/news/fullstory_public.cfm?articleid=21

298

<http://www.nhffoundations.net/synapse/news/fullstory_public.cfm?articleid=2

1298 & website=nhffoundations.net/TatemXHIM>

& website=nhffoundations.net/TatemXHIM

- last year's article, posted on our foundation webpage

Have a great day,

~ Tatem, VA

Mom of Kaitlyn,13 (healthy donor for brothers' double BMT)

,10 (XHIM, 1 yr. post BMT @ Duke)

, 6 (XHIM, 1 yr. post BMT @ Duke)

www.caringbridge.org/va/tatem

_____

[Guest guest]

Great article, ! I really like how much emphasis the reporter put on

Kaitlyn too!

Mom to Conner (11, possible combined immune deficiency, Asperger's, mild CP,

partial seizures, asthma, GERD, Hashimoto's disease and resolved adrenal

insufficiency),

Hayden (11, unknown PID, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, unknown PID, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown PID, asthma)

Please visit us at www.caringbridge.org/in/connersmith

[Guest guest]

I found this article very interesting.

Autistic kids fall victim to parents who run amok

Sunday, June 04, 2006

DEBORAH KENDRICK

Anyone who has been a parent has at least one terrible moment where

caring for a child seemed unbearable. Inconsolable infants,

recalcitrant toddlers, preschoolers who refuse to sleep. I know; I

had mine.

Once, my 2-year-old son screamed and shook his crib until . . . what?

Until I thought I'd strangle him or drown us both? Who knows?

What I did, in fact, was go outside, closing the door behind me, and

stand in the blissful silence. I breathed. I probably prayed. And I

breathed some more. Then, because parents love their children more

than life itself, I went back indoors, lifted my baby out of his

crib, and administered whatever caretaking machinations were required

until he was satisfied and we both were smiling.

None of my children is autistic. They did, however, have special

needs, because all children have special needs. But no amount of

rationalization or putting myself in another mother's shoes can

assist me in wrapping my mind around the actions of McCarron or

Agnes DeGroot these past few weeks.

DeGroot and her husband, Nicolaas, are charged with setting fire to

their apartment in Linn County, Oregon, on May 14. Police reports

indicate they locked the windows and door and left. Inside was 19-

year-old DeGroot, who neighbors heard pounding on the

walls. He died four days later. He was autistic.

And then there was little McCarron. She was diagnosed with

autism at age 2. Her paternal grandfather describes her as a child

who laughed at being tickled, said " I love you " and played with

dolls. But autism means many different things in the lives of many

children. In 's case, she didn't always sleep well, and she

learned to communicate more slowly than " typical " toddlers.

Her mother, a physician, and her father, an engineer, had agreed to

live apart 20 months in order to get quality services in

another state. Finally, though, they agreed it was time to bring the

family back together at their home near Peoria, Ill.

We'll never know what the little girl might have become or how she

might have flourished in her upscale neighborhood with both parents.

On May 13, Dr. McCarron confessed to putting a plastic bag over her 3-

year-old's head until she suffocated.

What is wrong with these people?

And now there's Autism Every Day,a13-minute film aired at a New York

City fundraiser and again on MSNBC. Some disabilityrights leaders

fear it could persuade some people that raising an autistic child is

so unbearable that murder, suicide or some combination thereof is

understandable.

That's where Adolf Hitler's slaughtering crusade began: Put those

poor imperfect babies out of their misery and an bring end to their

parents' suffering.

One mom in Autism Every Day states pathetically that her child will

never marry. " How do you know that? " is what my heart is screaming at

her.

Did anyone know when Temple Grandin was 3 or 6 or 10 that she would

become a world renowned scientist and writer?

I've heard parents of deaf kids, blind kids, kids with Down syndrome

and other disabilities make the same kinds of pronouncements: My

child will never (fill in the blank). To all of them I say no human

can predict what another human will accomplish.

One parent can raise a child who is brilliant, athletic and gifted,

but turns out to be a murderer, arsonist, or thief. Another can raise

a child who has significant disabilities but becomes an inventor,

political leader or humanitarian.

To raise a child with autism is a daunting task that takes boundless

reserves of energy, vigilance and devotion. As a society, we need to

help parents who have been assigned such jobs for which they never

applied.

But to justify hurting or murdering any child is garbage.

A child is the greatest gift there is. A parent who destroys that

gift deserves no pity.

Deborah Kendrick is a Cincinnati writer and advocate for people with

disabilities.

dkkendrick@...