update (was Re: need help!)

[Guest guest]

Kathy, i can't tell you how helpful the information was that you

gave me. Because i had written off celiac disease i had forgotten

what a DH rash looked like. After checking pictures i see that it

could very well be what my daughter had.

We stopped proteases and for 1 1/2 weeks we've been gluten free.

After a dunk in the ocean (to speed up skin healing) her rash is

almost gone. A few bumps do show up every other day. Could still be

DH rash, viral die-off, insect bites...who knows at this point. The

big change is that she is sleeping thru her naps and at night. This

is remarkable in that EVERY time she falls asleep, she will wake up

screaming and jerking about 1 to 1.5 hours later for about 5-10

minutes (used to be 20) before she falls back asleep. Last year,

when we did the elimination diet (GFCFSF-no egg, no sugar) this

problem went away but i never found out what was the offender. I

guess i know now it is gluten.

I did take her to a pedi-immunologist who informed me that celiacs

is so rare that they never test for it (in this country). He did

agree to give me a test for IgA defiency. However, my daughter flat

out refused to have her blood drawn. i didn't want to force her, so

we'll have to find another way.

Yesterday she woke up with a stomach-ache and nausea and sleep most

of the day. (slept!) Despite her discomfort, her mood was better

then normal.

Question: i still wonder about the possible link between virus and

cranial nerve damage. What besides Virastop, could help reduce viral

load?

thanks!

alicia

> > > >

> > > > i looked at the pictures that dana posted of her son's virus

die-

> > off

> > > > rashes and they look like my daughters last week. my

daughter's

> > bump

> > > > was also near her chin and in the *exact* same spot as her

first

> > > > chicken pox bump. (it was a big one).

> > > >

> > > > The crisis problem is that if she sweats, it hurts her. She

> > claws at

> > > > her head and jerks around. She screams for me to take the

spices

> > off

> > > > her head. i give her a bath and she's immediately better.

> > Summertime

> > > > is approaching and it don't know what to do. she can't be

> > outdoors

> > > > over 15 minutes. And now, even indoors, if she jumps or runs

it

> > > > starts again. I feel like the only safe thing for her is to

sit

> > in

> > > > front of the tv with the a/c on.

> > > >

> > > > her excema is also returning, (knees, elbows, and some on

arms

> > and

> > > > torso) and she has had 5 outbreaks of hives these last few

weeks.

> > > >

> > > > BACKGROUND: my daughter spiraled downwards at 2.5 when she

got

> > the

> > > > japanese enc. booster and chicken pox at the same time

(guess

> > she

> > > > caught it at the clinic). That was exactly two years ago.

Hair

> > tests

> > > > showed toxic levels of Hg, Pb, As, plus more. Last year we

> > started

> > > > diet, then enzymes, then homeopathy + enzymes. She got

better

> > over

> > > > 6-9 months. Six weeks ago she started regressing.

> > > >

> > > > two weeks ago we started No-fenol chewables. I've also

started

> > > > giving her brain child's SS minerals (1/3 dose) daily.

> > > >

> > > > Does anyone have any clues as to what is going on?

> > > >

> > > > ~alicia

> > > >

> > >

> >

>