Re: ADHD & Autism & FRUSTATION

[Guest guest]

This doctor appearantly is not up to date when it comes to autism.

ADHD is on the spectrum. To tell you your daughter is autistic and

ADHD is kinda like saying she has a cold and a cough. No. The cough

is just one symptom of the cold. The underlying cause is the same.

With that said, what you are already trying are the same things that

help with ADHD symptoms. I can tell you one thing though. The kids

on the spectrum that are more on the hyper or poor attention span end

of the spectrum tend to react more to food additives and phenols. I

am aspergers myself and spent much of my grade school days

daydreaming than paying attention. They way you describe your

daughter sounds much like myself.

I have found that my improvements have come in spurts. These spurts

would coincide with realizing that certain foods affect me. The ones

I react to the most are MSG, red dye and nitrates. I have rarely had

it but I also get the same reaction to aspartame (Equal) and

Splenda. High fructose corn syrup also affects me but I can tolerate

a little before it affects me. Unfortunately enzymes cannot address

these items since they are not natural.

There are some kids that no matter what, meds give them the boost

they need. They are the exception rather than the rule though

doctors many times like to skip to meds without trying everything

else first.

I would urge you to seriously look at her diet and see what additives

she is getting. Then remove them one by one to see if there is any

change. I have been off these foods for a while and have enjoyed

being able to think clearly. At times I will give in and pay the

price for the next week. I am also dyslexic and removing these foods

have eliminated about 99% of my reversals. For me, removing these

foods has also reduced my sensory issues. For my autistic son, only

the GF diet or enzymes was able to address his sensory issues.

If you still do not see improvement, go ahead and try meds but do

your homework first. Some are better than others. I have never had

to go that direction so I don't have personal experience.

>

>

> Hi everyone,

>

> We met with my dd's Pediatric neurologist for her annual

evaluation.

> This is what the outcome was ...

>

> The doc thinks that along with Being on the spectrum my daughter is

> also having ADHD. Infact she say's after interating with her she

> feels that my daughter is very good and answers questions and

> follows directions if we are able to get her attention and focus.

> And that is where the challenge is ... she feels that my dd was

> constantly distracted by the books, the leaves falling out of the

> window but not in a stimming kind of way.

>

> Her teachers also feel that though she has many skills, it is

mainly

> in a controlled situation like table time and not in a NET kind of

> setting. When they try to work with her in a Natural setting she is

> unable to focus and hence unable to do as well as they expect to

her.

>

> The doctor suggested we try ADHD medication, dexedrine (2.5mg dose)

> 2 times a day. We are not sure if we should try it ... she will be

4

> in december.

>

> We are doing DAN! for the last 2 years .. Started with MB12 shots,

> pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> multivitamins. We also started chelating 4 weeks ago. Nothing has

> really worked in her case. I am looking into Yasko but starting

that

> is going to take a lot of time.

>

> Are there any supplements to deal with ADHD ... Is anyone using the

> medication? Please share your thoughts.

>

> Also she seems to be seeking A LOT of sensory needs and her teacher

> actual wrote to me that " her body was moving in different direction

> and she seemed she had no control over it " . All conventional OT

> techniques ... weighted vest, lap pads, tying weights to her legs,

> giving her squezes etc are not helping and have no effect on her

>

> What can I do to help her ... This is getting extremely frustration

> for everyone ...

>

> Thanks,

> Real

>

[Guest guest]

, you think ADHD and Autism are on the same spectrum but at

different levels???? Because I was told by a Dr. that ADHD and

autism are totally different. (once I asked if they were in the

same family) He said No they are not in the same family infact with

ADHD they are under focused and with Autism they are over focused.

It would make sense what you're saying though because my husband and

older son are ADHD and my husband and I suspect I am undiagnosed ADD

(not the H though) and my son is autistic. I've been thinking

about looking at additives lately also thinking that might be part

of his problem. How do you cut them out though? Something like

Atkins diet with fruit???? (not for a young child though) My son is

a teenager.

Wow! Thanks for the insight even though I didn't ask

the quesiton. Sue

> >

> >

> > Hi everyone,

> >

> > We met with my dd's Pediatric neurologist for her annual

> evaluation.

> > This is what the outcome was ...

> >

> > The doc thinks that along with Being on the spectrum my daughter

is

> > also having ADHD. Infact she say's after interating with her she

> > feels that my daughter is very good and answers questions and

> > follows directions if we are able to get her attention and

focus.

> > And that is where the challenge is ... she feels that my dd was

> > constantly distracted by the books, the leaves falling out of

the

> > window but not in a stimming kind of way.

> >

> > Her teachers also feel that though she has many skills, it is

> mainly

> > in a controlled situation like table time and not in a NET kind

of

> > setting. When they try to work with her in a Natural setting she

is

> > unable to focus and hence unable to do as well as they expect to

> her.

> >

> > The doctor suggested we try ADHD medication, dexedrine (2.5mg

dose)

> > 2 times a day. We are not sure if we should try it ... she will

be

> 4

> > in december.

> >

> > We are doing DAN! for the last 2 years .. Started with MB12

shots,

> > pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> > multivitamins. We also started chelating 4 weeks ago. Nothing

has

> > really worked in her case. I am looking into Yasko but starting

> that

> > is going to take a lot of time.

> >

> > Are there any supplements to deal with ADHD ... Is anyone using

the

> > medication? Please share your thoughts.

> >

> > Also she seems to be seeking A LOT of sensory needs and her

teacher

> > actual wrote to me that " her body was moving in different

direction

> > and she seemed she had no control over it " . All conventional OT

> > techniques ... weighted vest, lap pads, tying weights to her

legs,

> > giving her squezes etc are not helping and have no effect on her

> >

> > What can I do to help her ... This is getting extremely

frustration

> > for everyone ...

> >

> > Thanks,

> > Real

> >

>

[Guest guest]

Many mainstream doctors still refer to them as different conditions

but those that are on the cutting edge of autism research now often

refer to ADHD as being on the mild end of the autism spectrum. The

explanation your doctor gave you just shows his ignorance regarding

what autism is. Every symptom of a child on the spectrum is over or

under. Some are over sensitive to the touch while another feels no

pain. Some never get sick while another gets ear infection after ear

infection. Some are hyper while others are lethargic. Some will eat

any and everything while another avoids food. Some avoid people

while others have no fear of strangers. Why would the area of focus

be any different?

Removing food additives primarily means less packaged foods.

Nitrates are primarily in lunchmeats and bacon. I get Hormel Natural

Selection lunchmeats and 365 Bacon from Whole Foods. MSG is in most

canned soups, some sauces, some salad dressings and prepackaged foods

such as Hamberger Helper and Stove Top stuffing. I read labels but

most foods have a non-MSG alternative. Of course the easiest thing

to do it meat, rice or potatoes and veggies but there is alot out

there that is OK.

> > >

> > >

> > > Hi everyone,

> > >

> > > We met with my dd's Pediatric neurologist for her annual

> > evaluation.

> > > This is what the outcome was ...

> > >

> > > The doc thinks that along with Being on the spectrum my

daughter

> is

> > > also having ADHD. Infact she say's after interating with her

she

> > > feels that my daughter is very good and answers questions and

> > > follows directions if we are able to get her attention and

> focus.

> > > And that is where the challenge is ... she feels that my dd was

> > > constantly distracted by the books, the leaves falling out of

> the

> > > window but not in a stimming kind of way.

> > >

> > > Her teachers also feel that though she has many skills, it is

> > mainly

> > > in a controlled situation like table time and not in a NET kind

> of

> > > setting. When they try to work with her in a Natural setting

she

> is

> > > unable to focus and hence unable to do as well as they expect

to

> > her.

> > >

> > > The doctor suggested we try ADHD medication, dexedrine (2.5mg

> dose)

> > > 2 times a day. We are not sure if we should try it ... she will

> be

> > 4

> > > in december.

> > >

> > > We are doing DAN! for the last 2 years .. Started with MB12

> shots,

> > > pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> > > multivitamins. We also started chelating 4 weeks ago. Nothing

> has

> > > really worked in her case. I am looking into Yasko but starting

> > that

> > > is going to take a lot of time.

> > >

> > > Are there any supplements to deal with ADHD ... Is anyone using

> the

> > > medication? Please share your thoughts.

> > >

> > > Also she seems to be seeking A LOT of sensory needs and her

> teacher

> > > actual wrote to me that " her body was moving in different

> direction

> > > and she seemed she had no control over it " . All conventional OT

> > > techniques ... weighted vest, lap pads, tying weights to her

> legs,

> > > giving her squezes etc are not helping and have no effect on her

> > >

> > > What can I do to help her ... This is getting extremely

> frustration

> > > for everyone ...

> > >

> > > Thanks,

> > > Real

> > >

> >

>

[Guest guest]

Makes sense. Thanks Sue

-- In , " cubicmonica "

<cubicmonica@...> wrote:

>

> Many mainstream doctors still refer to them as different

conditions

> but those that are on the cutting edge of autism research now

often

> refer to ADHD as being on the mild end of the autism spectrum.

The

> explanation your doctor gave you just shows his ignorance

regarding

> what autism is. Every symptom of a child on the spectrum is over

or

> under. Some are over sensitive to the touch while another feels

no

> pain. Some never get sick while another gets ear infection after

ear

> infection. Some are hyper while others are lethargic. Some will

eat

> any and everything while another avoids food. Some avoid people

> while others have no fear of strangers. Why would the area of

focus

> be any different?

>

> Removing food additives primarily means less packaged foods.

> Nitrates are primarily in lunchmeats and bacon. I get Hormel

Natural

> Selection lunchmeats and 365 Bacon from Whole Foods. MSG is in

most

> canned soups, some sauces, some salad dressings and prepackaged

foods

> such as Hamberger Helper and Stove Top stuffing. I read labels

but

> most foods have a non-MSG alternative. Of course the easiest

thing

> to do it meat, rice or potatoes and veggies but there is alot out

> there that is OK.

>

>

>

>

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > We met with my dd's Pediatric neurologist for her annual

> > > evaluation.

> > > > This is what the outcome was ...

> > > >

> > > > The doc thinks that along with Being on the spectrum my

> daughter

> > is

> > > > also having ADHD. Infact she say's after interating with her

> she

> > > > feels that my daughter is very good and answers questions

and

> > > > follows directions if we are able to get her attention and

> > focus.

> > > > And that is where the challenge is ... she feels that my dd

was

> > > > constantly distracted by the books, the leaves falling out

of

> > the

> > > > window but not in a stimming kind of way.

> > > >

> > > > Her teachers also feel that though she has many skills, it

is

> > > mainly

> > > > in a controlled situation like table time and not in a NET

kind

> > of

> > > > setting. When they try to work with her in a Natural setting

> she

> > is

> > > > unable to focus and hence unable to do as well as they

expect

> to

> > > her.

> > > >

> > > > The doctor suggested we try ADHD medication, dexedrine

(2.5mg

> > dose)

> > > > 2 times a day. We are not sure if we should try it ... she

will

> > be

> > > 4

> > > > in december.

> > > >

> > > > We are doing DAN! for the last 2 years .. Started with MB12

> > shots,

> > > > pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> > > > multivitamins. We also started chelating 4 weeks ago.

Nothing

> > has

> > > > really worked in her case. I am looking into Yasko but

starting

> > > that

> > > > is going to take a lot of time.

> > > >

> > > > Are there any supplements to deal with ADHD ... Is anyone

using

> > the

> > > > medication? Please share your thoughts.

> > > >

> > > > Also she seems to be seeking A LOT of sensory needs and her

> > teacher

> > > > actual wrote to me that " her body was moving in different

> > direction

> > > > and she seemed she had no control over it " . All conventional

OT

> > > > techniques ... weighted vest, lap pads, tying weights to her

> > legs,

> > > > giving her squezes etc are not helping and have no effect on

her

> > > >

> > > > What can I do to help her ... This is getting extremely

> > frustration

> > > > for everyone ...

> > > >

> > > > Thanks,

> > > > Real

> > > >

> > >

> >

>

[Guest guest]

> The doc thinks that along with Being on the spectrum my daughter is

> also having ADHD.

My kids had both of these issues. Both autism and ADHD, for my kids,

were caused by metal toxicity and virus issues. ADHD is primarily

viral for my kids, but for other kids it is commonly caused by

food/phenol intolerance issues

http://www.danasview.net/phenol.htm

> follows directions if we are able to get her attention and focus.

There were quite a few supplements that were required for my kids to

improve attention and focus. Anti-virals, EFAs, B vitamins, etc.

> We are doing DAN! for the last 2 years .. Started with MB12 shots,

> pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> multivitamins. We also started chelating 4 weeks ago.

Several of these supplements/interventions will increase yeast beyond

what pro-bio gold can address. You might consider increasing your

yeast protocol, see if that helps.

> Also she seems to be seeking A LOT of sensory needs and her teacher

> actual wrote to me that " her body was moving in different direction

> and she seemed she had no control over it " . All conventional OT

> techniques ... weighted vest, lap pads, tying weights to her legs,

> giving her squezes etc are not helping and have no effect on her

This was several things for my #3, including yeast overgrowth.

Dana

[Guest guest]

Im new to this group and have many questions about enzymes, but felt

a need to jump into this conversation. There is much connections

with the gastrointestinal tract and the spectrum(autism, adhd, add,

etc). Improvement with the intestinal tract, improvement with the

spectrum conditions. We have seen this with our youngest son, 7rys

(vac damaged). Our oldest(14yrs) starting in kindergarden was always

thought to be adhd. We did lots of research and decided to not

medicate. It was a battle with the schools for years(they would get

so upset/flustrated with us). Finally in junior high, these same

special ed, teachers, etc. Said, " we think you guys have been write

all along, we dont think your son is adhd " !! Thank GOD we didnt

agree to medicate! I honestly can tell you we feel that there is

improvement/healing(we lean towards these conditions being viral)

with age, as this was abvious with our oldest. We are so thankfull

we stuck to our guns(this was hard at times with the systom) and

didnt medicate. You wouldnt even know now that our son even had any

signs of the so called adhd etc. I can tell you that he does have to

work a lot harder with school work, but I also can tell you he is so

athletic and excells in sports(I dont think this would have been the

case if he had been medicated). I guess what I am saying is to

really research, alot, trust your instincts, then take it from

there! And be sure and research on autism, adhd, etc and the

gastrointestinal connection!! Jennie<><

>

>

> Hi everyone,

>

> We met with my dd's Pediatric neurologist for her annual

evaluation.

> This is what the outcome was ...

>

> The doc thinks that along with Being on the spectrum my daughter

is

> also having ADHD. Infact she say's after interating with her she

> feels that my daughter is very good and answers questions and

> follows directions if we are able to get her attention and focus.

> And that is where the challenge is ... she feels that my dd was

> constantly distracted by the books, the leaves falling out of the

> window but not in a stimming kind of way.

>

> Her teachers also feel that though she has many skills, it is

mainly

> in a controlled situation like table time and not in a NET kind of

> setting. When they try to work with her in a Natural setting she

is

> unable to focus and hence unable to do as well as they expect to

her.

>

> The doctor suggested we try ADHD medication, dexedrine (2.5mg

dose)

> 2 times a day. We are not sure if we should try it ... she will be

4

> in december.

>

> We are doing DAN! for the last 2 years .. Started with MB12 shots,

> pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> multivitamins. We also started chelating 4 weeks ago. Nothing has

> really worked in her case. I am looking into Yasko but starting

that

> is going to take a lot of time.

>

> Are there any supplements to deal with ADHD ... Is anyone using

the

> medication? Please share your thoughts.

>

> Also she seems to be seeking A LOT of sensory needs and her

teacher

> actual wrote to me that " her body was moving in different

direction

> and she seemed she had no control over it " . All conventional OT

> techniques ... weighted vest, lap pads, tying weights to her legs,

> giving her squezes etc are not helping and have no effect on her

>

> What can I do to help her ... This is getting extremely

frustration

> for everyone ...

>

> Thanks,

> Real

>

[Guest guest]

Hi,

Dana's site is a GREAT place to start for looking into the phenol

stuff! The phenols were a BIG problem with my son. No-Fenol was a gift

from heaven. Keep researching for natural ways to deal with ADHD!!

Whether you or your Doctors believe it is or isn't on the spectrum,

there are SO many ways to deal with it naturally that you DON'T need to

do the meds!!! We have removed all of the artificials here and it is SO

easy!!! You just have to be a label reader!! No artificial colors,

flavors. or preservatives. Even Wal-Mart is carrying lots of this

stuff!! My kids aren't suffering one bit!! In fact our whole family is

healthier because of it!! Most stuff actually tastes better!! Why is

it there anyway??? (Get on the Feingold diet website for more specifics

on label reading.) There has been LOTS of research done to connect diet

with ADHD. Also, go to ritalinfreekids.com. These are homeopaths that

treat these kids!! They do phone consults, so it doesn't matter where

you live!!! Read their book and call them!!!! Even on their home page

they almost beg you to consider homeopathy before you start giving

medications! Just one thing I've come across in my research is DMAE, a

safe and natural supplement that aids in focus! Kirkman puts it in some

of their multiples and you can get it by itself at most drug stores. It

worked very well for my son!!

Anyway, do the research for yourself and fight for your daughter's

health!!

Thanks (sorry to preach everyone, I'm kinda passionate... :-[ )

-Susie, mom to Corbin and

[Guest guest]

Real,

My son was/is very hyper. His hyperactivity and motor activity seem to

be related to problems in his diet (gluten/casein, dyes and high

phenol foods), problems handling b vitamins (related to the phenol

issue), yeast, viruses and zinc deficiency.

The things that have helped most are:

Being strict with the diet

High-dose zinc (on doctor's orders, after testing)

Adult doses of EFAs (GLA, DHA and EFA) -- with MD advice)

Mag sulfate/epsom baths

Nystatin

We still need to address the viral issues, methylation problems and

metals (ds has lead and mercury that he seems to have acquired in

India before adoption), but the diet and supplements/meds mentioned

above have helped a TON.

If you're not consulting with a good DAN! doc, please do. It can

really help, b/c they're less likely to try traditional ADHD meds as a

their first treatment. They are much more likely to try to address the

underlying causes of the hyperactivity, not just the symptoms.

HIH,

mom of Kaley 13-bio, Maya 11-India and 7.5-India

>

>

> Hi everyone,

>

> We met with my dd's Pediatric neurologist for her annual evaluation.

> This is what the outcome was ...

>

> The doc thinks that along with Being on the spectrum my daughter is

> also having ADHD. Infact she say's after interating with her she

> feels that my daughter is very good and answers questions and

> follows directions if we are able to get her attention and focus.

> And that is where the challenge is ... she feels that my dd was

> constantly distracted by the books, the leaves falling out of the

> window but not in a stimming kind of way.

>

> Her teachers also feel that though she has many skills, it is mainly

> in a controlled situation like table time and not in a NET kind of

> setting. When they try to work with her in a Natural setting she is

> unable to focus and hence unable to do as well as they expect to her.

>

> The doctor suggested we try ADHD medication, dexedrine (2.5mg dose)

> 2 times a day. We are not sure if we should try it ... she will be 4

> in december.

>

> We are doing DAN! for the last 2 years .. Started with MB12 shots,

> pro-bio gold, cod liver oil, follinic acid, Gluthatione, DRN

> multivitamins. We also started chelating 4 weeks ago. Nothing has

> really worked in her case. I am looking into Yasko but starting that

> is going to take a lot of time.

>

> Are there any supplements to deal with ADHD ... Is anyone using the

> medication? Please share your thoughts.

>

> Also she seems to be seeking A LOT of sensory needs and her teacher

> actual wrote to me that " her body was moving in different direction

> and she seemed she had no control over it " . All conventional OT

> techniques ... weighted vest, lap pads, tying weights to her legs,

> giving her squezes etc are not helping and have no effect on her

>

> What can I do to help her ... This is getting extremely frustration

> for everyone ...

>

> Thanks,

> Real

>