Re: Sorry, forgot a couple more questions....

[Guest guest]

My kids get dark circles from foods they're allergic to, even with

enzymes. For my daughter, soy is the worst for this.

I just had my son's allergies tested using a finger prick test from

US Biotek for $165. I was able to do it at home while he was

sleeping - there is no way to get blood drawn on him otherwise.

Prior to that it was just trial and error. You can start by

eliminating the obvious things like food coloring, chemicals and

sugar, gluten and dairy if you are up for that, and starting

enzymes. Once a basic autism-friendly diet and some basic

enzymes/supps are in place, you will have a better idea of where to

go next.

It's easier if you take it gradually. Read the " Enzymes for Autism "

book, " Biological treatments for Autism and PDD, " and the one I

personally recommend first because it makes the whole thing so easy

to understand, " Unravelling the mystery of autism and PDD. " Use

Dana's site http://www.danasview.net and read about what

interventions you think might best apply to your family, then start

with the ones you can. I of course did everything the first day,

which made it not only overwhelming, but bad science; if you do

every intervention at once, you can't tell if there's a bad reaction

to just one component, or what's causing the problems or progress.

I have spent a lot of money on really useless advice from supposedly

knowledgeable DAN and other alternative doctors (the traditional

doctors are even more useless, but take insurance.) If you get a

recommendation to a really great DAN doctor from someone who's

already doing biomedical interventions, by all means, I'd say, spend

the money. But just because they're on the DAN list, doesn't always

mean they are worth your cash. You can run a lot of your own labs

through Great Plains or Great Smokies labs, and even the blood

allergy test at US Biotek. Or, you can just start by gradually

letting your food supply run out on the things you're thinking you

should eliminate, and replacing those with healthy autism-safe

substitutes.

Amy

>

> One other thing I wanted to mention was the dark circles around my

> dd's eyes. I'm not sure if it's diet-related but I strongly think

so.

>

> I am really curious as to how you all found the direction to take

to

> figuring out your children's insensitivities.

> I have no idea where to start. My dd's doctor is an osteopath who

is

> very progressive and even was the one to recommend the books to

me. I

> haven't yet told him that I believe the problems to be worse than

> before. Should I try him first or go directly to a DAN doctor?

> There's only one in our area and he doesn't take our insurance.

>

> I just feel really overwhelmed at the moment and I don't know

where to

> start. Thanks!

>

> Luci

>

[Guest guest]

>

> One other thing I wanted to mention was the dark circles around my

> dd's eyes. I'm not sure if it's diet-related but I strongly think so.

Commonly caused by phenol intolerance. Can be other intolerances also,

and a few other things

http://www.danasview.net/phenol.htm

> I am really curious as to how you all found the direction to take to

> figuring out your children's insensitivities.

> I have no idea where to start.

If you are looking to figure out food sensitivities, the end result

and what worked best for me, is giving HNI enzymes, then rotating

foods to find what he still did not tolerate, even with the enzymes.

Dana

[Guest guest]

Thank you! This is a huge help!

I'm going to start the HNI (Peptizides) enzymes and keep a gfdf diet

for a while then rotate the foods, as you said. I will also try No

Fenol. Would that be a good start?

What about probiotics? My dd is currently taking acidolpholus, a

raspberry flavored chewable. Can or should that be continued?

This morning I gave her some trail mix that had chocolate chips in it

and we left for an appointment I had. By the time we arrived, she was

super hyper and wild. Besides the dairy and sugar in the chocolate,

is there another compound that she could have been sensitive to?

Sorry, I have so many questions!

Dana, that is a great website and I couldn't stop reading it this

morning, I was nearly late for my appointment! Very informative,

thank you.

Thank you very much to everyone that has responded.

Luci

> >

> > One other thing I wanted to mention was the dark circles around my

> > dd's eyes. I'm not sure if it's diet-related but I strongly think so.

>

>

> Commonly caused by phenol intolerance. Can be other intolerances also,

> and a few other things

>

> http://www.danasview.net/phenol.htm

>

>

> > I am really curious as to how you all found the direction to take to

> > figuring out your children's insensitivities.

> > I have no idea where to start.

>

>

> If you are looking to figure out food sensitivities, the end result

> and what worked best for me, is giving HNI enzymes, then rotating

> foods to find what he still did not tolerate, even with the enzymes.

>

> Dana

>

[Guest guest]

Hi Amy,

Thank you so much for responding. I'm very interested about the

allergy testing...someone told me not to bother doing it because

supposedly, the allergy tests only look for immune response to a

certain food but that if it came up negative, that didn't mean there

wasn't a sensitivity to that particular food. So is that not the

case? I would want to try that too. It's really hard not

knowing...everything I give her to eat, I wonder how/if she'll be

affected.

" Enzymes for Autism " is the other book I have. I couldn't remember

the title when I posted origially, but I did check and I do have it.

I will start reading asap.

Your responses are very helpful to me. The information can be very

overwhelming. After reading here, it seems like we can get through

this with a little time and patience.

thanks,

Luci

> >

> > One other thing I wanted to mention was the dark circles around my

> > dd's eyes. I'm not sure if it's diet-related but I strongly think

> so.

> >

> > I am really curious as to how you all found the direction to take

> to

> > figuring out your children's insensitivities.

> > I have no idea where to start. My dd's doctor is an osteopath who

> is

> > very progressive and even was the one to recommend the books to

> me. I

> > haven't yet told him that I believe the problems to be worse than

> > before. Should I try him first or go directly to a DAN doctor?

> > There's only one in our area and he doesn't take our insurance.

> >

> > I just feel really overwhelmed at the moment and I don't know

> where to

> > start. Thanks!

> >

> > Luci

> >

>

[Guest guest]

I'm very interested about the

> allergy testing...someone told me not to bother doing it because

> supposedly, the allergy tests only look for immune response to a

> certain food but that if it came up negative, that didn't mean there

> wasn't a sensitivity to that particular food. So is that not the

> case? I would want to try that too. It's really hard not

> knowing...everything I give her to eat, I wonder how/if she'll be

> affected.

IgE allergy testing, which is the only kind you will usually get from

conventional pediatricians, measures only an IgE reaction in the

bloodstream (the kind that causes breathing problems, for instance).

My kids have IgG reactions which are delayed reactions such as

learning problems, rashes, stomach/GI responses, and behavioral

problems when they eat certain foods. The allergy panel from US

Biotek (also Great Plains if you can get someone to draw the blood for

you and send it to them, which I could not) measures IgG reactions.

The reason it was useful for me is that I could see from the levels of

response which foods to eliminate completely, and some that I could

rotate in and out every few days. But my kids still have very strong

reactions to some foods that they didn't get very high IgG reactions -

my son didn't test as allergic to rice or dairy, but both make him

unreachable - so it's not the only indicator of what foods to avoid.

Just one more guideline. He scored wildly allergic to blueberries,

which I never would have guessed; some of those sorts of unexpected

results made it worth doing, for me. I had to wait 5 years though,

for the home finger prick version, and it turned out I had been able

to figure out most of the problem foods correctly. So that was a good

sign.

Amy

[Guest guest]

Thanks Amy,

Soon after posting my question to you earlier, I actually read the

chapter in Enzymes for Autism that discusses the IgE reactions and

IgG. Makes total sense now. Wish I would have read it before!

I had no idea that there was an IgG test available, I just assumed

they were all for histamine reactions. That's really good to know.

I'm very interested in getting this test (I will probably do it myself

like you did) since I'm at the very beginning of trying to 'figure out

the triggers' process.

Were you able to order it online?

Luci

>

> I'm very interested about the

> > allergy testing...someone told me not to bother doing it because

> > supposedly, the allergy tests only look for immune response to a

> > certain food but that if it came up negative, that didn't mean there

> > wasn't a sensitivity to that particular food. So is that not the

> > case? I would want to try that too. It's really hard not

> > knowing...everything I give her to eat, I wonder how/if she'll be

> > affected.

>

> IgE allergy testing, which is the only kind you will usually get from

> conventional pediatricians, measures only an IgE reaction in the

> bloodstream (the kind that causes breathing problems, for instance).

> My kids have IgG reactions which are delayed reactions such as

> learning problems, rashes, stomach/GI responses, and behavioral

> problems when they eat certain foods. The allergy panel from US

> Biotek (also Great Plains if you can get someone to draw the blood for

> you and send it to them, which I could not) measures IgG reactions.

>

> The reason it was useful for me is that I could see from the levels of

> response which foods to eliminate completely, and some that I could

> rotate in and out every few days. But my kids still have very strong

> reactions to some foods that they didn't get very high IgG reactions -

> my son didn't test as allergic to rice or dairy, but both make him

> unreachable - so it's not the only indicator of what foods to avoid.

> Just one more guideline. He scored wildly allergic to blueberries,

> which I never would have guessed; some of those sorts of unexpected

> results made it worth doing, for me. I had to wait 5 years though,

> for the home finger prick version, and it turned out I had been able

> to figure out most of the problem foods correctly. So that was a good

> sign.

>

> Amy

>

[Guest guest]

Hi Luci,

A couple of items:

#1 a lot of acidophilus is grown on or otherwise contains dairy products, so you

may need to contact the manufacturer of the one you're using to determine if it

is safe if you are are instituting a gfdf diet.

#2 Check the label on the trail mix for what's in the chocolate chips. My first

guess for what made her hyper etc. is that there is vanillin in them. This is an

artificial vanilla flavor that is in many types of chocolate (bars, chips, etc.)

as well as other things, and is highly phenolic, so many kids are very sensitive

to it. As you will be doing a lot of baking if you are taking gluten out of her

diet (the store-bought stuff tends to be expensive, plus it may have other

ingredients in it that she's sensitive to), make sure to only use pure vanilla

extract, not the artificial vanilla stuff that's quite a bit cheaper. (Then

again, some kids are sensitive to real vanilla, also, but that's a lot less

likely than reactions to vanillin.)

Go ahead and ask whatever questions you have. That's one benefit of lists/groups

like this: those who are just starting out or facing a new situation even when

they've been at it for a while can ask and hopefully others in the group who

have faced the same issues and/or read ( " I know I saw somethinig about that just

the other day " ) about them can help out.

Hope this helps.

Luci Duncan <mama2chix@...> wrote:What about probiotics? My dd is

currently taking acidolpholus, a

raspberry flavored chewable. Can or should that be continued?

This morning I gave her some trail mix that had chocolate chips in it

and we left for an appointment I had. By the time we arrived, she was

super hyper and wild. Besides the dairy and sugar in the chocolate,

is there another compound that she could have been sensitive to?

Luci

> >

> > One other thing I wanted to mention was the dark circles around my

> > dd's eyes. I'm not sure if it's diet-related but I strongly think so.

>

>

> Commonly caused by phenol intolerance. Can be other intolerances also,

> and a few other things

>

> http://www.danasview.net/phenol.htm

>

>

> > I am really curious as to how you all found the direction to take to

> > figuring out your children's insensitivities.

> > I have no idea where to start.

>

>

> If you are looking to figure out food sensitivities, the end result

> and what worked best for me, is giving HNI enzymes, then rotating

> foods to find what he still did not tolerate, even with the enzymes.

>

> Dana

>

[Guest guest]

>

> Thank you! This is a huge help!

> I'm going to start the HNI (Peptizides) enzymes and keep a gfdf diet

> for a while then rotate the foods, as you said. I will also try No

> Fenol. Would that be a good start?

This sounds good.

> What about probiotics? My dd is currently taking acidolpholus, a

> raspberry flavored chewable. Can or should that be continued?

Most kids are benefited by probiotics, so you can certainly keep them.

> This morning I gave her some trail mix that had chocolate chips in it

> and we left for an appointment I had. By the time we arrived, she was

> super hyper and wild. Besides the dairy and sugar in the chocolate,

> is there another compound that she could have been sensitive to?

Chocolate is high amine, which is a problem for some kids similar to

phenol intolerance. I have amine links in the middle of this page

http://www.danasview.net/phenol.htm

> Dana, that is a great website and I couldn't stop reading it this

> morning, I was nearly late for my appointment!

Yes, it can cause that sort of problem LOL

Dana

[Guest guest]

Hi ,

Yes, vanillalin is one of the top ingredients in the chocolate chips

from the trail mix I gave her yesterday! Thanks for pointing that

out, I will be on the lookout for it from now on.

This is perfect timing since we just finished our last acidolpholus

tablet. I'm going to the store today and I will look for dairy-free

probiotics.

Thanks again!

Luci

> > >

> > > One other thing I wanted to mention was the dark circles

around my

> > > dd's eyes. I'm not sure if it's diet-related but I strongly

think so.

> >

> >

> > Commonly caused by phenol intolerance. Can be other intolerances

also,

> > and a few other things

> >

> > http://www.danasview.net/phenol.htm

> >

> >

> > > I am really curious as to how you all found the direction to

take to

> > > figuring out your children's insensitivities.

> > > I have no idea where to start.

> >

> >

> > If you are looking to figure out food sensitivities, the end

result

> > and what worked best for me, is giving HNI enzymes, then rotating

> > foods to find what he still did not tolerate, even with the

enzymes.

> >

> > Dana

> >

>

>

>

>

>

>

>

[Guest guest]

I'm so anxious for the HNI shipment, I can hardly stand it. My

husband too since she is especially moody with him (less with me,

but she is with me more). And to finally have a normal b/m...I

can't believe I'm this excited for poop.

It's especially difficult trying to explain this to her teachers and

preschool director. They were nodding their heads in

acknowledgement of what I was trying to explain to them, but the

looks on their faces were totally blank. I'm sure a lot of you can

relate to this.

I'm so glad to have found this forum. Thank you very much!

Luci

> >

> > Thank you! This is a huge help!

> > I'm going to start the HNI (Peptizides) enzymes and keep a gfdf

diet

> > for a while then rotate the foods, as you said. I will also try

No

> > Fenol. Would that be a good start?

>

>

> This sounds good.

>

>

> > What about probiotics? My dd is currently taking acidolpholus, a

> > raspberry flavored chewable. Can or should that be continued?

>

>

> Most kids are benefited by probiotics, so you can certainly keep

them.

>

>

> > This morning I gave her some trail mix that had chocolate chips

in it

> > and we left for an appointment I had. By the time we arrived,

she was

> > super hyper and wild. Besides the dairy and sugar in the

chocolate,

> > is there another compound that she could have been sensitive to?

>

>

> Chocolate is high amine, which is a problem for some kids similar

to

> phenol intolerance. I have amine links in the middle of this page

>

> http://www.danasview.net/phenol.htm

>

>

> > Dana, that is a great website and I couldn't stop reading it this

> > morning, I was nearly late for my appointment!

>

>

> Yes, it can cause that sort of problem LOL

>

> Dana

>

[Guest guest]

Hi Luci,

With the new labelling laws, they may say something about allergens even if the

ingredient list itself does not say " milk " or anything similar. Try to get the

toll-free number for the company to verify how much dairy, if any, is in a

particular brand (strength, flavor, etc.). The bottle might have the number or

have a web site that you can go to and check the " contact us " page for a

toll-free number, or the store might have a list (I know Whole foods does for

its vendors/manufacturers).

Glad to have given you the lead on vanillin, but it could also have been

something else (along with or instead of the vanillin). I just found this

" nugget " about vanillin: " One source for imitation vanilla flavoring (called

" vanillin " ) is the waste product of paper mills. Some companies built factories

next to the pulp mills to turn the undesirable by-product into imitation

flavoring, widely used in many cookies, candies and other foods. " (Note that it

says " one source " , not " all Vanillin comes from... " (Source:

http://www.feingold.org/grocery.html) YUM!!!

You might want to investigate the Feingold program, even if you don't use it

100% (I know they'd have a fit at me for saying that), as we have seen big

differences in our daughter just eliminating artificials. We really see the

difference when she does get even a little, like a cup of red punch at church. I

can't see how we could do their " stage one " and eliminate several fruits and

tomatoes (high phenol foods) for a few weeks right now, as with me working full

time we're depending on casseroles for many of our evening meals since I can

make them the night before and warm them up when I get home. Therefore, tomato

sauce is a staple in our household (Feingold says you can use alfredo sauces for

the same thing, but she's gfcf and mostly soy-free, so that isn't going to

happen at our house).

Hope this helps.

Luci Duncan <mama2chix@...> wrote: Hi ,

Yes, vanillalin is one of the top ingredients in the chocolate chips

from the trail mix I gave her yesterday! Thanks for pointing that

out, I will be on the lookout for it from now on.

This is perfect timing since we just finished our last acidolpholus

tablet. I'm going to the store today and I will look for dairy-free

probiotics.

Thanks again!

Luci

> > >

> > > One other thing I wanted to mention was the dark circles

around my

> > > dd's eyes. I'm not sure if it's diet-related but I strongly

think so.

> >

> >

> > Commonly caused by phenol intolerance. Can be other intolerances

also,

> > and a few other things

> >

> > http://www.danasview.net/phenol.htm

> >

> >

> > > I am really curious as to how you all found the direction to

take to

> > > figuring out your children's insensitivities.

> > > I have no idea where to start.

> >

> >

> > If you are looking to figure out food sensitivities, the end

result

> > and what worked best for me, is giving HNI enzymes, then rotating

> > foods to find what he still did not tolerate, even with the

enzymes.

> >

> > Dana

> >

>

>

>

>

>

>

>

[Guest guest]

The brand I bought was Bluebonnet and although it does say " milk-free "

and " dairy-free " on the label, I wonder if the culture was started on

dairy...hmmm. Actually, we're not doing d/f right now, just g/f. I

wanted to do them one at a time to see if we noticed a difference with

one more than the other. I didn't want to eliminate everything all at

once because I was unsure how well I'd be able to monitor that with

her going to preschool 3 days a week.

I'm really not looking forward to Halloween...she's all pumped and

excited about it and now I'm probably not going to let her have any

candy. I wonder if there's anything out there that looks like a

lollipop but doesn't have artificial coloring or flavors...

She would probably be thrilled with just one and wouldn't mind if we

put the rest of the candy away.

Thanks for the Feingold link, it's pretty informative. Have you used

the No Fenol with your daughter? Does that seems to help, say to an

accidental or incidental exposure to artificials or high phenol foods?

Thanks,

Luci

-- In , Brattin <sdb2956@...> wrote:

>

> Hi Luci,

>

> With the new labelling laws, they may say something about allergens

even if the ingredient list itself does not say " milk " or anything

similar. Try to get the toll-free number for the company to verify how

much dairy, if any, is in a particular brand (strength, flavor, etc.).

The bottle might have the number or have a web site that you can go to

and check the " contact us " page for a toll-free number, or the store

might have a list (I know Whole foods does for its

vendors/manufacturers).

>

> Glad to have given you the lead on vanillin, but it could also have

been something else (along with or instead of the vanillin). I just

found this " nugget " about vanillin: " One source for imitation vanilla

flavoring (called " vanillin " ) is the waste product of paper mills.

Some companies built factories next to the pulp mills to turn the

undesirable by-product into imitation flavoring, widely used in many

cookies, candies and other foods. " (Note that it says " one source " ,

not " all Vanillin comes from... " (Source:

http://www.feingold.org/grocery.html) YUM!!!

>

> You might want to investigate the Feingold program, even if you

don't use it 100% (I know they'd have a fit at me for saying that), as

we have seen big differences in our daughter just eliminating

artificials. We really see the difference when she does get even a

little, like a cup of red punch at church. I can't see how we could do

their " stage one " and eliminate several fruits and tomatoes (high

phenol foods) for a few weeks right now, as with me working full time

we're depending on casseroles for many of our evening meals since I

can make them the night before and warm them up when I get home.

Therefore, tomato sauce is a staple in our household (Feingold says

you can use alfredo sauces for the same thing, but she's gfcf and

mostly soy-free, so that isn't going to happen at our house).

>

> Hope this helps.

>

>

>

> Luci Duncan <mama2chix@...> wrote: Hi ,

> Yes, vanillalin is one of the top ingredients in the chocolate chips

> from the trail mix I gave her yesterday! Thanks for pointing that

> out, I will be on the lookout for it from now on.

>

> This is perfect timing since we just finished our last acidolpholus

> tablet. I'm going to the store today and I will look for dairy-free

> probiotics.

>

> Thanks again!

> Luci

>

>

> > > >

> > > > One other thing I wanted to mention was the dark circles

> around my

> > > > dd's eyes. I'm not sure if it's diet-related but I strongly

> think so.

> > >

> > >

> > > Commonly caused by phenol intolerance. Can be other intolerances

> also,

> > > and a few other things

> > >

> > > http://www.danasview.net/phenol.htm

> > >

> > >

> > > > I am really curious as to how you all found the direction to

> take to

> > > > figuring out your children's insensitivities.

> > > > I have no idea where to start.

> > >

> > >

> > > If you are looking to figure out food sensitivities, the end

> result

> > > and what worked best for me, is giving HNI enzymes, then rotating

> > > foods to find what he still did not tolerate, even with the

> enzymes.

> > >

> > > Dana

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Try www.allergygrocer.com. They have allergen-free lollipops that

are good. They also have kits that you can make lollipops yourself.

> > > > >

> > > > > One other thing I wanted to mention was the dark circles

> > around my

> > > > > dd's eyes. I'm not sure if it's diet-related but I

strongly

> > think so.

> > > >

> > > >

> > > > Commonly caused by phenol intolerance. Can be other

intolerances

> > also,

> > > > and a few other things

> > > >

> > > > http://www.danasview.net/phenol.htm

> > > >

> > > >

> > > > > I am really curious as to how you all found the direction

to

> > take to

> > > > > figuring out your children's insensitivities.

> > > > > I have no idea where to start.

> > > >

> > > >

> > > > If you are looking to figure out food sensitivities, the end

> > result

> > > > and what worked best for me, is giving HNI enzymes, then

rotating

> > > > foods to find what he still did not tolerate, even with the

> > enzymes.

> > > >

> > > > Dana

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I always let my son collect candy and then we would put it out at

night and trade it to the " Great Pumpkin " who would leave a nice toy

the next day in exchange!

> > > > >

> > > > > One other thing I wanted to mention was the dark circles

> > around my

> > > > > dd's eyes. I'm not sure if it's diet-related but I

strongly

> > think so.

> > > >

> > > >

> > > > Commonly caused by phenol intolerance. Can be other

intolerances

> > also,

> > > > and a few other things

> > > >

> > > > http://www.danasview.net/phenol.htm

> > > >

> > > >

> > > > > I am really curious as to how you all found the direction

to

> > take to

> > > > > figuring out your children's insensitivities.

> > > > > I have no idea where to start.

> > > >

> > > >

> > > > If you are looking to figure out food sensitivities, the end

> > result

> > > > and what worked best for me, is giving HNI enzymes, then

rotating

> > > > foods to find what he still did not tolerate, even with the

> > enzymes.

> > > >

> > > > Dana

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

What a cute idea!

deergal2 <deergal2@...> wrote:

I always let my son collect candy and then we would put it out at

night and trade it to the " Great Pumpkin " who would leave a nice toy

the next day in exchange!

[Guest guest]

I agree, and just forwarded it to my daughter-in-law! -- Lalita

On Oct 19, 2006, at 8:33 AM, Maxwell wrote:

> What a cute idea!

>

>

>

> deergal2 <deergal2@...> wrote:

> I always let my son collect candy and then we would put it out at

> night and trade it to the " Great Pumpkin " who would leave a nice toy

> the next day in exchange!

>

>

>

>

[Guest guest]

There are dye freee / preservative free lollypops. I got mine at a

health food store. On-line too, but that may be to late now.

> > I always let my son collect candy and then we would put it out at

> > night and trade it to the " Great Pumpkin " who would leave a nice

toy

> > the next day in exchange!

> >

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[Guest guest]

Thanks! I found some online, but of course couldnt' get there here in

time for my daughter's bday party.

Today I will check out Whole Foods, apparently they have them there.

I strongly believe my daughters reacts very unpleasantly to corn syrup

and any kind of artificial colors, sweetners and preservatives.

And boy, is that stuff EVERYWHERE!

> > > I always let my son collect candy and then we would put it out at

> > > night and trade it to the " Great Pumpkin " who would leave a nice

> toy

> > > the next day in exchange!

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