Re: Re: regression with GFCF?

[Guest guest]

Our little one, female, age 3.5 at the start of cf, did regress, lost

language and weight and she looked more sick than I have ever seen her. We

lasted 3 weeks because the dan! who insisted on the diet despite no

allergies tested, did not know the answer to why she was doing so poorly.

Worth a try, but we could not go any further. Contrary to dan!, every child

does NOT need the diet, or should not use the gf/cf diet. There are other

diets, much more healthy diets, IMHO.

: " Amy " <noahsmom7898@...>

< >

Sent: Tuesday, June 06, 2006 10:02 AM

Subject: Re: regression with GFCF?

It could be withdrawl. In that case you can go very slowly with

your enzyme dosing.

My son is wildly intolerant of rice, legume flours, potatoes, corn

starch, and sugar gives him instant yeast. Basically any type of

starch on the gfcf diet is worse for him than gluten itself. He is

better on enzymes with gluten as his main grain.

My daughter on the other hand is gfcf on enzymes, but still needs

the enzymes in fairly high doses to not react to things. So even 2

kids in the same family can't eat the same foods...it's very

individual for each child.

How has your son done his best, historically? I'd start with

enzymes and the food plan where you've seen him at his most stable,

and when the enzymes are in place, then start adjusting the foods,

where you think there might still be problems.

Also, don't underestimate the impact of sugar and things like

artificial preservatives, colorings, etc. Enzymes don't help with

the chemicals in foods, and my kids are more sensitive to those

effects (sugar and chemicals) than anything.

Amy

>

> Hi My 5 yr old son has been on GFCF for about 2 weeks and I noticed

> that he actually regressed rather than having improvements. He

stims

> more, stutters more, and withdraws more at social gatherings. I

have

> read many good things about gfcf but that doesn't seem to be our

case.

> My son never has any problem with BM before (no BM problem either

w/

> gfcf), and he has a PDD-NOS dx. Any idea why gfcf caused

regressions

> for him? I have tried the houston enzymes before (a month ago) for

> about 1 week before putting him on gfcf, and observed the same

> regressions back then. Does this mean my son is not a good

candidate

> for gfcf/enzymes? We did a bounch of tests and are waiting for the

> results now. Would appreciate your input.

>