tomorrow...

[Guest guest]

Thanks.. I sent this to . When did you want to meet tomorrow? I

drop off at 8:00, will work out and shower, then we are wide open.

I pick him up at 12:00.

C

Re: Chronic Constipation for 2.5 year old

Hi Christy.

My daughter has been constipated most of her years, now 6 1/2. Aloe vera

water helped, Epsom Salt Baths helped, but what is finally working for

her

is the Houston AFP Peptizde. I gave her suppositories, the glycerin

kind,

oral laxatives-you name the kind, we tried it. By the way, my daughter

eats

better than anyone I know, hates junk food-loves veggies, fruits and

fish. I

took her to an allergist even. This seems to be working.

Emilie

On 3/9/06, Christy Carrasquilla <ccarrasquilla@...> wrote:

>

> I forwarded several constipation emails to my good friend for her son.

> He is 2 1/2 and has been constipated since he started solid foods. I

> thought I saw one from a mom that did an enema, a ton of poop came out

> and then she had more information. I can't find that email. Also,

any

> other advice for my friend. I told her about Aloe Vera water, she is

> doing Epson Salt baths, fiber wafers, magnesium, Vit C, and last night

> did a glycerin enema and finally got his first poop in days, but fears

> he will get constipated again. He eats lots of fruits and veggies.

> Thanks,

> Christy

>

>

>

>

>

[Guest guest]

Hi - I'll be thinking of you and Ella tomorrow with the appointment.

Ibuprofen is a great anti-inflammatory, but not so good for solving flares.

Sounds like she needs something stronger (MTX?) Ibp is usually harder on the

kidneys than the liver, but can still cause alot of bruising. We did ibp for a

while, but I couldn't remember the 3rd dose, so we switched to naproxen that is

dosed 2x/day. We're also on MTX and did 3 rounds of prednisone (totally NOT

recommended!)

Lexi has her first steroid injection for her left wrist next Friday, March 4th.

I'm really praying it works well for her and maybe she won't need as much of her

regular medications.

Lexi also has reflux/heartburn from all the meds she is on, so we added zantac

about 3 months ago. She was complaining of chest pain and would stop what she

was doing, grab her chest, and make an awful face, but only for about a minute.

We haven't had any problems with that since about a week after starting the

zantac.

Best wishes to you all tomorrow - let us know how it turns out.

, dtr Lexi (5) pauci

>

> Ella has a follow up appointment tomorrow. She'll be seeing her pediatrician

who will talk to her rheumatologist. We were told they would draw blood to

check her liver (I believe...) because of the ibuprofen can cause side effects.

I *think* they said they'd also check her sed rate and c reactive protein again

(I plan to ask what her levels were last time just because I'm curious and

didn't think to ask before). I'm going to ask for copies of everything actually

just because I want to keep copies of everything just in case I need them in the

future. If there is one thing I've learned through all my experience with

doctors, its that they (doctors) don't know everything. I am the mother and I

know my kids better than they ever could. I am their advocate and I'm going to

do what I have to to make sure they get the best care possible. My second

daughter has had quite a few medical issues and has epilepsy now, my third

daughter is healthy as can be but has had several " fluke " things and has needed

7 surgeries (she's 6), and my fourth daughter has asthma, so I'm not new to

doctors/hospitals...neither is advocating for my kids.

>

> Anyway, the ibuprofen is obviously not working. Of course Ella had a really

good day today! Very little pain when she woke up. She ran and played for a

pretty long time at the park. It was AWESOME! Of course she still took 2

naps...2 and 2.5 hours and went to bed on time. She's tired a lot, but I guess

that comes with it. But, pain wise, she had an awesome day! I'm kinda worried

that she'll be having a good day tomorrow as well and the doctor won't take me

seriously when I tell her that she's still having pain and it hasn't gotten

any/much better with the ibuprofen. When she was diagnosed (1/21) the nurse

from the rheumatologist's office called and said that he wanted her on ibuprofen

3 times a day every day for a month. After that she'd follow up with her

pediatrician and if she wanted her to continue the ibuprofen, she'd have to

prescribe more. If it was working, she may want to discontinue. If not, he

suggested continuing one more month then if she was still having problems to a

repeat ultrasound of her knee and if she still had fluid, do steroid injections.

I've heard great things about this doctor (he is a ped rheumy) but honestly, I " m

not too thrilled with that. I don't want to keep giving her ibuprofen for

another month when its clearly not working! If it was going to work, it would

have worked by now. And from what I've read (here and online) NSAIDs are like a

bandaid...its not helping anything really....well not " fixing " anything. And

why do another ultrasound? When he examined her he said he saw no signs of

arthritis. He moved all her joints all around and said she seemed fine. He

ordered tests and her sed rate and c reactive protein were both elevated and the

x-ray of her right knee showed an effusion. They did an ultrasound that

confirmed that she did have an effusion. Then he called and said with that

information and the symptoms she'd been having, he felt she DID have JRA. Which

is what her pediatrician said she suspected since about a month after her

problems started (well, after she started having episodes of pain in her knee

(and then her other knee and ankle as well, but the majority of the time, its

her right knee that bothers her). She also saw an orthopedic doctor who

originally thought it was a viral infection, but then when she had problems with

her other knee and it lasted more than a few weeks, she said she felt sure she

had arthritis and agreed with her pediatrician that she needed to be seen be a

rheumatologist. It took months for her to get in with a pediatric

rheumatologist.

>

> Anyway I'm rambling...sorry... I'm anxious for the appointment tomorrow. I'm

scared we might not make it on time and have to reschedule. DD#2 has an

appointment at 11:00 and they will be hooking up the EEG thing-a-ma-jiggies (I

have no clue what they are called...electrodes?) and she'll come home with it

hooked up and the monitor for a 24 hour EEG. Ella's appointment is at 1:30 and

its about 30-40 minutes depending on traffic away from Makaela's appointment.

So hopefully things will be running on schedule and we'll make it on time.

>

> Also, Ella has been waking up at night complaining that her stomach hurts.

Sometimes she says her stomach and her back hurt, but mainly its just her

stomach. She's not constipated or anything like that (she's still having

normal, regular bowel movements). I am going to bring it up to the dr tomorrow,

but could it be related to the JRA? Or the medicine? She only complains at

night though.

>

>

>