Anita: Re: Lack of progress,

[Guest guest]

Anita,

I ended up starting on an anti-seizure med not long ago (remember me,

I'm your SK neighbor, chelating herself).

The anti-seizure med has made such a difference. I wish I had

discovered this long ago. I know that I am sometimes 'spaced out' and

that I have memory gaps, but I didn't really realize that I must have

been having absence seizures or something like that. The medication

has given me so much more function, has helped me to tolerate

chelation WAY better, and so far I have noticed NO negatives.

I notice that I have much more problems with what I think were like

absence seizures when I have a viral infection and when I am stressed.

When I am not stressed I almost feel normal.

I also notice that I have to pay close attention to my salt intake

(make sure I get enough), sugar intake (not too much, but eat right so

that blood sugar doesn't fluctuate widely), and water intake (need lots).

The other thing that I wanted to mention is that I have been chelating

for over a year now (very slowly) and have made significant progress,

but I still have a very long way to go. Someone observing me would

NOT see huge gains!!! The thing that I noticed was a huge decrease in

pain (and I'm the only one who feels that) and that last time I

stopped chelating I didn't get the horrific end of round side effects

I usually get (that no one else could see, I was the only one who

could feel what it was like.) One year of chelation doesn't seem huge

to me.

Hope this helps.

J

> > >

> > > Listmates,

> > >

> > > My son, who will be four in February, has been chelated 50

> rounds, had

> > > one viral protocol, 80 HBOT dives, numerous supplements,

> different

> > > diets.

> > >

> > > We have seen great progress. But, sadly, we have lost almost all

> of

> > > the gains we've made. This was painfully obvious during the

> Christmas

> > > holidays. As difficult as it is to admit, ds is nowhere near the

> place

> > > he was about 6 weeks after our first intervention almost two

> years ago,

> > > going GFCF (as with all things, almost all the gains disappeared)

> > > although he is still better than right after his regression--

> that,

> > > however, isn't saying much.

> > >

> > > I am hoping to get some feedback on particular issues so I can

> make

> > > some decisions. Forgive my very long post.

> > >

> > > Chelation: we have chelated AC protocol DMSA/ALA for 50 rounds.

> We

> > > have not seen any gains from chelation since the initial 10

> rounds. Is

> > > it possible that we are still in the plateau period? Testing

> shows

> > > that ds is excreting (lead, mercury, antimony, aluminum, all the

> > > usuals). There is a great deal of talk about kids who don't

> tolerate

> > > the sulfur chelators. Is is possible that someone could build up

> an

> > > intolerance that would manifest as lack of progress? Am I just

> being

> > > impatient?

> > >

> > > Viral issues: our viral protocol gave us some good gains, most

> of

> > > which slowly disappeared after 3 months. I am unwilling to do

> another

> > > viral protocol without taking some steps to try to ensure that

> hard-

> > > earned gains won't be lost. Instead, I decided to try NCD based

> on

> > > some parent reports that it is doing something virally. I used

> it for

> > > only 9 days and had built up to 4 drops/day on the 9th day. At

> that

> > > dosage, my son started having absence seizures (as he had done

> during

> > > our last viral protocol) and also very large blisters appeared on

> the

> > > palms of his hands. I had thought we had let him burn himself

> somehow

> > > and he hadn't felt pain and consequently hadn't cried--but in

> > > retrospect these were not burn blisters. The palms of his hands

> were

> > > about 1/5 covered in these blisters. His entire palms peeled as

> did

> > > his toes a few days later.

> > >

> > > HBOT: 80 dives at 1.5 ATA 100% oxygen. Again, almost all gains

> > > completely lost.

> > >

> > > GUT ISSUES: ds still struggles with constipation. Testing shows

> that

> > > in spite of supplementation, many nutrient levels are still very

> very

> > > low. GFCF worked briefly and spectacularly and then didn't. A

> second

> > > trial of it showed nothing except a lot more yeast to deal with.

> Low

> > > protein, low glutamic acid diet showed now improvements. LOD

> gave huge

> > > constipation but no improvements (it was a short trial, but ds

> has no

> > > markers of a good candidate). We use houston enzymes. Finally,

> I will

> > > be going SCD in a few weeks but with little optimism.

> > >

> > > SUPPLEMENTS TRIED:

> > >

> > > Calcium, magnesium, zinc, Vitamins C, D, E, K, B (all of them),

> CLO,

> > > fish oil, colostrum, houstons enzymes, epicor, adrenal support,

> tons of

> > > probiotics, candex, GSE, OoO, phosphatidylcholine, evening

> primrose

> > > oil, taurine, custom amino blend, s. boulardii, selenium, moly,

> CoQ10,

> > > milk thistle, vanadium, chromium picolinate, transfer factor,

> heme

> > > supps for iron, biotin, AKA, virastop, laurcidin, elderberry,

> > > inflammation control, melatonin, l-carnitine, and probably some

> others

> > > I've forgotten.

> > >

> > > We sometimes see gains but they rarely last. Journals and ATEC

> prove

> > > this.

> > >

> > > DS is still very much in his own world, non-verbal, non-engaged

> with

> > > his family. He is affectionate with me, sleeps better than

> before, and

> > > has a few splinter skills. I do know this is a long haul for

> most of

> > > us, and I'm not expecting overnight miracles. I would truly

> appreciate

> > > any comments or suggestions people might have on the information

> I've

> > > provided here.

> > >

> > > Most gratefully,

> > >

> > > Anita

> > >

> > > A special message for any anti-biomedical trolls who might be

> reading

> > > this with sanctimonious pleasure: sod off.

> > >

> >

>