Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Anita, I ended up starting on an anti-seizure med not long ago (remember me, I'm your SK neighbor, chelating herself). The anti-seizure med has made such a difference. I wish I had discovered this long ago. I know that I am sometimes 'spaced out' and that I have memory gaps, but I didn't really realize that I must have been having absence seizures or something like that. The medication has given me so much more function, has helped me to tolerate chelation WAY better, and so far I have noticed NO negatives. I notice that I have much more problems with what I think were like absence seizures when I have a viral infection and when I am stressed. When I am not stressed I almost feel normal. I also notice that I have to pay close attention to my salt intake (make sure I get enough), sugar intake (not too much, but eat right so that blood sugar doesn't fluctuate widely), and water intake (need lots). The other thing that I wanted to mention is that I have been chelating for over a year now (very slowly) and have made significant progress, but I still have a very long way to go. Someone observing me would NOT see huge gains!!! The thing that I noticed was a huge decrease in pain (and I'm the only one who feels that) and that last time I stopped chelating I didn't get the horrific end of round side effects I usually get (that no one else could see, I was the only one who could feel what it was like.) One year of chelation doesn't seem huge to me. Hope this helps. J > > > > > > Listmates, > > > > > > My son, who will be four in February, has been chelated 50 > rounds, had > > > one viral protocol, 80 HBOT dives, numerous supplements, > different > > > diets. > > > > > > We have seen great progress. But, sadly, we have lost almost all > of > > > the gains we've made. This was painfully obvious during the > Christmas > > > holidays. As difficult as it is to admit, ds is nowhere near the > place > > > he was about 6 weeks after our first intervention almost two > years ago, > > > going GFCF (as with all things, almost all the gains disappeared) > > > although he is still better than right after his regression-- > that, > > > however, isn't saying much. > > > > > > I am hoping to get some feedback on particular issues so I can > make > > > some decisions. Forgive my very long post. > > > > > > Chelation: we have chelated AC protocol DMSA/ALA for 50 rounds. > We > > > have not seen any gains from chelation since the initial 10 > rounds. Is > > > it possible that we are still in the plateau period? Testing > shows > > > that ds is excreting (lead, mercury, antimony, aluminum, all the > > > usuals). There is a great deal of talk about kids who don't > tolerate > > > the sulfur chelators. Is is possible that someone could build up > an > > > intolerance that would manifest as lack of progress? Am I just > being > > > impatient? > > > > > > Viral issues: our viral protocol gave us some good gains, most > of > > > which slowly disappeared after 3 months. I am unwilling to do > another > > > viral protocol without taking some steps to try to ensure that > hard- > > > earned gains won't be lost. Instead, I decided to try NCD based > on > > > some parent reports that it is doing something virally. I used > it for > > > only 9 days and had built up to 4 drops/day on the 9th day. At > that > > > dosage, my son started having absence seizures (as he had done > during > > > our last viral protocol) and also very large blisters appeared on > the > > > palms of his hands. I had thought we had let him burn himself > somehow > > > and he hadn't felt pain and consequently hadn't cried--but in > > > retrospect these were not burn blisters. The palms of his hands > were > > > about 1/5 covered in these blisters. His entire palms peeled as > did > > > his toes a few days later. > > > > > > HBOT: 80 dives at 1.5 ATA 100% oxygen. Again, almost all gains > > > completely lost. > > > > > > GUT ISSUES: ds still struggles with constipation. Testing shows > that > > > in spite of supplementation, many nutrient levels are still very > very > > > low. GFCF worked briefly and spectacularly and then didn't. A > second > > > trial of it showed nothing except a lot more yeast to deal with. > Low > > > protein, low glutamic acid diet showed now improvements. LOD > gave huge > > > constipation but no improvements (it was a short trial, but ds > has no > > > markers of a good candidate). We use houston enzymes. Finally, > I will > > > be going SCD in a few weeks but with little optimism. > > > > > > SUPPLEMENTS TRIED: > > > > > > Calcium, magnesium, zinc, Vitamins C, D, E, K, B (all of them), > CLO, > > > fish oil, colostrum, houstons enzymes, epicor, adrenal support, > tons of > > > probiotics, candex, GSE, OoO, phosphatidylcholine, evening > primrose > > > oil, taurine, custom amino blend, s. boulardii, selenium, moly, > CoQ10, > > > milk thistle, vanadium, chromium picolinate, transfer factor, > heme > > > supps for iron, biotin, AKA, virastop, laurcidin, elderberry, > > > inflammation control, melatonin, l-carnitine, and probably some > others > > > I've forgotten. > > > > > > We sometimes see gains but they rarely last. Journals and ATEC > prove > > > this. > > > > > > DS is still very much in his own world, non-verbal, non-engaged > with > > > his family. He is affectionate with me, sleeps better than > before, and > > > has a few splinter skills. I do know this is a long haul for > most of > > > us, and I'm not expecting overnight miracles. I would truly > appreciate > > > any comments or suggestions people might have on the information > I've > > > provided here. > > > > > > Most gratefully, > > > > > > Anita > > > > > > A special message for any anti-biomedical trolls who might be > reading > > > this with sanctimonious pleasure: sod off. > > > > > > Quote Link to comment Share on other sites More sharing options...
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