Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Hi Auditory processing is still a challenge for us, but the things that have brought noticeable improvements are Houston enzymes, a small round of Therapeutic Listening done with our OT (which we hope to repeat this spring), and homeopathy... I think. The reason I'm not quite sure re: homeopathy is that it is a new treatment and we're still sorting out what it is doing for our son. I would certainly try to combine biomedical approaches with occupational/auditory therapy, if you can. Just make sure to start things one at a time so you can sort out what does what. best wishes Rene > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 , Have you hair tested him yet? My son had auditory problems and PDD also that we recognized finally at age 3. He turned out very toxic in heavy metals. And within his first few rounds of chelation he no longer has many issues at all and is not PDD. Some of his key supplements were probiotics, going dairy free, Kirkman Spectrum Complete Multi, and yeast treatment. Upon which chelation which was an epiphany for us. Do a hair test and see what he is dealing with. Many metals disrupt auditory processing. My son could Hear us fine, and passed hearing tests..he just did not understand what was said. He even spoke well but did not comprehend us. We always had to speak slowly and by looking directly in his face at eye level for him to follow. This has gone away now. He is on Round 15 and doing excellent! Oh..my son is also sensory integration disorder and fine motor delay..most of which is gone as well. > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. > > Thanks for any info!! > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Jan what did you use to chelate with? Amy Jan <paxlforme@...> wrote: , Have you hair tested him yet? My son had auditory problems and PDD also that we recognized finally at age 3. He turned out very toxic in heavy metals. And within his first few rounds of chelation he no longer has many issues at all and is not PDD. Some of his key supplements were probiotics, going dairy free, Kirkman Spectrum Complete Multi, and yeast treatment. Upon which chelation which was an epiphany for us. Do a hair test and see what he is dealing with. Many metals disrupt auditory processing. My son could Hear us fine, and passed hearing tests..he just did not understand what was said. He even spoke well but did not comprehend us. We always had to speak slowly and by looking directly in his face at eye level for him to follow. This has gone away now. He is on Round 15 and doing excellent! Oh..my son is also sensory integration disorder and fine motor delay..most of which is gone as well. > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. > > Thanks for any info!! > > - > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Hello , Our son had what sounds like a very similar list of issues. I believe the 2 things that made the most difference for him were : GFCF diet, after the initial " withdrawal period " (not fun) he improved greatly. We also gave large amounts of fish oil. DMSA chelation, I personally blame lead for a good chunk of his " brain fog " . Working on getting the Hg out as well of course. Good Luck ! Neil _____ From: [mailto: ] On Behalf Of lcook100 Sent: Wednesday, December 27, 2006 12:58 PM Subject: [ ] Best help for auditory processing issues? Hi All - Just wondering what is the best thing to do for auditory processing issues - whether it be therapy and/or supplements. My son is 2 years old and has been diagnosed with global dyspraxia, PDD-NOS, sensory issues and auditory processing problems. Of all these diagnosis I'm having the most trouble improving his auditory processing problems. He just doesn't seem to understand very well. He did go from not understanding anything (except his name) to understanding a few things...however we've hit a roadblock. Thanks for any info!! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. Anti-virals were very helpful for my kids for this issue. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 He is dmsa/ala on AC protocol. I posted similar to you last April about my son and everyone here told me..DON'T waste time! Get a hair test and chelate him immediately because he is so young, it can be reversed....I was scared to death but did my research and found that doing this was safer than the implications of allowing my son to be poisoned and untreated over his life. I took a leap of faith and began chelation..it has been the best thing we have ever done. -- In , Amethyst Mueller <amethyst_mueller@...> wrote: > > Jan what did you use to chelate with? > Amy > > Jan <paxlforme@...> wrote: > , > Have you hair tested him yet? My son had auditory problems and PDD > also that we recognized finally at age 3. He turned out very toxic in > heavy metals. And within his first few rounds of chelation he no > longer has many issues at all and is not PDD. > Some of his key supplements were probiotics, going dairy free, Kirkman > Spectrum Complete Multi, and yeast treatment. Upon which chelation > which was an epiphany for us. Do a hair test and see what he is > dealing with. Many metals disrupt auditory processing. My son could > Hear us fine, and passed hearing tests..he just did not understand > what was said. He even spoke well but did not comprehend us. We always > had to speak slowly and by looking directly in his face at eye level > for him to follow. This has gone away now. He is on Round 15 and doing > excellent! Oh..my son is also sensory integration disorder and fine > motor delay..most of which is gone as well. > > > > > > Hi All - > > > > Just wondering what is the best thing to do for auditory processing > > issues - whether it be therapy and/or supplements. My son is 2 years > > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > > issues and auditory processing problems. Of all these diagnosis I'm > > having the most trouble improving his auditory processing problems. > He > > just doesn't seem to understand very well. He did go from not > > understanding anything (except his name) to understanding a few > > things...however we've hit a roadblock. > > > > Thanks for any info!! > > > > - > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 I agree with you there, Lead and MErcury both are known to cause auditory processing problems. I have experienced it myself as an adult with amalgams..I began having a really hard time understanding people. I hear there voices but what they said was not what I heard. I had to ask " what " like thirty times in a conversation. IF they spoke slower I could get it. But often times the words they said were way different than what I heard. Like beard instead of bread...or going bananas instead of going to stand up...very frusturating! It has gone away since amalgam removal. > > Hello , > > Our son had what sounds like a very similar list of issues. > > I believe the 2 things that made the most difference for him were : > > GFCF diet, after the initial " withdrawal period " (not fun) he improved > greatly. We also gave large amounts of fish oil. > > DMSA chelation, I personally blame lead for a good chunk of his " brain fog " . > Working on getting the Hg out as well of course. > > Good Luck ! > > Neil > > _____ > > From: [mailto:Autism- Mercury ] > On Behalf Of lcook100 > Sent: Wednesday, December 27, 2006 12:58 PM > > Subject: [ ] Best help for auditory processing issues? > > > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. > > Thanks for any info!! > > - > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 DHA and fish oil will work wonders for your child. Investigate Tomatis or Vital Links for auditory training. Amy danasview <danasview@...> wrote: > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. Anti-virals were very helpful for my kids for this issue. Dana __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Glad it's worked out for you, Jan. I am new to this list so I'm unfamiliar with a lot of what's been said/ told to others. Here to learn. I do believe that leaving toxins in a child will definitely be more harmful than removing them, but when I see posts about children regressing, and hear stories of a child that was speaking/functioning and then stopping, it makes me take pause. Wonderful to hear a positive story! Amy Jan <paxlforme@...> wrote: He is dmsa/ala on AC protocol. I posted similar to you last April about my son and everyone here told me..DON'T waste time! Get a hair test and chelate him immediately because he is so young, it can be reversed....I was scared to death but did my research and found that doing this was safer than the implications of allowing my son to be poisoned and untreated over his life. I took a leap of faith and began chelation..it has been the best thing we have ever done. -- In , Amethyst Mueller <amethyst_mueller@...> wrote: > > Jan what did you use to chelate with? > Amy > > Jan <paxlforme@...> wrote: > , > Have you hair tested him yet? My son had auditory problems and PDD > also that we recognized finally at age 3. He turned out very toxic in > heavy metals. And within his first few rounds of chelation he no > longer has many issues at all and is not PDD. > Some of his key supplements were probiotics, going dairy free, Kirkman > Spectrum Complete Multi, and yeast treatment. Upon which chelation > which was an epiphany for us. Do a hair test and see what he is > dealing with. Many metals disrupt auditory processing. My son could > Hear us fine, and passed hearing tests..he just did not understand > what was said. He even spoke well but did not comprehend us. We always > had to speak slowly and by looking directly in his face at eye level > for him to follow. This has gone away now. He is on Round 15 and doing > excellent! Oh..my son is also sensory integration disorder and fine > motor delay..most of which is gone as well. > > > > > > Hi All - > > > > Just wondering what is the best thing to do for auditory processing > > issues - whether it be therapy and/or supplements. My son is 2 years > > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > > issues and auditory processing problems. Of all these diagnosis I'm > > having the most trouble improving his auditory processing problems. > He > > just doesn't seem to understand very well. He did go from not > > understanding anything (except his name) to understanding a few > > things...however we've hit a roadblock. > > > > Thanks for any info!! > > > > - > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Are any of you using GFCF with a kid that has no gut issues? We tried the diet (no gut issues here) and saw no change in anything.... Amy Jan <paxlforme@...> wrote: I agree with you there, Lead and MErcury both are known to cause auditory processing problems. I have experienced it myself as an adult with amalgams..I began having a really hard time understanding people. I hear there voices but what they said was not what I heard. I had to ask " what " like thirty times in a conversation. IF they spoke slower I could get it. But often times the words they said were way different than what I heard. Like beard instead of bread...or going bananas instead of going to stand up...very frusturating! It has gone away since amalgam removal. > > Hello , > > Our son had what sounds like a very similar list of issues. > > I believe the 2 things that made the most difference for him were : > > GFCF diet, after the initial " withdrawal period " (not fun) he improved > greatly. We also gave large amounts of fish oil. > > DMSA chelation, I personally blame lead for a good chunk of his " brain fog " . > Working on getting the Hg out as well of course. > > Good Luck ! > > Neil > > _____ > > From: [mailto:Autism- Mercury ] > On Behalf Of lcook100 > Sent: Wednesday, December 27, 2006 12:58 PM > > Subject: [ ] Best help for auditory processing issues? > > > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. > > Thanks for any info!! > > - > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Jan (and everyone) - thanks for your replies. We did get a hair test done. Unfortunately, it wasn't done through DD. We had it done through Genova and I think it is too late to get one with DDI since he has been on so many supplements. I have bought Andy's book and applied his alternative counting rules and it appears my son meets two of the rules. He had some high levels of antimony, arsenic and a few others. However, his mercury showed very low (which was another interesting observation). Our DAN doctor has recommended chelation with NDF+...but I've read bad stories with this and it scares me. What yeast treatments did you use? Thanks!! - > > > > > > Hi All - > > > > > > Just wondering what is the best thing to do for auditory > processing > > > issues - whether it be therapy and/or supplements. My son is 2 > years > > > old and has been diagnosed with global dyspraxia, PDD-NOS, > sensory > > > issues and auditory processing problems. Of all these diagnosis > I'm > > > having the most trouble improving his auditory processing > problems. > > He > > > just doesn't seem to understand very well. He did go from not > > > understanding anything (except his name) to understanding a few > > > things...however we've hit a roadblock. > > > > > > Thanks for any info!! > > > > > > - > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Hi Amy - I'm in the same boat as you. All of this is so new to me. I had never even heard the word chelation until about 5 months ago (when I was told in no uncertain terms by a speech therapist and development pediatrican NOT to do it). I've tried to find bad stories by folks who have followed Andy's protocol and have not found any. Have you found some? Thanks! - > > > > > > Hi All - > > > > > > Just wondering what is the best thing to do for auditory > processing > > > issues - whether it be therapy and/or supplements. My son is 2 > years > > > old and has been diagnosed with global dyspraxia, PDD-NOS, > sensory > > > issues and auditory processing problems. Of all these diagnosis > I'm > > > having the most trouble improving his auditory processing > problems. > > He > > > just doesn't seem to understand very well. He did go from not > > > understanding anything (except his name) to understanding a few > > > things...however we've hit a roadblock. > > > > > > Thanks for any info!! > > > > > > - > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 , most medical people will tell you not to chelate in anyway. I had one developmental ped tell me if I was going to use any of the DAN protocols, she would no longer see or treat my child. Amazing..... My child does not test for metals, his diagnosis is dyspraxia. He is age appropriately verbal, typical 1st grade classroom where there IS an aide, not necessarily his. We are using DHA and Ultimate Omega, and more recently MB12 injections. In all honesty I'd be afraid to go any further. I have heard amazing stories of children who have fully recovered from chelation, yet I'm still scared to death. Since he's not showing metals, what is it I would be chelating??? Some consider dyspraxia " on the spectrum " , yet not one medical person has diagnosed him with autism or PDD or the like. So I have to wonder.....am I barking up the wrong tree? Amy lcook100 <lcook100@...> wrote: Hi Amy - I'm in the same boat as you. All of this is so new to me. I had never even heard the word chelation until about 5 months ago (when I was told in no uncertain terms by a speech therapist and development pediatrican NOT to do it). I've tried to find bad stories by folks who have followed Andy's protocol and have not found any. Have you found some? Thanks! - > > > > > > Hi All - > > > > > > Just wondering what is the best thing to do for auditory > processing > > > issues - whether it be therapy and/or supplements. My son is 2 > years > > > old and has been diagnosed with global dyspraxia, PDD-NOS, > sensory > > > issues and auditory processing problems. Of all these diagnosis > I'm > > > having the most trouble improving his auditory processing > problems. > > He > > > just doesn't seem to understand very well. He did go from not > > > understanding anything (except his name) to understanding a few > > > things...however we've hit a roadblock. > > > > > > Thanks for any info!! > > > > > > - > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > > I do believe that leaving toxins in a child will definitely be more harmful than removing them, but when I see posts about children regressing, and hear stories of a child that was speaking/functioning and then stopping, it makes me take pause. Yes, and you're right to be paying attention to possible problems. In the files of this list there are a couple of places to read parent reports -- Love Letters is one. Moria, who made the file, always encourages people to post with negative results as well as positive, so we can get the truest picture of what's going on. On this list a lot of people show up with kids having trouble because they've been taking too much chelator and dosing too infrequently. I was convinced to go ahead with Andy's protocol after reading for a long time and seeing that these regressions were extremely rarely a result of chelating his way, and very often the result of chelating some other way, or using supps Andy doesn't recommend. I was very hesistant to chelate when I first heard about it, because my son was high-functioning in so many areas -- advanced language, etc. -- but after 90-some rounds plus antivirals plus Feingold, he has lost all autism diagnoses and is about 95% recovered. So there's another positive story for you . Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > > Are any of you using GFCF with a kid that has no gut issues? We tried the diet (no gut issues here) and saw no change in anything.... If you see no change then ditch it. See if any suggestions here make sense: http://tinyurl.com/yxky77 Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > Our DAN doctor has recommended chelation with NDF+...but I've read > bad stories with this and it scares me. IMO the best way to figure out how to proceed is to search out all the bad stories you can and then decide what risks you're willing to take. It's easy to get blinded by a few great successes -- so you're smart to look at it this way. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Amy, what metals test have you used? Pediatricians who don't know better might order a blood test (useless after 24 hours since exposure). Hair, stool & urine tests could show no metals if the child is not excreting (rather retaining) metals. Did you do a chelation challenge test? My daughter's levels tested LOW until we began chelating...and then we saw scary amounts of mercury dumping out of her. And even then, not at FIRST. She dumped a lot of lead before the mercury started coming out. I'd be more scared NOT to chelate... but then my daughter is severely delayed. Children capable of being mainstreamed are likely much lower in metals than she is. Chelation is safe when warranted and administered under a qualified physicians guidance. I am personally chelating using oral DMSA... with great success. I've felt better than I had in years, since my mercury levels were creating methylation issues (I have the MTHFR defect, as does my daughter) that affected my digestion. I was poisoned by my amalgams. Since beginning chelation, my facial eczema has cleared up, my nervous habits & facial tics have disappeared and my digestion is nearly normal. In fact, a long-time food intolerance I've had toward foods containing tyramine is much improved. Some day, I'll be able to enjoy foods like chocolate and beer again. I'm dying for a banana split (bananas are high in tyramine.) :-) I never would have known about chelation if not for my daughter's autism.... who after two years of chelation saw a 60% improvement in her eyesight... and her mineral profiles are all now within reference range! We're not done chelating her just yet, but are taking a sabbatical from it to try to fix her gut issues. > > > > > > > > Hi All - > > > > > > > > Just wondering what is the best thing to do for auditory > > processing > > > > issues - whether it be therapy and/or supplements. My son is 2 > > years > > > > old and has been diagnosed with global dyspraxia, PDD-NOS, > > sensory > > > > issues and auditory processing problems. Of all these diagnosis > > I'm > > > > having the most trouble improving his auditory processing > > problems. > > > He > > > > just doesn't seem to understand very well. He did go from not > > > > understanding anything (except his name) to understanding a few > > > > things...however we've hit a roadblock. > > > > > > > > Thanks for any info!! > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > I had never > even heard the word chelation until about 5 months ago (when I was > told in no uncertain terms by a speech therapist and development > pediatrican NOT to do it). Yep. The speech therapist would be out of a job if people chealted their kids. And when my son was dx'd by a developmetal ped, her office warned me about " charlatans on the net " who offered false hope and dangerous treatments. Since I had already had great success with the Feingold Diet after my regular ped told me it wouldn't do anything, I happily ignored the dev ped too, thank God. Sometimes I think about taking my son back over there and asking her to explain how he recovered if there is no cure, which is what she told me. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I would love to hear what some of these people would say if they saw the kids recovered. It took me a while to try the diet since everyone told me that it wouldn't work. My niece is also autistic and with the info I send to my sister in law, she still doesn't get it and is listening to the dr.'s and thinks her daughter is learning enough. We are still working on my son, most people don't realize that he is PDD, though he does have some quirks still. M [ ] Re: Best help for auditory processing issues? > I had never > even heard the word chelation until about 5 months ago (when I was > told in no uncertain terms by a speech therapist and development > pediatrican NOT to do it). Yep. The speech therapist would be out of a job if people chealted their kids. And when my son was dx'd by a developmetal ped, her office warned me about " charlatans on the net " who offered false hope and dangerous treatments. Since I had already had great success with the Feingold Diet after my regular ped told me it wouldn't do anything, I happily ignored the dev ped too, thank God. Sometimes I think about taking my son back over there and asking her to explain how he recovered if there is no cure, which is what she told me. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > My child does not test for metals, his diagnosis is dyspraxia. Have you done a DDI hair test? >I have heard amazing stories of children who have fully recovered from chelation, yet I'm still scared to death. Since he's not showing metals, what is it I would be chelating??? If there are no metals, there is no risk from taking chelators, because the risk is the damage the metals cause when getting dragged out of the body. My son's hair test was suspicious, but did not meet the counting rules, despite dx's of Asperger's and PDD. So I had the same worry as you -- am I taking a risk when metals might not even be the problem? So understanding that the risk is *contingent on the presence of metals made it easier to do. > > Some consider dyspraxia " on the spectrum " , yet not one medical person has diagnosed him with autism or PDD or the like. So I have to wonder.....am I barking up the wrong tree? There are several people on the list chelating their kids who are not autistic. The really good news is that for them, chelation tends to be easier with far fewer side effects. The results aren't as dramatic, because the kids were in decent shape to begin with, but the improvements make for a big change in quality of life, for the kid and the family. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 ...........which is exactly my plan, Nell. MB12 has helped quite a bit, although the hyperactivity is getting worse after each injection. Eye contact is no longer an issue. Her explanation is that " dyspraxia has a maturity factor and we are nearing that time....by the time he is 12, this will all be just a memory..... " She may be right, but I don't want to take that chance......So she just keeps telling me that his improvements are because of the therapy and the fact that kids who are getting the correct therapy that have this diagnosis, will eventually be just like a typical kid...and in many ways, that's already the case...... But there's still something...... And I want that " something " to go away with everything else that has gone away....... Amy lanellici <lanellici@...> wrote: > I had never > even heard the word chelation until about 5 months ago (when I was > told in no uncertain terms by a speech therapist and development > pediatrican NOT to do it). Yep. The speech therapist would be out of a job if people chealted their kids. And when my son was dx'd by a developmetal ped, her office warned me about " charlatans on the net " who offered false hope and dangerous treatments. Since I had already had great success with the Feingold Diet after my regular ped told me it wouldn't do anything, I happily ignored the dev ped too, thank God. Sometimes I think about taking my son back over there and asking her to explain how he recovered if there is no cure, which is what she told me. Nell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 > a typical kid...and in many ways, that's already the case...... > But there's still something...... > > And I want that " something " to go away with everything else that has gone away....... I know just what you mean. That's about where my kid is now too -- no one would guess he'd been autistic, but there's still...something...that crops up now and again. Hard to describe exactly. You could do a trial of ALA, say 5 or 10 rounds, and then reassess. Have you checked out the possibility of viral problems? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 That is really interesting, I have some of those same issues but mostly blamed it on poor hearing. I now have my mercury fillings out and plan to start chelating very soon, I look forward to the benefits of chelation ! Neil _____ From: [mailto: ] On Behalf Of Jan Sent: Thursday, December 28, 2006 12:56 PM Subject: [ ] Re: Best help for auditory processing issues? I agree with you there, Lead and MErcury both are known to cause auditory processing problems. I have experienced it myself as an adult with amalgams..I began having a really hard time understanding people. I hear there voices but what they said was not what I heard. I had to ask " what " like thirty times in a conversation. IF they spoke slower I could get it. But often times the words they said were way different than what I heard. Like beard instead of bread...or going bananas instead of going to stand up...very frusturating! It has gone away since amalgam removal. > > Hello , > > Our son had what sounds like a very similar list of issues. > > I believe the 2 things that made the most difference for him were : > > GFCF diet, after the initial " withdrawal period " (not fun) he improved > greatly. We also gave large amounts of fish oil. > > DMSA chelation, I personally blame lead for a good chunk of his " brain fog " . > Working on getting the Hg out as well of course. > > Good Luck ! > > Neil > > _____ > > From: @ <mailto: %40> [mailto:Autism- Mercury@groups <mailto:Mercury%40> .com] > On Behalf Of lcook100 > Sent: Wednesday, December 27, 2006 12:58 PM > @ <mailto: %40> > Subject: [ ] Best help for auditory processing issues? > > > > Hi All - > > Just wondering what is the best thing to do for auditory processing > issues - whether it be therapy and/or supplements. My son is 2 years > old and has been diagnosed with global dyspraxia, PDD-NOS, sensory > issues and auditory processing problems. Of all these diagnosis I'm > having the most trouble improving his auditory processing problems. He > just doesn't seem to understand very well. He did go from not > understanding anything (except his name) to understanding a few > things...however we've hit a roadblock. > > Thanks for any info!! > > - > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Amy, (and others nervous about starting chelation) I understand the " fear factor " about the chelation ! I also had been told that chelation was at best ineffective and at worst dangerous and abusive. I can't take that year back, but I sure wish I could .. thankfully I found this list and did my research. You say he is not showing metals, I assume this is from a hair test ? If so, that is THE prime indication of mercury poisoning. For the record, the ONLY death from " chelation " that I am aware of (even the really bad protocols used by some DAN! practitioners) was from IV Chelation and that was because they mixed up what they were using and it wasn't even the chelator, it was another substance with an almost identical name which removed all the calcium from the poor kid and that caused heart failure. As far as I am concerned that wasn't death from chelation, that was death from a screw up which happens in a LOT at hospitals every day. If you read carefully on this list, the people who use the AC method are the ones who have slow steady success. Mostly the people who use High Dose / Infrequent Dosing protocols (ala many DAN!) are the ones who jump on the rollercoaster and struggle the most. These parents then use the AC protocol and bring things under control. My advice to you ... let go of your fear. Start out with a low amount of DMSA for at least 10 rounds and see how it goes. That is the commitment I made when we started this process. The improvements we saw with our son (and relatively few negatives - mostly yeast) were more than enough to convince me. After the first round it was like a huge weight had been lifted from my mind because it was so Un-Eventful .. Hmmm, nobody died, everything seemed pretty much the same except he seemed a bit more " connected " .. As the rounds continued so did the improvements and the positive reports from the pre-school and others. Our Ped, who to his credit did not fight us on this, but did not feel comfortable " directing " the process. That was fine with me, because after reading on this list and elsewhere for nearly a year I felt that I knew more about this topic than any mainstream doctor anyway. He did offer to order what ever tests I requested. Last time we took him in for his regular checkup he had grown over 2 inches, I think this was mostly due to the GFCF diet and enzymes (he had stalled for over a year). Our Ped just sat and talked with him and listened to him for over 20 minutes and at the end he said " I have never seen anything like this, keep doing what you are doing). You could see the stunned look on his and his nurses face. I think I have done a lot of " educating " him on the REALITIES of the Autism Biomed connection, and this may pay off because he was just made Director at our Clinic. Anyway, I digress and am rambling on, for those looking for positive stories, there are lots of them but I suspect they are like me and don't like to " brag " because I feel guilty that other parents have it much worse. Good Luck ! Neil _____ From: [mailto: ] On Behalf Of Amethyst Mueller Sent: Thursday, December 28, 2006 4:52 PM Subject: Re: [ ] Re: Best help for auditory processing issues? , most medical people will tell you not to chelate in anyway. I had one developmental ped tell me if I was going to use any of the DAN protocols, she would no longer see or treat my child. Amazing..... My child does not test for metals, his diagnosis is dyspraxia. He is age appropriately verbal, typical 1st grade classroom where there IS an aide, not necessarily his. We are using DHA and Ultimate Omega, and more recently MB12 injections. In all honesty I'd be afraid to go any further. I have heard amazing stories of children who have fully recovered from chelation, yet I'm still scared to death. Since he's not showing metals, what is it I would be chelating??? Some consider dyspraxia " on the spectrum " , yet not one medical person has diagnosed him with autism or PDD or the like. So I have to wonder.....am I barking up the wrong tree? Amy lcook100 <lcook100 (DOT) <mailto:lcook100%40> com> wrote: Hi Amy - I'm in the same boat as you. All of this is so new to me. I had never even heard the word chelation until about 5 months ago (when I was told in no uncertain terms by a speech therapist and development pediatrican NOT to do it). I've tried to find bad stories by folks who have followed Andy's protocol and have not found any. Have you found some? Thanks! - > > > > > > Hi All - > > > > > > Just wondering what is the best thing to do for auditory > processing > > > issues - whether it be therapy and/or supplements. My son is 2 > years > > > old and has been diagnosed with global dyspraxia, PDD-NOS, > sensory > > > issues and auditory processing problems. Of all these diagnosis > I'm > > > having the most trouble improving his auditory processing > problems. > > He > > > just doesn't seem to understand very well. He did go from not > > > understanding anything (except his name) to understanding a few > > > things...however we've hit a roadblock. > > > > > > Thanks for any info!! > > > > > > - > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 No need to wonder, I can tell you what they would say : 1. They probably weren't that bad off, you are just exaggerating. 2. Their own body was in the process of healing/growing and this improvement would have happened anyway 3. Any/All of the other stuff you have done (physical therapy, special tutors, etc) were what made the improvements 4. You did so many things, there is no way to tell which " 1 " thing is what really cured them. Poor Poor deluded YOU, don't you know there IS NO CURE for autism ? Neil _____ From: [mailto: ] On Behalf Of M5th Sent: Friday, December 29, 2006 7:43 AM Subject: RE: [ ] Re: Best help for auditory processing issues? I would love to hear what some of these people would say if they saw the kids recovered. It took me a while to try the diet since everyone told me that it wouldn't work. My niece is also autistic and with the info I send to my sister in law, she still doesn't get it and is listening to the dr.'s and thinks her daughter is learning enough. We are still working on my son, most people don't realize that he is PDD, though he does have some quirks still. M [ ] Re: Best help for auditory processing issues? > I had never > even heard the word chelation until about 5 months ago (when I was > told in no uncertain terms by a speech therapist and development > pediatrican NOT to do it). Yep. The speech therapist would be out of a job if people chealted their kids. And when my son was dx'd by a developmetal ped, her office warned me about " charlatans on the net " who offered false hope and dangerous treatments. Since I had already had great success with the Feingold Diet after my regular ped told me it wouldn't do anything, I happily ignored the dev ped too, thank God. Sometimes I think about taking my son back over there and asking her to explain how he recovered if there is no cure, which is what she told me. Nell Quote Link to comment Share on other sites More sharing options...
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