Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

Re: Best help for auditory processing issues?

Rate this topic

Recommended Posts

Guest guest

Hi

Auditory processing is still a challenge for us, but the things that

have brought noticeable improvements are Houston enzymes, a small

round of Therapeutic Listening done with our OT (which we hope to

repeat this spring), and homeopathy... I think. The reason I'm not

quite sure re: homeopathy is that it is a new treatment and we're

still sorting out what it is doing for our son.

I would certainly try to combine biomedical approaches with

occupational/auditory therapy, if you can. Just make sure to start

things one at a time so you can sort out what does what.

best wishes

Rene

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory processing

> issues - whether it be therapy and/or supplements. > -

>

Share this post


Link to post
Share on other sites
Guest guest

,

Have you hair tested him yet? My son had auditory problems and PDD

also that we recognized finally at age 3. He turned out very toxic in

heavy metals. And within his first few rounds of chelation he no

longer has many issues at all and is not PDD.

Some of his key supplements were probiotics, going dairy free, Kirkman

Spectrum Complete Multi, and yeast treatment. Upon which chelation

which was an epiphany for us. Do a hair test and see what he is

dealing with. Many metals disrupt auditory processing. My son could

Hear us fine, and passed hearing tests..he just did not understand

what was said. He even spoke well but did not comprehend us. We always

had to speak slowly and by looking directly in his face at eye level

for him to follow. This has gone away now. He is on Round 15 and doing

excellent! Oh..my son is also sensory integration disorder and fine

motor delay..most of which is gone as well.

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory processing

> issues - whether it be therapy and/or supplements. My son is 2 years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis I'm

> having the most trouble improving his auditory processing problems.

He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

>

> Thanks for any info!!

>

> -

>

Share this post


Link to post
Share on other sites
Guest guest

Jan what did you use to chelate with?

Amy

Jan <paxlforme@...> wrote:

,

Have you hair tested him yet? My son had auditory problems and PDD

also that we recognized finally at age 3. He turned out very toxic in

heavy metals. And within his first few rounds of chelation he no

longer has many issues at all and is not PDD.

Some of his key supplements were probiotics, going dairy free, Kirkman

Spectrum Complete Multi, and yeast treatment. Upon which chelation

which was an epiphany for us. Do a hair test and see what he is

dealing with. Many metals disrupt auditory processing. My son could

Hear us fine, and passed hearing tests..he just did not understand

what was said. He even spoke well but did not comprehend us. We always

had to speak slowly and by looking directly in his face at eye level

for him to follow. This has gone away now. He is on Round 15 and doing

excellent! Oh..my son is also sensory integration disorder and fine

motor delay..most of which is gone as well.

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory processing

> issues - whether it be therapy and/or supplements. My son is 2 years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis I'm

> having the most trouble improving his auditory processing problems.

He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

>

> Thanks for any info!!

>

> -

>

__________________________________________________

Share this post


Link to post
Share on other sites
Guest guest

Hello ,

Our son had what sounds like a very similar list of issues.

I believe the 2 things that made the most difference for him were :

GFCF diet, after the initial " withdrawal period " (not fun) he improved

greatly. We also gave large amounts of fish oil.

DMSA chelation, I personally blame lead for a good chunk of his " brain fog " .

Working on getting the Hg out as well of course.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of lcook100

Sent: Wednesday, December 27, 2006 12:58 PM

Subject: [ ] Best help for auditory processing issues?

Hi All -

Just wondering what is the best thing to do for auditory processing

issues - whether it be therapy and/or supplements. My son is 2 years

old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

issues and auditory processing problems. Of all these diagnosis I'm

having the most trouble improving his auditory processing problems. He

just doesn't seem to understand very well. He did go from not

understanding anything (except his name) to understanding a few

things...however we've hit a roadblock.

Thanks for any info!!

-

Share this post


Link to post
Share on other sites
Guest guest

> Just wondering what is the best thing to do for auditory processing

> issues - whether it be therapy and/or supplements. My son is 2 years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis I'm

> having the most trouble improving his auditory processing problems. He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

Anti-virals were very helpful for my kids for this issue.

Dana

Share this post


Link to post
Share on other sites
Guest guest

He is dmsa/ala on AC protocol. I posted similar to you last April

about my son and everyone here told me..DON'T waste time! Get a hair

test and chelate him immediately because he is so young, it can be

reversed....I was scared to death but did my research and found that

doing this was safer than the implications of allowing my son to be

poisoned and untreated over his life. I took a leap of faith and

began chelation..it has been the best thing we have ever done.

-- In , Amethyst Mueller

<amethyst_mueller@...> wrote:

>

> Jan what did you use to chelate with?

> Amy

>

> Jan <paxlforme@...> wrote:

> ,

> Have you hair tested him yet? My son had auditory problems and PDD

> also that we recognized finally at age 3. He turned out very toxic

in

> heavy metals. And within his first few rounds of chelation he no

> longer has many issues at all and is not PDD.

> Some of his key supplements were probiotics, going dairy free,

Kirkman

> Spectrum Complete Multi, and yeast treatment. Upon which chelation

> which was an epiphany for us. Do a hair test and see what he is

> dealing with. Many metals disrupt auditory processing. My son

could

> Hear us fine, and passed hearing tests..he just did not understand

> what was said. He even spoke well but did not comprehend us. We

always

> had to speak slowly and by looking directly in his face at eye

level

> for him to follow. This has gone away now. He is on Round 15 and

doing

> excellent! Oh..my son is also sensory integration disorder and

fine

> motor delay..most of which is gone as well.

>

>

> >

> > Hi All -

> >

> > Just wondering what is the best thing to do for auditory

processing

> > issues - whether it be therapy and/or supplements. My son is 2

years

> > old and has been diagnosed with global dyspraxia, PDD-NOS,

sensory

> > issues and auditory processing problems. Of all these diagnosis

I'm

> > having the most trouble improving his auditory processing

problems.

> He

> > just doesn't seem to understand very well. He did go from not

> > understanding anything (except his name) to understanding a few

> > things...however we've hit a roadblock.

> >

> > Thanks for any info!!

> >

> > -

> >

>

>

>

>

>

> __________________________________________________

>

Share this post


Link to post
Share on other sites
Guest guest

I agree with you there, Lead and MErcury both are known to cause

auditory processing problems. I have experienced it myself as an

adult with amalgams..I began having a really hard time understanding

people. I hear there voices but what they said was not what I heard.

I had to ask " what " like thirty times in a conversation. IF they

spoke slower I could get it. But often times the words they said

were way different than what I heard. Like beard instead of

bread...or going bananas instead of going to stand up...very

frusturating! It has gone away since amalgam removal.

>

> Hello ,

>

> Our son had what sounds like a very similar list of issues.

>

> I believe the 2 things that made the most difference for him were :

>

> GFCF diet, after the initial " withdrawal period " (not fun) he

improved

> greatly. We also gave large amounts of fish oil.

>

> DMSA chelation, I personally blame lead for a good chunk of

his " brain fog " .

> Working on getting the Hg out as well of course.

>

> Good Luck !

>

> Neil

>

> _____

>

> From: [mailto:Autism-

Mercury ]

> On Behalf Of lcook100

> Sent: Wednesday, December 27, 2006 12:58 PM

>

> Subject: [ ] Best help for auditory processing issues?

>

>

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory

processing

> issues - whether it be therapy and/or supplements. My son is 2

years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis

I'm

> having the most trouble improving his auditory processing

problems. He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

>

> Thanks for any info!!

>

> -

>

>

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

DHA and fish oil will work wonders for your child. Investigate Tomatis or Vital

Links for auditory training.

Amy

danasview <danasview@...> wrote:

> Just wondering what is the best thing to do for auditory processing

> issues - whether it be therapy and/or supplements. My son is 2 years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis I'm

> having the most trouble improving his auditory processing problems. He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

Anti-virals were very helpful for my kids for this issue.

Dana

__________________________________________________

Share this post


Link to post
Share on other sites
Guest guest

Glad it's worked out for you, Jan. I am new to this list so I'm unfamiliar with

a lot of what's been said/ told to others. Here to learn.

I do believe that leaving toxins in a child will definitely be more harmful

than removing them, but when I see posts about children regressing, and hear

stories of a child that was speaking/functioning and then stopping, it makes me

take pause. Wonderful to hear a positive story!

Amy

Jan <paxlforme@...> wrote:

He is dmsa/ala on AC protocol. I posted similar to you last April

about my son and everyone here told me..DON'T waste time! Get a hair

test and chelate him immediately because he is so young, it can be

reversed....I was scared to death but did my research and found that

doing this was safer than the implications of allowing my son to be

poisoned and untreated over his life. I took a leap of faith and

began chelation..it has been the best thing we have ever done.

-- In , Amethyst Mueller

<amethyst_mueller@...> wrote:

>

> Jan what did you use to chelate with?

> Amy

>

> Jan <paxlforme@...> wrote:

> ,

> Have you hair tested him yet? My son had auditory problems and PDD

> also that we recognized finally at age 3. He turned out very toxic

in

> heavy metals. And within his first few rounds of chelation he no

> longer has many issues at all and is not PDD.

> Some of his key supplements were probiotics, going dairy free,

Kirkman

> Spectrum Complete Multi, and yeast treatment. Upon which chelation

> which was an epiphany for us. Do a hair test and see what he is

> dealing with. Many metals disrupt auditory processing. My son

could

> Hear us fine, and passed hearing tests..he just did not understand

> what was said. He even spoke well but did not comprehend us. We

always

> had to speak slowly and by looking directly in his face at eye

level

> for him to follow. This has gone away now. He is on Round 15 and

doing

> excellent! Oh..my son is also sensory integration disorder and

fine

> motor delay..most of which is gone as well.

>

>

> >

> > Hi All -

> >

> > Just wondering what is the best thing to do for auditory

processing

> > issues - whether it be therapy and/or supplements. My son is 2

years

> > old and has been diagnosed with global dyspraxia, PDD-NOS,

sensory

> > issues and auditory processing problems. Of all these diagnosis

I'm

> > having the most trouble improving his auditory processing

problems.

> He

> > just doesn't seem to understand very well. He did go from not

> > understanding anything (except his name) to understanding a few

> > things...however we've hit a roadblock.

> >

> > Thanks for any info!!

> >

> > -

> >

>

>

>

>

>

> __________________________________________________

>

Share this post


Link to post
Share on other sites
Guest guest

Are any of you using GFCF with a kid that has no gut issues? We tried the diet

(no gut issues here) and saw no change in anything....

Amy

Jan <paxlforme@...> wrote:

I agree with you there, Lead and MErcury both are known to cause

auditory processing problems. I have experienced it myself as an

adult with amalgams..I began having a really hard time understanding

people. I hear there voices but what they said was not what I heard.

I had to ask " what " like thirty times in a conversation. IF they

spoke slower I could get it. But often times the words they said

were way different than what I heard. Like beard instead of

bread...or going bananas instead of going to stand up...very

frusturating! It has gone away since amalgam removal.

>

> Hello ,

>

> Our son had what sounds like a very similar list of issues.

>

> I believe the 2 things that made the most difference for him were :

>

> GFCF diet, after the initial " withdrawal period " (not fun) he

improved

> greatly. We also gave large amounts of fish oil.

>

> DMSA chelation, I personally blame lead for a good chunk of

his " brain fog " .

> Working on getting the Hg out as well of course.

>

> Good Luck !

>

> Neil

>

> _____

>

> From: [mailto:Autism-

Mercury ]

> On Behalf Of lcook100

> Sent: Wednesday, December 27, 2006 12:58 PM

>

> Subject: [ ] Best help for auditory processing issues?

>

>

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory

processing

> issues - whether it be therapy and/or supplements. My son is 2

years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis

I'm

> having the most trouble improving his auditory processing

problems. He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

>

> Thanks for any info!!

>

> -

>

>

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

Jan (and everyone) - thanks for your replies.

We did get a hair test done. Unfortunately, it wasn't done through

DD. We had it done through Genova and I think it is too late to get

one with DDI since he has been on so many supplements. I have bought

Andy's book and applied his alternative counting rules and it appears

my son meets two of the rules. He had some high levels of antimony,

arsenic and a few others. However, his mercury showed very low (which

was another interesting observation).

Our DAN doctor has recommended chelation with NDF+...but I've read

bad stories with this and it scares me.

What yeast treatments did you use?

Thanks!!

-

> > >

> > > Hi All -

> > >

> > > Just wondering what is the best thing to do for auditory

> processing

> > > issues - whether it be therapy and/or supplements. My son is 2

> years

> > > old and has been diagnosed with global dyspraxia, PDD-NOS,

> sensory

> > > issues and auditory processing problems. Of all these diagnosis

> I'm

> > > having the most trouble improving his auditory processing

> problems.

> > He

> > > just doesn't seem to understand very well. He did go from not

> > > understanding anything (except his name) to understanding a few

> > > things...however we've hit a roadblock.

> > >

> > > Thanks for any info!!

> > >

> > > -

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

Share this post


Link to post
Share on other sites
Guest guest

Hi Amy -

I'm in the same boat as you. All of this is so new to me. I had never

even heard the word chelation until about 5 months ago (when I was

told in no uncertain terms by a speech therapist and development

pediatrican NOT to do it). I've tried to find bad stories by folks

who have followed Andy's protocol and have not found any. Have you

found some?

Thanks!

-

> > >

> > > Hi All -

> > >

> > > Just wondering what is the best thing to do for auditory

> processing

> > > issues - whether it be therapy and/or supplements. My son is 2

> years

> > > old and has been diagnosed with global dyspraxia, PDD-NOS,

> sensory

> > > issues and auditory processing problems. Of all these diagnosis

> I'm

> > > having the most trouble improving his auditory processing

> problems.

> > He

> > > just doesn't seem to understand very well. He did go from not

> > > understanding anything (except his name) to understanding a few

> > > things...however we've hit a roadblock.

> > >

> > > Thanks for any info!!

> > >

> > > -

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

Share this post


Link to post
Share on other sites
Guest guest

, most medical people will tell you not to chelate in anyway. I had one

developmental ped tell me if I was going to use any of the DAN protocols, she

would no longer see or treat my child. Amazing.....

My child does not test for metals, his diagnosis is dyspraxia. He is age

appropriately verbal, typical 1st grade classroom where there IS an aide, not

necessarily his. We are using DHA and Ultimate Omega, and more recently MB12

injections. In all honesty I'd be afraid to go any further. I have heard

amazing stories of children who have fully recovered from chelation, yet I'm

still scared to death. Since he's not showing metals, what is it I would be

chelating???

Some consider dyspraxia " on the spectrum " , yet not one medical person has

diagnosed him with autism or PDD or the like. So I have to wonder.....am I

barking up the wrong tree?

Amy

lcook100 <lcook100@...> wrote:

Hi Amy -

I'm in the same boat as you. All of this is so new to me. I had never

even heard the word chelation until about 5 months ago (when I was

told in no uncertain terms by a speech therapist and development

pediatrican NOT to do it). I've tried to find bad stories by folks

who have followed Andy's protocol and have not found any. Have you

found some?

Thanks!

-

> > >

> > > Hi All -

> > >

> > > Just wondering what is the best thing to do for auditory

> processing

> > > issues - whether it be therapy and/or supplements. My son is 2

> years

> > > old and has been diagnosed with global dyspraxia, PDD-NOS,

> sensory

> > > issues and auditory processing problems. Of all these diagnosis

> I'm

> > > having the most trouble improving his auditory processing

> problems.

> > He

> > > just doesn't seem to understand very well. He did go from not

> > > understanding anything (except his name) to understanding a few

> > > things...however we've hit a roadblock.

> > >

> > > Thanks for any info!!

> > >

> > > -

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

Share this post


Link to post
Share on other sites
Guest guest

>

> I do believe that leaving toxins in a child will definitely be

more harmful than removing them, but when I see posts about children

regressing, and hear stories of a child that was speaking/functioning

and then stopping, it makes me take pause.

Yes, and you're right to be paying attention to possible problems. In

the files of this list there are a couple of places to read parent

reports -- Love Letters is one. Moria, who made the file, always

encourages people to post with negative results as well as positive,

so we can get the truest picture of what's going on.

On this list a lot of people show up with kids having trouble because

they've been taking too much chelator and dosing too infrequently. I

was convinced to go ahead with Andy's protocol after reading for a

long time and seeing that these regressions were extremely rarely a

result of chelating his way, and very often the result of chelating

some other way, or using supps Andy doesn't recommend.

I was very hesistant to chelate when I first heard about it, because

my son was high-functioning in so many areas -- advanced language,

etc. -- but after 90-some rounds plus antivirals plus Feingold, he has

lost all autism diagnoses and is about 95% recovered. So there's

another positive story for you :).

Nell

Share this post


Link to post
Share on other sites
Guest guest

>

> Are any of you using GFCF with a kid that has no gut issues? We

tried the diet (no gut issues here) and saw no change in anything....

If you see no change then ditch it. See if any suggestions here make

sense:

http://tinyurl.com/yxky77

Nell

Share this post


Link to post
Share on other sites
Guest guest

> Our DAN doctor has recommended chelation with NDF+...but I've read

> bad stories with this and it scares me.

IMO the best way to figure out how to proceed is to search out all the

bad stories you can and then decide what risks you're willing to take.

It's easy to get blinded by a few great successes -- so you're smart

to look at it this way.

Nell

Share this post


Link to post
Share on other sites
Guest guest

Amy, what metals test have you used? Pediatricians who don't know better might

order a

blood test (useless after 24 hours since exposure). Hair, stool & urine tests

could show no

metals if the child is not excreting (rather retaining) metals.

Did you do a chelation challenge test?

My daughter's levels tested LOW until we began chelating...and then we saw scary

amounts

of mercury dumping out of her. And even then, not at FIRST. She dumped a lot of

lead

before the mercury started coming out.

I'd be more scared NOT to chelate... but then my daughter is severely delayed.

Children

capable of being mainstreamed are likely much lower in metals than she is.

Chelation is safe when warranted and administered under a qualified physicians

guidance.

I am personally chelating using oral DMSA... with great success. I've felt

better than I had

in years, since my mercury levels were creating methylation issues (I have the

MTHFR

defect, as does my daughter) that affected my digestion. I was poisoned by my

amalgams.

Since beginning chelation, my facial eczema has cleared up, my nervous habits &

facial tics

have disappeared and my digestion is nearly normal. In fact, a long-time food

intolerance

I've had toward foods containing tyramine is much improved. Some day, I'll be

able to

enjoy foods like chocolate and beer again. I'm dying for a banana split (bananas

are high

in tyramine.) :-)

I never would have known about chelation if not for my daughter's autism.... who

after two

years of chelation saw a 60% improvement in her eyesight... and her mineral

profiles are all

now within reference range! We're not done chelating her just yet, but are

taking a

sabbatical from it to try to fix her gut issues.

> > > >

> > > > Hi All -

> > > >

> > > > Just wondering what is the best thing to do for auditory

> > processing

> > > > issues - whether it be therapy and/or supplements. My son is 2

> > years

> > > > old and has been diagnosed with global dyspraxia, PDD-NOS,

> > sensory

> > > > issues and auditory processing problems. Of all these diagnosis

> > I'm

> > > > having the most trouble improving his auditory processing

> > problems.

> > > He

> > > > just doesn't seem to understand very well. He did go from not

> > > > understanding anything (except his name) to understanding a few

> > > > things...however we've hit a roadblock.

> > > >

> > > > Thanks for any info!!

> > > >

> > > > -

> > > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

Share this post


Link to post
Share on other sites
Guest guest

> I had never

> even heard the word chelation until about 5 months ago (when I was

> told in no uncertain terms by a speech therapist and development

> pediatrican NOT to do it).

Yep. The speech therapist would be out of a job if people chealted

their kids. And when my son was dx'd by a developmetal ped, her office

warned me about " charlatans on the net " who offered false hope and

dangerous treatments. Since I had already had great success with the

Feingold Diet after my regular ped told me it wouldn't do anything, I

happily ignored the dev ped too, thank God. Sometimes I think about

taking my son back over there and asking her to explain how he

recovered if there is no cure, which is what she told me.

Nell

Share this post


Link to post
Share on other sites
Guest guest

I would love to hear what some of these people would say if they saw the

kids recovered. It took me a while to try the diet since everyone told

me that it wouldn't work. My niece is also autistic and with the info I

send to my sister in law, she still doesn't get it and is listening to

the dr.'s and thinks her daughter is learning enough. We are still

working on my son, most people don't realize that he is PDD, though he

does have some quirks still.

M

[ ] Re: Best help for auditory processing issues?

> I had never

> even heard the word chelation until about 5 months ago (when I was

> told in no uncertain terms by a speech therapist and development

> pediatrican NOT to do it).

Yep. The speech therapist would be out of a job if people chealted

their kids. And when my son was dx'd by a developmetal ped, her office

warned me about " charlatans on the net " who offered false hope and

dangerous treatments. Since I had already had great success with the

Feingold Diet after my regular ped told me it wouldn't do anything, I

happily ignored the dev ped too, thank God. Sometimes I think about

taking my son back over there and asking her to explain how he

recovered if there is no cure, which is what she told me.

Nell

Share this post


Link to post
Share on other sites
Guest guest

> My child does not test for metals, his diagnosis is dyspraxia.

Have you done a DDI hair test?

>I have heard amazing stories of children who have fully recovered

from chelation, yet I'm still scared to death. Since he's not showing

metals, what is it I would be chelating???

If there are no metals, there is no risk from taking chelators,

because the risk is the damage the metals cause when getting dragged

out of the body. My son's hair test was suspicious, but did not meet

the counting rules, despite dx's of Asperger's and PDD. So I had the

same worry as you -- am I taking a risk when metals might not even be

the problem? So understanding that the risk is *contingent on the

presence of metals made it easier to do.

>

> Some consider dyspraxia " on the spectrum " , yet not one medical

person has diagnosed him with autism or PDD or the like. So I have to

wonder.....am I barking up the wrong tree?

There are several people on the list chelating their kids who are not

autistic. The really good news is that for them, chelation tends to be

easier with far fewer side effects. The results aren't as dramatic,

because the kids were in decent shape to begin with, but the

improvements make for a big change in quality of life, for the kid and

the family.

Nell

Share this post


Link to post
Share on other sites
Guest guest

...........which is exactly my plan, Nell.

MB12 has helped quite a bit, although the hyperactivity is getting worse after

each injection. Eye contact is no longer an issue. Her explanation is that

" dyspraxia has a maturity factor and we are nearing that time....by the time he

is 12, this will all be just a memory..... " She may be right, but I don't want

to take that chance......So she just keeps telling me that his improvements are

because of the therapy and the fact that kids who are getting the correct

therapy that have this diagnosis, will eventually be just like a typical

kid...and in many ways, that's already the case......

But there's still something......

And I want that " something " to go away with everything else that has gone

away.......

Amy

lanellici <lanellici@...> wrote:

> I had never

> even heard the word chelation until about 5 months ago (when I was

> told in no uncertain terms by a speech therapist and development

> pediatrican NOT to do it).

Yep. The speech therapist would be out of a job if people chealted

their kids. And when my son was dx'd by a developmetal ped, her office

warned me about " charlatans on the net " who offered false hope and

dangerous treatments. Since I had already had great success with the

Feingold Diet after my regular ped told me it wouldn't do anything, I

happily ignored the dev ped too, thank God. Sometimes I think about

taking my son back over there and asking her to explain how he

recovered if there is no cure, which is what she told me.

Nell

__________________________________________________

Share this post


Link to post
Share on other sites
Guest guest

> a typical kid...and in many ways, that's already the case......

> But there's still something......

>

> And I want that " something " to go away with everything else that

has gone away.......

I know just what you mean. That's about where my kid is now too -- no

one would guess he'd been autistic, but there's

still...something...that crops up now and again. Hard to describe

exactly.

You could do a trial of ALA, say 5 or 10 rounds, and then reassess.

Have you checked out the possibility of viral problems?

Nell

Share this post


Link to post
Share on other sites
Guest guest

That is really interesting, I have some of those same issues but mostly

blamed it on poor hearing.

I now have my mercury fillings out and plan to start chelating very soon, I

look forward to the benefits of chelation !

Neil

_____

From: [mailto: ]

On Behalf Of Jan

Sent: Thursday, December 28, 2006 12:56 PM

Subject: [ ] Re: Best help for auditory processing issues?

I agree with you there, Lead and MErcury both are known to cause

auditory processing problems. I have experienced it myself as an

adult with amalgams..I began having a really hard time understanding

people. I hear there voices but what they said was not what I heard.

I had to ask " what " like thirty times in a conversation. IF they

spoke slower I could get it. But often times the words they said

were way different than what I heard. Like beard instead of

bread...or going bananas instead of going to stand up...very

frusturating! It has gone away since amalgam removal.

>

> Hello ,

>

> Our son had what sounds like a very similar list of issues.

>

> I believe the 2 things that made the most difference for him were :

>

> GFCF diet, after the initial " withdrawal period " (not fun) he

improved

> greatly. We also gave large amounts of fish oil.

>

> DMSA chelation, I personally blame lead for a good chunk of

his " brain fog " .

> Working on getting the Hg out as well of course.

>

> Good Luck !

>

> Neil

>

> _____

>

> From: @ <mailto: %40>

[mailto:Autism-

Mercury@groups <mailto:Mercury%40> .com]

> On Behalf Of lcook100

> Sent: Wednesday, December 27, 2006 12:58 PM

> @ <mailto: %40>

> Subject: [ ] Best help for auditory processing issues?

>

>

>

> Hi All -

>

> Just wondering what is the best thing to do for auditory

processing

> issues - whether it be therapy and/or supplements. My son is 2

years

> old and has been diagnosed with global dyspraxia, PDD-NOS, sensory

> issues and auditory processing problems. Of all these diagnosis

I'm

> having the most trouble improving his auditory processing

problems. He

> just doesn't seem to understand very well. He did go from not

> understanding anything (except his name) to understanding a few

> things...however we've hit a roadblock.

>

> Thanks for any info!!

>

> -

>

>

>

>

>

>

Share this post


Link to post
Share on other sites
Guest guest

Hi Amy, (and others nervous about starting chelation)

I understand the " fear factor " about the chelation !

I also had been told that chelation was at best ineffective and at worst

dangerous and abusive.

I can't take that year back, but I sure wish I could .. thankfully I found

this list and did my research.

You say he is not showing metals, I assume this is from a hair test ? If

so, that is THE prime indication of mercury poisoning.

For the record, the ONLY death from " chelation " that I am aware of (even the

really bad protocols used by some DAN! practitioners) was from IV Chelation

and that was because they mixed up what they were using and it wasn't even

the chelator, it was another substance with an almost identical name which

removed all the calcium from the poor kid and that caused heart failure. As

far as I am concerned that wasn't death from chelation, that was death from

a screw up which happens in a LOT at hospitals every day.

If you read carefully on this list, the people who use the AC method are the

ones who have slow steady success. Mostly the people who use High Dose /

Infrequent Dosing protocols (ala many DAN!) are the ones who jump on the

rollercoaster and struggle the most. These parents then use the AC protocol

and bring things under control.

My advice to you ... let go of your fear. Start out with a low amount of

DMSA for at least 10 rounds and see how it goes. That is the commitment I

made when we started this process. The improvements we saw with our son

(and relatively few negatives - mostly yeast) were more than enough to

convince me. After the first round it was like a huge weight had been

lifted from my mind because it was so Un-Eventful .. Hmmm, nobody died,

everything seemed pretty much the same except he seemed a bit more

" connected " .. As the rounds continued so did the improvements and the

positive reports from the pre-school and others.

Our Ped, who to his credit did not fight us on this, but did not feel

comfortable " directing " the process. That was fine with me, because after

reading on this list and elsewhere for nearly a year I felt that I knew more

about this topic than any mainstream doctor anyway. He did offer to order

what ever tests I requested. Last time we took him in for his regular

checkup he had grown over 2 inches, I think this was mostly due to the GFCF

diet and enzymes (he had stalled for over a year). Our Ped just sat and

talked with him and listened to him for over 20 minutes and at the end he

said " I have never seen anything like this, keep doing what you are doing).

You could see the stunned look on his and his nurses face. I think I have

done a lot of " educating " him on the REALITIES of the Autism Biomed

connection, and this may pay off because he was just made Director at our

Clinic.

Anyway, I digress and am rambling on, for those looking for positive

stories, there are lots of them but I suspect they are like me and don't

like to " brag " because I feel guilty that other parents have it much worse.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of Amethyst Mueller

Sent: Thursday, December 28, 2006 4:52 PM

Subject: Re: [ ] Re: Best help for auditory processing issues?

, most medical people will tell you not to chelate in anyway. I had

one developmental ped tell me if I was going to use any of the DAN

protocols, she would no longer see or treat my child. Amazing.....

My child does not test for metals, his diagnosis is dyspraxia. He is age

appropriately verbal, typical 1st grade classroom where there IS an aide,

not necessarily his. We are using DHA and Ultimate Omega, and more recently

MB12 injections. In all honesty I'd be afraid to go any further. I have

heard amazing stories of children who have fully recovered from chelation,

yet I'm still scared to death. Since he's not showing metals, what is it I

would be chelating???

Some consider dyspraxia " on the spectrum " , yet not one medical person has

diagnosed him with autism or PDD or the like. So I have to wonder.....am I

barking up the wrong tree?

Amy

lcook100 <lcook100 (DOT) <mailto:lcook100%40> com> wrote:

Hi Amy -

I'm in the same boat as you. All of this is so new to me. I had never

even heard the word chelation until about 5 months ago (when I was

told in no uncertain terms by a speech therapist and development

pediatrican NOT to do it). I've tried to find bad stories by folks

who have followed Andy's protocol and have not found any. Have you

found some?

Thanks!

-

> > >

> > > Hi All -

> > >

> > > Just wondering what is the best thing to do for auditory

> processing

> > > issues - whether it be therapy and/or supplements. My son is 2

> years

> > > old and has been diagnosed with global dyspraxia, PDD-NOS,

> sensory

> > > issues and auditory processing problems. Of all these diagnosis

> I'm

> > > having the most trouble improving his auditory processing

> problems.

> > He

> > > just doesn't seem to understand very well. He did go from not

> > > understanding anything (except his name) to understanding a few

> > > things...however we've hit a roadblock.

> > >

> > > Thanks for any info!!

> > >

> > > -

> > >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

Share this post


Link to post
Share on other sites
Guest guest

No need to wonder, I can tell you what they would say :

1. They probably weren't that bad off, you are just exaggerating.

2. Their own body was in the process of healing/growing and this

improvement would have happened anyway

3. Any/All of the other stuff you have done (physical therapy, special

tutors, etc) were what made the improvements

4. You did so many things, there is no way to tell which " 1 " thing is

what really cured them.

Poor Poor deluded YOU, don't you know there IS NO CURE for autism ?

Neil

_____

From: [mailto: ]

On Behalf Of M5th

Sent: Friday, December 29, 2006 7:43 AM

Subject: RE: [ ] Re: Best help for auditory processing issues?

I would love to hear what some of these people would say if they saw the

kids recovered. It took me a while to try the diet since everyone told

me that it wouldn't work. My niece is also autistic and with the info I

send to my sister in law, she still doesn't get it and is listening to

the dr.'s and thinks her daughter is learning enough. We are still

working on my son, most people don't realize that he is PDD, though he

does have some quirks still.

M

[ ] Re: Best help for auditory processing issues?

> I had never

> even heard the word chelation until about 5 months ago (when I was

> told in no uncertain terms by a speech therapist and development

> pediatrican NOT to do it).

Yep. The speech therapist would be out of a job if people chealted

their kids. And when my son was dx'd by a developmetal ped, her office

warned me about " charlatans on the net " who offered false hope and

dangerous treatments. Since I had already had great success with the

Feingold Diet after my regular ped told me it wouldn't do anything, I

happily ignored the dev ped too, thank God. Sometimes I think about

taking my son back over there and asking her to explain how he

recovered if there is no cure, which is what she told me.

Nell

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...