Re: six questions - at least!

[Guest guest]

Here, check these links out. There are a lot of things covered.

http://home.earthlink.net/~moriam/

http://home.earthlink.net/~moriam/ANDY_INDEX.html

[ ] six questions - at least!

I have been searching/reading lots of posts, and would like some input

please on some of the basics.

1- Is there a chelation FAQ somewhere in this forum?!

2- Names of the main chelators. Main parameters for determining which

one(s) to use. Common dosage schemes / lengths of time on/off.

3- Abbreviated pros/cons for each of the main chelators

4- How to test for metals while chelating, hair/blood/urine/stool,

which labs, prices??

5- How to test for yeast?? We have one-time results from Great

Smokies Lab and Doctors Data, but wondering if there's some easier way.

6- Recommendations for minimizing side-effects of chelation - let's

says beyond the following: GFCF, enzymes, probiotics, nystatin,

vitamins, cal-mag, zinc, B-6. Top supplement recommendations beyond

this list please.

[Guest guest]

In a message dated 07/08/2006 14:26:15 GMT Daylight Time, winyahn@...

writes:

Fair to say most parents in this forum are in support of Andy Cutler's

approach?

>>>We are in support of protocols that are as as safe as possible for our

children so we don't make them worse while trying to get them better.

We also tend to be a group thats thinks for ourselves first and listens to

Drs DAN! or otherwise second. Well thats me anyways LOL

Andy Cutlers approach does that and yes I support it

Mandi in UK

[Guest guest]

Thank you. The picture's slowly coming into focus.

Fair to say most parents in this forum are in support of Andy Cutler's

approach?

[Guest guest]

>

> I have been searching/reading lots of posts, and would like some input

> please on some of the basics.

I have lots of links and info here

http://www.danasview.net/parent3.htm#chelation

> 5- How to test for yeast?? We have one-time results from Great

> Smokies Lab and Doctors Data, but wondering if there's some easier way.

I " tested " by observation

http://www.danasview.net/yeast.htm

> 6- Recommendations for minimizing side-effects of chelation - let's

> says beyond the following: GFCF, enzymes, probiotics, nystatin,

> vitamins, cal-mag, zinc, B-6. Top supplement recommendations beyond

> this list please.

Depends on which chelator/s you use. Vitamin C and/or selenium is

good to eliminate the metals that are released from the tissues.

Dana

[Guest guest]

Yes, most, but some are using/have used other protocols with varying outcomes.

S S

<p>Thank you. The picture's slowly coming into focus. <br>

<br>

Fair to say most parents in this forum are in support of Andy Cutler's<br>

approach?<br>

<br>

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[Guest guest]

>

> I have been searching/reading lots of posts, and would like some input

> please on some of the basics.

>

> 1- Is there a chelation FAQ somewhere in this forum?!

There is a FAQ in the Files section, along with lots more information.

Try the Andy_Index (or anything that goes to Moria's site).

> 2- Names of the main chelators. Main parameters for determining which

> one(s) to use. Common dosage schemes / lengths of time on/off.

DMPS chelates mercury, arsenic, others

DMSA chelates mercury, lead, others

ALA chelates mercury, arsenic, and possibly others

> 3- Abbreviated pros/cons for each of the main chelators

DMPS is more expensive, more efficient, does not increase yeast

DMSA is less expensive, can increase yeast

neither DMSA nor DMPS chelate from the brain or intracellular

spaces

ALA is cheap, chelates from the brain and intracellular spaces

ALA can increase yeast

> 4- How to test for metals while chelating, hair/blood/urine/stool,

> which labs, prices??

DDI hair test

> 5- How to test for yeast?? We have one-time results from Great

> Smokies Lab and Doctors Data, but wondering if there's some easier way.

Observation.

> 6- Recommendations for minimizing side-effects of chelation - let's

> says beyond the following: GFCF, enzymes, probiotics, nystatin,

> vitamins, cal-mag, zinc, B-6. Top supplement recommendations beyond

> this list please.

fish/flax oil

other important minerals such as molybdenum, chromium, selenium

adrenal cortex extract

certain amino acids (carnitine, arginine, others)

I'm sure I'm missing things.

--

[Guest guest]

> > 4- How to test for metals while chelating, hair/blood/urine/stool,

> > which labs, prices??

>

> DDI hair test

>

Why test hair? While chelating, aren't we supposed to test every

month? Can hair grow fast enough to be of use? What about the

porphyrine urine test? I've heard that it's the very best test to use

(And I wonder why DAN docs aren't recommending it).

-

[Guest guest]

I guess I was fuzzy-headed and read that to be a question

about diagnostic testing. Sorry.

From what I've seen, testing for metals while chelating is just

confusing - not very helpful. Some people do it though.

You can do a hair test as often as every three months or so if

you are, say, looking for copper to come down before using ALA.

But generally it's not useful to do that often.

Urine porphyrins is another diagnostic method, but tricky because

the specimen has to be handled carefully to get a valid result.

--

>

>

> > > 4- How to test for metals while chelating, hair/blood/urine/stool,

> > > which labs, prices??

> >

> > DDI hair test

> >

>

> Why test hair? While chelating, aren't we supposed to test every

> month? Can hair grow fast enough to be of use? What about the

> porphyrine urine test? I've heard that it's the very best test to use

> (And I wonder why DAN docs aren't recommending it).

>

> -

>

[Guest guest]

> >>>We are in support of protocols that are as as safe as possible

for our

> children so we don't make them worse while trying to get them better.

>

> We also tend to be a group thats thinks for ourselves first and

listens to

> Drs DAN! or otherwise second. Well thats me anyways LOL

>

> Andy Cutlers approach does that and yes I support it

Ditto all the way.

Nell

[Guest guest]

,

I am glad to hear you say that one doesn't have to do testing while

chelating. I'm finding it very difficult to get a urine specimum, my

DAN doc wants urine and blood tests about once per month; blood tests

are a nightmare, too, as my kids are only 2. So what kind and how

often would you recommend monitoring them? -

> >

> >

> > > > 4- How to test for metals while chelating,

hair/blood/urine/stool,

> > > > which labs, prices??

> > >

> > > DDI hair test

> > >

> >

> > Why test hair? While chelating, aren't we supposed to test every

> > month? Can hair grow fast enough to be of use? What about the

> > porphyrine urine test? I've heard that it's the very best test to

use

> > (And I wonder why DAN docs aren't recommending it).

> >

> > -

> >

>

[Guest guest]

,

Not Stepanie, but really behavior is the best indicator of how they are doing.

You can do hair tests, but serial hair tests are often confusing. If they are

getting better, it is reducing metals.

We got a baseline CBC before starting and I think that is helpful, was for me to

see that we were not stressing her out too much by chelating. Then a CBC every 4

months to see what is happening has been very illuminating and allowed us to

tweak our supplements to improvement. If you have a Dan that shouldn't be a

problem, we did not, but you can find lots of reasons to request bloodwork.

Good luck,

[ ] Re: six questions - at least!

,

I am glad to hear you say that one doesn't have to do testing while

chelating. I'm finding it very difficult to get a urine specimum, my

DAN doc wants urine and blood tests about once per month; blood tests

are a nightmare, too, as my kids are only 2. So what kind and how

often would you recommend monitoring them? -

> >

> >

> > > > 4- How to test for metals while chelating,

hair/blood/urine/stool,

> > > > which labs, prices??

> > >

> > > DDI hair test

> > >

> >

> > Why test hair? While chelating, aren't we supposed to test every

> > month? Can hair grow fast enough to be of use? What about the

> > porphyrine urine test? I've heard that it's the very best test to

use

> > (And I wonder why DAN docs aren't recommending it).

> >

> > -

> >

>

[Guest guest]

Thank you for the specificity - helps a lot. From what I am reading,

this possibility is shaping up.

DMPS alone followed (weeks/months later) by DMPS + ALA.

DMPS alone to be given every 8 hours. Perhaps 5 days on 9 off...

Sound reasonable so far?

Will have to learn more about supplement support. Liver life seems

important.

[Guest guest]

Gosh , I really agree that the cost/benefit of bloodwork is not

there regarding metals. Not enough of an upside. But maybe if you're

chelating, it's liver function or something like this that concerns

your doctor. I would try and get as clear as possible on the

priorities, the biggest risk area, and then determine the most humane

way to ascertain the info. I am probably telling you stuff you

already know!

[Guest guest]

,

I sure hope to see my child improve after we start. Sounds like

you've seen behavioral improvement that you credited to chelation?

[Guest guest]

Thank you. Looks like you've spent a lot of time on your site. How

nice of you.