Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Hi BMK, Welcome to the wonderful world of LDN! Here is some information about treating MS with LDN and other modalities that may be of help to you: http://tinyurl.com/grpm9 With best wishes for the New Year, Dudley Delany dudley_delany [low dose naltrexone] New to LDN, things are going well. Hi to all. I've been reading your posts for many months and researching LDN. I was diagnosed with RRMS in Sept of 2006. I'm male, 43 years old. Symptoms were numbness, tingling and heaviness in legs and arms, balance issues, tripping, etc. MRI showed 4-5 lesions. My brother has MS and is in tough shape, my mother also has MS and does ok. I started Rebif right away and was on it for one year. During that year I didn't feel good, no energy, etc. I also felt I was progressively getting worse. I wanted to start LDN sooner but felt I needed to try Rebif for a year and get an MRI and see what the results were. I had my MRI in October and before getting the results I started on LDN because I knew I was getting worse. My MRI results showed that I now had 6 � 7 lesions. I started on 3mg of LDN for 2 weeks. The first night I had to get up and go to the bathroom and I walked in a straight line to the bathroom without waddling or swaying back and forth. I haven't been able to do this for years during the middle of the night or morning. After two weeks on 3mg of LDN I went to 4.5mg. I have been on 4.5mg now for 6 weeks. It is still real early and hard to judge my symptoms but I can tell you this. I now sleep through the night almost every night without having to get up to go to the bathroom. I have a general sense of well being that wasn't there before. (Is this do to the LDN or just from not taking the Rebif??) I have a lot more energy, I'm even remodeling my bathroom. A year ago I never would have tried this. My balance is better. I sense my numbness and heaviness feeling is getting better. Many times I felt really hot and had to sit in front of a fan to stay cool. I haven't had to do this since starting the LDN � might have to do with the Minnesota winters! I used to go to work and come home and lay on the couch. Now I come home and do other things. My mind seems to be a little sharper/clearer. When going off the Rebif and prior to starting the LDN I was having multiple muscle twitches/shocks many times per day (I had these when first diagnosed also). This is now at a minimum, a couple of twitches per day, mostly at night. Best of all, I haven't noticed/felt any progression in the last 2 months. My brother also started LDN a few months ago, but hasn't seen any symptom improvement. My focus for the next year will be changing my diet to follow the Best Bet Diet or a variation of it. I welcome any recommendations you have on this topic. Thanks for all the info your posts have provided. Let me know if I can help in any way. bmk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Freinds And list members..... I have had a diagnosis in 1997 after diaging myself after researching my brother's case and found out that MS run's in my family.. I finaly found a doctor to give me a rx for LDN starting at 3mgs and after qne month some one in this group suggested to go up to 4.5mgs and it is working great for me.. d zbmk1234 <zbmk1234@...> wrote: Hi to all.I've been reading your posts for many months and researching LDN.I was diagnosed with RRMS in Sept of 2006. I'm male, 43 years old. Symptoms were numbness, tingling and heaviness in legs and arms, balance issues, tripping, etc. MRI showed 4-5 lesions. My brother has MS and is in tough shape, my mother also has MS and does ok.I started Rebif right away and was on it for one year. During that year I didn't feel good, no energy, etc. I also felt I was progressively getting worse. I wanted to start LDN sooner but felt I needed to try Rebif for a year and get an MRI and see what the results were. I had my MRI in October and before getting the results I started on LDN because I knew I was getting worse. My MRI results showed that I now had 6 – 7 lesions.I started on 3mg of LDN for 2 weeks. The first night I had to get up and go to the bathroom and I walked in a straight line to the bathroom without waddling or swaying back and forth. I haven't been able to do this for years during the middle of the night or morning.After two weeks on 3mg of LDN I went to 4.5mg. I have been on 4.5mg now for 6 weeks. It is still real early and hard to judge my symptoms but I can tell you this.I now sleep through the night almost every night without having to get up to go to the bathroom.I have a general sense of well being that wasn't there before. (Is this do to the LDN or just from not taking the Rebif??)I have a lot more energy, I'm even remodeling my bathroom. A year ago I never would have tried this.My balance is better.I sense my numbness and heaviness feeling is getting better.Many times I felt really hot and had to sit in front of a fan to stay cool. I haven't had to do this since starting the LDN – might have to do with the Minnesota winters!I used to go to work and come home and lay on the couch. Now I come home and do other things.My mind seems to be a little sharper/clearer.When going off the Rebif and prior to starting the LDN I was having multiple muscle twitches/shocks many times per day (I had these when first diagnosed also). This is now at a minimum, a couple of twitches per day, mostly at night.Best of all, I haven't noticed/felt any progression in the last 2 months.My brother also started LDN a few months ago, but hasn't seen any symptom improvement.My focus for the next year will be changing my diet to follow the Best Bet Diet or a variation of it. I welcome any recommendations you have on this topic.Thanks for all the info your posts have provided. Let me know if I can help in any way.bmk Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Hi BMK, I tried to forward some information to you, but the e-mails keep returning. Would you be so kind as to e-mail me privately with an e-mail address that will make it to your directly. I like to send things out right to private e-mails so that I don't clog up the chat site with the same information over and over again. I hope that you will be getting a follow up MRI later and that you have or can get copies of your earlier MRI reports. We are going to send out a questionnaire regarding MRI's and how they change before and after using LDN. Thanks so much Aletha Aletha@... [low dose naltrexone] New to LDN, things are going well. Hi to all.I've been reading your posts for many months and researching LDN.I was diagnosed with RRMS in Sept of 2006. I'm male, 43 years old. Symptoms were numbness, tingling and heaviness in legs and arms, balance issues, tripping, etc. MRI showed 4-5 lesions. My brother has MS and is in tough shape, my mother also has MS and does ok.I started Rebif right away and was on it for one year. During that year I didn't feel good, no energy, etc. I also felt I was progressively getting worse. I wanted to start LDN sooner but felt I needed to try Rebif for a year and get an MRI and see what the results were. I had my MRI in October and before getting the results I started on LDN because I knew I was getting worse. My MRI results showed that I now had 6 – 7 lesions.I started on 3mg of LDN for 2 weeks. The first night I had to get up and go to the bathroom and I walked in a straight line to the bathroom without waddling or swaying back and forth. I haven't been able to do this for years during the middle of the night or morning.After two weeks on 3mg of LDN I went to 4.5mg. I have been on 4.5mg now for 6 weeks. It is still real early and hard to judge my symptoms but I can tell you this.I now sleep through the night almost every night without having to get up to go to the bathroom.I have a general sense of well being that wasn't there before. (Is this do to the LDN or just from not taking the Rebif??)I have a lot more energy, I'm even remodeling my bathroom. A year ago I never would have tried this.My balance is better.I sense my numbness and heaviness feeling is getting better.Many times I felt really hot and had to sit in front of a fan to stay cool. I haven't had to do this since starting the LDN – might have to do with the Minnesota winters!I used to go to work and come home and lay on the couch. Now I come home and do other things.My mind seems to be a little sharper/clearer.When going off the Rebif and prior to starting the LDN I was having multiple muscle twitches/shocks many times per day (I had these when first diagnosed also). This is now at a minimum, a couple of twitches per day, mostly at night.Best of all, I haven't noticed/felt any progression in the last 2 months.My brother also started LDN a few months ago, but hasn't seen any symptom improvement.My focus for the next year will be changing my diet to follow the Best Bet Diet or a variation of it. I welcome any recommendations you have on this topic.Thanks for all the info your posts have provided. Let me know if I can help in any way.bmk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 , you post did not come through. Could you resend it to the group? Thanks Aletha Re: [low dose naltrexone] New to LDN, things are going well. Freinds And list members..... I have had a diagnosis in 1997 after diaging myself after researching my brother's case and found out that MS run's in my family.. I finaly found a doctor to give me a rx for LDN starting at 3mgs and after qne month some one in this group suggested to go up to 4.5mgs and it is working great for me.. d zbmk1234 <zbmk1234 > wrote: Hi to all.I've been reading your posts for many months and researching LDN.I was diagnosed with RRMS in Sept of 2006. I'm male, 43 years old. Symptoms were numbness, tingling and heaviness in legs and arms, balance issues, tripping, etc. MRI showed 4-5 lesions. My brother has MS and is in tough shape, my mother also has MS and does ok.I started Rebif right away and was on it for one year. During that year I didn't feel good, no energy, etc. I also felt I was progressively getting worse. I wanted to start LDN sooner but felt I needed to try Rebif for a year and get an MRI and see what the results were. I had my MRI in October and before getting the results I started on LDN because I knew I was getting worse. My MRI results showed that I now had 6 – 7 lesions.I started on 3mg of LDN for 2 weeks. The first night I had to get up and go to the bathroom and I walked in a straight line to the bathroom without waddling or swaying back and forth. I haven't been able to do this for years during the middle of the night or morning.After two weeks on 3mg of LDN I went to 4.5mg. I have been on 4.5mg now for 6 weeks. It is still real early and hard to judge my symptoms but I can tell you this.I now sleep through the night almost every night without having to get up to go to the bathroom.I have a general sense of well being that wasn't there before. (Is this do to the LDN or just from not taking the Rebif??)I have a lot more energy, I'm even remodeling my bathroom. A year ago I never would have tried this.My balance is better.I sense my numbness and heaviness feeling is getting better.Many times I felt really hot and had to sit in front of a fan to stay cool. I haven't had to do this since starting the LDN – might have to do with the Minnesota winters!I used to go to work and come home and lay on the couch. Now I come home and do other things.My mind seems to be a little sharper/clearer.When going off the Rebif and prior to starting the LDN I was having multiple muscle twitches/shocks many times per day (I had these when first diagnosed also). This is now at a minimum, a couple of twitches per day, mostly at night.Best of all, I haven't noticed/felt any progression in the last 2 months.My brother also started LDN a few months ago, but hasn't seen any symptom improvement.My focus for the next year will be changing my diet to follow the Best Bet Diet or a variation of it. I welcome any recommendations you have on this topic.Thanks for all the info your posts have provided. Let me know if I can help in any way.bmk Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
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