Seizures?

[Guest guest]

HI there,

We have been experiencing petite seizures with our son, he is 4

1/2. We just met with our DAN Dr. today and I was excited to hear

that she is going to support us using Andy's chelation protocol. My

question is if there is anyone out there that their child has

experienced petite seizures and if so did you experience worse or

more seizures once you started chelation? Our DAN said it is very

possible that this will happen, and they terrify me. She also said

that if he does have a gran mal that we should go to the ER and

proceed with medication. She said that every seizure causes damage

to the brain. We have also been working with some brain specialists

over the past couple of years and they tell me that seizures are

like a fever (a release). I have also heard that it could be

neurological movement. I have read some EEG nightmares and I don't

even know if we could get our son to fall asleep in an odd place.

Just wanted to see what others had experienced and would love to

hear if anyone has been through anything like this.

Thanks so much.

Darci

[Guest guest]

If you read about Epilepsy--- DMG, L-Carnitine, L-Tyrosine, Magnesium,

Selenium, Taurine,The B Vitamin, enzymes, ,Zinc, Quercetin are all

going to help. With my son supplements made seizures a non issue.

Prescription for Nutritional Healing ( Balch) book also says NutraSweet

may be associated with seizures - Toxic agents such as Aluminum and

lead may also contribute to this problem- so do start chelating.

One last thing I wanted to say I am so sorry your son is so sick-

These crimes against our children should not go unpunished- it makes me

sick to think today some children's lives are going to be ruined so

people have the money to buy a big house or yacht or travel the world.

http://www.nutrition4health.org/NOHAnews/NNW95Excitoxins.htm

http://www.lotusbirth.com/doc/FEB2003Lotusbirth-536.htm

My 2 cents Ann

[Guest guest]

gotta agree with you there Bernie.

I think heavy metal toxicity plays a lot into that too. Basically

there is always a reason or a cause. I had severe migraines for two

years that did not let up no matter what drug they gave me. Turns

out I finally went to a chiropracter who fixed my neck..no more

migraines. But yes..always a reason. One would say " why is this

child getting migrains? " It's not like it's a cold which you would

expect a child to get. No offense intended here, just venting about

how ridiculous these neuro docs can be. Mine put me in the hosptial

twice with the meds'she prescribed. But my headaches had a reason,

totally different from what they thought.

>

>

> well we finally went to the neuro last week and he told us they are

> childhood

> migraines and that the sleeping and vomiting are typical of

those. he

> gave

> us imitrex for Hunter.

> Carol G

> ******

> Sounds like what they say when they don't know what they are

> talking about. Just childhood migraines, get serious. Seizures

and

> migraines have causes, and the causes are pretty well known and

> documented. Mostly essential mineral and essential fatty acid

> imbalances.

> Vitamin Research News for one had some good articles on this.

> www.vrp.com

> Also Great Smokies did, search " news " at www.gsdl.com

> They mostly get better when you determine the imbalances and

supplement

> them.

> Bernie

>

[Guest guest]

I just want to say your doctor is wrong about " every seizure causes

brain damage " . Seizures do intefere with learning. But only very

severe long lasting seizures, or seizures that are small but

continuos (small seizure every few seconds) could cause brain damage.

Having a few small seizures will not cause brain damage.

When my son was 2 years old he was in convulsive status in ICU. This

means he was in a very hard continuos seizure with out let up for

days. He couldnt sit up, he just layed there in bed 24 hours a day

seizing. After we managed to get them to stop with ACTH, He showed no

signs of brain damage, That we could see. He is severe/profoundly

disabled to begin with.

Children who are " normal " and develop Lennox Gastaut(severe seizures)

Most of these children will ultimately become mentally retarded and

dependent on others for their daily care. These kids have very

serious uncontrolable seizures.

Any seizure can trigger Status Epilepitcus which is an emergency. If

your child has small seizures and they are coming closer together,

one after the other(20 in 5 minutes), or a tonic clonic I would take

him to the ER. Im not sure if you know this, But most children who

have seizures, most will be affected upon awakening in the morning.

When you chelate, I would watch him very closely especially upon

awakening. Im not sure if your son is on seizure medication?

Some neuros will prescribe medication for sleep EEG's.

My sons seizures are only controlled by using a benzodiazepine

everyday( Benzodiazepine is a drug class that they use in the ER for

people who have uncontrollable seizures)

The GABAA Receptor is affected in (some)mercury poisoned indviduals.

I ask one of the mercury experts who did a study on

GABAA/Benzodiazpine recptor and how mercury intferes with this a

question, here is his reply.

Is benzodiazepine something that is normally found in the brain?

No. Benzodiazepine refers to a type of drug. Nitrazapam, in your

son's case ,is the benzodiazepine. There ARE however, sites in the

brain where the benzodiazepine drugs act. Those sites are physically

located on the receptor for GABA (GABAA). As such, these sites are

referred to as " benzodiapine receptors " , or " benzodiapepine sites " .

Does mercury reduce the benozodiazpine or the GABAA? Mercury reduces

the function of GABAA receptors. These receptors are important in

maintaining a " calming action " on brain neurons. So, this is the

reason why your sons' neurologist prescribed Nitrazepam. It " calms "

the excitable neurons which cause the seizures. It does this by

acting at this special site- " benzodiapine receptor " on the GABAA

receptor.

Good Luck.

Donna

>

> HI there,

>

> We have been experiencing petite seizures with our son, he is 4

> 1/2. We just met with our DAN Dr. today and I was excited to hear

> that she is going to support us using Andy's chelation protocol.

My

> question is if there is anyone out there that their child has

> experienced petite seizures and if so did you experience worse or

> more seizures once you started chelation? Our DAN said it is very

> possible that this will happen, and they terrify me. She also said

> that if he does have a gran mal that we should go to the ER and

> proceed with medication. She said that every seizure causes damage

> to the brain. We have also been working with some brain

specialists

> over the past couple of years and they tell me that seizures are

> like a fever (a release). I have also heard that it could be

> neurological movement. I have read some EEG nightmares and I don't

> even know if we could get our son to fall asleep in an odd place.

> Just wanted to see what others had experienced and would love to

> hear if anyone has been through anything like this.

>

> Thanks so much.

>

> Darci

>

[Guest guest]

Was he well at the time or running a fever? The seizure could be caused by

fever if he was sick. The enzymes shouldn't cause a seizure. And I think in some

kids it has helped to prevent them. Someone else will have more info.

HTH

Rhonda in CA

[Guest guest]

Thanks for the response! No illness or fever. We were playing at the

park when it happened, but he hadn't hit his head or anything. Just

all of a sudden he couldn't stand up, kept collapsing down to the left,

and then the seizure started.

>

> Was he well at the time or running a fever? The seizure could be

caused by

> fever if he was sick. >

>

>

[Guest guest]

Thanks again Rhonda! He actually had the EEG yesterday morning - the

ped wanted it done right away but that was the soonest they could

schedule. It did show abnormal seizure activity in his brain. At this

point they just want us to wait and see if he has more - very hard to

wait since it kind of seems like waiting for a bomb to drop. His would

be considered a tonic-clonic seizure - I just wish they could tell us

his chances of having more but I guess they really can't.

>

> Seizures can be confusing as well as scary. It's good that he's

getting an

> EEG done soon. >

>

>

>

[Guest guest]

Hi !

My dd hasn't been diagnosed as autistic, but she was

diagnosed last year with Landau-Kleffner Syndrome; a rare epilepsy. We

had noticed that after drinking milk she tended to get " spacy " . I

found this group and definitely thought food was a problem for her.

She was on enzymes for about a year prior to her diagnosis and we

wanted to see what, if any, effect they were having. Soon after we

took her off enzymes is when she had her first TC seizure. When she

got her EEG done, they immediately admitted her to the hospital; even

though she was not having ANY outward seizures, they were clearly

happening on the EEG. LKS can only be diagnosed with at least a 24

hour EEG (or a sleep deprived EEG) since most seizure activity with

these children happen at night while they are sleeping. She has been

on 2 different AED's, one(Lamictal) with VERY adverse side effects;

she completely " lost " all of her language capabilities other than

" mama " and her seizure activity increased threefold! Over Easter

weekend we had a hospital stay to get steroid treatment to help regain

her language and hopefully stop the seizure activity. Since then she

is back on enzymes and DMG, off the Lamictal, and currently on

Prednisone and Depakote. We haven't seen any seizure activity and she

has been slowly regaining her language. As far as the wait and see

approach.. we've had this problem with our ped as well. The chance of

having a seizure again are most likely. Though some kids do have

seizures because of dehydration and many other things. Some things to

look out for are rapid eye-blinking and staring spells, since those

are classified as abscence or petite-mal seizures. I would definitely

keep on the ped about another EEG just to make sure the seizures don't

cause any damage. If you have any other questions about seizures, feel

free to send me an email!

> >

> > Seizures can be confusing as well as scary. It's good that he's

> getting an

> > EEG done soon. >

> >

> >

> >

[Guest guest]

> > >

> > > Seizures can be confusing as well as scary. It's good that he's

> > getting an

> > > EEG done soon. >

> > >

> > >

> > >

[Guest guest]

My son had severe irretractable seizures for years. He has been on

countless medications ... and in fact is on both Lamictal and Topamax

even still ... However even with those two medications ...

continued to have up to thirty absent type seizures a day. No

more... They are gone.

With the interduction of the GFCF diet ... and the removal of

countless other foods like soy, eggs, corn, tuna, yeast, apples,

cinnanmon, celery, yeast, sugar ...and countless other things ...

And with the addition of B-12,folinic acid, biotin, histidine,

methionine, b50 complex ...zinc, taurine, calcium, magnesium ... and

several others ... and with the addition of enzymes ... His seizures

are now gone. His EEG has stabilized and they are actually talking

about starting to wean his meds.

There is hope ... My 14 year old son is living proof. We have used

every seizure med known to mankind. Just last year they were talking

about putting him on a third medication ... but I wouldn't allow

it ... I told them I'd rather have a child with seizures than one

that was spaced out...

We are also attacking the viruses and gut issues. He is on high dose

Vitamin C (2000 mg ... a day)... He also takes Virastop ... and is

also doing chelation.

Hope things improve for you as well.

Melinda

> > > >

> > > > Seizures can be confusing as well as scary. It's good that

he's

> > > getting an

> > > > EEG done soon. >

> > > >

> > > >

> > > >

[Guest guest]

Hello,

I'm no expert, just a mom, but did you ever have your sons urine

checked for yeast? I think seizures and yeast growth can be

coorlated. Read more at:

http://www.greatplainslaboratory.com/russian/autisminterview.html

[Guest guest]

Excellent article!!!

Thank you

Robin Neudorfer

http://rednews5.blogspot.com

[Guest guest]

> > >

> > > Seizures can be confusing as well as scary. It's good that he's

> > getting an

> > > EEG done soon. >

> > >

> > >

> > >

[Guest guest]

> > >

> > > Seizures can be confusing as well as scary. It's good that

he's

> > getting an

> > > EEG done soon. >

> > >

> > >

> > >

[Guest guest]

,

I am going to butt in on this too and add my 3 cents... Wait and see

is a bad idea. My son has years of seizure history. I really don't

know what doctor would advise that approach ... especially when your

EEG is bad. My son's was essentially normal ... and yet he has had

hundreds of well documented seizures through the years. He had

unusual spikes and spokes... but no epileptic waves ... and yet he

has seizures...

When have been to many neurologist through the years (we move alot..

military family) and they have all said the same thing. It is

essential to get seizure activity under control because with each

seizure a child has ... the more likely another seizure is to happen.

It in effect lowers the child's threshold for having one. Your

child's seizures need to be treated ... I'd highly suggest you get a

second opinion on this... check out another neurologist.

Seizures are said to be harmless ... but yet they can and do cause

children and adults alike to be harmed by them evey year. Our son

received a serious gash to his head when he fell straight back

landing onto concrete when going into a seizure out of the blue at

the zoo one day.

I am amazed that any doctor would take the wait and see approach with

a bad EEG. I know with febrile seizures they do that. My ASD son

has seizures. My NT daughter had only febrile seizures. And in

fact they took the wait and see approach with her ...and she outgrew

them. But those seizures are quite different. They are only caused

by the rapid rise of body temperature due to an infection ... and as

children get older, generally these types quit ...(typically by 5 ...

sometimes a bit older)...

My son takes both Lamictal and Topamax... they have been good drugs

for him. He is probably going to be able to be weaned off of them

this next year. Since removing all of his food allergens (a whole

slew of them!) and treating his nutritional deficents ... and adding

in missing amino acids ... his seizures have gone away entirely...

Melinda

> > > >

> > > > Seizures can be confusing as well as scary. It's good that

> he's

> > > getting an

> > > > EEG done soon. >

> > > >

> > > >

> > > >