Re: Does anyone else have this problem with autism?

June 21, 2006

-Please bear in mind that I am not an expert here but his irrational

behavior and consumption of food sound like a yeast issue. What type

of diet is he on? Do you use probiotics for him or any yeast control

measures? Most of us here, are using diet and supplements to help

our kids. We are also chelating them for heavy metals. If you are

new to this group I recommend reading all the files information that

you can. It has tons of useful information on heavy metals with

autism and on diet, yeast/gut issues. The way you describe things is

that this has not always been how your son acts? Correct. Much of

this behavior is new or has gotten worse? If so, I would likely

suspect yeast or viral issues. Has he ever has a hair elements test

for DDI? Please give us detail as to the interventions already tried

or currently being used. Any vitamin/mineral supplements, diet,

digestive aids, etc. Anything will be helpful.

-- In , Ajerseygirl52@... wrote:

>

> my 17 year old son devours food, even though he eats like

a hollow

> log! We have 4 'situations' right now, and I don't know what to

do about. So

> now I am coming here and asking the professionals (other people

who interact

> and know about life with autism!). 1). 's self stim

behavior is going

> thru the roof lately, and so is his self-abusive behavior.

Someone suggested

> talking with his doctor about it and maybe he could start a

medicine to

> reduce it? Does anyone know of a medicine that will reduce self

stim behavior

> (hands flapping, moaning, groaning, tip toe walking, etc.) and

self- abusive

> behavior (smacking himself in the head or jaw with a fist, or

slamming his head

> into a wall)? Also has anyone heard of a medicine (unsure of how

given) to

> reduce autism traits? 2). His eating habits. I understand he

isn't a little kid

> anymore, but this child gets up and literally will eat a whatever

he can

> open and eat (container of chocolate fudge pre-made icing, a 1/2

container of

> sliced yellow American cheese, a full box of graham crackers and

a 4 pack of

> Sam's Choice flavored water...all in one night). I put one of

those alarms on

> the fridge that makes sounds when you open it, but he has killed

5 of them,

> and they don't work to prevent him from doing it anymore. Any

suggestions on

> how to keep this person out of food would be greatly appreciated.

I have even

> tried to hide food in the fridge and bathroom closet and it

doesn't work. He

> sneaks in there while we are asleep and gets it. 3). His

aggression towards

> other people. He doesn't want to listen when we give him requests

and commands.

> I am sorry but he doesn't need to stare down people and be rude

when in

> public. He does it at home too with us, but now it's beginning to

be a problem

> with his siblings and especially when we are out in public. I

don't know what

> to do. 4). The last.....He has a wall around him and he won't let

anyone new

> in. What I mean by that, he doesn't tolerate time with anyone

other then his

> family and I want him to branch out and interact with other

people and he has

> no interest in it. He has a mentor (a guy his case manger at his

doctor's

> office assigned him too that does activities with) and he has no

part of him

> anytime he sees him. Any suggestions?

>

> Thank you for reading the book, and any suggestions and advice

would be

> totally appreciated!

>

> Hugs & Happiness,

> Sue...

>

> (http://www.tickerfactory.com/)

>

> (http://www.tickerfactory.com/)

>

> (http://www.tickerfactory.com/)

>

> (http://www.tickerfactory.com/)

>

> (http://www.tickerfactory.com/)

>

June 22, 2006

Wow, Lois, that sounds encouraging! Pat K

June 22, 2006

Sue,

My JJ is 18 andwas a lot like your son but we just started him on the Menth B12 shots (Every other day) and He is 50% more calmer! He is saying more words and the BEST part............His agression is about 75% less!! Lois

Does anyone else have this problem with autism?

my 17 year old son devours food, even though he eats like a hollow log! We have 4 'situations' right now, and I don't know what to do about. So now I am coming here and asking the professionals (other people who interact and know about life with autism!). 1). 's self stim behavior is going thru the roof lately, and so is his self-abusive behavior. Someone suggested talking with his doctor about it and maybe he could start a medicine to reduce it? Does anyone know of a medicine that will reduce self stim behavior (hands flapping, moaning, groaning, tip toe walking, etc.) and self- abusive behavior (smacking himself in the head or jaw with a fist, or slamming his head into a wall)? Also has anyone heard of a medicine (unsure of how given) to reduce autism traits? 2). His eating habits. I understand he isn't a little kid anymore, but this child gets up and literally will eat a whatever he can open and eat (container of chocolate fudge pre-made icing, a 1/2 container of sliced yellow American cheese, a full box of graham crackers and a 4 pack of Sam's Choice flavored water...all in one night). I put one of those alarms on the fridge that makes sounds when you open it, but he has killed 5 of them, and they don't work to prevent him from doing it anymore. Any suggestions on how to keep this person out of food would be greatly appreciated. I have even tried to hide food in the fridge and bathroom closet and it doesn't work. He sneaks in there while we are asleep and gets it. 3). His aggression towards other people. He doesn't want to listen when we give him requests and commands. I am sorry but he doesn't need to stare down people and be rude when in public. He does it at home too with us, but now it's beginning to be a problem with his siblings and especially when we are out in public. I don't know what to do. 4). The last.....He has a wall around him and he won't let anyone new in. What I mean by that, he doesn't tolerate time with anyone other then his family and I want him to branch out and interact with other people and he has no interest in it. He has a mentor (a guy his case manger at his doctor's office assigned him too that does activities with) and he has no part of him anytime he sees him. Any suggestions?

Thank you for reading the book, and any suggestions and advice would be totally appreciated!

Hugs & Happiness,Sue...

June 22, 2006

Wow, Sue, although your son is 17, it sounds like my describing my 10 year old in so many ways! I know exactly what you're going through and though I don't have the "answers" I do have some thoughts I'll share... My son also DEVOURS every food item he can think of. There are mornings I get up at 7 am and he's already sitting in the living room watching tv eating a balogna sandwich, then he'll immediatly want eggs (I fix him two and he swears he's starving) not to mention the toast or whatever else I've fixed. It's literally gotten to the point where I have to tell him precisely what times he can eat, i.e. for breakfast, lunch and supper. I factor in snacks, because someone once told me how she had started giving her son a "little" something (a few crackers and peanut butter, a slim jim, etc.) every two hours and that cut down immenseley on behavior issues. It has something to do with low blood sugar,

though we haven't had that tested. I don't know about it though, so I can't say. My son's self-stimming has also increased immensely, but I think it has something to do with his meds. He was just put on 20 mg of Prozac in the morning and 20 mg of Geodon at night, and now instead of sleeping for at least 8 hours, he's getting to sleep between 11 pm and midnight and getting up between 5-6 am. Before being put on prescription meds, I was giving him melatonin about 2 hours before bedtime and he'd be asleep at 9 and sometimes I'd have to get him up at 8 in the morning. Even he's said something about this geodon not working and he doesn't want to take it, blah blah, lol. But aside from that, he seems more scatterbrained (for lack of a better word) and much more stimming, and his conversation skills are lacking much more. As far as a med that reduces self-stim behaviors, I am getting ready

to ask my son's psych about Topamax (sp) because it works so well for a couple of friends who have children who self-abuse quite often. If I'm not mistaken, it's a seizure med, but I've been searching that out a lot lately as well, and have found that a LOT of autistics have a seizure disorder, but it's not the "falling down" type of seizure. I can't explain it in detail, but they say that it comes on in the puberty stage, and if left undetected and untreated, it can cause high-functioning autistics to become low functioning. I did have our ped do an EEG, but they only did it for 15 minutes, and I don't think that was long enough. I could write a whole different post on this, but I won't go there right now, lol. All I know is I'm going to ask the psych about Topamax and if that works, then I'll know. I think it's important to keep in mind though, that different meds affect kids in such different ways, it's almost impossible to suggest

something. My son was taking Abilify for almost a year, and did quite well on it (until gaining weight, then it was all downhill) so I suggested it to a friend and her son spent the first night and half the next day in the hospital foaming at the mouth, half paralyzed...it made me feel awful for even saying how well my son had done on it! A lesson learned, however costly. I sure wish you the best, because I SOOOO know how you feel. Of course, my son isn't that old, but he's 10, 160 lbs and 5'4" tall. It can really be something! Stacey~

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June 22, 2006

Lois, That's absolutely awesome! I use to give my son B vitamins, blue green algae and magnesium and he was great. Then he got older and bigger and it just stopped working. Are the injections more poten than the oral dosages? And how are they administered? In the ped's office? Sorry, just some ??'s. Stacey~

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June 22, 2006

I can totally relate to your situation. I have a 19 year old son with moderate autism, non-verbal, among other dx's and he shovels food into his mouth, not bothering to chew it more than twice before he swallows. He is also self- abusive to the point he caused a large hematoma (gooseegg) last October. He is taking Naltrexone for the self-abusive behaviors now and so far it's working. He also wears a padded helmet which I hate but it prevents further injury to his head, well that is except for his ears. One day he's going to have cauliflower ears like a boxers. He will get up in the middle of the night and eat whatever he can find as long as its something he likes and if he can't find something then he used to wander off outside. We had to install double keyed dead bolts on front and back doors to prevent escaping. As for the fridge if all else fails you might consider using a length of chain and a padlock at night. Not sure what to do about the stuff in the cupboard

however. Andy finally went with his direct care provider today but he was mad at her all of last week because she had to take off so she could move. I was so relieved because both he and I needed the break from each other even if it was for only 3 hours. Feel free to e-mail me privately if you want. Ajerseygirl52@... wrote: my 17 year old son devours food, even though he eats like a hollow log! We have 4 'situations' right now, and I don't know

what to do about. So now I am coming here and asking the professionals (other people who interact and know about life with autism!). 1). 's self stim behavior is going thru the roof lately, and so is his self-abusive behavior. Someone suggested talking with his doctor about it and maybe he could start a medicine to reduce it? Does anyone know of a medicine that will reduce self stim behavior (hands flapping, moaning, groaning, tip toe walking, etc.) and self- abusive behavior (smacking himself in the head or jaw with a fist, or slamming his head into a wall)? Also has anyone heard of a medicine (unsure of how given) to reduce autism traits? 2). His eating habits. I understand he isn't a little kid anymore, but this child gets up and literally will eat a whatever he can open and eat (container of chocolate fudge pre-made icing, a 1/2 container of sliced yellow American cheese, a full box of graham crackers and a 4 pack of Sam's

Choice flavored water...all in one night). I put one of those alarms on the fridge that makes sounds when you open it, but he has killed 5 of them, and they don't work to prevent him from doing it anymore. Any suggestions on how to keep this person out of food would be greatly appreciated. I have even tried to hide food in the fridge and bathroom closet and it doesn't work. He sneaks in there while we are asleep and gets it. 3). His aggression towards other people. He doesn't want to listen when we give him requests and commands. I am sorry but he doesn't need to stare down people and be rude when in public. He does it at home too with us, but now it's beginning to be a problem with his siblings and especially when we are out in public. I don't know what to do. 4). The last.....He has a wall around him and he won't let anyone new in. What I mean by that, he doesn't tolerate time with anyone other then his family and I want him to branch out and

interact with other people and he has no interest in it. He has a mentor (a guy his case manger at his doctor's office assigned him too that does activities with) and he has no part of him anytime he sees him. Any suggestions? Thank you for reading the book, and any suggestions and advice would be totally appreciated! Hugs & Happiness,Sue...

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June 22, 2006

Kids tend to gorge themselves on foods that they don't tolerate. Doesn't make

sense but has been shown time and time again. When kids eat foods they don't

tolerate wild behaviors can occur, definitely. My son wasn't so bad but in the

beginning when he was 2 he would eat only milk and wheat products. I have foods

I don't tolerate as well and it makes me very irritable when I do eat them in

excess.

The easiest way to find out what he is intolerant of is to get a blood test.

It will show you exactly what you need to take out of his diet. Enzymes may

also help to a point where you maybe able to leave all foods in place.

www.enzymestuff.com is invaluable when it comes to anything enzyme related.

There is also an enzyme/autism group. There is a link to it on the

website. The owner of the enzymestuff website helps moderate the group and is a

fantastic woman.

When I took my son off dairy and wheat (gluten) the changes where huge and

most of that was behaviorally. I wouldn't rush to medicate. Those all have

potentially dangerous side effects and aren't curing anything only controlling

symptoms. This all sounds classic biomedically autism.

Are you giving any supplements? There are several that are really helpful

with these behaviors. Probiotics are good, especially if there is antibiotic

history. A really good multivitamin with higher levels of B6 I would really

suggest. DMG with folic acid and B12 along with such a multivitamin and the

diet where the first things I did with my son when he was diagnosed. We also

did a round of really good probiotics...broad spectrum as well as some colostrum

to heal his gut. That eliminated his stims.

Many of these kids have leaky guts that don't allow them to get the nutrition

out of their foods nomatter how much they eat. Good vitamin/mineral

supplementation at least while the gut is healing is very important.

Dana's website has a lot of great information about biomedical healing.

www.danasview.net is the site.

Was just reading about the head smacking. That so sounds like yeast. I get

yeast in my head and I swear I understand why kids do that. My inner ears itch

and I have to put my finger in my ears and wiggle them around to make it stop.

I get headaches and lot of pressure at times. Eliminating as much sugar as

possible would be most helpful. Lately I was using Red Bull to help with energy

levels while I was cleaning out my house...organizing for hurricane season and

garage sale!!... I realized I was getting really irritable, quick to

anger...almost wanted to pick a fight with anyone. So not like me!!! I am

about as easy going as it gets just about all of the time. Not at all

confrontational. I realized I had consumed a case of Red Bull in a short amount

of time as well as drinking other sugared drinks. I was also taking motrin for

headaches a lot. I stopped the sugar and added tons of grapefruitseed extract

and I am really starting to feel better now. I swear I

am never drinking that stuff like that again!!! Yeast flair ups can cause all

these symptoms and more. Especially the agressive behaviors and head banging.

The only other thing that I would suspect with that is chelation done

improperly. Redistribution of metals can cause this as well. If you are

chelating it is very important to follow good protocol.

Hope this helps some!!!

Jan <paxlforme@...> wrote: