Re: Sulfur intolerance? what can help?

August 18, 2006

An electrolyte solution with sulfur?? I'm curious what that is -

what form of sulfur was in it?

Obviously you don't want to use it.

Has she been tested for heavy metals? If she is toxic, then

chelation might eventually increase her tolerance of sulfur.

Depends on whether the symptoms are more due to heavy metals

being mobilized by sulfur and causing symptoms, or a genetic

issue with sulfur metabolism, or some of each.

You might want to check her plasma cysteine to determine

appropriate use or restriction of sulfur foods and supplements.

--

>

> I introduced an electrolyte solution over a period of 3 days and may

> daughter was up all those nights for extended periods of time. I took

> it out and her sleep improved. IT has sulphur in it. I knew she had

> phenol issues, etc. Was not expecting this. WHy? What can I do to

> help her improve tolerance? And what are the implications of this

> metabolic difficulty? Jen

>

August 18, 2006

>

> I introduced an electrolyte solution over a period of 3 days

What were all the ingredients, and doses, in the electrolyte solution?

J

and may

> daughter was up all those nights for extended periods of time. I took

> it out and her sleep improved. IT has sulphur in it. I knew she had

> phenol issues, etc. Was not expecting this. WHy? What can I do to

> help her improve tolerance? And what are the implications of this

> metabolic difficulty? Jen

>

August 18, 2006

Thanks. It was KTS standard. It was chloride 77 mg, magnesium 14

mg, phosphorus 229 mg, potassium 137 mg and sodium 64 mg. All of

those were a variety of chloride forms, sulfate forms, phosphate

forms, and bicarbonates. It had distilled water, bicarbonate and

sulfur. I gave 1 tsp first dose, 2 tsp second dose, 2 tsp 3rd

dose. During the day her behaviors seemed fine, even moments of

exceptional, she did have these strange " biting behaviors " that

seemed to start up (she would do a playful, yet annoying biting -

kind of clenching her teeth on us in a silly way) and she had some

tantruming that seemed more intense. At night she was up all night,

talking, laughing, etc - almost yeasty or phenolic but her yeast has

been well controlled and the enzymes have helped with phenol

behaviors so I though it could be the sulfur. And then when I

stopped the sleep seemed immediately improved and slowly the biting

behavior seems to be decreasing too. Thanks for any information.

Wondering if I need to give her more sulfur because of this problem

or supplement to support this pathway or what????!!! We are not

chelating and wondering if she would even tolerate it since they are

all sulfur based (right??). Jen

> >

> > I introduced an electrolyte solution over a period of 3 days

>

> What were all the ingredients, and doses, in the electrolyte

solution?

>

> J

>

> and may

> > daughter was up all those nights for extended periods of time.

I took

> > it out and her sleep improved. IT has sulphur in it. I knew

she had

> > phenol issues, etc. Was not expecting this. WHy? What can I

do to

> > help her improve tolerance? And what are the implications of

this

> > metabolic difficulty? Jen

> >

>

August 18, 2006

We did test for heavy metals in blood and urine. I am not good at

intrepreting test results but from what our DAN said I assumed she

was toxic. Lead was most notable, showed up on her blood test

(toxic elements in red blood cells). However, she was excreting on

her test which I thought was interesting. She had tons of lead

coming out (in her urine) and that was without any chelation agents

or anything. (lead was in the yellow I believe, the middle column),

she was also dumping a little bit of mercury. She had antimony,

aresnic, bismuth, lead, copper, etc coming out in her stool - so

they are inthere but excreting -which is good right? Her metabolism

is really screwy, she has a very bad gut (yeast/bacteria). SHe has

low IgA, all the autoimmune issues. She ismineral deficient. She

is sensitive to everything - from having a reaction to eating an

apple to dumping ammonia in her urine 8 weeks into SCD (the diet is

heavy on protein and so even that is now toxic!). ON her serum

amino acid quantitation her cystine (not cysteine?? are they the

same??) was 55 with a reference of 54, it is flagged. So not sure

if that would actually be high or just indicate not being used

properly?? When I look at the graph her cystine looks low (or would

that be normal) she has big spikes on taurine and glutamine (huge

spike) and 2 AEC is huge spike, phosphoserine is flagged. Her

homocystine was low. I " ve never looked at that before really.

Anywya, guess that isa different conversation...Thanks! Jen

> >

> > I introduced an electrolyte solution over a period of 3 days and

may

> > daughter was up all those nights for extended periods of time.

I took

> > it out and her sleep improved. IT has sulphur in it. I knew

she had

> > phenol issues, etc. Was not expecting this. WHy? What can I

do to

> > help her improve tolerance? And what are the implications of

this

> > metabolic difficulty? Jen

> >

>

August 19, 2006

Jen,

Ingredients can be found here:

http://www.kt-solutions.com/Products/PeltierElectrolytes.html

It has some magnesium sulfate. I have heard of kids getting

hyper from epsom salt baths (magnesium sulfate), so this is

a possibility. I'm not sure if they are usually reacting to

the sulfate or the magnesium when this happens - maybe

someone else knows. Has she reacted to epsom salts before?

Kids with this problem may still benefit from epsom salts,

but have to start with very low doses (of epsom salts, not

the KTS Standard).

It also has " sulfur " listed in " other ingredients " . No

indication of what type or how much. This makes me a bit

more suspicious. If it is sulfur in a single thiol molecule,

that could cause a hyper reaction, too.

I don't know if a change in electrolyte balance could have

this effect. Maybe someone else knows.

The sulfur in chelators is different and will not cause

the same problems as long as it is given correctly (in low,

frequent doses according to the protocol described in the

FILES section).

--

> > >

> > > I introduced an electrolyte solution over a period of 3 days

> >

> > What were all the ingredients, and doses, in the electrolyte

> solution?

> >

> > J

> >

> > and may

> > > daughter was up all those nights for extended periods of time.

> I took

> > > it out and her sleep improved. IT has sulphur in it. I knew

> she had

> > > phenol issues, etc. Was not expecting this. WHy? What can I

> do to

> > > help her improve tolerance? And what are the implications of

> this

> > > metabolic difficulty? Jen

> > >

> >

>

August 19, 2006

>

> Thanks. It was KTS standard. It was chloride 77 mg, magnesium 14

> mg, phosphorus 229 mg, potassium 137 mg and sodium 64 mg. All of

> those were a variety of chloride forms, sulfate forms, phosphate

> forms, and bicarbonates. It had distilled water, bicarbonate and

> sulfur.

Any dye or flavorings?

Nell

August 19, 2006

>

> We did test for heavy metals in blood and urine. I am not good at

> intrepreting test results but from what our DAN said I assumed she

> was toxic. Lead was most notable, showed up on her blood test

> (toxic elements in red blood cells).

Could you figure out where the current exposure is from?

Nell

August 19, 2006

We do give her epsom salt baths. She does seem to have a reaction -

I think it is helping her process things out of her system - it is

kind of a hyperness as she is falling asleep - chatty, etc but then

she sleeps well through the night. Maybe kind of like when I give

her no-fenol or yeast treatments - when it is high (yeast) and I

give her the treatments she seems to get a rush of it as it dies-off

(so she may get stimmy during meals or something like that), does

that make sense. I haven't wanted to cut out the baths since it

hasn't disturbed her sleep. Thanks. Jen

> > > >

> > > > I introduced an electrolyte solution over a period of 3 days

> > >

> > > What were all the ingredients, and doses, in the electrolyte

> > solution?

> > >

> > > J

> > >

> > > and may

> > > > daughter was up all those nights for extended periods of

time.

> > I took

> > > > it out and her sleep improved. IT has sulphur in it. I

knew

> > she had

> > > > phenol issues, etc. Was not expecting this. WHy? What can

I

> > do to

> > > > help her improve tolerance? And what are the implications

of

> > this

> > > > metabolic difficulty? Jen

> > > >

> > >

> >

>

August 19, 2006

No dye or flavorings. Does anyone know of an electrolyte solution

without sulfur. I think she may benefit from the electrolytes. The

sulfur may be a bit much in that form anyway, for now. What do people

think of TTFD? It seems she may really need the sulfur if she is

reacting that way to it in a solution?? Thanks. Her mineral

absorption is so poor right now that I don't think I could chelate

her, her gut is really bad! Jen -

> >

> > Thanks. It was KTS standard. It was chloride 77 mg, magnesium

14

> > mg, phosphorus 229 mg, potassium 137 mg and sodium 64 mg. All of

> > those were a variety of chloride forms, sulfate forms, phosphate

> > forms, and bicarbonates. It had distilled water, bicarbonate and

> > sulfur.

>

> Any dye or flavorings?

>

> Nell

>

August 19, 2006

Sounds like the overall reaction to the baths is positive and you

are probably fine with the amount you are using. For some kids,

it is a more extreme hyperness and they have to start with a very

small amount of epsom salts.

The reaction to the electrolytes may be the other form of sulfur

in it. You can make your own electrolyte drinks (lots cheaper,

too). I found a recipe in the archives:

http://onibasu.com/archives/am/175936.html

I would use a good quality sea salt rather than ordinary table salt.

Potassium chloride is " salt substitute " that you can buy in most

grocery stores.

You can find other recipes with a google search.

--

> > > > >

> > > > > I introduced an electrolyte solution over a period of 3 days

> > > >

> > > > What were all the ingredients, and doses, in the electrolyte

> > > solution?

> > > >

> > > > J

> > > >

> > > > and may

> > > > > daughter was up all those nights for extended periods of

> time.

> > > I took

> > > > > it out and her sleep improved. IT has sulphur in it. I

> knew

> > > she had

> > > > > phenol issues, etc. Was not expecting this. WHy? What can

> I

> > > do to

> > > > > help her improve tolerance? And what are the implications

> of

> > > this

> > > > > metabolic difficulty? Jen

> > > > >

> > > >

> > >

> >

>

August 19, 2006

There is lots of discussion of TTFD in the archives. Here is

one post on the subject:

http://onibasu.com/archives/am/166644.html

--

> > >

> > > Thanks. It was KTS standard. It was chloride 77 mg, magnesium

> 14

> > > mg, phosphorus 229 mg, potassium 137 mg and sodium 64 mg. All of

> > > those were a variety of chloride forms, sulfate forms, phosphate

> > > forms, and bicarbonates. It had distilled water, bicarbonate and

> > > sulfur.

> >

> > Any dye or flavorings?

> >

> > Nell

> >

>

August 19, 2006

Hey Jen!

There is an SCD electrolyte solution recipe in the Pecanbread recipes

section. My kids drink it everyday.

Jeni Lynn

August 19, 2006

Thanks Jeni Lynn! I appreciate it. Talk to you later!! Jen

>

> Hey Jen!

>

> There is an SCD electrolyte solution recipe in the Pecanbread

recipes

> section. My kids drink it everyday.

>

> Jeni Lynn

>

August 19, 2006

Also, I found a couple waters at Whole Foods - one was Smart Water and

one was Essentia they both had electrolytes, anyone hear of these??

Jen

>

> Hey Jen!

>

> There is an SCD electrolyte solution recipe in the Pecanbread

recipes

> section. My kids drink it everyday.

>

> Jeni Lynn

>

August 23, 2006