Re: MB 12 -Other Benefits besides speech?

[Guest guest]

Wonderful! I've heard of jumps in pretend play with MB12, along with

increased interaction.

How much MB12 are you using?

On 8/19/06, misheemom <misheemom@...> wrote:

>

> Hi,

>

> We have two boys with ASD. Both are HF but also very loopy. Both

> take MB 12 in different fashions. I've had my 6 yo ds (asd) on mb12

> shots for about 4 months. We've seen some benefits, mostly subtle

> ones. His neuro developmental ped saw him yesterday (for 6 mon follow

> up). She commented on how well his sentence structure had improved...

>

> My 3 1/2 yo ds (ASD) has been on the Kirkmans MB 12 powder only for

> about 10 days...In that time, we've seen a lot more spontaneous 4 to 5

> word sentences. Today when I told him to get out of the kitchen, He

> called to me and said " I'm not in the " kicken " . First we almost fell

> off our chairs because he not only back talked, but he also told his

> first lie. (He was running away from the kitchen when he said it.)

>

> My husband who lets me take care of all the supplemental stuff

> actually commented on how much our son has increased with his

> sentences. When I asked him how long has he noticed this, he said

> mostly in the past week...

>

> I guess my question is: What are the other benefits of MB 12 other

> than speech?

>

> My ds#2 also has been potty trained with urinating for about 3months.

> He would never have a BM on the potty. He would never try. This

> past Tuesday, he sat on the potty and had a BM. He has continued to

> do so every day. We are ecstatic.

> We're just not sure if this another benefit of adding MB 12.

> Also, he had been taking a sublingual B 12 complex for the past 3

> months. We had never seen what seems like dramatic results....

>

> I mean we're thrilled either way, but any insight would be welcome...

> Thanks,

> in NJ

>

>

>

[Guest guest]

>

> Thank you, . Does folinic acid need to be added slowly? I

use 50mg

> Folic/50mg Folinic which probably is not enough.

>

My son needed quite a bit of folic acid, but you should always start

with a lower dose and work up. Do you use 50mg, or 50mcg? 50mg is

VERY HIGH, 50mcg would be much too low for most kids.

Dana

[Guest guest]

The neubrander site has a parent survey that is like, 8 pages long.

This is a list of what they have seen in benefits in some of the

kids. You might like to read it. www.drneubrander.com

What we got besides improved speech was a lot more curiosity

questions, more imagination, more awareness and increased

interest/ability to socialize. Also it helped my son's hypotonia

quite a bit.

HTH

Jen

>

> Hi,

>

> We have two boys with ASD. Both are HF but also very loopy. Both

> take MB 12 in different fashions. I've had my 6 yo ds (asd) on

mb12

> shots for about 4 months. We've seen some benefits, mostly subtle

> ones. His neuro developmental ped saw him yesterday (for 6 mon

follow

> up). She commented on how well his sentence structure had

improved...

>

> My 3 1/2 yo ds (ASD) has been on the Kirkmans MB 12 powder only for

> about 10 days...In that time, we've seen a lot more spontaneous 4

to 5

> word sentences. Today when I told him to get out of the kitchen,

He

> called to me and said " I'm not in the " kicken " . First we almost

fell

> off our chairs because he not only back talked, but he also told

his

> first lie. (He was running away from the kitchen when he said it.)

>

> My husband who lets me take care of all the supplemental stuff

> actually commented on how much our son has increased with his

> sentences. When I asked him how long has he noticed this, he said

> mostly in the past week...

>

> I guess my question is: What are the other benefits of MB 12

other

> than speech?

>

> My ds#2 also has been potty trained with urinating for about

3months.

> He would never have a BM on the potty. He would never try. This

> past Tuesday, he sat on the potty and had a BM. He has

continued to

> do so every day. We are ecstatic.

> We're just not sure if this another benefit of adding MB 12.

> Also, he had been taking a sublingual B 12 complex for the past 3

> months. We had never seen what seems like dramatic results....

>

> I mean we're thrilled either way, but any insight would be

welcome...

> Thanks,

> in NJ

>

[Guest guest]

Oh, yes, I mean 50mcg.

On 8/20/06, danasview <danasview@...> wrote:

>

>

> >

> > Thank you, . Does folinic acid need to be added slowly? I

> use 50mg

> > Folic/50mg Folinic which probably is not enough.

> >

>

> My son needed quite a bit of folic acid, but you should always start

> with a lower dose and work up. Do you use 50mg, or 50mcg? 50mg is

> VERY HIGH, 50mcg would be much too low for most kids.

>

> Dana

>

>

>

[Guest guest]

In a message dated 8/20/2006 12:25:42 AM Eastern Daylight Time,

mommy.boy@... writes:

Thank you, . Does folinic acid need to be added slowly? I use 50mg

Folic/50mg Folinic which probably is not enough.

My son weighs 49lbs and Dr. Neubrander has him taking 800 mcg of folinic a

day. Our shots have folinic in it, the nasal spray doesnt.

[Guest guest]

In a message dated 8/20/2006 10:23:02 PM Eastern Daylight Time,

misheemom@... writes:

My older son goes to Dr N's office also. Do you give the nasal spray?

Hopewell Pharmacy said my ins would cover it if the spray had folinic in it.

I'm tempted to call the doc's office and see if I could stat the folinic

first to see if there's any negatives.. If not, then have the office call

Hopewell and have them order the nasal spray with the folinic in it. As you

know

all these supps add up.

We got it without folinic because my son was having issues and we dropped

down to 400mcg for a while and worked back up to 800 mcg without issues. I

thought my insurance wasn't covering the spray because we were getting 2 forms

of the same medicine.

The supps do add up but luckily for us my in laws are footing the bill for

Dr. N and anything he prescribes. Both Dr. N and Hopewell have the inlaws

credit card on file (its in my name but off their account) so they pay, but I

get the receipts and they let us use them for our tax deductions.

[Guest guest]

In a message dated 8/20/2006 10:43:12 PM Eastern Daylight Time,

misheemom@... writes:

That could be true about the ins. They get weird about things like that.

What dose of folinic did you start with?

Did the nasal spray really make a noticable difference in your son?

We had originally started at 200mcg over 2 doses a day, worked up to 800,

then back down to 400. Now we're up to 800 again. I think the issues we had seen

were not from the folinic overall. The spray was great. We had done 12

weeks on the shots when we added the spray. From about week 2 of the shot until

we started the spray my son was up every night from 2am to 6am all set and

ready to go play for the day. You could set your clock by him. It was 2 am

every

night give or take 5 minutes. Around 6am he'd pass out and I'd wake him up

for school with no problem at 7:30 am. From the first day we gave him the

nasal spray he started sleeping through the night again. We saw more speech

and

more general awareness of what was around him. We saw the same horrible sleep

pattern when we went from every 3 day shots to high dose daily and after

about 3 weeks it resolved itself.

My son is starting to resist the spray. Now when I spray it he purposed

blows out his nose several times. At this point I have to wonder if its worth

even trying to continue it only because I doubt he's getting much of it

anymore.

[Guest guest]

In a message dated 8/20/2006 11:06:45 PM Eastern Daylight Time,

misheemom@... writes:

Was it mentioned to you that you can give the spray at night while your son

is sleeping? We see the PA at Dr N's office. She said as long as he was

on his side and not his back. That was ok. I had concerns that he wouldn't

let us give him the spray. He takes all his other supps very compliantly. I

was afraid he would put his foot down on this....So our plan was to give it

at night.

No they didn't but thanks for the tip!!! I'll try that tomorrow

[Guest guest]

I'm seeing a lot more awareness and appropriateness in DS#2's speech if that

makes sense. Today he was at his grandmother's house. I don't remember what

exactly transpired but he turned to her and said, " Good goin' ! Nanny! " He

doesn't even use that phrase. Normally it's one we use like " Good job " . I

don't recall anyone using " Good goin' " recently.

I think we're just amazed at what we're seeing with the MB -12 powder. Most

of the time you hear about this stuff with other people's kids... It's kind of

cool.

That parent survey you mention...We fill that out before we go to Dr N's

office. DS#1 is taking the shots...We saw some deeper thinking and more

comments the first round of shots...This time (the 3rd round) I thought the

positives were a little more mild than moderate... But now that you mention it,

DS#1 has been going around with his sunglasses on his head slanted covering only

one eye and covered by a tri-cornered hat saying " ARGHHH I'm a pirate...Last

week, he had a pull up on his head with a sock sticking out on either side of

the pull up and a dish towel tucked in his waist over his bottom like a tail.

He was on all fours barking like a dog.....So HIS imaginative play was in full

gear.

I'm glad you mentioned your results...Sometimes I think I'm looking for him to

start talking about the weather or something, but failed to notice the

imaginative play.

Thanks for your comments..

That's why I like this list so much. I can get help in putting things in

perspective.

in NJ

Clif Bate <cjbate@...> wrote:

The neubrander site has a parent survey that is like, 8 pages long.

This is a list of what they have seen in benefits in some of the

kids. You might like to read it. www.drneubrander.com

What we got besides improved speech was a lot more curiosity

questions, more imagination, more awareness and increased

interest/ability to socialize. Also it helped my son's hypotonia

quite a bit.

HTH

Jen

>

> Hi,

>

> We have two boys with ASD. Both are HF but also very loopy. Both

> take MB 12 in different fashions. I've had my 6 yo ds (asd) on

mb12

> shots for about 4 months. We've seen some benefits, mostly subtle

> ones. His neuro developmental ped saw him yesterday (for 6 mon

follow

> up). She commented on how well his sentence structure had

improved...

>

> My 3 1/2 yo ds (ASD) has been on the Kirkmans MB 12 powder only for

> about 10 days...In that time, we've seen a lot more spontaneous 4

to 5

> word sentences. Today when I told him to get out of the kitchen,

He

> called to me and said " I'm not in the " kicken " . First we almost

fell

> off our chairs because he not only back talked, but he also told

his

> first lie. (He was running away from the kitchen when he said it.)

>

> My husband who lets me take care of all the supplemental stuff

> actually commented on how much our son has increased with his

> sentences. When I asked him how long has he noticed this, he said

> mostly in the past week...

>

> I guess my question is: What are the other benefits of MB 12

other

> than speech?

>

> My ds#2 also has been potty trained with urinating for about

3months.

> He would never have a BM on the potty. He would never try. This

> past Tuesday, he sat on the potty and had a BM. He has

continued to

> do so every day. We are ecstatic.

> We're just not sure if this another benefit of adding MB 12.

> Also, he had been taking a sublingual B 12 complex for the past 3

> months. We had never seen what seems like dramatic results....

>

> I mean we're thrilled either way, but any insight would be

welcome...

> Thanks,

> in NJ

>

---------------------------------

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[Guest guest]

That could be true about the ins. They get weird about things like that. What

dose of folinic did you start with?

Did the nasal spray really make a noticable difference in your son?

ratlenhum@... wrote:

In a message dated 8/20/2006 10:23:02 PM Eastern Daylight Time,

misheemom@... writes:

My older son goes to Dr N's office also. Do you give the nasal spray?

Hopewell Pharmacy said my ins would cover it if the spray had folinic in it.

I'm tempted to call the doc's office and see if I could stat the folinic

first to see if there's any negatives.. If not, then have the office call

Hopewell and have them order the nasal spray with the folinic in it. As you know

all these supps add up.

We got it without folinic because my son was having issues and we dropped

down to 400mcg for a while and worked back up to 800 mcg without issues. I

thought my insurance wasn't covering the spray because we were getting 2 forms

of the same medicine.

The supps do add up but luckily for us my in laws are footing the bill for

Dr. N and anything he prescribes. Both Dr. N and Hopewell have the inlaws

credit card on file (its in my name but off their account) so they pay, but I

get the receipts and they let us use them for our tax deductions.

[Guest guest]

Was it mentioned to you that you can give the spray at night while your son is

sleeping? We see the PA at Dr N's office. She said as long as he was on his

side and not his back. That was ok. I had concerns that he wouldn't let us

give him the spray. He takes all his other supps very compliantly. I was

afraid he would put his foot down on this....So our plan was to give it at

night.

ratlenhum@... wrote:

In a message dated 8/20/2006 10:43:12 PM Eastern Daylight Time,

misheemom@... writes:

That could be true about the ins. They get weird about things like that.

What dose of folinic did you start with?

Did the nasal spray really make a noticable difference in your son?

We had originally started at 200mcg over 2 doses a day, worked up to 800,

then back down to 400. Now we're up to 800 again. I think the issues we had seen

were not from the folinic overall. The spray was great. We had done 12

weeks on the shots when we added the spray. From about week 2 of the shot until

we started the spray my son was up every night from 2am to 6am all set and

ready to go play for the day. You could set your clock by him. It was 2 am every

night give or take 5 minutes. Around 6am he'd pass out and I'd wake him up

for school with no problem at 7:30 am. From the first day we gave him the

nasal spray he started sleeping through the night again. We saw more speech and

more general awareness of what was around him. We saw the same horrible sleep

pattern when we went from every 3 day shots to high dose daily and after

about 3 weeks it resolved itself.

My son is starting to resist the spray. Now when I spray it he purposed

blows out his nose several times. At this point I have to wonder if its worth

even trying to continue it only because I doubt he's getting much of it anymore.

[Guest guest]

We have seen amazing results with the MB12 shots. After 's (3

years) first shot, he walked up to me and said, " Look Mom, I found a

pink ball " . I just about fell over. He was already speaking but only

using usually 3 words at a time. And to come and show me something

was unheard of. Three days later with his second shot, he said three

complete sentences. He, also, began playing pretend. I was amazed,

the closest he had come to pretend play was dragging Buzz Lightyear

across the floor. He started using eye contact and, after we started

working on it with him, it is now a habit to look at us when he wants

something.

But it made his yeast problem worse so we stopped them for a few

weeks to try and get that under control and he majorly regressed. He

wasn't responding to his name anymore, his eye contact decreased and

he wouldn't even respond to a single question for me.

We started the shots again today and when I asked him what he wanted

to drink...he answered.

I'm so grateful that we have so many things to try that can really

help.

-- In , <misheemom@...> wrote:

>

> Was it mentioned to you that you can give the spray at night while

your son is sleeping? We see the PA at Dr N's office. She said as

long as he was on his side and not his back. That was ok. I had

concerns that he wouldn't let us give him the spray. He takes all

his other supps very compliantly. I was afraid he would put his foot

down on this....So our plan was to give it at night.

>

> ratlenhum@... wrote:

> In a message dated 8/20/2006 10:43:12 PM Eastern Daylight Time,

> misheemom@... writes:

>

> That could be true about the ins. They get weird about things like

that.

> What dose of folinic did you start with?

> Did the nasal spray really make a noticable difference in your son?

>

> We had originally started at 200mcg over 2 doses a day, worked up

to 800,

> then back down to 400. Now we're up to 800 again. I think the

issues we had seen

> were not from the folinic overall. The spray was great. We had done

12

> weeks on the shots when we added the spray. From about week 2 of

the shot until

> we started the spray my son was up every night from 2am to 6am all

set and

> ready to go play for the day. You could set your clock by him. It

was 2 am every

> night give or take 5 minutes. Around 6am he'd pass out and I'd wake

him up

> for school with no problem at 7:30 am. From the first day we gave

him the

> nasal spray he started sleeping through the night again. We saw

more speech and

> more general awareness of what was around him. We saw the same

horrible sleep

> pattern when we went from every 3 day shots to high dose daily and

after

> about 3 weeks it resolved itself.

>

> My son is starting to resist the spray. Now when I spray it he

purposed

> blows out his nose several times. At this point I have to wonder if

its worth

> even trying to continue it only because I doubt he's getting much

of it anymore.

>

>

[Guest guest]

Glad I could help. I'm reading my report from the doctor and the spray is

supposed to have the folinic in it. Hopewell said differently....I'm definitely

going to call both again tomorrow to find what the real order of things should

be.

I'm glad we discussed this. It's making notice things I hadn't noticed on the

report and about DS#1.

Thanks,

in NJ

ratlenhum@... wrote:

In a message dated 8/20/2006 11:06:45 PM Eastern Daylight Time,

misheemom@... writes:

Was it mentioned to you that you can give the spray at night while your son

is sleeping? We see the PA at Dr N's office. She said as long as he was

on his side and not his back. That was ok. I had concerns that he wouldn't

let us give him the spray. He takes all his other supps very compliantly. I

was afraid he would put his foot down on this....So our plan was to give it

at night.

No they didn't but thanks for the tip!!! I'll try that tomorrow

[Guest guest]

Thank you for sharing your experience regarding the MB12 with us. Wow!

that's great news, congratulations! Our DAN Dr. really want us to do the shots

but we are still thinking what to do here since my son is so senseitive to food

and supplements. Can you advice me what to try first, MB 12 complete orally,

spray or shot? I don't know anything about them. and I also don't know the the

pros and cons between them. Can someone share with me your experiences between

spray, shot and/ orally. Thank you so much for your help in advance.

Eva

Clif Bate <cjbate@...> wrote:

The neubrander site has a parent survey that is like, 8 pages long.

This is a list of what they have seen in benefits in some of the

kids. You might like to read it. www.drneubrander.com

What we got besides improved speech was a lot more curiosity

questions, more imagination, more awareness and increased

interest/ability to socialize. Also it helped my son's hypotonia

quite a bit.

HTH

Jen

>

> Hi,

>

> We have two boys with ASD. Both are HF but also very loopy. Both

> take MB 12 in different fashions. I've had my 6 yo ds (asd) on

mb12

> shots for about 4 months. We've seen some benefits, mostly subtle

> ones. His neuro developmental ped saw him yesterday (for 6 mon

follow

> up). She commented on how well his sentence structure had

improved...

>

> My 3 1/2 yo ds (ASD) has been on the Kirkmans MB 12 powder only for

> about 10 days...In that time, we've seen a lot more spontaneous 4

to 5

> word sentences. Today when I told him to get out of the kitchen,

He

> called to me and said " I'm not in the " kicken " . First we almost

fell

> off our chairs because he not only back talked, but he also told

his

> first lie. (He was running away from the kitchen when he said it.)

>

> My husband who lets me take care of all the supplemental stuff

> actually commented on how much our son has increased with his

> sentences. When I asked him how long has he noticed this, he said

> mostly in the past week...

>

> I guess my question is: What are the other benefits of MB 12

other

> than speech?

>

> My ds#2 also has been potty trained with urinating for about

3months.

> He would never have a BM on the potty. He would never try. This

> past Tuesday, he sat on the potty and had a BM. He has

continued to

> do so every day. We are ecstatic.

> We're just not sure if this another benefit of adding MB 12.

> Also, he had been taking a sublingual B 12 complex for the past 3

> months. We had never seen what seems like dramatic results....

>

> I mean we're thrilled either way, but any insight would be

welcome...

> Thanks,

> in NJ

>

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

Hi,

We started doing the oral drops with my older (6 yo today!) son before we went

to a DAN Doc . I don't recall seeing anything too extraodinary with the effects.

When went thru some " left turns " in life with unemployment so money was kind of

tight. We were finally able to get my 6 yo to see a DAN docand start the

shots. We saw some differences in his speech but even more stuff in his

thinking. So we knew the shots were working...They've leveled out a bit but the

doc wants us to try the nasal spray with him. I haven't gotten it yet...So

we'll see what kind of results we'll get. Others could probably fill you in

better.

With ds#2 3 1/2 yo, I started him on the oral drops, only to realize they were

only a B 12 complex and not MB 12. I don't know the science behind it but it

didn't have MB 12 in them. I saw that Kirkmans had MB12. There are other

places as well.. I figured we'd give it a shot with # 2. Well, we're some

good results..Even my husband who leaves all the Dan stuff up to me is seeing

the differences. To me thats a biggie, because dh who's not detail oriented,

is seeing things. Which means it's not me wanting to see things...If you get

what I mean...

Anyway, ds#2 is answering and commenting on things more appropriately. He

actually backtalked me and told me he wasn't in the kitchen, which he was... So

we have backtalk and beginning lies!!! Also he seems to understand directions

better. It could all be because he's younger... I don't. Others have had

different results.

It's like all our kids, each my be ASD but they're also so different from

each other. My two boys showed ASD totaly differently..

If you're seeing a DAN doc, I would try the shots first...Then go from

there...

Good Luck,

in NJ

wayne & eva lee <waynevalee@...> wrote:

Thank you for sharing your experience regarding the MB12 with

us. Wow! that's great news, congratulations! Our DAN Dr. really want us to do

the shots but we are still thinking what to do here since my son is so

senseitive to food and supplements. Can you advice me what to try first, MB 12

complete orally, spray or shot? I don't know anything about them. and I also

don't know the the pros and cons between them. Can someone share with me your

experiences between spray, shot and/ orally. Thank you so much for your help in

advance.

Eva

Clif Bate <cjbate@...> wrote:

The neubrander site has a parent survey that is like, 8 pages long.

This is a list of what they have seen in benefits in some of the

kids. You might like to read it. www.drneubrander.com

What we got besides improved speech was a lot more curiosity

questions, more imagination, more awareness and increased

interest/ability to socialize. Also it helped my son's hypotonia

quite a bit.

HTH

Jen

>

> Hi,

>

> We have two boys with ASD. Both are HF but also very loopy. Both

> take MB 12 in different fashions. I've had my 6 yo ds (asd) on

mb12

> shots for about 4 months. We've seen some benefits, mostly subtle

> ones. His neuro developmental ped saw him yesterday (for 6 mon

follow

> up). She commented on how well his sentence structure had

improved...

>

> My 3 1/2 yo ds (ASD) has been on the Kirkmans MB 12 powder only for

> about 10 days...In that time, we've seen a lot more spontaneous 4

to 5

> word sentences. Today when I told him to get out of the kitchen,

He

> called to me and said " I'm not in the " kicken " . First we almost

fell

> off our chairs because he not only back talked, but he also told

his

> first lie. (He was running away from the kitchen when he said it.)

>

> My husband who lets me take care of all the supplemental stuff

> actually commented on how much our son has increased with his

> sentences. When I asked him how long has he noticed this, he said

> mostly in the past week...

>

> I guess my question is: What are the other benefits of MB 12

other

> than speech?

>

> My ds#2 also has been potty trained with urinating for about

3months.

> He would never have a BM on the potty. He would never try. This

> past Tuesday, he sat on the potty and had a BM. He has

continued to

> do so every day. We are ecstatic.

> We're just not sure if this another benefit of adding MB 12.

> Also, he had been taking a sublingual B 12 complex for the past 3

> months. We had never seen what seems like dramatic results....

>

> I mean we're thrilled either way, but any insight would be

welcome...

> Thanks,

> in NJ

>

---------------------------------

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