Re: Re: News Media

[Guest guest]

Hi Miki,

It's the traditional arguments like: there isn't any investigation, and as far as this lacks, there is no point in trusting a few anectodal stories. Therefor the person working for the MS org. tells their MS members that it's no idea using LDN.

Hope your having a nice "autumn" in Spain. (Funny that our Rosenborg football/soccer team just have beaten your Valencia soccer team) ;-)Ingrid

Re: [low dose naltrexone] Re: News Media

It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds.

How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services.

I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house.

So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts.

Regards

LDN/MS

____________ _________ _________ _________ _________ __

[Guest guest]

Thanks for the info, Ingrid! So it's the same old story, my neurologist here in Madrid won't hear of "experiments", so i had to look this up and try it on my own. I hope to be alot better so he can see with his own eyes when my next appt. comes up. I need to be careful because I stopped Betaferon and here it's it's covered under the natl. health care system, so I can have problems with him.

BTW "autumn" is still to get here, we're having sunny warm days for this time of the year - for eme too warm, I miss the cool air...

Miki

It's ok, I'm a Real Madrid member!

Re: [low dose naltrexone] Re: News Media

It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds.

How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services.

I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house.

So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts.

Regards

LDN/MS

____________ _________ _________ _________ _________ __

[Guest guest]

Art my sentiments too. Clare

[low dose naltrexone] Re: News Media

Hey Ingrid,From one fellow squarehead to another is there an english translation of those Norwegian LDN websites?Art-->> Hi Clare, I'm sorry I forgot to put the url of the most important of the two articles in the email,> but here it is:> http://www.dagbladet.no/dinside/2007/09/28/513511.html> All the best from> > Ingrid :-)

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[Guest guest]

Art, ;-) no, I'm sorry, but I could try to translate it for you, if you ignore my

poor English. Could this be an idea? Ingrid

[low dose naltrexone] Re: News MediaHey Ingrid,From one fellow squarehead to another is there an english translation of those Norwegian LDN websites?Art-->> Hi Clare, I'm sorry I forgot to put the url of the most important of the two articles in the email,> but here it is:> http://www.dagbladet.no/dinside/2007/09/28/513511.html> All the best

from> > Ingrid :-)

[Guest guest]

Hi Miki,

Try to collect your MR scan results to help the members here asking for before and after LDN testemonies. Could be funny to watch your neurologists face if the MR scan in a year or two shows different results. Here the first snow has fallen. The mountains quite near our house are all white. The snow makes the nature so bright and delicious :-) Ingrid

Re: [low dose naltrexone] Re: News Media

It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds.

How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services.

I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house.

So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts.

Regards

LDN/MS

____________ _________ _________ _________ _________ __

[Guest guest]

Well, as far as I understand there is nothing noteworthy. Ingrid

[low dose naltrexone] Re: News MediaIf there's anything special or noteworthy on that site we should know about then by all means tell us.Art-->> Art, ;-) no, I'm sorry, but I could try to translate it for you, if you ignore my > poor English. Could this be an idea?> > Ingrid> >

[Guest guest]

Three cheers for Elliott!!! Keep up the good work!

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[Guest guest]

Hi Eliott,

This media op sounds like it is coming together througn Divine intervention. I

can't wait to see how it all turns out!

Best regards,

Dudley Delany

dudley_delany

[low dose naltrexone] Re: news media

Cris,

Thanks for your encouragement (and also ), but I was focused on

Professor Pausch and what I thought his path would be for prolonged

survival. That meant talking about key figures that stood out from

the pack. There may be a time when others can be mentioned - and

there's a long long list - but all this can take place only IF (and

that's a BIG IF) Pausch accepts my offer AND his treatment actually

does prolong his life. When and if that takes place - and I believe

it will - then the whole story of LDN and OGF can be told!

Just for the record you should know this little story: Before I heard

from Dr Oz, I started to think about how I could benefit from all

this. When I didn't hear from him I redoubled my efforts to ONLY

focus on being a help to Pausch and nothing more. My wife and I

prayed one morning for Pausch's life to be extended using a therapy

that included LDN and with encouragement from Oz (I knew Pausch

wouldn't respond to my email which proved correct). That morning at

my home-office and just before checking my email, I thought how cool

it would be to have an email from Oz that soon after praying. Sure

enough, there WAS an email from Oz and he WAS interested in what I

was proposing.

After that the story just got better and better as people, many from

this list, got in touch with me and helped broaden the initial

strategy of contacting Oz.

I went to a lengthy explaination that I thought would help you to

understand what I'm dealing with, that there may indeed be more going

on than just us humans trying to do good, and the process and time-

frame that is involved here. While I'm not what I would call a bright

or intelligent person, early on when I read how many people have

tried to contact Oprah and get information on LDN on her show I had

one of those " light-bulb " moments where I KNEW how to do what others

could not. I KNEW for a fact exactly how it needed to be done in

a " flash " . It all came together in a moment. Was I delusional or

what? Who can say! But this I also know, if I take my focus of

attention off of helping Pausch and again start thinking of what I

can get out of this then it WILL turn out to be a delusion after

all. " Serendipity things " happen I believe when you are pure at heart

and this is a lesson not just for me but perhaps for everyone on this

list - everything in its due time!

God bless you all during this happy season,

Elliot

ps we celebrate Hanukkah and Christmas at our house

> >

> > Greetings LDNers,

> >

> > For those interested in the enfolding story that I'm involved

with

> in

> > getting news on LDN out to public, here's today's update....

> >

> > I reveived an email from Dr Oz's producer (for his XM radio show)

> > asking me to have Dr Zagon give him a call. I spoke with Zagon

for

> 15-

> > 20 minutes and I'm so impressed with his knowledge and dedication

> in

> > doing research that will help millions. At any rate Zagon asked

> what

> > information I thought he should provide. My response was that the

> > science behind LDN and the mechanism behind its efficacy (which

> Zagon

> > calls OGF or opioid growth factor) should be provided but the

> > remarkable success stories that people have reported should be

the

> main

> > focus. Destiny and Vicki's stories came to Zagon's mind.

> >

> > What will be actually presented by Oz, if at all, is anyone's

> guess. On

> > the other hand, it wouldn't surprise me if people who Zagon

> mentions

> > also get calls from Oz's producer for a short interview. Stay

> tuned....

> >

> > It keeps getting better,

> >

> > Elliot

> >

>

[Guest guest]

A most excellent reply Mike

I can understand and appreciate Dar's concern, but as Mike points out "truth is truth". The shame really becomes the manipulation of data or trials; which is readily seen in many forms within the world of pharmaceuticals and health.

Many times I have been tempted to only send the positive stories or responses to people from the saved chats, but always I remind myself that they need to hear all of the experiences so they can make an educated decision for themselves. It is more important to have the truth (what ever that might be) than to give a false idea of what to expect. Otherwise we are no better than the large pharmaceutical companies.

Another thing as well, is that Dr. Pausch is a human being and we should want to help him whether he helps, hinders or does nothing for the cause of LDN. One person at a time, and look at us now (well into the thousands). In the case of LDN I will say that "the truth" will eventually prevail.

All my best

Aletha

Re: [low dose naltrexone] Re: news media (Dar)

Dar and list,I think Elliot is on track with these efforts and does not riskfurther research because any reasonable person knows there is apercentage of cases of any disease where something will and willnot work.Further, there are going to be numbers to what degree did it help. More important is understanding that truth is just that, truth, one wayor the other and in this case, the effort goes out, without manipulatingnumbers such as many drug trials / studies do.As far as concern for further (Real) research funds go, I would saythat the greatest danger is not pointing to a high profile person orthousands of people that did have good results, the greatest dangeris those manipulating "short studies" of known less than effective timeperiods, so they can later be pointed out as ineffective.This is a trick used in or by the drug industry. If you consider whatthe "traditional" drugs cost per month for MS, Cancer and many ofthe conditions LDN does help, to the small cost of LDN, you cansee the logic in that greedy motivation, as evil as it may be.You do not approve of this greed but at least you can understandwhy it is so.When something as wonderful as LDN starts getting positive resultsfor a continuously growing number of people, with many differentmedical conditions, you know the drug companies are alreadyraising the red flag.They also know the genie can not be put back in the bottle, so theywill be forced to discredit a drug, even while they put up a front thatlooks like they are supporting it with further studies and in this, thedrug companies are true masters of deception.In the studies which they fund, knowing some money spent now willsave them greater losses down the road, they will do things like selectstudy length or certain ethnic groups, genders, age groups, length of time with disease and so on, to be selected or rejected from the study.The numbers are thus manipulated so that even before the official trial,they know the study will come out as one which they can point toshowing a drug was poorly effective.After doing these manipulated studies a number of times, they haveenough poor result studies ready, so that when a real study of realeffect time, taken on a real cross section of population, gender, age,race and average cross section of people with average CO-existingconditions, that authentic study never gets funded and big-pharmasaves billions.That is the real danger and even though people may initially greatlydesire a study, any study, even one deliberately shortened, ratherthan no study at all (even though the proper study would come intime), they accept being part of the short or otherwise manipulatedstudy.They do not see the tiger trap laid in the path ahead. They think alluniversities or scientists have the same moral values that any patienthas, they assume that researchers all have the highest integrity.Yes, many researchers do have high values, but also many are starved these days, for grants, it is how many make their livings.The saying "Publish or perish" is quite true, with some moreinterested in building the length of their CV rather than what thereal quality could have been. To somebody looking at their CV,the quality may not show because the time often does not; Thisis career stuff, plain and simple, what effects the next job's pay.Even some of the good researchers, wanting a proper lengthand balanced patient study, given a choice between no properlength and balanced patient study or a shortened study, will optfor the shortened study.Not because they are evil people, but because they feel somethingis better than nothing at all.So, when a university or researcher is given a shot at the study,asking exactly where the funding comes from, why are conditionssuch as excluding gender, race, other conditions the patients sufferfrom, anything that makes the "typical" patient not qualify for thestudy, these are avoided speaking about.The ideal study gives all control to the researchers, accepts a truecross section of the general population for all reasons, is givena written agreement that one way or the other, the results will be made public, both in trade journals and on the Internet, withoutbeing modified and the length of the study is such that it will showresults or lack of results in a realistic time, for that medical condition.So, to keep the drug companies from placing LDN into the gravethey already have prepared, if a study of not proper length or oneof unreasonable restrictions opens up, deny them the participantsthey need. Make these short or bad condition study offers verypublic knowledge.Make them do a study of realistic conditions, do not let them pulla "bait and switch" on you, patient or researcher alike, be smart.Otherwise, not only are you going to fall into their tiger trap, theywill actually get you to dig it for them.Mike

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