Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 There has been a couple people that have had stories printed in the Newspaper about LDN... Vicky Finlayson's story - http://www.auburnjournal.com/articles/2006/05/01/news/top_stories/04relief01.txt Bill - http://www.dailyhome.com/news/2006/dh-sylacauga-0913-dsinclair-6i12v2419.htm This is just a couple that I know of..... Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy MS & TM Spouse & Caregiver Support Group [low dose naltrexone] Re: News Media >> Can anyone tell me why when I search for LDN in the news every day > (Google news) I never find anything about it. It seems to me that > there must be at least one person that wants to yell the wonders of > LDN to the world with some PR experience. I would think that someone > should contact every news outlet available and tell them of the > conference. What a story this would be for 60 minutes or even some one > like Bill O'Reilly "Taking on the Big Pharmaceutical Companies", > or "Grassroots stops Aid's deaths in Africa for pennies" or what ever > sells. The point is this is a great story and exposure like that would > get the money rolling in for all the trials needed. Send them the > conference tapes and all the trial info, this would be a good story > for the right person to bring to the masses, and it needs to be told.> Tim>============ ==LDN has recently, like last month been on a Florida TV news station on the topic of crohn's and Dr. Jill . These stories are not headline stories but little special segments and are usually difficult to find even when you go to the actual news station or paper that reported on it. LDN has been in newpapers here and there over the years. I know Vicky Finlayson's story and fundraiser was in a CA newspaper. They've been there, just hard to find.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 As this is being planned... just a note that I am a freelance nonfiction writer. I'm in the process of writing a book proposal on LDN and it's many uses. I would love to hear from ldn users. The scope of the book will cover specifically: Multiple Sclerosis Fibro Cancers HIV Rheumatoid Arthritis Autism with a chapter on " Other illness and conditions " If you would like to be included in my research for the book, please email me off list and I will send you more details and a series of questions. Thanks! Yvette -- Yvette Deluca Freelance Writer Atlantean Productions www.atlanteanproductions.com (currently being redesigned) Homeschooling outside the bell curve http://exceptionalhomeschool.blogspot.com/ Living and learning with Multiple Sclerosis http://www.xanga.com/Ms_Quill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Go for one show at a time. A good first start is to interest a major TV station or a major newspaper in major cities and then it takes off. I was a newspaper reporter for 16 years and you have to plan your message by submitting press releases or personals stories to the right people. To be honest, most media outlets are more interested in fatalities, raging fires and other tragedies in life. Watch your evening news if you need proof of that. LDN/MSemmalemma777 <bevkean777@...> wrote: I totally agree Jann - we should all make a plan to bombard a couple of high profile programmes or people (Oprah??) with requests of stories about LDN and see what happens. It can`t hurt and it`ll give their researchers something to do!Bev-- In low dose naltrexone , "jannz2" <jbreslin@...> wrote:>> RE: Can anyone tell me why when I search for LDN in the news every day > (Google news) I never find anything about it. > > > I think that the LDN story needs something like a "20/20" or a "60> Minutes" news segment. It's too complex to cover in just a 1 or 2> minutes 5:00 news story. > > Maybe if enough people sent in a "request" or "suggestion" to either> one of these 'news' productions --- AND ---- it was done all around> the same time... well it might make an impression to do some> investigating. > > It's about making an IMPRESSION on the folks that make the decisions> to do a show on a particular topic. We need to make a DRAMATIC> impression...just getting a couple of letters / emails or ~whatever~> won't do it. It needs to be something like a hundred or more...> > Well...that's my 2cents> > Jann> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Try again...lots of us have e-mailed Oprah and Montel to no avail. I thought after McCarthy was on Oprah we might have a chance, but so far, nothing. Marcie emmalemma777 <bevkean777@...> wrote: I totally agree Jann - we should all make a plan to bombard a couple of high profile programmes or people (Oprah??) with requests of stories about LDN and see what happens. It can`t hurt and it`ll give their researchers something to do!Bev-- In low dose naltrexone , "jannz2" <jbreslin@...> wrote:>> RE: Can anyone tell me why when I search for LDN in the news every day > (Google news) I never find anything about it. > > > I think that the LDN story needs something like a "20/20" or a "60> Minutes" news segment. It's too complex to cover in just a 1 or 2> minutes 5:00 news story. > > Maybe if enough people sent in a "request" or "suggestion" to either> one of these 'news' productions --- AND ---- it was done all around> the same time... well it might make an impression to do some> investigating. > > It's about making an IMPRESSION on the folks that make the decisions> to do a show on a particular topic. We need to make a DRAMATIC> impression...just getting a couple of letters / emails or ~whatever~> won't do it. It needs to be something like a hundred or more...> > Well...that's my 2cents> > Jann> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 I was watching Dr. Phil yesterday and he had people with ALS on his show so that might be an idea?? No one has emailed or written Dr. Phil that I have heard of...Just an idea? Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy MS & TM Spouse & Caregiver Support Group [low dose naltrexone] Re: News Media Hi Bev,> RE: I totally agree Jann - we should all make a plan to bombard acouple > of high profile programmes or people (Oprah??) Oprah only does shows that have some personal impact on her. Foryears folks on the thyroid forum that I participate in wanted her todo a show on 'thyroid disease'. No response from the email "campaigns". Well, she "blew out her thyroid" this past summer and decided to do ashow about it. Well, the show was not well received by most on thethyroid forum...it seems most felt she did not present a completemedical perspective on thyroid disease. For example, apparently therewas no discussion about getting the right tests done. I didn't seethe show so I can't speak to that point specifically but it wasmentioned on the forum.Oprah's show is not scientific enough for the type of in-depthdiscussion that LDN therapy deserves. I would like a DiscoveryChannel Health program or the 6o Minutes 20/20. The fact that thereare LDN trials going on and that there is significant anecdotal (?)testimonies should be enough demonstration for an engaging discussiontopic. Plus the African trial is VERY timely right now with all theattention that Africa is getting with all their problems. Again...this is just another of my 2cents.Jann __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Yvette, That sounds exciting. I was diagnsed with MS in 1995. I am doing fairly wellexcept for right leg weakness and balance. And total numbness in hands. I facilitate a self help group for MS. About half dozen members are trying LDN. I would like for you to keep me abreast of your endeavor. Thank you for the opportunity. Carol -------------- Original message ---------------------- From: Yvette Deluca <atlanteanproductions@...> > As this is being planned... just a note that I am a freelance nonfiction > writer. > I'm in the process of writing a book proposal on LDN and it's many uses. > > I would love to hear from ldn users. The scope of the book will cover > specifically: > Multiple Sclerosis > Fibro > Cancers > HIV > Rheumatoid Arthritis > Autism > with a chapter on " Other illness and conditions " > > If you would like to be included in my research for the book, please > email me off list and I will send you more details and a series of > questions. > > Thanks! > > Yvette > > > > > -- > Yvette Deluca > Freelance Writer > Atlantean Productions > > www.atlanteanproductions.com (currently being redesigned) > > > > Homeschooling outside the bell curve > http://exceptionalhomeschool.blogspot.com/ > > > Living and learning with Multiple Sclerosis > http://www.xanga.com/Ms_Quill > > > > As this is being planned... just a note that I am a freelance nonfiction writer. I'm in the process of writing a book proposal on LDN and it's many uses. I would love to hear from ldn users. The scope of the book will cover specifically: Multiple Sclerosis Fibro Cancers HIV Rheumatoid Arthritis Autism with a chapter on " Other illness and conditions " If you would like to be included in my research for the book, please email me off list and I will send you more details and a series of questions. Thanks! Yvette -- Yvette Deluca Freelance Writer Atlantean Productions www.atlanteanproductions.com (currently being redesigned) Homeschooling outside the bell curve http://exceptionalhomeschool.blogspot.com/ Living and learning with Multiple Sclerosis http://www.xanga.com/Ms_Quill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Hello Crystal, I have emailed, Dr. Phil, Oprah, Hannity ( both parents died from cancer and 3 friends now with cancer), Glenn Beck, Ingrham ( breast cancer), Tony Snow, , Bill Gates Foundation, and the list goes on. Sharon Stone- she was desparate to help those with AIDS so I emailed her... Sorry they are all surrounded or wrapped up in their little world. I will keep trying though. Dee --- Crystal <crystalangel6771@...> wrote: > I was watching Dr. Phil yesterday and he had people > with ALS on his show so that might be an idea?? No > one has emailed or written Dr. Phil that I have > heard of...Just an idea? > > Hugs & Blessings, > Crystal > LDN_Users Group Owner > > Diagnosed November 2004 with Secondary Progressive > MS, Transverse Myelitis and an Advocate for LDN!! 2 > years on LDN with Skip's Pharmacy..... > > > Crystal's MS,TM & LDN Website > > Crystal's LDN Gift Shop > > Crystal's LDN Support Group > > Skip's Compounding Pharmacy > > MS & TM Spouse & Caregiver Support Group > > > > > > > > [low dose naltrexone] Re: News Media > > Hi Bev, > > > RE: I totally agree Jann - we should all make a plan > to bombard a > couple > > of high profile programmes or people (Oprah??) > > Oprah only does shows that have some personal impact > on her. For > years folks on the thyroid forum that I participate > in wanted her to > do a show on 'thyroid disease'. No response from the > email " campaigns " . > > Well, she " blew out her thyroid " this past summer > and decided to do a > show about it. Well, the show was not well received > by most on the > thyroid forum...it seems most felt she did not > present a complete > medical perspective on thyroid disease. For example, > apparently there > was no discussion about getting the right tests > done. I didn't see > the show so I can't speak to that point specifically > but it was > mentioned on the forum. > > Oprah's show is not scientific enough for the type > of in-depth > discussion that LDN therapy deserves. I would like a > Discovery > Channel Health program or the 6o Minutes 20/20. The > fact that there > are LDN trials going on and that there is > significant anecdotal (?) > testimonies should be enough demonstration for an > engaging discussion > topic. Plus the African trial is VERY timely right > now with all the > attention that Africa is getting with all their > problems. > > Again...this is just another of my 2cents. > > Jann > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Is the point to get the "scientific community" involved or is it to get as many people as we can to know about LDN? I am an immigrant from the scientific community to the real world and I am here to testifiy that that nut is difficult at best and impossible in reality. The days of the crazy scientist in his lab laboring away just don't happen anymore. Yes, get the word out, USA Today, NY Times are just a few articles I am working on. Letters to the editor of medical journels, pharmacy journels, how about our friends at Life Extension. The ground is swelling but in order to have any muscle we must have numbers of happy people. Look at what the women folks did with hormone therapy, shut down a big pharma's attack. FDA got over 50,000 messages. That is a come to Jesus number. Get that sort of response and the investors will line up. Skip. See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Hi Cris, I think it's a great idea to assemble LDN-related case reports. They certainly are convincing to me as well as to many other people. Unfortunately, when it comes to convincing the scientific community, which is looking for " evidence based medicine, " they carry little or no weight and are essentially rejected as " unscientific. " When sufficient clinical trials are undertaken to satisfy the scientific community, then you will see things turn around and LDN become mainstream, instead of being where it is now--on the fringes. All the best, Dudley dudley_delany [low dose naltrexone] News Media Can anyone tell me why when I search for LDN in the news every day (Google news) I never find anything about it. It seems to me that there must be at least one person that wants to yell the wonders of LDN to the world with some PR experience. I would think that someone should contact every news outlet available and tell them of the conference. What a story this would be for 60 minutes or even some one like Bill O'Reilly " Taking on the Big Pharmaceutical Companies " , or " Grassroots stops Aid's deaths in Africa for pennies " or what ever sells. The point is this is a great story and exposure like that would get the money rolling in for all the trials needed. Send them the conference tapes and all the trial info, this would be a good story for the right person to bring to the masses, and it needs to be told. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Good point Dudley, But for now (even if it is on the fringes) the stories are extremely important for those searching for answers. I personally would never had started my husband on LDN if it were not for the 60+ stories that I had found in Remedyfind.com For a non-scientific minded person, I had more convincing from peoples experiences. But I agree on getting the med from the fringes to main stream. It is going to take scientific studies at the least. Then of course there is the politics. My best Aletha Re: [low dose naltrexone] Re: News Media Hi Cris,I think it's a great idea to assemble LDN-related case reports. They certainly are convincing to me as well as to many other people.Unfortunately, when it comes to convincing the scientific community, which is looking for "evidence based medicine," they carry little or no weight and are essentially rejected as "unscientific."When sufficient clinical trials are undertaken to satisfy the scientific community, then you will see things turn around and LDN become mainstream, instead of being where it is now--on the fringes.All the best,Dudleydudley_delany-----Original Message-----From: Case Health Pty LtdSent: Thursday, October 25, 2007 6:48 PMlow dose naltrexone Subject: [low dose naltrexone] Re: News MediaHi Dudley,You're correct, stories spread far and wide do not add to the collective evidence or aid the cause, so this isa core focus.Observation is very much a part of the scientific endeavour. Statistics are also very much a part of thescientific endeavour.Whilst one anecdotal account is not evidence, an ever-increasing number of verifiable anecdotal accounts thatcorroborate the same successful outcome is scientific evidence which can no longer be ignored - hence the'Case Health - Health Success Stories' website.Criscasehealth.com.au1b. Re: News MediaPosted by: "Dudley Delany" DudleyDelanywebtv (DOT) net dudley_delanyDate: Thu Oct 25, 2007 10:30 am ((PDT))Hi Tim,I have contacted literally hundreds of TV and newspaper personnel regarding LDN and have received no response.What is needed is the completion of successful clinical trials regarding the safety and efficacy of LDN.Anecdotal evidence can easily be brushed off, but not well-conducted research.Fortunately, such trials are currently underway, and results are expected beginning next month.So far, only two clinical trials have been completed, one small pilot study on Crohn's disease, summarizedhere:http://tinyurl.com/2urywqand one flawed German study summarized here:http://tinyurl.com/2vlwnkAll the best,Dudley Delanydudley_delany-----Original Message-----From: Tim PurcellSent: Thursday, October 25, 2007 9:15 AMlow dose naltrexone Subject: [low dose naltrexone] News MediaCan anyone tell me why when I search for LDN in the news every day(Google news) I never find anything about it. It seems to me thatthere must be at least one person that wants to yell the wonders ofLDN to the world with some PR experience. I would think that someoneshould contact every news outlet available and tell them of theconference. What a story this would be for 60 minutes or even some onelike Bill O'Reilly "Taking on the Big Pharmaceutical Companies",or "Grassroots stops Aid's deaths in Africa for pennies" or what eversells. The point is this is a great story and exposure like that wouldget the money rolling in for all the trials needed. Send them theconference tapes and all the trial info, this would be a good storyfor the right person to bring to the masses, and it needs to be told.Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 I sanction that also... If not for a good friend who told me about LDN, I would be dead now. I read all about other alternatives but the research and Dr. Bihari's web site and my husband's diligence online with Dr. Bihari in a 24 hours emergency contact I believe saved my life. We will just keep pressing on... and do what we can do all of us collectively. Dee --- Aletha Wittmann <Aletha@...> wrote: > Good point Dudley, > > But for now (even if it is on the fringes) the > stories are extremely important for those searching > for answers. I personally would never had started > my husband on LDN if it were not for the 60+ stories > that I had found in Remedyfind.com > > For a non-scientific minded person, I had more > convincing from peoples experiences. > > But I agree on getting the med from the fringes to > main stream. It is going to take scientific studies > at the least. Then of course there is the politics. > > > My best > Aletha > > [low dose naltrexone] News Media > > Can anyone tell me why when I search for LDN in > the news every day > (Google news) I never find anything about it. It > seems to me that > there must be at least one person that wants to > yell the wonders of > LDN to the world with some PR experience. I would > think that someone > should contact every news outlet available and > tell them of the > conference. What a story this would be for 60 > minutes or even some one > like Bill O'Reilly " Taking on the Big > Pharmaceutical Companies " , > or " Grassroots stops Aid's deaths in Africa for > pennies " or what ever > sells. The point is this is a great story and > exposure like that would > get the money rolling in for all the trials > needed. Send them the > conference tapes and all the trial info, this > would be a good story > for the right person to bring to the masses, and > it needs to be told. > Tim > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 I talked to Life Extension about LDN about a month ago. We had a lengthy conversation. People there are interested. They will be impacted because it could cause a radical change in their extensive research operations to defeat the aging process. I have been a Life Extension member since 1983 and have seen it grow massively from its humble beginnings. After having been raided by FDA goon squads, they have administered massive courtroom defeats to the FDA bureaucrats, who are looked upon by many as a major stumbling block to medical progress. This support group is doing God's work. Keep it up!!!!! Victor On Thu, 25 Oct 2007 23:09:18 EDT, slenzrph@... wrote: >Is the point to get the " scientific community " involved or is it to >get as  many people as we can to know about LDN?  I am an immigrant >from the  scientific community to the real world and I am here to >testifiy that that nut  is difficult at best and impossible in >reality.  The days of the crazy  scientist in his lab laboring away >just don't happen anymore.  Yes, get the  word out, USA Today, NY >Times are just a few articles I am working on.  Letters to the >editor of medical journels, pharmacy journels,  how about  our >friends at Life Extension.  The ground is swelling but in order to >have  any muscle we must have numbers of happy people.  Look at what >the women  folks did with hormone therapy, shut down a big pharma's >attack. FDA got over  50,000 messages.  That is a come to Jesus >number.  Get that sort of  response and the investors will line up. >Skip. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Marcie I'm sooooooooo glad you mentioned McCarthy - recently in one of our gossip magazines here in Australia, there was a full article written up about her and her son.....it mentioned in the article that she had tried alternative remedies but after reading it, it never mentioned LDN.....I assumed she would have tried it but as it wasn't mentioned, I thought not....was it mentioned on the Oprah show ???? Kelli From: Marcie [mailto:marcie_martin@...] Sent: Friday, 26 October 2007 3:44 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: News Media Try again...lots of us have e-mailed Oprah and Montel to no avail. I thought after McCarthy was on Oprah we might have a chance, but so far, nothing. Marcie emmalemma777 <bevkean777hotmail> wrote: I totally agree Jann - we should all make a plan to bombard a couple of high profile programmes or people (Oprah??) with requests of stories about LDN and see what happens. It can`t hurt and it`ll give their researchers something to do! Bev -- In low dose naltrexone , " jannz2 " <jbreslin@...> wrote: > > RE: Can anyone tell me why when I search for LDN in the news every day > (Google news) I never find anything about it. > > > I think that the LDN story needs something like a " 20/20 " or a " 60 > Minutes " news segment. It's too complex to cover in just a 1 or 2 > minutes 5:00 news story. > > Maybe if enough people sent in a " request " or " suggestion " to either > one of these 'news' productions --- AND ---- it was done all around > the same time... well it might make an impression to do some > investigating. > > It's about making an IMPRESSION on the folks that make the decisions > to do a show on a particular topic. We need to make a DRAMATIC > impression...just getting a couple of letters / emails or ~whatever~ > won't do it. It needs to be something like a hundred or more... > > Well...that's my 2cents > > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Actually I'll just outright disagree and its the mindset from the first day I heard about LDN. Doctors prescribe off label all the time. They go to drug company conferences and huddle together and they talk about the other uses for many many drugs and they have no issue doing it. Dr Crowly rightly pointed out in his interview and gave Vioxx as a great of example of drug companies holding back the negative information and then all those people get hurt. Double Blind studies are a joke. If not for you bravely going out and educating your doctors you would not have LDN. Dr at conference suggested only certain doctors should be able to prescribe it (Doctors with ind privileges) which is again preposterous. Thousands of people would have denied and thats just not right. You guys are the reason for the success of LDN. Its your belief and your passion. I really believe if not for LDN you guys would just be taking supplements and trying to figure that out -what is the best supplement for what you have.So the next time a doctor says no ldn for you ask him what he things of ugebelko oil or something like that.I discussed with Dr Crowly yesterday -my own personal theory of immune system disorders. People have a genetic predisposition , have some sort of sentinel event that triggers this and they end up with Krohns, MS, RA whatever. (This is just a cyndi theory don't take it to the bank) an autoimmune system gone while. put on top of that all the crap we put in our bodies. What if we're right and their wrong? What if our drug system is just pushed by the almighty dollars and we've the guinea pigs?Tell your doctor he should be happy your seeing him and no a witch doctor around the corner. A question I asked most of the people I interviewed was about this paradigm shift in medicine. We used to go to the doctor with a boo-boo and he would give us boo-boo medicine and we would go to our corner pharmacy and he would fill it and we would follow those directions to T. Not just with you guys but with many people -people are going to the doctor and saying "I have a boo boo. I don't want big drugs for my boo-boo. I want to try something a little more alternative and then see down the road."Because of the internet we can be supportive. We can be smarter. and can rely on each other.Dudley, I've shared Cris's story with some people and they were mightily impressed. I gave them Cris's stuff plus the dvd plus some interviews I had done previously and they were blown away.Believe me if LDN was a drug that cost a hundred bucks a hit and some drug company was making bog money off it it would be presented at every conference and doctors would be prescribing it left and right. Like Prozac.cyndiOn Oct 25, 2007, at 10:26 PM, Aletha Wittmann wrote:Good point Dudley, But for now (even if it is on the fringes) the stories are extremely important for those searching for answers. I personally would never had started my husband on LDN if it were not for the 60+ stories that I had found in Remedyfind.com For a non-scientific minded person, I had more convincing from peoples experiences.  But I agree on getting the med from the fringes to main stream. It is going to take scientific studies at the least. Then of course there is the politics.  My bestAletha Re: [low dose naltrexone] Re: News MediaHi Cris,I think it's a great idea to assemble LDN-related case reports. They certainly are convincing to me as well as to many other people.Unfortunately, when it comes to convincing the scientific community, which is looking for "evidence based medicine," they carry little or no weight and are essentially rejected as "unscientific."When sufficient clinical trials are undertaken to satisfy the scientific community, then you will see things turn around and LDN become mainstream, instead of being where it is now--on the fringes.All the best,Dudleydudley_delany-----Original Message-----From: Case Health Pty LtdSent: Thursday, October 25, 2007 6:48 PMlow dose naltrexone Subject: [low dose naltrexone] Re: News MediaHi Dudley,You're correct, stories spread far and wide do not add to the collective evidence or aid the cause, so this isa core focus.Observation is very much a part of the scientific endeavour. Statistics are also very much a part of thescientific endeavour.Whilst one anecdotal account is not evidence, an ever-increasing number of verifiable anecdotal accounts thatcorroborate the same successful outcome is scientific evidence which can no longer be ignored - hence the'Case Health - Health Success Stories' website.Criscasehealth.com.au1b. Re: News MediaPosted by: "Dudley Delany" DudleyDelanywebtv (DOT) net dudley_delanyDate: Thu Oct 25, 2007 10:30 am ((PDT))Hi Tim,I have contacted literally hundreds of TV and newspaper personnel regarding LDN and have received no response.What is needed is the completion of successful clinical trials regarding the safety and efficacy of LDN.Anecdotal evidence can easily be brushed off, but not well-conducted research.Fortunately, such trials are currently underway, and results are expected beginning next month.So far, only two clinical trials have been completed, one small pilot study on Crohn's disease, summarizedhere:http://tinyurl.com/2urywqand one flawed German study summarized here:http://tinyurl.com/2vlwnkAll the best,Dudley Delanydudley_delany-----Original Message-----From: Tim PurcellSent: Thursday, October 25, 2007 9:15 AMlow dose naltrexone Subject: [low dose naltrexone] News MediaCan anyone tell me why when I search for LDN in the news every day(Google news) I never find anything about it. It seems to me thatthere must be at least one person that wants to yell the wonders ofLDN to the world with some PR experience. I would think that someoneshould contact every news outlet available and tell them of theconference. What a story this would be for 60 minutes or even some onelike Bill O'Reilly "Taking on the Big Pharmaceutical Companies",or "Grassroots stops Aid's deaths in Africa for pennies" or what eversells. The point is this is a great story and exposure like that wouldget the money rolling in for all the trials needed. Send them theconference tapes and all the trial info, this would be a good storyfor the right person to bring to the masses, and it needs to be told.Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi , I will send you a copy of the welcome e-mail to take a look at, all the clinical trial information that I have saved and the news articles we have so far. All my best Aletha [low dose naltrexone] Re: News Media Hi. This is in Los Angeles. I'd like to jump in on this important topic of "LDN in the news."I happen to be in the public relations business. I create and distribute publicity for my clients and arrange interviews. I've had a great deal of experience of "trying to get" my clients on many of the various top, most popular TV news/talk shows. It certainly can be done...if it's approached the proper way.I can see (and feel) the frustration many of you have in questioning why the whole world of TV news isn't beating our door(s) down, begging us to give them info about LDN, so they can do good stories on the topic.As some of you have said, you've sent in countless request for stories to many shows. This is good. It lets the producers know we're out there...with a great story. Something you may not know, is that all of the most popular TV shows have several producers...each one in charge of producing a specific segment topic. One might be in charge of booking people for a cooking demonstration, a make-over, a top recording artist to perform, an actor/actress promoting their latest movie/TV show, human interest stories, rags-to-riches stories...health stories, and so on. You have to know the "proper" producer to send your info to about a segment suggestion. (if you get it to the wrong producer, they're not going to pass it along to the correct one. They're way too busy.) Most of you have sent in your suggestions... most likely, to the wrong person...so it didn't go anywhere.Dudley, and a couple of others, hit the nail on the head, when they mentioned you have to tie it in to clinical trials...something with real meat in it. A hook, to get their attention.The proper way is to write a brief, to-the-point letter, to the right producer, saying you have a suggestion for a segment that you know will interest a great many of their viewers, give a bit of an overview, and say you have a good amount of back-up material to let them see(newspaper clippings, video of local TV interviews of incredible success stories of MSers , etc., who have benefited greatly from LDN)...IF they'd like to see it...and let them know you can make several people available to appear on their show, etc..and let them know how to contact you.Now...the most important thing is...only ONE person should send THIS type of letter...saying that while there are several thousand people who are very happy and excited to be taking LDN, that he/she is unnoficially representing this large group at the request of many of the "more active" members of this GROUP, or something to that effect. SOMEONE should volunteer to gather info, clippings, videos etc...just to have, when requested ,to send AFTER it has been SPECIFICALLY requested by a producer...after the well-written letter has been sent to the correct producer.I'd be happy to help with the letter...and even get some names and addresses of producers (which is not that easy because sometimes by the time you get your info to them, they may have moved, transfered to another area, or whatever.). You can see it's not that easy .Don't be in a hurry. This has to be done right. Let's get some solid trial info in and use that as the news hook.I hope this has been of some help to many of you who are wondering "how to get on TV."Best to all of you... **************************************See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 AND what about using those who have participated in clinical trials - and their results? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 So far everyone has discounted the fact that the media - local, to national to international - is only interested in covering news about fires, disasters, fatalities and "bad" news. If you do not believe me, watch you local news program and then watch the national TV networks - ABC, NBC, CBS and even throw in CNN. Read your local newspaper and look at online news. What percentage of the news is informational, "good" or educational? Close to ZERO PERCENT. Regards Wend/LDN Nika <nika11@...> wrote: AND what about using those who have participated in clinical trials - and their results? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds. How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services. I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house. So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts. Regards LDN/MS __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi ,Here's a great site for information about LDN:http://tinyurl.com/2boot2It includes links to research, testimonials, discussion groups, videos, and a radio interview.With best wishes,Dudley Delany dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 I'm surprised about Montell, I understand that he has MS! Miki [low dose naltrexone] Re: News Media I couldn't agree with this more. The controlled mass media is not interested in helping people, only doing the bidding of their commercial sponsors and bowing to pressure from the government/special interest groups.Oprah, Montell, Larry King, et al have been bombarded with emails and information about LDN with zero results. They are a waste of time and don't care.The best way to "spread the word" about LDN is talk about it to everyone you know. Get a bumper sticker for your car with a catchy slogan and the LDN website. Attend disease/illness support groups. Also, send money to worthy LDN causes and not the NMSS and other organizations that refuse to recognize and/or smear LDN as unproven nonsense.Am I angry? You bet!Art-->> So far everyone has discounted the fact that the media - local, to national to international - is only interested in covering news about fires, disasters, fatalities and "bad" news. If you do not believe me, watch you local news program and then watch the national TV networks -ABC, NBC, CBS and even throw in CNN. Read your local newspaper and look at online news. What percentage of the news is informational, "good" or educational? Close to ZERO PERCENT.> > Regards> Wend/LDN> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Ha ha ha! Excuse me for laughing but he has been known to use the MS when it is to his advantage and not mention it when it also is advantageous to him. LDN/MSMiki Kalkus <m.kalkus@...> wrote: I'm surprised about Montell, I understand that he has MS! Miki ----- Original Message ----- __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi, here in NORWAY, in Scandinavia, we are lucky having newspapers that cares writing about LDN. This may be the first article, a full page, in the probably biggest regional newspaper written now i sept. 07. The person telling about LDN is having MS. He is an active person spreading the word, he has made an appoinment with a tablet production pharmacy, the only one in our country, so they produces ldn for us once or twice a year. He has a page: www.ldn.no where he tells about Dr. Bihary and other doctors experiences and he has made a couple of pdf. files which we may print and bring with us to our doctor. One pdf file is a rx ready for the doctor to sign, and the other is an explanation for the doctor. Those two I brought to my doctor, this was so proffessional done that my doctor signed the rx for me to send to the pharmacy immidiately. The pharmacy is the only one in Norway producing LDN as tablets. Also here in Norway the MS organisation tells their members that LDN is useless due to an article at ldn.no. Here is the link to the article about LDN. I chose the pdf file, it's a full page article as you see. :-) Ingrid Re: [low dose naltrexone] Re: News Media It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds. How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services. I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house. So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts. Regards LDN/MS __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi Ingrid Many thanks for sharing that information. I found it very interesting. Regards, Clare. I am from Cork City Ireland. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.24/1115 - Release Date: 07/11/2007 09:21 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Very interesting Ingrid! I wish I could understand norwegian- why is the MS organization in Norway saying LDN is useless? Miki - from Spain Re: [low dose naltrexone] Re: News Media It is not only the mainstream media; it is all of it - local yocals, regional, state, national and international. If it is good news, they do not want to cover it. But if it is a tragedy, they will encamp and pitch tents and bring in their RVs to cover capture every second of the event as it unfolds. How do I know that? I spent 16 years as a newspaper reporter, although I did write about feature feaature stories, such as how to treat cancer in a natural way and how to improve your health through exercise. I did not know about LDN in my reporting days, or I would have been writing about it - and my articles would have gone on the wire services. I know from the PR end, the the media - all of them - are only interested in bad news because I spent 8 years in the PR field. At one event, the media was invited but they did not show because there was a house fire that day. It did not matter that the organization for which I was employed was showing people how to save money on health insurance through a innovative new program. So I back-tracked and got the word out through emailed press releases, but it did not have the same impact as live coverage by newspapers, radio stations and TV stations. The static good of live news was lost to the fire at a vacant house. So no one can tell me differently - from the news side and from the PR side, that the media will pick up the "ball" on to spread the word on LDN. I am not trying to be negative. I am facing reality and facing the facts. Regards LDN/MS __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Hi Clare, I'm sorry I forgot to put the url of the most important of the two articles in the email, but here it is: http://www.dagbladet.no/dinside/2007/09/28/513511.html All the best from Ingrid :-) Re: [low dose naltrexone] Re: News Media Hi Ingrid Many thanks for sharing that information. I found it very interesting. Regards, Clare. I am from Cork City Ireland. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.24/1115 - Release Date: 07/11/2007 09:21 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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