Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 I've been in this group about 2 weeks and have been reading all of the messages and have replied to the ones that I had experience with. But I keep reading about all of these tests that have been done and all these drs appts and I'm really starting to wonder if my son's dr was even close to thorough! Here's how it happened. My son was supposed to see one dr (developmental pediatrician)but she had car problems so after waiting for 30 minutes the nurse said that one of the other drs (also the medical director for that clinic)appts canceled and would it be ok for me to see him instead. Since it took 3 months to get this appt in the first place I agreed. He came in asked me what was going on I told him that my son (who is 10) was dx ADHD when he was 7 and had been on a number of meds that either did not help or made him completely lethargic and that I had recently learned of and had done some research on Asperger's and that it really seemed like my son. He told me I was very smart for doing so and that it was what my son has. When I tried to explain what my son is like he cut me off and said that he already knows what he is like because he had studied AS in Sweden before it was known in the US. He said that he was in agreement with me and the sooner I understood that the better. He had my son draw a picture of himself as he sees himself with all his parts, told me he should have 27 parts (my son)drew 15. He then had him read a book about a man going through his routines then asked him what it was about. put it the same way I just did. He showed me a diagram of his brain and explained that he only uses the initial thought not the outer layers which is deep thought. Told me he wasn't going to do brain scans or anything like that because thousands of other kids with his condition had already been through them and there was no difference. He did have blood drawn to check for thyroid problems etc.Although I have not recieved the results yet. All of this after he had made me and both cry. I told him I'm tired of being misdiagnosed and not getting the right kind of meds. At the end of the appt he said that he apreciated my emotions that it showed that I cared about my son.(DUH) Not to mention the fact that I had to get up and reach over him to get to the kleenexes myself, when I was crying. He put him on different meds, when the nurse asked if he wanted to continue seeing us himself or the dr we were supposed to see he said we were his patients that we had to be and set up his next appt for 3 months down the road. He said to sign a medical release at his school and he would send them his full report. And call if I have problems with the meds. Sorry for the long message but I'm just not sure if everything that needs to be done for him is being done and was hoping for some input on this. I know there are several drs in the group and was hoping they might be able to find time to let me know if this is the routine procedures to dxing a child with AS or anything else for that matter or if I should take him elsewhere or just request more testing be done. 's 10 already and having a hard time handling not having any friends at school and I would rather find out now rather than later if he has other issues we need to be dealing with. Also the school had me fill out a Short Sensory Profile but is this something the dr should have done also. 3 months just seems like a long time between his dx and his second appt. Again sorry so long and any replies would be helpful. Thanks so much Alisha. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.