Re: UPDATE Moving w/ Aspie Child -- Need info on AR & SC

[Guest guest]

I would like to add that Maine, West Virginia, Massachusetts and

Pennsylvania all recognize Aspergers. I do not know anything about

homeschooling though.

Cori

>

[Guest guest]

>

> I would like to add that Maine, West Virginia, Massachusetts and

> Pennsylvania all recognize Aspergers. I do not know anything about

> homeschooling though.

>

> Cori

>

> >

>

Thanks for the info Cori. Could you let me know what state you live

in and how you know these 4 states recognize AS? I'm trying to get

info from people who have direct dealings with the states that they

are talking about. Why? When I moved to AL, we had a young man who

lived with us who was dd and was mr. But he had managed to work and

was eligible for ssdi benefits because he had worked. In MO he

received medicaid. When we moved to AL he became ineligible for

medicaid because of the way AL interpreted the statutes (his ssdi

benefits were $30 per month above the ssi benefits and thus he was

ineligible). I read the statutes before we moved and thought we were

ok. But I did not talk to anyone who lived here and knew about how

the statute was applied. So we ended up sending the young man to a

relative of his in another state where he was once again eligible for

medicaid.

Now I know that in a year he would've been eligible for Medicare, but

he had health issues that had to be addressed and couldn't wait.

Thanks for your help.

C

[Guest guest]

I live in Arizona. I am part of another website that I am trying to

get the info on what states accept all ASD. These are the only ones

that answered back. There really should be more help for our kids.

We shouldn't have to move to certain states to receive services.

This is BS. But I know it is life.

I will let you know if I find out anymore!

Cori

> >

> > I would like to add that Maine, West Virginia, Massachusetts and

> > Pennsylvania all recognize Aspergers. I do not know anything

about

> > homeschooling though.

> >

> > Cori

> >

> > >

> >

> Thanks for the info Cori. Could you let me know what state you

live

> in and how you know these 4 states recognize AS? I'm trying to

get

> info from people who have direct dealings with the states that

they

> are talking about. Why? When I moved to AL, we had a young man

who

> lived with us who was dd and was mr. But he had managed to work

and

> was eligible for ssdi benefits because he had worked. In MO he

> received medicaid. When we moved to AL he became ineligible for

> medicaid because of the way AL interpreted the statutes (his ssdi

> benefits were $30 per month above the ssi benefits and thus he was

> ineligible). I read the statutes before we moved and thought we

were

> ok. But I did not talk to anyone who lived here and knew about

how

> the statute was applied. So we ended up sending the young man to

a

> relative of his in another state where he was once again eligible

for

> medicaid.

>

> Now I know that in a year he would've been eligible for Medicare,

but

> he had health issues that had to be addressed and couldn't wait.

>

> Thanks for your help.

>

> C

>

[Guest guest]

I live in Arizona. I am part of another website that I am trying to

get the info on what states accept all ASD. These are the only ones

that answered back. There really should be more help for our kids.

We shouldn't have to move to certain states to receive services.

This is BS. But I know it is life.

I will let you know if I find out anymore!

Cori

> >

> > I would like to add that Maine, West Virginia, Massachusetts and

> > Pennsylvania all recognize Aspergers. I do not know anything

about

> > homeschooling though.

> >

> > Cori

> >

> > >

> >

> Thanks for the info Cori. Could you let me know what state you

live

> in and how you know these 4 states recognize AS? I'm trying to

get

> info from people who have direct dealings with the states that

they

> are talking about. Why? When I moved to AL, we had a young man

who

> lived with us who was dd and was mr. But he had managed to work

and

> was eligible for ssdi benefits because he had worked. In MO he

> received medicaid. When we moved to AL he became ineligible for

> medicaid because of the way AL interpreted the statutes (his ssdi

> benefits were $30 per month above the ssi benefits and thus he was

> ineligible). I read the statutes before we moved and thought we

were

> ok. But I did not talk to anyone who lived here and knew about

how

> the statute was applied. So we ended up sending the young man to

a

> relative of his in another state where he was once again eligible

for

> medicaid.

>

> Now I know that in a year he would've been eligible for Medicare,

but

> he had health issues that had to be addressed and couldn't wait.

>

> Thanks for your help.

>

> C

>

[Guest guest]

can you tell me WHY Colorado came out as a no for kids with Asperger's?????

What was the story I missed it. Thanks Lynda

[Guest guest]

>

> I live in Arizona. I am part of another website that I am trying to

> get the info on what states accept all ASD. These are the only ones

> that answered back. There really should be more help for our kids.

> We shouldn't have to move to certain states to receive services.

> This is BS. But I know it is life.

>

> I will let you know if I find out anymore!

>

> Cori

>

>

Thanks Cori for the info. I agree that this is BS. Should be same

rules in all states. For those who cannot move and who live in a

state where they cannot receive services (or adequate services) it

must be a nightmare. They also should have a designated person in

each state that calls you and tells you what is available for your

child and what your child needs immediately after you receive an

autism diagnosis. Our physician dx'd AS, told us a book to read, and

said see you in 6 months. The school changed his special ed category

and that was it. It was up to us to find out what was/was not

available. To try different methods of reaching our son. It would

have been a lot less stressful if we had help. Of course maybe a lot

of problems would have been avoided if our first evaluation from the

school when ds was 4 would have picked up on the AS dx instead of

just saying it was adhd. Then we might have had some intervention

services and specific help with starting school instead of the school

waiting until ds was wanting to drop out of school at the end of 1st

grade to do a more extensive evaluation. Getting off my soapbox now!

C

[Guest guest]

>

> can you tell me WHY Colorado came out as a no for kids with

Asperger's?????

> What was the story I missed it. Thanks Lynda

>

>

I believe someone posted that Colorado did not recognize AS as a

diagnosis to get services. Many states will recognize AS as long as a

child is also MR. But isn't that the definition of AS -- the kids are

intelligent & high functioning?

C

[Guest guest]

I live in Nebraska, and they don't recognize AS either, but they might

consider it now......because at one of the middle schools this last week, a

child

with AS threatened another child, and said he was going to bring a gun to

school and kill him, and then got suspended.......I have been trying to get my

son an IEP since 4th grade, he has never qualified because they said HE IS SO

SMART.....so yeah AS kids are very very smart, but he gets D's and F's on the

school work so they write him off as lazy!

That's what I get, I would of considered moving to Colorado which is close

by, but darn it, it doesn't sound like it is any better there.

[Guest guest]

Smart has nothing to do with whether or not a child can have an IEP. My

son was getting straight As when he was evaluated for his first IEP.

But his verbal IQ was 70 points higher than his performance IQ. And he

had issues with pragmatic speech, and large and small motor issues that

needed to be dealt with in OT and adaptive PE. Don't let them con you.

SMART IS NOT THE CRITERION FOR AN IEP. Sorry for shouting, but it makes

me mad that school personnel still do that. Grrr.

Liz

On May 13, 2006, at 8:42 AM, CLNALT@... wrote:

> I live in Nebraska, and they don't recognize AS either, but they might

> consider it now......because at one of the middle schools this last

> week, a child

> with AS threatened another child, and said he was going to bring a

> gun to

> school and kill him, and then got suspended.......I have been trying

> to get my

> son an IEP since 4th grade, he has never qualified because they said

> HE IS SO

> SMART.....so yeah AS kids are very very smart, but he gets D's and

> F's on the

> school work so they write him off as lazy!

> That's what I get, I would of considered moving to Colorado which is

> close

> by, but darn it, it doesn't sound like it is any better there.

[Guest guest]

thanks Liz for telling me that, I appreciate that so much, I am getting

smarter by the second with all your support, this is a great group thanks

everyone for all the info and help!

Lynda

[Guest guest]

Subject: Re: ( ) UPDATE Moving w/ Aspie Child -- Need info on

AR & SC

Smart has nothing to do with whether or not a child can have an IEP. My

son was getting straight As when he was evaluated for his first IEP.

But his verbal IQ was 70 points higher than his performance IQ. And he

had issues with pragmatic speech, and large and small motor issues that

needed to be dealt with in OT and adaptive PE. Don't let them con you.

SMART IS NOT THE CRITERION FOR AN IEP. Sorry for shouting, but it makes

me mad that school personnel still do that. Grrr.

Liz

I agree with you Liz, it makes me mad that they still tell people this. So

as long as they do that, you can keep shouting it!

Roxanna

[Guest guest]

Here is a copy of the letter I got from my Son's counselor when I asked for

him to be tested.

Good morning....We are in the Student Assistance Team process...Before any

testing can be done, I have to go through the SAT process which includes

filling out a referral packet and working with his teachers.

I will tell you this, that I spoke with our school psychologist last week

and he said that it will be impossible for him to test Logan by the end of

the year. His schedule is full. He did indicate that when all of the SAT

information is completed we can request that Senior High test him as soon

as possible. I know that academically, he may not qualify for special

education, however the team my decided to verify Logan as " Other health

impaired. I will keep you posted.....Thanks and have a great day!!!!!!!

[Guest guest]

Put the request for a full evalution in writing to the Director of Special

Education and school principal. They have 60 days to complete the testing and

conduct an eligibility meeting. 60 days now includes summer. Pam

[Guest guest]

They told me today, that 30 days was what they have here, I live in

Nebraska, and amazingly enough found a program being offered now here called

school

wrap around program, and I met with the lady today, she interviewed me for 2

hours about my Son, and she was so angry that the school has been brushing me

off, I am sure something will be done now, i wonder if this is available to

other states as well, I will send the link to the website.

[Guest guest]

>

> Here is a copy of the letter I got from my Son's counselor when I

asked for

> him to be tested.

>

>

>

>

> Good morning....We are in the Student Assistance Team

process...Before any

> testing can be done, I have to go through the SAT process which

includes

> filling out a referral packet and working with his teachers.

> I will tell you this, that I spoke with our school psychologist

last week

> and he said that it will be impossible for him to test Logan by

the end of

> the year. His schedule is full. He did indicate that when all of

the SAT

> information is completed we can request that Senior High test him

as soon

> as possible. I know that academically, he may not qualify for

special

> education, however the team my decided to verify Logan as " Other

health

> impaired. I will keep you posted.....Thanks and have a great

day!!!!!!!

>

>

>

Get a copy of your state's regulations and look them over for

yourself. It sounds like they have placed you in the prereferral

loop. In my state, one of the ways to get out of this loop is to

write that your child needs help now and prereferral strategies will

only delay the process. In my state, if a parent requests that an

opt out be made of the prereferral process, then the school has to

start the testing process.

As for testing before the end of the school year, it is my

understanding that testing can and does go on during the school

year. My states' regulations and federal regulations do not stop the

time guidelines from ticking once school is out for the summer. Also

academic reasons are not the only reason to be determined as eligible

for special education. My son is in the autism category, but is

smart and is on grade level in most subjects.

Don't let them snow you and wait until next semester is mostly gone

before a determination is made. Then they'll say that half the

school year is gone so why don't we wait to do something till next

year?

Good luck.

C