Guest guest Posted October 23, 2005 Report Posted October 23, 2005 In a message dated 10/23/2005 5:12:28 P.M. Eastern Daylight Time, sara61145@... writes: I have heard that once your child is 18, they can receive SSI and Medicaid no matter the parents income. When my son is almost 18, I'm going to check it out. The coverage for his meds alone would be a godsend. My sister's boyfriend had a totally autistic brother in his 40's. He received SSI and medicaid. The pharmacy would call each month to let them know his meds were ready, pick them up. Right now, my son has to have new scrips every month and I am at the pharmacy weekly. They know my name there! Also, my sister received money each month just for being this man's " babysitter " in the mornings before he went to his program. A lot of money. Although, she told me that caregivers who are related don't receive as much! Makes sense, huh? LOL -Sara While that is TECHNICALLY true, in that case, they also count the fact that housing is " provided " by the family. IOW, if the Aspie isn't paying rent, etc, the housing provided for them counts against them. As far as receiving SSI AND Medicaid, that's only logical, since they would be receiving a " different type " of Medicaid from the " typical " low income Medicaid. For instance, in Ohio, they get Medicaid-Disability rather than the Healthy Family Medicaid that low income Medicaid recipients receive. I'm sure it's possible for people to get " paid " for looking after these adults. The same as they would if they took in mentally ill or mentally disabled adults. I couldn't tell you how that works, though. You/d have to approach it through an agency who hires people to do that. I don't know of any personally, but I'm sure they are out there. Because typically, when you hear about it, it's because it's been abused. IOW, the " caregiver " has been collecting the money, and not providing the level of supervision the disabled person truly needs. From my understanding, it can be in excess of $1000 a month. SOUNDS good, but is one REALLY able to commit to it, or does one really realize what it entails? Connie Mom to , almost 18, AS, OCD, Tourette's, prob bi-polar (and currently stimming his ass off--LOL) and , 14, ADHD, ODD, poss ASD and definite PITA Quote
Guest guest Posted October 23, 2005 Report Posted October 23, 2005 I have heard that once your child is 18, they can receive SSI and Medicaid no matter the parents income. When my son is almost 18, I'm going to check it out. The coverage for his meds alone would be a godsend. My sister's boyfriend had a totally autistic brother in his 40's. He received SSI and medicaid. The pharmacy would call each month to let them know his meds were ready, pick them up. Right now, my son has to have new scrips every month and I am at the pharmacy weekly. They know my name there! Also, my sister received money each month just for being this man's " babysitter " in the mornings before he went to his program. A lot of money. Although, she told me that caregivers who are related don't receive as much! Makes sense, huh? LOL -Sara Quote
Guest guest Posted October 24, 2005 Report Posted October 24, 2005 We had a young man (well, not really a young man -- he was older than I was) who lived with us for a while. I helped him to get on SSI as he had worked for 10 years, but got so stressed out by washing pots and pans (that was his job for 10 years) that he couldn't take it anymore. His family never got him on SSI, just kicked him out of the house when he turned 18. Now this boy had an IQ in the 60s. He lived from friend to friend to friend for years. It took a lot for us to get him on SSI because he had managed to work for 10 years. We had to prove that he was MR and that the MR occurred before he turned 20 or 21 or 22 (I don't remember now the exact age). We tried contacting the schools he attended (yes, he did manage to graduate high school but he received an occupational diploma). The schools said that they only have to maintain a student's complete file for 10 years, then they can trash the file and just maintain a transcript. And that is what they had done with his file. So that was no help. His parents hadn't retained any paperwork. So we were in this vicious cycle with having an obviously disabled person, but not really being able to prove it other than with a depression diagnosis. Then one of the psychiatrists that examined him said that it was obvious that the boy was MR and it was obvious from his cat scan that he hadn't suffered a sudden brain injury after the age of 22 so he was obviously MR from before that age. So social security gave in. Whew. With SSI came the medicaid benefits -- for the state of MO (that we lived in) . When we moved with him to the state of AL, we discovered that under the AL rules, he was not eligible for medicaid because the SSI he received was $30 a month too much. Huh? Like you could purchase medical insurance for $30 a month. We ended up finally finding a family member of his that would take him (she hadn't known of his situation) and he moved to live with her. In that new state (a 3rd state), he was eligible for medicaid. Oh, and a friend of his had tried to get him on medicaid in yet another state about 2 years before we tried. He was denied and they didn't appeal that decision. You have got to love these rules/regulations. I think that he was receiving around $430 a month. We did not receive anything additional for his living with us -- just the amount that he paid us for room and board. They said he would receive less than the $430 if it was a close family member like a parent or a grandparent that he was living with. P. Quote
Guest guest Posted May 31, 2006 Report Posted May 31, 2006 Cori wrote: I applied for SSI for . If accepted he would get on Long Term Care insurance, which meant I could get him an OT. But in here in AZ, they said we make too much money and if I didn't work then would get $468 a month and LTC insurance.Is there different types of SSI? There are waivers for income with SSI and other Fed. funds as well--if you can qualify--not income based, but need based and availability per state. Dept. of Mental Health Services is how we looked it up on--DMAS. Most SS workers may not know about the income waiver, we had to inform them--you can also apply for the SS for the Elderly and disabled-- they are the operative words. You may want to ask someone with your local or the National Chapter of the Arc for infomation, they gave seminars around here on it. Kirsten Hargis Partners in Policymaking, 2004-2005 The information transmitted is intended only for the person or entity to which is addressed and may contain confidential and / or privileged material. Any review, retransmission, dissemation or other use of, or taking of any action in reliance upon, this information by persons or entities other than the intended recipient is prohibited. Under protection of Federal Confidentiality Rules (42 CFR Part 2). The Federal Rules prohibit you from making any further disclosure of this information unless further disclosure is expressly permitted by the written consent of the person to whom it pertains or as permitted by 42 CFR Part 2. If you are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. Thank You --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1 & cent;/min. Quote
Guest guest Posted August 20, 2006 Report Posted August 20, 2006 SSI is based on household income. If you have assets they have to be claimed. Pam Quote
Guest guest Posted August 20, 2006 Report Posted August 20, 2006 It is household income dependant for a minor child. Here is more info: Pam _Social Security Disability Insurance_ (http://www.kidsource.com/nfpa/social.html) Quote
Guest guest Posted August 21, 2006 Report Posted August 21, 2006 I've applied for this for my daughter before and been denied. You guys make it sound so easy to get. What did I do wrong? I could really use the extra income as a single self-employed mom. Thank you! =^..^= Marie Make some easy money, the fun way! http://www.be-paid.com/pages/index.php?refid=surveys4bmh http://www.cassandrasclicks.com/pages/index.php?refid=surveys4bmh I HAVE been paid by both! No joke! -- ___________________________________________________ Play 100s of games for FREE! http://games.mail.com/ Quote
Guest guest Posted August 21, 2006 Report Posted August 21, 2006 You need to just start by filling out all the paperwork. It took SSI 10 months to finally approve it for my son, but it's worth it in the end. It really helps out. Dawn > > can anyone tell me if anyone that is on the autsim spectrum > can SSI ? If a person has lots of money in their name > how do they get SSI ? Thank You Donna Rabe > Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 Hi Toni, We did get SSI and Medicaid, but we had to resubmit his questionare to the Texas Health Department, because they thought his " Asperger/Autism Spectrum " answers were insufficient........to be honest with you..........I was grinning from ear to ear....... You tell me his AS answers are not good enough.......what a hoot :>) We resubmitted and of course his mom and I had to help him answer it more like a neurotypical person or more in line with whatever (uugghhh.....aaaggghhh) this screener/Texas Health Dept system was EXPECTING. Oh well, I just find it so humorous, however the delay was a bit inconvenient. Like I really want to fill out State forms over again...... Best Regards Mark > > > > > > > > 1. Do you cook and make your own food - Yes, I use a > microwave. > > 2. What does your typical day consist of? (he filled it out > on a > week-end, so he wrote....) sleep, wake-up, eat cereal, > cartoons, > computer and bedtime. > > 3. Do you need help and support when requiring > transportation? My > Dad takes me to the store. > > He wrote all of his remarks every so small and scribbly > too......my > wife truly disliked his effort, but I liked it and thus I > sent it in. > > > > > > > > > > That sounds JUST like my kids...And they turned him down , > with those answers? How old is he, if I may ask? Toni > > I, not events, have the power to make me happy or unhappy > today. I can CHOOSE which it shall be. Groucho Marx > > _________________________________________ > > Check your Email accounts at MyEmail.com > > Login from home, work, school. Anywhere! > Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 Sorry, but I forgot to answer one of your questions........he is 18, AS, a quiet type AS with passions of computers, computers, computers, collecting music, collecting music, listening to music, art, art, painting, art. :>) > > > > > > > > 1. Do you cook and make your own food - Yes, I use a > microwave. > > 2. What does your typical day consist of? (he filled it out > on a > week-end, so he wrote....) sleep, wake-up, eat cereal, > cartoons, > computer and bedtime. > > 3. Do you need help and support when requiring > transportation? My > Dad takes me to the store. > > He wrote all of his remarks every so small and scribbly > too......my > wife truly disliked his effort, but I liked it and thus I > sent it in. > > > > > > > > > > That sounds JUST like my kids...And they turned him down , > with those answers? How old is he, if I may ask? Toni > > I, not events, have the power to make me happy or unhappy > today. I can CHOOSE which it shall be. Groucho Marx > > _________________________________________ > > Check your Email accounts at MyEmail.com > > Login from home, work, school. Anywhere! > Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 I'm glad you got the SSI and Medicaid! The answers our kids give are a HOOT for sure!! Reminds me, I may have to post a funny story about my son Noah. I'll do that when I finish reading all the emails!! > Hi Toni, > > We did get SSI and Medicaid, but we had to resubmit his > questionare to the Texas Health Department, because they > thought his " Asperger/Autism Spectrum " answers were > insufficient........to be honest with you..........I was > grinning from ear to ear....... > > You tell me his AS answers are not good enough.......what > a hoot :>) > > We resubmitted and of course his mom and I had to help him > answer it more like a neurotypical person or more in line > with whatever (uugghhh.....aaaggghhh) this screener/Texas > Health Dept system was EXPECTING. > > Oh well, I just find it so humorous, however the delay was > a bit inconvenient. Like I really want to fill out State > forms over again...... > > Best Regards > Mark > > > > > > > > > > > > > > > 1. Do you cook and make your own food - Yes, I use a > > microwave. > > > > 2. What does your typical day consist of? (he filled it > > out on a > > week-end, so he wrote....) sleep, wake-up, eat cereal, > > cartoons, > > computer and bedtime. > > > > 3. Do you need help and support when requiring > > transportation? My > > Dad takes me to the store. > > > > He wrote all of his remarks every so small and scribbly > > too......my > > wife truly disliked his effort, but I liked it and thus > > I sent it in. > > > > > > > > > > > > > > > That sounds JUST like my kids...And they turned him > > down , with those answers? How old is he, if I may ask? > > Toni > > I, not events, have the power to make me happy or > > unhappy today. I can CHOOSE which it shall be. Groucho > > Marx > > _________________________________________ > > > > Check your Email accounts at MyEmail.com > > > > Login from home, work, school. Anywhere! > > > > > > > I, not events, have the power to make me happy or unhappy today. I can CHOOSE which it shall be. Groucho Marx _________________________________________ Check your Email accounts at MyEmail.com Login from home, work, school. Anywhere! Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 Too bad you don't live in Ga. My boys are 17 will be 18 in Oct and their favorite things are computers, computers, video games, more video games , listening to German & Japanese music, anime, downloading music, downloading more music and eating, sleeping, more sleeping and watching tv... <grin> Toni > Sorry, but I forgot to answer one of your > questions........he is 18, AS, a quiet type AS with > passions of computers, computers, computers, collecting > music, collecting music, listening to music, art, art, > painting, art. :>) > > > > > > > > > > > > > > > 1. Do you cook and make your own food - Yes, I use a > > microwave. > > > > 2. What does your typical day consist of? (he filled it > > out on a > > week-end, so he wrote....) sleep, wake-up, eat cereal, > > cartoons, > > computer and bedtime. > > > > 3. Do you need help and support when requiring > > transportation? My > > Dad takes me to the store. > > > > He wrote all of his remarks every so small and scribbly > > too......my > > wife truly disliked his effort, but I liked it and thus > > I sent it in. > > > > > > > > > > > > > > > That sounds JUST like my kids...And they turned him > > down , with those answers? How old is he, if I may ask? > > Toni > > I, not events, have the power to make me happy or > > unhappy today. I can CHOOSE which it shall be. Groucho > > Marx > > _________________________________________ > > > > Check your Email accounts at MyEmail.com > > > > Login from home, work, school. Anywhere! > > > > > > > > I, not events, have the power to make me happy or unhappy today. I can CHOOSE which it shall be. Groucho Marx _________________________________________ Check your Email accounts at MyEmail.com Login from home, work, school. Anywhere! Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 This sounds WAY too familiar! LOL My soon to be 17 yo lives and breathes computers and video games. He loves Foreign online games and is starting to pick up a few words in a number of languages, just so he can play them better. And people say that they are mindless entertainment...HA !!!!! Pat-Mom to Josh and Sara (16 yo and 13 yo, both AS) kbtoni@... wrote: Too bad you don't live in Ga. My boys are 17 will be 18 in Oct and their favorite things are computers, computers, video games, more video games , listening to German & Japanese music, anime, downloading music, downloading more music and eating, sleeping, more sleeping and watching tv... <grin> Toni > Sorry, but I forgot to answer one of your > questions........he is 18, AS, a quiet type AS with > passions of computers, computers, computers, collecting > music, collecting music, listening to music, art, art, > painting, art. :>) > > > > > > > > > > > > > > > 1. Do you cook and make your own food - Yes, I use a > > microwave. > > > > 2. What does your typical day consist of? (he filled it > > out on a > > week-end, so he wrote....) sleep, wake-up, eat cereal, > > cartoons, > > computer and bedtime. > > > > 3. Do you need help and support when requiring > > transportation? My > > Dad takes me to the store. > > > > He wrote all of his remarks every so small and scribbly > > too......my > > wife truly disliked his effort, but I liked it and thus > > I sent it in. > > > > > > > > > > > > > > > That sounds JUST like my kids...And they turned him > > down , with those answers? How old is he, if I may ask? > > Toni > > I, not events, have the power to make me happy or > > unhappy today. I can CHOOSE which it shall be. Groucho > > Marx > > _________________________________________ > > > > Check your Email accounts at MyEmail.com > > > > Login from home, work, school. Anywhere! > > > > > > > > I, not events, have the power to make me happy or unhappy today. I can CHOOSE which it shall be. Groucho Marx _________________________________________ Check your Email accounts at MyEmail.com Login from home, work, school. Anywhere! Quote
Guest guest Posted August 23, 2006 Report Posted August 23, 2006 I have to comment about the 'true' fact that people call that stuff Mindless entertainment, I too had something good happen. My now 13 year old has been on Rune Scape. His spelling has increased TEN FOLD. He is writing sentances. Not perfect spelling but it is amazing what he can do. Wow! He learned something!!! Isn't that awsome!!! *smiles* lisa b > > This sounds WAY too familiar! LOL My soon to be 17 yo lives and breathes computers and video games. He loves Foreign online games and is starting to pick up a few words in a number of languages, just so he can play them better. And people say that they are mindless entertainment...HA !!!!! > > Pat-Mom to Josh and Sara (16 yo and 13 yo, both AS) > Quote
Guest guest Posted August 25, 2006 Report Posted August 25, 2006 My computer geeks (video game gurus) have learned all about history, theology, languages etc. They will see something on a game and go research it and they have learned alot of Japanese and German from some of the anime (Japanese) and German from music. They are learning alot more than the experts think, just my .02 ... Toni > I have to comment about the 'true' fact that people call > that stuff Mindless entertainment, I too had something > good happen. My now 13 year old has been on Rune Scape. > His spelling has increased TEN FOLD. He is writing > sentances. Not perfect spelling but it is amazing what he > can do. Wow! He learned something!!! > Isn't that awsome!!! > *smiles* > lisa b > > > > > > This sounds WAY too familiar! LOL My soon to be 17 yo > lives and breathes computers and video games. He loves > Foreign online games and is starting to pick up a few > words in a number of languages, just so he can play them > better. And people say that they are mindless > > entertainment...HA !!!!! > > Pat-Mom to Josh and Sara (16 yo and 13 yo, both AS) > > > > > > > I, not events, have the power to make me happy or unhappy today. I can CHOOSE which it shall be. Groucho Marx _________________________________________ Check your Email accounts at MyEmail.com Login from home, work, school. Anywhere! Quote
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