Re: help with do-over - long

[Guest guest]

While getting a child on an " appropriate " diet, in terms of not actively

aggravating any known intolerances is a good idea, if you use that as your

baseline, it may only work for a couple of months. Before you know it, there

are more and more foods they are intolerant to. Basically setting the child

up to become intolerant to the foods you are allowing. While healing the gut

is a drive for us parents, if it were my child, and let me tell you, my

child was down to pork, chicken water and rice, with only salt and pepper to

flavor, morning noon and night, I would begin enzymes first. Let the child

acclimate to the enzymes, let some gut healing take place, and then once

acclimated re-introduce supplements. You may find that the better breakdown,

hence absorption of the food makes some of the supplements unnecessary. For

us Super Nu Thera was no longer needed, which was nice. Plus with enzymes

you may get a wider variety of foods tolerated, and I've never experienced

with my son any more foods that need to be withheld. It's been an ever

increasing variety of foods he can handle. Which again means better

nutrition and fewer supplements. Good luck to you.

P.S. If it were me, I'd keep the probiotics, just to help keep things moving

along. We experienced some bowel disturbances while acclimating, and while

the reasons for the disturbances were known to me prior to beginning, and

they were brief, the probiotics helped my little guy not suffer discomfort

needlessly for too long.

help with " do-over " - long

> (I am double posting this so if you read both message boards, sorry!)

>

> Okay. My son Jaden, 2 years 8 months, unofficially ASD, has been gfcf

> for 10 weeks on Tuesday. He is non-verbal, off in his own world, has

> a few stimms, but isn't a behavoir problem, very few fits, etc. I

> have noticed some small improvement since the diet. More eye

> contact, responds to his name occasionally, but generally just more

> aware of his surroundings. I am frusterated at his lack of progress

> and feel there is more I should do, or something I am doing that is

> not working. I have decided to start a corn free trial this week

> (thank you for your responses in regards to that). But I am

> frusterated with his supplements. An idea came to me that I need

> your help with. This week I am going to pull ALL supplements and

> just do the diet. Then I will reintroduce supplements on a slower

> basis. My DAN! put us on diet and a lot of supps all at once. Then

> added some and changed some and I don't feel some are working right.

> So I need some help knowing if #1, this is a good idea and I should

> pull ALL supps for the week (should I keep Yeast-Aid and/or ProBio

> Gold?), and #2 what should I introduce first (what's

> most " important " ) and how often I should introduce them. I am not

> very patient and I want to be doing everything I can for him, but I

> have to figure out what is helping. Oh yes, he has even developed a

> new stimm in the last 10 weeks, turning a toy car over and over as

> fast as he can in his hands. So here goes. This is what I have

> right now...

>

> ProBio Gold- 1 daily

> Yeast-Aid- 2 daily (I just started this tonight.

> He just Aqua Flora- 1 TBS daily yesterday.

> Zinc- Kirkman liquid 30 mg at bedtime

> Cod Liver Oil- Kirkmans (1250IU Vit A 135 IU Vit D) 2 times daily

> (He took Nortic Naturals at first, wouldnt take other

> supps when I would give it to him, so we DC'd)

> Pro EPA- Nordic Naturals- 1 daily

> Nu-Thera- Kirkmans- 2 daily (2 capsuls contain: Vit C 60 mg; Vit

> B1 7.5 mg; Vit B2 7.5 mg; Niacinamide 20 mg; Vit B12 10

> mcg; Pantothenic Acid 10 mg; Vit E 30 IU; Folic Acid 400

> mcg; Biotin 200 mcg; Magnesium 100 mg; Zinc 10 mg;

> Manganese 1500 mcg; Selenium 25 mcg; P-5-P 50mg)

> Citramin II- Thorne Research- 3 daily (3 capsules contain: Calcium

> 300 mg; Iodine 120 mcg; Magnesium 270 mg; Zinc 21 mg;

> Selenium 150 mcg; Manganese 6 mg; Chromium 200 mcg;

> Molybdenum 90 mcg; Potassium 90 mg; Boron 3 mg; Vanadium

> 90 mcg)

> Calcium- Kirkmans- 2 daily- (2 capsules contain: Calcium 400mg; Vit

> D 160 IU)

> Vitamin C- Kirkmans 2 daily total of 500 mg

> Vitamin B12 Injections- 1000 mcg twice weekly

> Folacal- Thorne Research- 1 daily 800 mcg

>

> I was supose to start TMG- Kirkmans 175 mg each capsule this week.

> I gave him a Peptizyde capsule with his lunch today (first one he's

> had) since I knew it had corn in it. I want so desperatly to help my

> son and just feel " lost " right now as to why he isn't progressing.

> ANY help would be so wonderful. Thanks for your valuable time!

>

>

>

>

>

>

>

[Guest guest]

>>But I am

> frusterated with his supplements. An idea came to me that I need

> your help with. This week I am going to pull ALL supplements and

> just do the diet. Then I will reintroduce supplements on a slower

> basis.

Yes, I would definitely recommend you do this.

> pull ALL supps for the week (should I keep Yeast-Aid and/or ProBio

> Gold?),

I would pull ALL of them. If you notice yeast coming back, then you

can add one of the probiotics before a week goes by. My son did not

tolerate probiotics, so start with just adding one thing, wait a few

days, then add the other one.

>>how often I should introduce them.

Long enough that you have noticed whether the previous one was helpful

or caused problems. Maybe 2-3 days at the soonest.

>>Oh yes, he has even developed a

> new stimm in the last 10 weeks, turning a toy car over and over as

> fast as he can in his hands.

Is this like he is rubbing it with his hands? That might be a sign of

vitamin B toxicity, so when you add the vitamin B, start very slowly

and work up.

> ProBio Gold- 1 daily

> Yeast-Aid- 2 daily (I just started this tonight.

> He just Aqua Flora- 1 TBS daily yesterday.

> Zinc- Kirkman liquid 30 mg at bedtime

> Cod Liver Oil- Kirkmans (1250IU Vit A 135 IU Vit D) 2 times daily

> (He took Nortic Naturals at first, wouldnt take other

> supps when I would give it to him, so we DC'd)

> Pro EPA- Nordic Naturals- 1 daily

> Nu-Thera- Kirkmans- 2 daily (2 capsuls contain: Vit C 60 mg; Vit

> B1 7.5 mg; Vit B2 7.5 mg; Niacinamide 20 mg; Vit B12 10

> mcg; Pantothenic Acid 10 mg; Vit E 30 IU; Folic Acid 400

> mcg; Biotin 200 mcg; Magnesium 100 mg; Zinc 10 mg;

> Manganese 1500 mcg; Selenium 25 mcg; P-5-P 50mg)

> Citramin II- Thorne Research- 3 daily (3 capsules contain: Calcium

> 300 mg; Iodine 120 mcg; Magnesium 270 mg; Zinc 21 mg;

> Selenium 150 mcg; Manganese 6 mg; Chromium 200 mcg;

> Molybdenum 90 mcg; Potassium 90 mg; Boron 3 mg; Vanadium

> 90 mcg)

> Calcium- Kirkmans- 2 daily- (2 capsules contain: Calcium 400mg; Vit

> D 160 IU)

> Vitamin C- Kirkmans 2 daily total of 500 mg

> Vitamin B12 Injections- 1000 mcg twice weekly

> Folacal- Thorne Research- 1 daily 800 mcg

As a general comment, it does appear like you might need to add more

magnesium. You are also giving quite a lot of zinc, which can be a

good thing depending on the child, but can cause problems also.

> I gave him a Peptizyde capsule with his lunch today (first one he's

> had) since I knew it had corn in it.

I don't think Peptizyde helps much with corn, I would think you would

want to use Zyme Prime for that, but my son did not tolerate corn even

with all three enzymes, so maybe someone else can let you know which

one might help with corn.

Dana

[Guest guest]

My advice from traveling this road for many years - slow down, take a deep

breath and realize that you don't have to do everything at once.

I think that has been the biggest mistake I have made over the years. I was so

anxious to help that I rushed into many things at one time.

We just recently started over at square one and are taking things very slowly.

The good news is that doing this is giving us some positive results.

We did stop all supplements and started with enzymes. I plan to add things one

at a time if I feel she needs them. The only way to really know what is working

is to add them one at time so you can judge the reactions. I say this because I

am the number one champion of jumping in with a bunch of stuff and then having

no idea what is helping or what is hurting.

I understand so well your drive to help and your impatience with not seeing more

results sooner. Be patient and give yourself a break. This is the queen of

impatient speaking here so I know where you are coming from. Your child is young

and you have started early which is a very positive thing, so take it a day at a

time and trust your instincts.

Hang in there.

help with " do-over " - long

(I am double posting this so if you read both message boards, sorry!)

Okay. My son Jaden, 2 years 8 months, unofficially ASD, has been gfcf

for 10 weeks on Tuesday. He is non-verbal, off in his own world, has

a few stimms, but isn't a behavoir problem, very few fits, etc. I

have noticed some small improvement since the diet. More eye

contact, responds to his name occasionally, but generally just more

aware of his surroundings. I am frusterated at his lack of progress

and feel there is more I should do, or something I am doing that is

not working. I have decided to start a corn free trial this week

(thank you for your responses in regards to that). But I am

frusterated with his supplements. An idea came to me that I need

your help with. This week I am going to pull ALL supplements and

just do the diet. Then I will reintroduce supplements on a slower

basis. My DAN! put us on diet and a lot of supps all at once. Then

added some and changed some and I don't feel some are working right.

So I need some help knowing if #1, this is a good idea and I should

pull ALL supps for the week (should I keep Yeast-Aid and/or ProBio

Gold?), and #2 what should I introduce first (what's

most " important " ) and how often I should introduce them. I am not

very patient and I want to be doing everything I can for him, but I

have to figure out what is helping. Oh yes, he has even developed a

new stimm in the last 10 weeks, turning a toy car over and over as

fast as he can in his hands. So here goes. This is what I have

right now...

ProBio Gold- 1 daily

Yeast-Aid- 2 daily (I just started this tonight.

He just Aqua Flora- 1 TBS daily yesterday.

Zinc- Kirkman liquid 30 mg at bedtime

Cod Liver Oil- Kirkmans (1250IU Vit A 135 IU Vit D) 2 times daily

(He took Nortic Naturals at first, wouldnt take other

supps when I would give it to him, so we DC'd)

Pro EPA- Nordic Naturals- 1 daily

Nu-Thera- Kirkmans- 2 daily (2 capsuls contain: Vit C 60 mg; Vit

B1 7.5 mg; Vit B2 7.5 mg; Niacinamide 20 mg; Vit B12 10

mcg; Pantothenic Acid 10 mg; Vit E 30 IU; Folic Acid 400

mcg; Biotin 200 mcg; Magnesium 100 mg; Zinc 10 mg;

Manganese 1500 mcg; Selenium 25 mcg; P-5-P 50mg)

Citramin II- Thorne Research- 3 daily (3 capsules contain: Calcium

300 mg; Iodine 120 mcg; Magnesium 270 mg; Zinc 21 mg;

Selenium 150 mcg; Manganese 6 mg; Chromium 200 mcg;

Molybdenum 90 mcg; Potassium 90 mg; Boron 3 mg; Vanadium

90 mcg)

Calcium- Kirkmans- 2 daily- (2 capsules contain: Calcium 400mg; Vit

D 160 IU)

Vitamin C- Kirkmans 2 daily total of 500 mg

Vitamin B12 Injections- 1000 mcg twice weekly

Folacal- Thorne Research- 1 daily 800 mcg

I was supose to start TMG- Kirkmans 175 mg each capsule this week.

I gave him a Peptizyde capsule with his lunch today (first one he's

had) since I knew it had corn in it. I want so desperatly to help my

son and just feel " lost " right now as to why he isn't progressing.

ANY help would be so wonderful. Thanks for your valuable time!

[Guest guest]

Our first OT taught us about playing in our daughter's world instead

of trying to bring her into ours (which slowly happened as a result)-

at 20 months she was barely reachable. So we did what she did-lined

toys up with her (then slowly moved them out of pattern), bought the

items that went with her favorite tv shows or books, whatever would

help bring us into the few things that were really important to her.

We felt so much more connected to her plus it slowly gave more

variety for her as she learned about some new toys (even if

everything was Teletubbies) and brought things to us to play and show

us (non-verbal at that point). You got some great advise on your

questions. I just wanted to add because my daughter sounds a lot

like your son at that time.

Best Wishes

Becky

> (I am double posting this so if you read both message boards,

sorry!)

>

> Okay. My son Jaden, 2 years 8 months, unofficially ASD, has been

gfcf

> for 10 weeks on Tuesday. He is non-verbal, off in his own world,

has

> a few stimms, but isn't a behavoir problem, very few fits, etc. I

> have noticed some small improvement since the diet. More eye

> contact, responds to his name occasionally, but generally just more

> aware of his surroundings. I am frusterated at his lack of

progress

> and feel there is more I should do, or something I am doing that is

> not working. I have decided to start a corn free trial this week

> (thank you for your responses in regards to that). But I am

> frusterated with his supplements. An idea came to me that I need

> your help with. This week I am going to pull ALL supplements and

> just do the diet. Then I will reintroduce supplements on a slower

> basis. My DAN! put us on diet and a lot of supps all at once.

Then

> added some and changed some and I don't feel some are working

right.

> So I need some help knowing if #1, this is a good idea and I should

> pull ALL supps for the week (should I keep Yeast-Aid and/or ProBio

> Gold?), and #2 what should I introduce first (what's

> most " important " ) and how often I should introduce them. I am not

> very patient and I want to be doing everything I can for him, but I

> have to figure out what is helping. Oh yes, he has even developed

a

> new stimm in the last 10 weeks, turning a toy car over and over as

> fast as he can in his hands. So here goes. This is what I have

> right now...

>

> ProBio Gold- 1 daily

> Yeast-Aid- 2 daily (I just started this tonight.

> He just Aqua Flora- 1 TBS daily yesterday.

> Zinc- Kirkman liquid 30 mg at bedtime

> Cod Liver Oil- Kirkmans (1250IU Vit A 135 IU Vit D) 2 times daily

> (He took Nortic Naturals at first, wouldnt take other

> supps when I would give it to him, so we DC'd)

> Pro EPA- Nordic Naturals- 1 daily

> Nu-Thera- Kirkmans- 2 daily (2 capsuls contain: Vit C 60 mg; Vit

> B1 7.5 mg; Vit B2 7.5 mg; Niacinamide 20 mg; Vit B12 10

> mcg; Pantothenic Acid 10 mg; Vit E 30 IU; Folic Acid 400

> mcg; Biotin 200 mcg; Magnesium 100 mg; Zinc 10 mg;

> Manganese 1500 mcg; Selenium 25 mcg; P-5-P 50mg)

> Citramin II- Thorne Research- 3 daily (3 capsules contain: Calcium

> 300 mg; Iodine 120 mcg; Magnesium 270 mg; Zinc 21 mg;

> Selenium 150 mcg; Manganese 6 mg; Chromium 200 mcg;

> Molybdenum 90 mcg; Potassium 90 mg; Boron 3 mg; Vanadium

> 90 mcg)

> Calcium- Kirkmans- 2 daily- (2 capsules contain: Calcium 400mg; Vit

> D 160 IU)

> Vitamin C- Kirkmans 2 daily total of 500 mg

> Vitamin B12 Injections- 1000 mcg twice weekly

> Folacal- Thorne Research- 1 daily 800 mcg

>

> I was supose to start TMG- Kirkmans 175 mg each capsule this week.

> I gave him a Peptizyde capsule with his lunch today (first one he's

> had) since I knew it had corn in it. I want so desperatly to help

my

> son and just feel " lost " right now as to why he isn't progressing.

> ANY help would be so wonderful. Thanks for your valuable time!

>

[Guest guest]

> Our first OT taught us about playing in our daughter's world

instead

> of trying to bring her into ours (which slowly happened as a

result)-

>

Great idea!! I guess in a small way I do this, I just haven't ever

thought about it. I get a car when he has one and " drive " it over

his arms and legs. He sometimes doesn't like it (usually) but I

guess it will help him " play " . His teacher at early intervention

follows him around until he stops to look at something. Then she

grabs him and what ever he looked at and " plays " with him with the

item. He really hates this and starts signing " finished " almost

immediatly!