Re: My 18 mo. old nephew in hospital again...need advise/input

[Guest guest]

Hi. Arching the back, shaking(shivering-like), not sleeping, is very

familiar to me... my son did that when he had such bad (silent)reflux

as an infant. And no wonder your nephew is refluxing, being that he

is impacted. And one thing they don't tell you is that alot of those

meds, like antibiotics and asthma meds can bother the stomach enough

to cause reflux. GI should be able to help with a med. Hopefully,

it is short-term.

Regards,

a

>

> Well, last night my sister in law ended up bringing him to the

> emergency room. A couple of days ago he started throwing up and he

> kept doing it. And he wouldn't sleep for more than 10 mins. at a

> time. He would arch his back and shake.

>

> When I talked to her this morning she said they took an x-ray and

it

> showed his gut impacted with stool. They gave him an enema and she

> couldn't believe how much came out. The pediatrician said he is

> probably going to refer him to a GI specialist.

>

>

> Thanks,

>

>

[Guest guest]

my page on vaccines

http://members.tripod.com/mueller_ranges/links/vaccines.html

basically she needs to get on these message boards

basically she needs to understand that she is bearing all the

consequences of all the medical decsion making.

there seems to be an accelerating burden of care issue that should be

motivating to pursing this matter of her own bat.

the net is creating a huge divide in the degree of health knowledge

sophistication and either you are on it or not.

if you are not then you are going to be a victim to incompedent

medical advice

[Guest guest]

> He is always congested in his chest.

>

> He has been having constipation for a while now.

Both of these things are linked to milk, as well as a few other things.

My page of constipation ideas

http://www.danasview.net/constip.htm

>>Recently, he was put on Miralax for the

> constipation and my sister-in-law said it gave him diarrhea for days

> so she took him off it.

More Miralax info

http://www.danasview.net/miralax.htm

> Does this seem vaccine related to anyone? Am I just loosing my mind

> and jumping the gun here?

It does appear he is metal toxic. You can recommend to her that she

have him tested for metals

http://www.danasview.net/chelate.htm

Dana

[Guest guest]

Hi -- I don't know if being a carrier for cystic fibrosis is

the same as having cystic fibrosis--do you know if they said he " has

it " or are they going to be doing other testing?? Constipation does

go along with CF. When Ethan was constipated, they wanted to run

tests for CF. BUt I declined because the type of stool problem

wasn't the way his was. I think I remember them saying that if it

was very foul (steatorrhea) then it would be more likely to be CF.

Anyhow, do some research on CF and constipation and bring that info

to her. Also, do some research on CF and enzymes. I think somewhere

long ago I had read that enzymes are used with CF patients...

One positive thing that could help him is glutathione treatments.

Glutathione in a nebulized form HAS been helpful for CF. So I would

encourage you to do some research on that. Just do a google search

engine and type in glutathione and cystic fibrosis and it should

bring up a lot of hits. Someone who has access to research databases

could probably easily find you some good articles on it. There may

even be some on pubmed/medline that you can access yourself. And I

think glutathione is not only needed by the lungs but by the gut,

too, and so it could be that getting not just neb'd glutathione but

also oral glutathione may help him. And perhaps people who have done

IV glutathione can tell you what the tests are -- is it plasma

cysteine tests-- that would justify IV use vs. just oral or just

inhaled. I would have her PUSH them to start him on some nebulized

glutathione at the very least. Give her the research info and have

her bring it in. It's certainly better than just medicating him and

in the long run, it may allow his medications to be reduced. Tell

her that you're not believing in a cure-all-- you simply want to help

reduce the amount of procedures/meds that he needs. THAT is a very

reasonable attitude to take. People can't argue with that. People

get leery when others start talking cures so don't use that word with

her.

My son is the one on dana's miralax page. It changed him and I don't

think he could excrete it well--some was getting absorbed, and things

got worse and worse for him. It wasn't until we chelated with dmsa

for metal tox that his constipation was resolved.

There's only so much you can do to convince someone. When people are

so entrenched in " following doctor's orders " it can be VERY

difficult. Only when they begin to get disillusioned with having

their child go through all these ridiculous " treatments " do they seem

to be more open to thinking outside of the box. That's been my

experience anyway.

Whatever she does, don't resort to surgery on his colon. Please. If

the GI spec rec's that, then get many more opinions... don't butcher

his colon until she's looked into the metal tox and glutathione

options. Owens had also shared some info on how pantothenic

acid (I think) was related to gut motility (the movements of the

colon) and that deficiency in it resulted in constipation. I mean,

there's SO MUCH that the gut needs in order to function well... and

metal tox starts to mess it all up and starts depleting it of the

very things that it needs to work.

When a parent says they want thimerosal free shots, they need to SEE

THE BOX WITH THEIR OWN EYES. Again, people are so willing to just

believe what the doc says. I've had parents be firm and see the box

and then show the doc that it does say thimerosal on it! As of just

a couple of months ago! So she cannot feel confident that the doc

was " right " just because he said he was right!

As far as what's going on with him... well, RSV is serious and does

some long term damage and so it's not surprising that if he has a

weakened immune system (from metal tox, or vaccines, or whatever)

then he's suffering with the chronic congestion. Given the GI probs,

the toe walking, the noises, the low weight gain, I mean, whether

it's vax related or not really isn't as important as, she just needs

to start looking into the underlying reasons WHY he is this way.

It's not just a genetic thing. It's not just a " we don't know why

some kids are like this. She needs to get a fire in her belly to

help heal her son's body, whether genetic or environmental or both--

she can't just continue to let them medicate and mask the problem and

ultimately perhaps end up making his condition worse. I hope she

will listen to you. Keep us posted!

W

> Hi Everyone,

>

> Hopefully this won't be too long by the time I'm done typing it.

>

> I really think my nephew is vaccine damaged, but I would really

> appreciate your input before I let my sister-in-law know how I

feel,

> and to provide her with more info. so she will believe me...

>

> Last winter (2002/2003) he ended up in the hospital with RSV. And

> after he was released he relapsed and again was back in the

hospital

> for RSV.

[Guest guest]

Also, I had read something the other day about turmeric and cystic

fibrosis... so I pulled this off of medline.

Turmeric Corrects Cystic Fibrosis Defect, in Mice

Reuters Health

Thursday, April 22, 2004

NEW YORK (Reuters Health) - Treatment for the underlying problem that

causes the lung disease cystic fibrosis might be as close as the

kitchen.

Curcumin, a major component of turmeric, allows a defective cell

protein that results from the genetic mutation responsible for cystic

fibrosis to do its job, at least in animal experiments.

As described in the journal Science, Dr. J. Caplan, from Yale

University in New Haven, Connecticut, and colleagues gave curcumin to

mice bred with the genetic mutation that occurs in about 90 percent

of cystic fibrosis patients.

This mutation, known as delta-F508, involves the cystic fibrosis

transmembrane conductance regulator (CFTR) and leads to production of

an incorrectly folded CFTR protein. Because it is misshapen, the

protein is destroyed by the cell's housekeeping machinery and never

gets to its intended location in the cell membrane.

The defect causes problems with mucus buildup in the lungs and

respiratory difficulties. Cystic fibrosis is the most common life-

threatening disease resulting from a genetic mutation among

Caucasians.

In mice carrying the mutation, feeding them curcumin at doses well

tolerated by humans corrected an electrical abnormality

characteristic of the disease. This effect was only seen in animals

with a mutated CFTR gene, not in mice completely lacking the gene.

Caplan's team also found that treating hamster kidney cells with

curcumin allowed mutated CFTR proteins to reach the cellular

membrane.

The results suggest that " curcumin and curcumin derivatives represent

promising new candidate compounds that may prove useful in the search

for small-molecule pharmacotherapies for cystic fibrosis and for

other protein-folding diseases, " the researchers state.

SOURCE: Science, April 23, 2004.

W