Re: Any advice for first Pfeiffer appt?

[Guest guest]

Hi ,

Give your child plenty of water ahead of time so the blood will flow fast

and easy. Tell them to use the numbing cream on his arm 20 mins beforehand

to minimize pain.Know your questions and do your research so you know enough

to determine if they are telling you the appropiate information.If you don't

understand why they want to give something ask why.Good Luck!

R

[Guest guest]

Hi,

I am very interested in taking my son to Pfeiffer also.

Can anyone elaborate on their experience?

I have heard that the protocol is a lot for the child to

take, and can sometimes be difficult to administer so

many things. I have a picky eater, and texture sensitive

25 mos. old that concerns me having to add more things

to ingest. Though we do seem to manage his already

extensive supplements.

What type of results have you seen? Cost factors? TIA!

-- In , " & Jack Rawlings "

<jamaraw@c...> wrote:

> Hi ,

> Give your child plenty of water ahead of time so the blood will

flow fast

> and easy. Tell them to use the numbing cream on his arm 20 mins

beforehand

> to minimize pain.Know your questions and do your research so you

know enough

> to determine if they are telling you the appropiate information.If

you don't

> understand why they want to give something ask why.Good Luck!

> R

[Guest guest]

,

IMO they didn't do anything I wasn't already doing but they upped the

dosages.They told me not to give folic acid and my son now has a folic acid

deficiency which can disrupt many pathways.I think following what Andy

Cutler states in the autism treatment files can save you tons of money.The

initial testing cost me around 1700.00 ! They have not followed up the way

they should have and the nurses can never answer my questions....all to the

tune of over 100.00 a consult(I think its 175.00)If anything goes wrong with

your child they will not help you but tell you to go to your

pediatrician.Yes my son is recovered but only because of all my endless

hours of research and hard work.

R

[Guest guest]

,

Thank you so much for sharing!

I am finding that I am certainly my son's best advocate for

treatment, but I get so frustrated with the endless research.

I just need to take a breath and organize my tests, and move

forward from there. I do have one Dr here in Austin, TX that

I like who handles his supps. and testing, I just don't find

his plan very individualized to our needs, so I am constantly

reseeking his advice on our next step! I doubt sometimes that

I am capable of managing his health on my own, and yet, we are

making acceptable progress...so maybe I am better than I

thought...lol!

Thanks for your input, this is a great resource

- In , " & Jack Rawlings "

<jamaraw@c...> wrote:

> ,

> IMO they didn't do anything I wasn't already doing but they upped

the

> dosages.They told me not to give folic acid and my son now has a

folic acid

> deficiency which can disrupt many pathways.I think following what

Andy

> Cutler states in the autism treatment files can save you tons of

money.The

> initial testing cost me around 1700.00 ! They have not followed up

the way

> they should have and the nurses can never answer my

questions....all to the

> tune of over 100.00 a consult(I think its 175.00)If anything goes

wrong with

> your child they will not help you but tell you to go to your

> pediatrician.Yes my son is recovered but only because of all my

endless

> hours of research and hard work.

> R