Re: New and need info on enzymes

[Guest guest]

,

I don't think I can answer your questions as well as some others on

this board, but I share your concerns. My son is almost 4 and has

been GFCF for 6 months with some recent planned gluten infractions

with enzymes. The doctor we've seen recently requires GFCF, but like

you - our son has grown in height, but not weight, has not broadened

his food choices while on GFCF, and I'm getting more tired of

figuring out what to feed him rather than getting more confident with

the diet. Now apparently, he has issues with yeast, requiring more

diet restrictions and other interventions.

We are using all three enzymes (AFP Peptizyde, Zyme Prime, and No-

fenol) with all meals. He doesn't necessarily have enzymes with

snacks - especially at school. I think many people on this list have

had good success with enzymes eventually replacing the diet.

What other interventions are you using?

Good luck,

> I'm and I have a 4 year old son, Lucas, who has autism.

Lucas was on a GFCF diet for about 10 months, until 2 months ago. He

was making steady progress at preschool and at home, but for some

reason we thought that maybe he didn't need the diet anymore and we

started to phase him out of the gluten part of it. We've kept

casein out. Well, I think we've seen the value because now Lucas is

vocally stimming constantly again, flipping his hands around, less

eye contact, more meltdowns - not really tantrums, but gets upset

and cries more easily, and a little more agression than usual.

ly, going back to GFCF is not something that I want to do if

there is an alternative that we might try instead.

Luke never started to eat a wider variety and never gained any weight

while on the diet (though he did get taller). I would spend time

making him GFCF foods and buying new GFCF foods in hopes that he

would try them, but he never did. I know he did well on the diet,

but it worried me that he ate such little variety and quantity of

food. If there's a way he could continue to eat more foods, yet not

have the ill effects of gluten, I'd be all for trying it.

>

> Thank you,

>

[Guest guest]

Other interventions...

Lucas receives 30 minutes twice a week each of speech therapy and

occupational therapy. OT will soon become 45 minutes twice a week.

One of the big things happening at OT is therapeutic listening.

We've also started a home program where Luke does therapeutic

listenting for 30 minutes twice each day. Luke attends an early

childhood special education preschool class for kids with autism.

He's there 4 afternoons a week during the school year. His ESY

program is 2 sessions during the summer, each running 3 weeks, 3

mornings per week.

I have not taken Luke to see any DAN doctors. His pediatrician

tested for yeast, but it was negative - a result I still dispute or

at least have strong suspicion to want to investigate further. I am

also considering the use of medications to ease Luke's anxiety and

hopefully help him attend to tasks better. I don't know much about

medications - still need to consult with the neurodevelopmental ped

on that one.

Thanks,

> What other interventions are you using?

>

> Good luck,

>

>

>

> > I'm and I have a 4 year old son, Lucas, who has autism.

> Lucas was on a GFCF diet for about 10 months, until 2 months ago.

He

> was making steady progress at preschool and at home, but for some

> reason we thought that maybe he didn't need the diet anymore and

we

> started to phase him out of the gluten part of it. We've kept

> casein out. Well, I think we've seen the value because now Lucas

is

> vocally stimming constantly again, flipping his hands around,

less

> eye contact, more meltdowns - not really tantrums, but gets upset

> and cries more easily, and a little more agression than usual.

>

> ly, going back to GFCF is not something that I want to do

if

> there is an alternative that we might try instead.

> Luke never started to eat a wider variety and never gained any

weight

> while on the diet (though he did get taller). I would spend time

> making him GFCF foods and buying new GFCF foods in hopes that he

> would try them, but he never did. I know he did well on the diet,

> but it worried me that he ate such little variety and quantity of

> food. If there's a way he could continue to eat more foods, yet

not

> have the ill effects of gluten, I'd be all for trying it.

> >

> > Thank you,

> >

[Guest guest]

> > What other interventions are you using?

> >

> > Good luck,

> >

> >

> >

> > > I'm and I have a 4 year old son, Lucas, who has autism.

> > Lucas was on a GFCF diet for about 10 months, until 2 months

ago.

> He

> > was making steady progress at preschool and at home, but for

some

> > reason we thought that maybe he didn't need the diet anymore and

> we

> > started to phase him out of the gluten part of it. We've kept

> > casein out. Well, I think we've seen the value because now

Lucas

> is

> > vocally stimming constantly again, flipping his hands around,

> less

> > eye contact, more meltdowns - not really tantrums, but gets

upset

> > and cries more easily, and a little more agression than usual.

> >

> > ly, going back to GFCF is not something that I want to do

> if

> > there is an alternative that we might try instead.

> > Luke never started to eat a wider variety and never gained any

> weight

> > while on the diet (though he did get taller). I would spend time

> > making him GFCF foods and buying new GFCF foods in hopes that he

> > would try them, but he never did. I know he did well on the

diet,

> > but it worried me that he ate such little variety and quantity

of

> > food. If there's a way he could continue to eat more foods, yet

> not

> > have the ill effects of gluten, I'd be all for trying it.

> > >

> > > Thank you,

My son was GFCF (and many other foods, free) for 4 years. The I put

him on the SCD (specific carbohydrate diet). The SCD did improve my

son's behavior but we're still dealing with yeast, after 1 year on

SCD. I am pursuing Digestive enzymes as a way to help him slowly be

allowed to eat a wider variety of foods. One way to find out more

about enzymes is to review http://www.enzymestuff.com

Another would be to buy and read DeFelice's book,

Enzymes for Autism and other Neurological Conditions

The Practical Guide for Digestive Enzymes and Better Behavior

This is an excellent book and I recommend it to all. I still have

not finished reading it but I have purchased some extras to share

with others...

VickiB

> > >

[Guest guest]

> I've heard some conflicting information about enzymes and how they

> relate to, or replace, the GFCF diet. Can anybody shed some light

> on this for me or point me in the right direction?

For many kids, altho not all, HNI enzymes can replace gfcf

http://www.houstonni.com/

Start with the Peptizyde or AFP Peptizyde, see if that helps his

gluten problem.

Dana