Re: How will I know?? (little long)

[Guest guest]

>

> Anyways, his DAN doc wants us to add back gluten and have him

tested

> in a few months for celiac.

You might want to read at this site about testing available and this

doctor's opinion on whether or not to change the diet:

http://www.finerhealth.com/Educational_Info/Gluten_Sensitivity/#Do_I_h

ave_to_be_eating_gluten

> How will I know if he's " not tolerating " the addition of gluten.

We

> are using 1 AFP with the gluten items. It's been three days and we

> see no bad effects. Hard to tell about the poops, since he's

> battling yeast or something right now and his poops are iffy. I'd

> love any insight. We see no bad behaviors at all, so it's hard to

> tell. When people say their child cannot tolerate the re-

introduction

> of gluten, what exactly are they seeing? Poop problems, or what?

> Thanks...Kim

Look for diarrhea, constipation, rashes and/or behavior changes and

anything else that is listed here http://www.celiac.com/. There can

also be some behavior changes when adjusting to enzymes, so it may be

a bit tricky to figure out the source of any behavior changes for the

first few weeks on enzymes.

Adding Zyme Prime might help firm up the stools. After your child

adjusts to enzymes, I would consider giving them with all meals and

snacks, not just gluten items, in order to help with absorption of

more foods. My son started having dramatic improvements when we

added enzymes with all foods, even though he was on the diet. We

gradually left the diet.

[Guest guest]

Kim-

I just did this with my son, who has been GFCF for about 20 months.

We had trouble getting him to eat gluten things too -- thank

goodness for pizza!

When we attempted to challenge the diet for a week before the celiac

test we did it without enzymes, despite the fact that we used them

regularly while he was on the diet.

Anyway, what we saw with my son was increased hand flapping. Even

my husband noticed it, and he has always thought the diet was

ridiculous. May also have had increased irritability and mood

swings. The celiac test came back negative. We are back on the

diet and the hand flapping has gone away again.

I suppose it will be different with every child. Now at least I

will know the most likely sign when we do challenge with enzymes.

Good luck with it.

Kathy

> My son has been gfcf now for 21 mos, since he was 15mos old.

Prior

> to the diet he only had rare gluten, and lots of casein. He was a

> good diet responder, but I have always thought he was a " casein "

kid,

> rather than gluten. We have been strict and have been using HNI

AFP

> for a few months, sometimes with NoFenol for yeast control. We

did

> some recent tests which showed IgM activity towards casein (we

were

> doing SCD goat yogurt at the time), so it seems to fit that he has

> casein intolerance. We were not using HNI at that time (when we

were

> SCD).

>

> Anyways, his DAN doc wants us to add back gluten and have him

tested

> in a few months for celiac. I have tried very hard to get him to

eat

> gluten for the past few days...but he hates all bread/crackers,

etc,

> so it's been tough. Can you believe a kid who hates bread,

crackers,

> pancakes? My question...

>

> How will I know if he's " not tolerating " the addition of gluten.

We

> are using 1 AFP with the gluten items. It's been three days and

we

> see no bad effects. Hard to tell about the poops, since he's

> battling yeast or something right now and his poops are iffy. I'd

> love any insight. We see no bad behaviors at all, so it's hard to

> tell. When people say their child cannot tolerate the re-

introduction

> of gluten, what exactly are they seeing? Poop problems, or what?

> Thanks...Kim

[Guest guest]

When people say their child cannot tolerate the re-introduction

> of gluten, what exactly are they seeing? Poop problems, or what?

> Thanks...Kim

Hi Kim,we tried to reintroduce gluten 2 months ago after 14 months

GFCF and my son has just recovered. We were using enzymes at the

time. My son was OK for the first 3 -4 days, then he came out in an

itchy rash on his stomach/chest and lower back. He became extremely

fatigued (more so than usual) and the constipation had him

screaming!! His kinder teacher and speech pathologist asked if he had

had a stressful incident in his life as his behavior was off (he

became very non-comliant). I never tell teachers/therapists when we

challenge anything. It has taken us a while to get back to where we

were. Interestingly we had exactly the same reaction when we tried to

reintroduce dairy (prior to enzymes). Good luck. Mandy.

[Guest guest]

Hi Kim!

When we FIRST started enzymes, couldn't tolerate gluten or casein at

ALL. He had been gfcf for two years. When we reintroduced gluten he broke

out in a rash all around his torso, was " out of it " and hyper for three

days. Casein was a milder reaction, but still significant. He has now been

on enzymes for two years. Every other week he has his ABA clinic, and we've

been going out for pizza. He eats about three pieces and is fine.

He also sneaks a lot more " illegal " food as he gets older and more aware.

To tell you the truth, I am more concerned about

additives/preservatives/artificial colors than I am about gluten or casein

at this point. If he gets into a LOT of mischief (i.e. we found an empty

carton of regular ice cream under his bed), he has a behavioral reaction,

but not much in the way of rashes anymore.

I remember how hypervigilant we were in the beginning. It was important for

because he was SO sensitive and it took a long time for his gut to

start healing. I remember one of his therapists gave him a piece of SEES

MILK CHOCOLATE CANDY. He had an almost psychotic reaction - giggling,

screeching, totally unfocused and out of control. Her eyes got so big - she

said, " I really didn't believe you when you said it made a difference. " I

almost sent him home with her...it took him a week to get back to " normal "

functioning...

I hope this helps!

, mom to and

Re: How will I know?? (little long)

> When people say their child cannot tolerate the re-introduction

> > of gluten, what exactly are they seeing? Poop problems, or what?

> > Thanks...Kim

>