Re: Intro (little long)

March 17, 2005

,

You have been through alot! Thank you for sharing your story.

I am brand new to this board myself but I am glad to have found this list,

there is alot of great information here.

I have three boys who were all premature (24 week twins and my oldest was 36

weeks) we have alot of medical and feeding issues. All three of them were not

only miracle babies but also have autism.

The more I learn about enzymes, the more I am looking forward to trying

them. If it would at the very least help with their gut problems then I will be

happy!

Warmest wishes

Are you aware of the toxins in your home? What you don' t know may be harmful

to you and your children. You owe it to yourself and your family to be

informed.

http://www.weareinspiringparents.com/

March 17, 2005

jamie,

i am so sorry for your losses. I am happy for your miracle. you've found a

really great place to get started. we are here with you on your journey.

is your son taking enzymes?

tracey,

proud mom to nick, 3-ASD

March 17, 2005

Hugs , you have been through a lot.

You don't state or I missed it where you are. I'm sure someone knows of a

support group near you.

If you haven't done any reading the two books I think helped me a lot were

http://www.autism-rxguidebook.net/DesktopDefault.aspx?tabindex=0 & tabid=1 If you

buy it from the website you get to join her group. I don't follow

everything she says, but it explains a lot and gives you some stuff to think

about. The biggest thing with our kids, is they are all different, you will try

some things that will work and some tht don't and many you will have to

experiment with to find the perfect fit for your son.

We are still gluten free and caesin free, but have gained a lot in our child

with the use of Houstin enzymes. This book and website are a wealth of

information http://enzymestuff.com/

I hope you will find lots of great resources here and that it will help you feel

more in control.

Many mainstream dr's can't think out side of the box, I highly encourage you to

go with your gut, no one knows your child better then you. And no one can help

your child more then you!

You can do this!

Start posting your questions and everyone will jump into help.

in Oceanside, CA

Fighting for one child, in hopes it helps another child.

__________________________________________________

March 17, 2005

,

I am so sorry for your losses and the devestating news of autism in

your son. I can't even begin to imagine your pain.

The good news is that you have begun your journey to help your son

while his is still very young. There is so much you can do that

will help him. You are in the right place to find guidance and

support.

My son is about 2.7 years old and was diagnosed just before his 2nd

birthday. We began biomedical intervention immediately. He was non-

verbal for the most part prior to starting anything (he did have 4

word approximations and that was it). We went GFCF and his

languages skills exploded. Especially, his receptive language

skills. He was far happier, less whining, better sleep etc. We

then started Houston enzymes about 6 weeks later because it seemed

that the diet was actually causing further food intolerances.

Enzymes have helped him tremendously. He no longer has undigested

food in stools. His cheeks aren't always bright red. We have also

treated for yeast and bacteria with good results. Lastly, we are

just starting Brainchild Vitamins and Minerals and again are seeing

amazing things. He now is verbal. Granted they are approximations

and we are working to bring them closer to words. The best part is

that he has very strong intent to communicate. He really wants to

talk, he just needs help to get it out. I have such hope for my son

today.

I guess, I just want you to know that you will always find support

from the moms and dads in this group. And, they have a lot of

information and people freely share their experience, strength and

hope.

Can you share a little bit more about your son? Does he have sleep

problems? Does he seem to have gut issues? Does he have cronic

constipation or diareaha? Does he self limit his diet? Does he

have sensory issues? This might help us to guide you in the right

direction. I would also recommed reading 's Book, " Enzymes for

Autism and other neurological conditions " . Also, you can visit her

website at www.enzymestuff.com . If I had it to do all over again,

I would have started Houston enzymes immediately instead of diet.

They are amazing and will help to heal your sons gut. Please post

any questions you have. We are happy to try and help you!

Take Care

mom to Sam 2.8 ASD and Madelyn 18 months NT

>

> Hello. I just joined today your group. I am hoping I joined the

correct

> group on need of some support and help. Let me explain my story .

(sorry

> will be a little long)

>

> My 1st daughter Shirley Marie was born stillborn June 7, 2000 @ 24

weeks

> ... After I went thru labor and gave birth to her ... we found out

the

> reason why she passed was what's called " Hypercoiled Cord. " This is

> where the cord twists like a towel .. over and over again. It was

over

> coiled ... NOT wrapped around her at all. Drs. didn't know or see

this

> coming .. and say it was a fluke and it wouldn't happen again.

>

> Few months later I got pg ... scared ... but made my 1st appt.

(LONG

> STORY to get this u/s but I got it) Well went into the u/s room

for my

> first look and there was no heart beat. I had a d & c later on that

day to

> remove what was left. This was Jan 30 2001 @ 9 weeks.

>

> Few months later dh and I was were ok about ttc again and got pg

it was

> about 4 months after my d & c. I was scared .. but this pg was going

good.

> Well, til about 30 weeks ... then I noticed things weren't right ..

> ended up in Labor & Delivery a lot ... had the Steroid Shots @ 30

weeks

> to get my 2nd daughter lungs ready .. cuz they thought they were

going

> to have to take her out. Well, they didn't and at 35 weeks they

tried to

> do a version to turn her (since she was breech with feet down) and

they

> couldn't do it. I had a schedule a c sec about 3 weeks later. Dh

and I

> went home feeling a little better after they checked me for a

while.

> During this WHOLE time I was having HIGH blood pressure and other

issues

> of pre-e. Well, week and half after the version I knew something

was

> wrong. Went into my Drs. office scared to death ... she wasn't

moving.

> We found out that we lost our 2nd daughter as well. I was put into

labor

> (it was decided it was better to do it this way and not have the c

sec

> ... give birth to her breech). Next day I gave birth to our 2nd

daughter

> Kaitlyn on March 21, 2002 @ 38 weeks. That was very hard,

and

> we had autopsy done to find out that she passed from the same

reason her

> sister passed " Hypercoiled Cord. " This was it. The Drs. were

shocked and

> dh and I were pissed off and upset.

>

> After going to many different Drs. to find reasons .. why ..

NOTHING

> came up. Well, dh and I decided to wait to ttc ... between being

scarred

> and not knowing if ever we can have a baby ... and ended up

(Deciding

> not to use cover ups .. we knew we would get pg sooner or later) pg

> without ttc 4 months later. I was NOT NICE to these Drs. and I

bugged

> them every week and got a u/s done every week and a special u/s to

check

> the cord flow called " Doppler flow " ... and all this ended up being

> induced at 37 weeks and 20 hours of labor ... and ended up a c

sec ..

> cuz he was huge. We have our MIRACLE son, Jonathyn. He was born

March

> 13, 2003 @ 37 weeks. He was almost 10lbs!

>

> Our son has been the our World! It's the greatest thing that ever

> happened to dh and I. When our son was about 12-14 months we

started

> asking questions about our son not doing things. Doctor also

started

> questioning things. Around 16 months we were SHOCKED to find out

they

> said our MIRACLE son has Mild Autism. HOLLY COW!! Dh and I were

BLOWN

> away .. Just couldn't believe it. Its been about 6 months since we

found

> this out and we are still waiting for therapy to start.

>

> Our son just today started speech therapy. He doesn't talk AT ALL.

We

> have been waiting for this for 5 months, and just now got it.

Well, all

> the State Cut Backs Right Now we have to wait another 6 months to

get

> his Autism therapy. I just cant believe this!!

>

> I have NO ONE to talk to about this, No Support, No Help! I am

loosing

> my marbles on this, wanting to help our son and no one is helping

me

> with this.

>

> I hope to meet each one of you and get to know you and all your

stories.

> I'm sorry my story is so long.

>

> Thanks for reading!

>

> - TM

> DH ; Married 5 years and Still Going Strong

> Proud Parents Of:

> DS; Jonathyn b/ 03-13-03 @ 37 wks Our Miracle

> www.babiesonline.com/babies/j/jonathyn

> DD; Kaitlyn b/s 03-21-02 @ 38 wks (Hypercoiled Cord)

> Angel; M/C 01-30-01 @ 9 wks (D & C)

> DD; Shirley Marie b/s 06-07-00 @ 24 wks (Hypercoiled Cord)

> Mommy & Daddy, LOVES & MISSES their Girls! ^I^ ^I^

>

> " I know God won't give me anything I can't handle

> I just wish he didn't trust me so much "

> -Mother

>

> " A moment in my arms, forever in my heart "

>

> " Always Loved and Never Forgotten "

>

> When You Lose A Parent You Lose You Past

> When You Lose A Spouse You Lose Your Present

> When You Lose A Child You Lose Your Future

>

March 17, 2005