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RE: Introduction - Newbie to Enzyme Therapy

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Just try out, no harm in attempting.

Sush

-- In , Kenney <djs.mom@v...>

wrote:

>

> Hi everyone,

>

> I want to introduce myself. Perhaps you know me through other

lists. My

> long journey has brought me here.

>

> I have a 15 year old autistic son we call DJ. He is basically

nonverbal.

> We've tried so many therapies/supplements with him through the

years. Our

> biggest problem with him has been his aggression (he hadn't put his

hands on

> me in over 3 years until last week) and his constipation (since he

was about

> 6 weeks old), his constant verbal stimming which developed a little

over a

> year ago.

>

> The biggest progress he made was when we put him on a gluten and

casein free

> diet and when we tried secretin. Everything else was either subtle

> improvement or major regression.

>

> For his constipation, poor thing, he has been on so many things

through the

> years. Most recently we saw a gastroenterologist, who works with

autistic

> children and has done many good things, but had my son on Miralax

for over a

> year and a half. DJ takes medication for colitis which was

discovered by

> the same dr. who did a colonoscopy. The Miralax kept my son fairly

regular

> but I didn't know this product may pose more problems, so I

recently stopped

> about 2 weeks ago. As a result, my son is getting constipated

again even

> though I have started giving him lots of magensium and a product

called

> Benefiber every day.

>

> After he kicked and punched me last week, which was totally

unexpected

> because he wasn't upset, I naturally felt down and upset. He's 15

and I

> don't ever want it to get to a point where I feel unsafe around him.

>

> I started thinking about things and read the book " Enzymes and

Autism " by L.

> DeFelice. I don't know why I never thought of this sooner. The

best

> results we've seen in him have always been something directed

towards his

> gut so why not just concentrate on getting his gut healed and maybe

other

> things will help. You would think our DAN doctor would've told me

this.

>

> So, here I am. I know he's 15 and much older and progress may seem

slower,

> but after all these years, I'm still not ready to give up on him.

The funny

> thing is that he's been taking Peptizyde and ZymePrime for about 3

years

> now, but only in school for breakfast and lunch. I also send his

school

> food in. I never gave it to him at home because I don't give him

anything

> with gluten or casein. I also did not know that he should take them

> approximately 20-30 minutes before. I spoke to his school nurse

and she

> agreed to give it to him 20-30 minutes before (that was too easy).

I also

> started giving it to him with everything he eats at home also.

>

> It's only been a few days and I just finished the book today. Of

course,

> there is so much more to DJ's story because we've been going

through this

> for 13 years now but I won't get into all of that here.

>

> I'm going to go back to the book and make a list and things I need

to do in

> order to start this. I just wanted to introduce myself to everyone

and if

> anyone has any advice for me, it will be very much appreciated.

>

> Thanks again,

>

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Hi ; My name is Eileen and I too am new to this. My son is 20 and I

am not ready to give up on him either. We too have tried every therapy

except the GFCF diet. Some little progress with most, but he's still

Autistic-My 22 year old daughter just asked what I wanted to get out of all

this with the enzymes-First time she really took an interest. I told her I

wanted off medications Risperdal and Trileptal and to help reduce his

hearing sensitivity (needs to where head phones all the time), anything else

is gravy. I told her I would love for him to progress to where he could

take care of himself-Not a rocket scientist-Just take care of himself

because right now he is nowhere near ready. So we are all in this together.

I started last week with PEP and ZP. No real results yet, no real

problems either. Started No Fenol yesterday-needed to reduce the

dose-caused diahrea and kept him from falling asleep. Im waiting for Candex

and Culturelle. My son has been on risperdal since he was 12 due to

aggression. He would just have melt downs out of the blue. I had him tested

for seizures as the rages were soooo bad. He has very few now, but I can

see them coming on and just try to keep calm. Funny they only happen to me.

Not to my husband or daughter, or any other family member for that matter.

Oh well-I have been asking alot of questions and everyone has been pitching

in to help. These are wonderful people. I hope that I get as good at this

as they are so I can pass the help on. Regards, Eileen

>From: Kenney <djs.mom@...>

>Reply-

>< >

>Subject: Introduction - Newbie to Enzyme Therapy

>Date: Mon, 01 Nov 2004 10:04:56 -0800

>

>

>>

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> I have a 15 year old autistic son we call DJ. He is basically

nonverbal.

> We've tried so many therapies/supplements with him through the years.

Chelation, anti-viral, and several supplements helped my non-verbal

child become verbal.

Our

> biggest problem with him has been his aggression (he hadn't put his

hands on

> me in over 3 years until last week)

Phenol intolerance and/or yeast issues can cause aggression

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

<<and his constipation (since he was about

> 6 weeks old),

My page of ideas

http://www.danasview.net/constip.htm

>>The Miralax kept my son fairly regular

> but I didn't know this product may pose more problems, so I recently

stopped

> about 2 weeks ago.

Here is my Miralax info

http://www.danasview.net/miralax.htm

>>As a result, my son is getting constipated again even

> though I have started giving him lots of magensium and a product called

> Benefiber every day.

Enzymes and magnesium eliminated my famiy's constipation. You can

also consider vitamin C or some of the other ideas from my

constipation page above.

> So, here I am. I know he's 15 and much older and progress may seem

slower,

> but after all these years, I'm still not ready to give up on him.

Good for you!

Try adding the No-Fenol, that might help address any phenol issues he

has, plus it can also help with yeast.

Good luck.

Dana

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