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Re: Re: First intentional infraction - Major gas - Update

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At 04:35 PM 10/29/2004, you wrote:

>How are you sure its the wheat and not the cheeseor ice cream?

The rash I'm almost certain is from the wheat simply because of it's

timing, we tried 2% milk after the GI insisted they couldn't possibly be

lactose intolerant - no rash, just major gas (which was the reason I

stopped drinking milk when I was nursing). The ice cream trial was Wed.

night and Thurs. he had no rash, just major gas. The pizza trial was

Thursday mid day and this morning is the poop accident and the rash, so I

think it's got to be the wheat or we would have seen that yesterday morning

from the ice cream trial wed. night.

>And are you giving enzymes with every meal? or just to test the infraction.

I'm giving AFP chewables whenever I think of it, I can't get them to eat

the powders w/o mixing them w/ chocolate so I'm not using those daily. I

decided to mix the AFP with the lactaid since lactaid always somewhat

worked in the past (it didn't make things 100% but it did prevent the full

on diarrhea)

>My thought would be to have him doing the enzymes completely everyday for

>a month before trying an infraction. Thats what I am thinking of

>doing. I've been doing AFP Pepitzyde for a month, Zyme Prime for 2 weeks,

>hoping No fenol will be here early next week and when we have been on all

>three i am going to do the challenge.

That sounds like a good plan, it'll be a while before we try this again,

perhaps after the others have chewable versions available. I'll continue

using the AFP for cross contamination and when there is a possible

infraction...

- near LAX

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At 05:02 PM 10/29/2004, you wrote:

>At 04:35 PM 10/29/2004, you wrote:

> >How are you sure its the wheat and not the cheeseor ice cream?

Oh, also both boys have almost identical reactions to all foods

ingested. Nate only had the ice cream, not the pizza - he had some mushy

poops & gas but no rash. Nate's poops are better today and gas is

gone. Nate never got a rash. Isaac has a rash, poop accident in his sleep

(which only happens when his sensory systems have shut down from gluten

infraction) and Isaac still has major gas and a rash. I guess the gas is

from the dairy and the rash is from the wheat or he would have gotten the

rash yesterday from ingesting the dairy Wed. night. Since it didn't show

up till today it's got to be from the wheat in the pizza Thurs.

- near LAX

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At 07:17 PM 10/29/2004, you wrote:

>My daughter would react from the tomato sauce on the pizza if she

>didn't get NF with it. Her rash would appear wherever the bm touched

>her. Looks horrible/burned-like with the redness and bumps,

>painful. I use her prescription " butt paste " to seal off the area

>from further urine and bm.

He eats tomato paste, sauce and various derivatives all the time with no

problems - I don't think Phenols is the issue...

Thanks though!

- near LAX

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