Re: OT - experience with seizures and treatments

[Guest guest]

Magnesium, taurine, B12, Folinic Acid and B6 stopped

my daughter's seizures. She had the same EEG as your

son.

P

--- Dunsmore <carriedunsmore@...> wrote:

>

> Gosh, I wish I wasn't having to write this message!

> I think my son (2 and a half years old) had a

> seizure about 40 minutes ago. He was with one of his

> therapists, so my knowledge of what happened is

> second-hand (I did have her repeat her recollection

> of the event several times to make sure I knew every

> detail).

>

> He was sitting watching a video, eating his lunch

> and she said his face seemed to go blank and he just

> sat still holding his fork. She offered his juice

> expecting him to either push the juice away or say

> " juice " to receive it. He did neither and just sat

> there (out of character). Then a few moments later

> (I do not know the exact amount of time...just that

> it was brief) his stare broke and his little bottom

> lip stuck out and he began sobbing! I walked into

> the playroom when I heard his " heartbroken cry "

> thinking he had been hurt or was scared and needed

> Mommy. He just tucked into her for comfort and cried

> (not hysterical...just frightened). When he saw me

> he rushed over and snuggled/cried with me.

>

> He has had a 24 hour EEG which came back with

> " abnormal brain waves " predominantly during sleep,

> but nothing indicative of seizures.

>

> He currently only takes the following supps: all 3

> HNI enzymes, coromega once daily and carnaware once

> daily.

>

> I am posting here because many of you are parents of

> a child on the spectrum and I am in need of advice.

> If you know anything about " episodes " like the one

> my son had today and any ideas about what could help

> (if in fact this seems like seizure activity) you

> would be helping me greatly! Thanks so much.

>

>

>

> __________________________________________________

>

[Guest guest]

How were you giving the B12, B6 and folinic acid - pill form? What brand and

how much?

Re: OT - experience with seizures and treatments

Magnesium, taurine, B12, Folinic Acid and B6 stopped

my daughter's seizures. She had the same EEG as your

son.

P

--- Dunsmore <carriedunsmore@...> wrote:

>

> Gosh, I wish I wasn't having to write this message!

> I think my son (2 and a half years old) had a

> seizure about 40 minutes ago. He was with one of his

> therapists, so my knowledge of what happened is

> second-hand (I did have her repeat her recollection

> of the event several times to make sure I knew every

> detail).

>

> He was sitting watching a video, eating his lunch

> and she said his face seemed to go blank and he just

> sat still holding his fork. She offered his juice

> expecting him to either push the juice away or say

> " juice " to receive it. He did neither and just sat

> there (out of character). Then a few moments later

> (I do not know the exact amount of time...just that

> it was brief) his stare broke and his little bottom

> lip stuck out and he began sobbing! I walked into

> the playroom when I heard his " heartbroken cry "

> thinking he had been hurt or was scared and needed

> Mommy. He just tucked into her for comfort and cried

> (not hysterical...just frightened). When he saw me

> he rushed over and snuggled/cried with me.

>

> He has had a 24 hour EEG which came back with

> " abnormal brain waves " predominantly during sleep,

> but nothing indicative of seizures.

>

> He currently only takes the following supps: all 3

> HNI enzymes, coromega once daily and carnaware once

> daily.

>

> I am posting here because many of you are parents of

> a child on the spectrum and I am in need of advice.

> If you know anything about " episodes " like the one

> my son had today and any ideas about what could help

> (if in fact this seems like seizure activity) you

> would be helping me greatly! Thanks so much.

>

>

>

> __________________________________________________

>

[Guest guest]

Natural Factors Methylcobalamin

http://www.canadianvitaminshop.com/cgi-bin/TheVitaminShop.storefront/4162e715052\

01b2627454200c14805c0/Product/View/2010

Natural Factors B6

http://www.canadianvitaminshop.com/cgi-bin/TheVitaminShop.storefront/4162e715052\

01b2627454200c14805c0/Product/View/2261

Thorne Folacal

http://store./spinelife/b130.html

2 mg of B12 with one 800 mcg cap of folinic every

second day. 400 mg of B6 every day.

P

--- Blackmon <blackmon@...> wrote:

>

> How were you giving the B12, B6 and folinic acid -

> pill form? What brand and how much?

> Re: OT - experience with

> seizures and treatments

>

>

> Magnesium, taurine, B12, Folinic Acid and B6

> stopped

> my daughter's seizures. She had the same EEG as

> your

> son.

>

> P

>

> --- Dunsmore <carriedunsmore@...>

> wrote:

>

> >

> > Gosh, I wish I wasn't having to write this

> message!

> > I think my son (2 and a half years old) had a

> > seizure about 40 minutes ago. He was with one of

> his

> > therapists, so my knowledge of what happened is

> > second-hand (I did have her repeat her

> recollection

> > of the event several times to make sure I knew

> every

> > detail).

> >

> > He was sitting watching a video, eating his

> lunch

> > and she said his face seemed to go blank and he

> just

> > sat still holding his fork. She offered his

> juice

> > expecting him to either push the juice away or

> say

> > " juice " to receive it. He did neither and just

> sat

> > there (out of character). Then a few moments

> later

> > (I do not know the exact amount of time...just

> that

> > it was brief) his stare broke and his little

> bottom

> > lip stuck out and he began sobbing! I walked

> into

> > the playroom when I heard his " heartbroken cry "

> > thinking he had been hurt or was scared and

> needed

> > Mommy. He just tucked into her for comfort and

> cried

> > (not hysterical...just frightened). When he saw

> me

> > he rushed over and snuggled/cried with me.

> >

> > He has had a 24 hour EEG which came back with

> > " abnormal brain waves " predominantly during

> sleep,

> > but nothing indicative of seizures.

> >

> > He currently only takes the following supps: all

> 3

> > HNI enzymes, coromega once daily and carnaware

> once

> > daily.

> >

> > I am posting here because many of you are

> parents of

> > a child on the spectrum and I am in need of

> advice.

> > If you know anything about " episodes " like the

> one

> > my son had today and any ideas about what could

> help

> > (if in fact this seems like seizure activity)

> you

> > would be helping me greatly! Thanks so much.

> >

> >

> >

> >

> __________________________________________________

> >

[Guest guest]

Hi -

The same thing hapeened to my son three years ago, when he was 3 years old..

had what the doctor called a " partial-complex seizure " (I think I have the

name right). It was the zoning out thing, for about 20 minutes, and then all of

a sudden he started crying. I guess that was when he " snapped out of it. " Boy,

was it ever frightening!

The neurologist told me that everyone could have one or two of them without much

cause for concern, but after a second one people should be monitored. (My

family doctor suspected that I had one when I was 16, and it never happened

again). My son was GFCF at the time and I accidentally gave him rice milk with

gluten in it. He was drinking so much of it, like an addict! After eleven days,

I realized what was going on and took it away cold turkey. The next day he had

the seizure. My neurologist dismissed it, but our GI at the time thought there

was a connection.

I hope all is well with you and your family.

Lori Getz

OT - experience with seizures and treatments

Gosh, I wish I wasn't having to write this message! I think my son (2 and a

half years old) had a seizure about 40 minutes ago. He was with one of his

therapists, so my knowledge of what happened is second-hand (I did have her

repeat her recollection of the event several times to make sure I knew every

detail).

He was sitting watching a video, eating his lunch and she said his face seemed

to go blank and he just sat still holding his fork. She offered his juice

expecting him to either push the juice away or say " juice " to receive it. He did

neither and just sat there (out of character). Then a few moments later (I do

not know the exact amount of time...just that it was brief) his stare broke and

his little bottom lip stuck out and he began sobbing! I walked into the playroom

when I heard his " heartbroken cry " thinking he had been hurt or was scared and

needed Mommy. He just tucked into her for comfort and cried (not

hysterical...just frightened). When he saw me he rushed over and snuggled/cried

with me.

He has had a 24 hour EEG which came back with " abnormal brain waves "

predominantly during sleep, but nothing indicative of seizures.

He currently only takes the following supps: all 3 HNI enzymes, coromega once

daily and carnaware once daily.

I am posting here because many of you are parents of a child on the spectrum

and I am in need of advice. If you know anything about " episodes " like the one

my son had today and any ideas about what could help (if in fact this seems like

seizure activity) you would be helping me greatly! Thanks so much.

__________________________________________________