Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Forgot to mention that he was diagnosed as autistic, too. > Sorry if you get multiples of this message from different lists. > > Does any one in this list have any experience with Urticaria > Pigmentosa? Condition definition below, it is diagnosed by checking > the blood histamine level (high histamine). > > > From the skinsite.com > > I. Definition: > > Urticaria pigmentosa is an uncommon rash that usually affects the > neck, arms, legs and trunk of children and young adults. The rash > consists of reddish-brown spots that turn into hives when they are > rubbed hard or scratched. Sometimes the spots will blister. > > > > II. Causes: > > The spots in urticaria pigmentosa contain a large number of mast cells > (cells are the bodies building blocks). Mast cells are immune cells > (cells that fight infection) that live in the skin. Mast cells make a > substance called histamine. Histamine causes hives, itching, and > flushing. > We do not known why people with urticaria pigmentosa have abnormal > collections of mast cells in the skin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 i would look at the issue more generally as a skewed immune system and likely gut and brain issues what supplements are you giving? do you ahve hair test? > Sorry if you get multiples of this message from different lists. > > Does any one in this list have any experience with Urticaria > Pigmentosa? Condition definition below, it is diagnosed by checking > the blood histamine level (high histamine). > > > From the skinsite.com > > I. Definition: > > Urticaria pigmentosa is an uncommon rash that usually affects the > neck, arms, legs and trunk of children and young adults. The rash > consists of reddish-brown spots that turn into hives when they are > rubbed hard or scratched. Sometimes the spots will blister. > > > > II. Causes: > > The spots in urticaria pigmentosa contain a large number of mast cells > (cells are the bodies building blocks). Mast cells are immune cells > (cells that fight infection) that live in the skin. Mast cells make a > substance called histamine. Histamine causes hives, itching, and > flushing. > We do not known why people with urticaria pigmentosa have abnormal > collections of mast cells in the skin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Thank you , I definitely need another brain to work with me on this. I've been working on supplements for my son concerning his autism diagnosis but had forgotten all about his urticaria pigmentosa. Until I started reading about Pfeiffer under-methylator (high histamine) theory. My son is 13 yrs old today, around 100 lbs. Two Sundays ago at church my son had a terrible meltdown. Screaming, that hadn't happened at least in the past 3 yrs and especially during the last 2 yrs after starting enzymes and some other supplements. After arriving from church I gave him 2 benadryls and baking soda in water. He calmed down within 15 mins and took a nap for several hours which is unusual. Benadryl never had that effect on him before. And after he woke up he was much calmer. Then I realized that his belly looked and felt a lot harder than usual (I had run out of Magnesium for several months). So by Monday I got Magnesium Malate (per 's suggestion) and next thing we know he had a HUGE bm. I have kept the magnesium (1 or 2 pills of the Source Natural brand) and he has been much better during the last 2 weeks with very few outbursts. He had a hair test done about 3 yrs ago and based on it the doctor recommended mag, manganese, a children's multi called Little Ones, p5p, l-glutamine and lithium.(at least that is what I remember). I will need to scan and post it. Also was thinking of getting a new test to compare. Right now he is on the following: Morning with Breakfast 3 Perfect Food from Garden of Life 1 or 2 Goatein IG from Garden of Life 1 Pro-EFA from Nordic Naturals 1 ole from Vitamin World 1 theralac ( we just started 2 weeks ago) 1 500 mg inositol from GNC 1 Source Naturals selenomethionine tablets(200mcg ) and 1 lef.org methylselenocysteine( 200 mcg capsules) alternating days 1 or 2 Source Natural mag malate 1 molybdenum (Molybdenum (Carlson Moly-B as molybdenum glycinate chelate) ) 1 each of the 3 Houston enzymes Peptizyde, Zyme Prime and No-Fenol 1 Primal Defense from Garden of Life Sometimes I add l-glutamine and just bought Amino Mood Factors from Country Life but haven't started yet. At night I give him (almost every time) 1 Jarrow optizinc 1 ole 1 mag malate 1 Pro-EFA 1 Primal Defense from Garden of Life He uses the enzymes with every meal. Since starting the Goatein IG (around 4 months ago) I've noticed he doesn't have hayfever type of allergies.(I will keep an eye on this next September when his allergies are usually worst) I am trying to add Radical Fruits from Garden of Life but haven't found a way to mix the powder that he will like. My son is non-conversational, he understands most of what we are talking about, follows directions and is usually in good mood, sleeps well. His diet is self-restricted. Drinks are usually water, lemonade and white grape juice. He has oatmeal for breakfast or pancakes and lunches are usually some kind of bread with peanut butter and jelly cheese. Pizza is top on his list and chicken nuggets. He likes yogourt and I give him plain goat yogourt with a tsp blueberries preserve and yobaby yougourts. I started last week trying to give him whey. He doesn't eat that much meat. I was giving him Source Natural Calcium Night for a while but guess that with all the yogourt he is getting plenty of calcium. > > Sorry if you get multiples of this message from different lists. > > > > Does any one in this list have any experience with Urticaria > > Pigmentosa? Condition definition below, it is diagnosed by checking > > the blood histamine level (high histamine). > > > > > > From the skinsite.com > > > > I. Definition: > > > > Urticaria pigmentosa is an uncommon rash that usually affects the > > neck, arms, legs and trunk of children and young adults. The rash > > consists of reddish-brown spots that turn into hives when they are > > rubbed hard or scratched. Sometimes the spots will blister. > > > > > > > > II. Causes: > > > > The spots in urticaria pigmentosa contain a large number of mast > cells > > (cells are the bodies building blocks). Mast cells are immune cells > > (cells that fight infection) that live in the skin. Mast cells make > a > > substance called histamine. Histamine causes hives, itching, and > > flushing. > > We do not known why people with urticaria pigmentosa have abnormal > > collections of mast cells in the skin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 please read my page on skin vitmain d. you may find 'the right sun' helps with the urticaria pigmentosa you don't mention the whey product you are using. plain whey is so hard to digest i think it needs lactase or something, with winter and the decline of foods generally over winter i am giving up plain whey perhaps until summer or i might try lacteeze or something. thats way to much selenium, @ 120lbs i am taking 1/4 of a tablet of selenomethionie and 1/4 of a capsule of the lef. too much selenium interferes with the suphur chemistry and mobilises mercury to much. inisitol i didn't like when i tried it. i would cut the moly-b tablets into quarters and take one to two quarters a day. i can't really comment on the jarrow optizinc as i have not tried copper gluconate but am not keen on jaorrow as they always seem to get thier formulas wrong somehow. what i do for zinc and copper is @120 lbs i am taking two to three 1/4 tablets (spaced) of the 30 mg source naturals optizinc a day and two 1/4's (also spaced and away from other minerals) of source naturals 3mg copper sebacate tablets a day. each 1/4 of copper sebacate is 750 mcg. most likely you will have to look at some modifyed scd as well. (cutting back on grains really - no nut flours!). > > > Sorry if you get multiples of this message from different lists. > > > > > > Does any one in this list have any experience with Urticaria > > > Pigmentosa? Condition definition below, it is diagnosed by checking > > > the blood histamine level (high histamine). > > > > > > > > > From the skinsite.com > > > > > > I. Definition: > > > > > > Urticaria pigmentosa is an uncommon rash that usually affects the > > > neck, arms, legs and trunk of children and young adults. The rash > > > consists of reddish-brown spots that turn into hives when they are > > > rubbed hard or scratched. Sometimes the spots will blister. > > > > > > > > > > > > II. Causes: > > > > > > The spots in urticaria pigmentosa contain a large number of mast > > cells > > > (cells are the bodies building blocks). Mast cells are immune cells > > > (cells that fight infection) that live in the skin. Mast cells make > > a > > > substance called histamine. Histamine causes hives, itching, and > > > flushing. > > > We do not known why people with urticaria pigmentosa have abnormal > > > collections of mast cells in the skin. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.