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RE: Digest Number 2696

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Debby;

I use a fair bit of Natural medicine, and well in Canada all traditional

medicine is covered by Government the natural medicine is not. I have always

thought that silly because Naturopathic medicine is based in preventative

rather than after the fact, but who can make sense of Governments. I do

know that Naturapathic medicine has helped me more than traditional West

medicine has, at least pre-transplant and surgical needs, togeather they

would be the ideal.

I have made lifestyle changes on the advise of my Naturopath, things like

no dairy (cow), adding flax oil etc., but nothing made me feel as good as

the accupuncture did. I just cant take the pain of the needles.

I will have to look into the cupping, it sounds a lot more pleasant than

liver accupuncture. The only points that have hurt worse than liver ones

are spleen ones. Once when the accupunturist put in a spleen needle an

electric charge shot up my leg and the needle flew out and across the room.

I was yelling " get it out " , and the Naturopath was laughing " its out

already " .

We were a pretty funny pair that day. The Naturpath doctor did say that

some people feel this " discomfort " more than others, I think I feel enough

for 2 patients.

I am really struggling with the fear of the needles vs the great way I know

I am going to feel. Funny enough I also have diabetes and take 4 needles a

day for that, but they dont hurt.

So did the cupping work as effectively as the accupunture over the long term

or just during the treatment????

>

>Message: 3

> Date: Mon, 6 Jan 2003 06:32:10 -0800

> From: " tdcc " <tdcc2000@...>

>Subject: Re: Digest Number 2694

>

>, I have used acupuncture before, and it did give me quite a bit of

>energy, but after a while, I just could not handle the pain of the needles

>in some of the places. Some of the needles went in my wrist. I hurt so

>much that I just couldn't handle it. BUT....for me, the MOST relaxing thing

>was cupping, where they put warm cups on my back and it would suction up my

>skin into the cup. After, I would look like a giant octupus had attacked

>me! BUT oh.....the way I felt. It was awesome! Unfortunately, no one

>around here does cupping, but as soon as I find that person, I will go!!!

>It may seem odd to some of the 'refined " people here, but at least I felt

>better!

>Debby

> Re: [ ] Digest Number 2694

>

>

>> Well this is my second posting so I wonder if that means I am

>> loosing lurker status???

>>

>> I have a question to throw out here about accupunture for liver

>> issues. Has anyone here tried it and/or Naturopatic treatments

>> of any kind?

>>

>> I have tried it and found that well it really did help me to feel

>> better (more energy), the needles hurt like a sonofagun. I think

>> I would like to start up treatment again but really do not want to

>> face the discomfort and wonder if anyone has found a solution to

>> the problem.

>>

>>

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Dear Anita,

I have no idea about if injury can cause AIH - I quit worrying about 'why me, how me?' several years ago before the AIH came along. But it did make me wonder about your eyes - were you hit where the nerves could have been damaged? I don't know if that would be it, but I've sure been thinking about those troublesome eyes of yours since you mentioned them.

Good luck!

Amy

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So did the cupping work as effectively as the accupunture over the long term

> or just during the treatment????

***********

, I think the cupping helped get rid of some of the toxins in my

body.....I felt so relaxed after, and if just relaxing makes one feel

better, then I felt GREAT! Cupping just relaxes the body so much. It is

difficult to say whether or not the cupping helped make the liver better,

but I felt better.

Debby

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hi amy. yes that is a possibility, i was beaten pretty bad on the face a number

of times. i will ask about that. many thanks

;love

anita

the witch>

> From: holzboog@...

> Date: Wed 08/Jan/2003 01:38 GMT

>

> Subject: Re: [ ] Digest Number 2696

>

> Dear Anita,

> I have no idea about if injury can cause AIH - I quit worrying about

> 'why me, how me?' several years ago before the AIH came along. But it did

> make me wonder about your eyes - were you hit where the nerves could have

> been damaged? I don't know if that would be it, but I've sure been thinking

> about those troublesome eyes of yours since you mentioned them.

> Good luck!

>

> Amy

>

>

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  • 2 years later...

Dear a

With our son we don't use a pump for his sub Q injections. He gets it

daily, Baygam which has a higher concentration than many so you can use

less. He gets 2cc when well and 4cc when sick. He stays well for the most

part now that we do sub Q, before when he had the IVIG he had many side

effects and always got tired and sick right before his next infusion. We

did them every three weeks and had the choice to move to every two or do sub

Q. I am glad we choose sub Q. His doctor feels if you do it daily that

they keep almost constant levels and since he is very thin he doesn't have

any fat, the amount is less if we do it daily verses weekly. His shot takes

about 12 minutes each day, he prefers it in his leg. We were trained and

have always given it at home ourselves. It costs much less than IVIG because

you are giving it at home and the concentration is much less. However our

insurance won't cover it at all because we give it at home. We had to get

supplemental insurance to get it covered and it costs about $600.00 for the

medicine and supplies. When he got it IV we paid $2000 a month.

With Sub Q you can use a pump and most do, but since it is a smaller amount

for our son and he prefers it when we push it verses being hooked up to the

pump, that is the way we choose to go.

Hope this helps some

Amy

Re: MIL

>

>Hi Karin,

>

>I feel your frustration at your MIL's lack of understanding about your

>daughter's condition and hope that educational literature does help. The

IDF

>website has a lot of literature available at many different levels. Just a

thought--

>Could it be possible that there may be an emotional block to being able to

>accept that a grandchild has an illness? My mother-in-law also could not

>understand (and currently still does not fully understand) that my

daughter's IgA

>and suspected specific antibody deficiency is more than something that can

be

>fixed by taking vitamin supplements and eating the right foods.

>

>All the documents we gave her couldn't convince her that my daughter's

>illness was due to a lack of good parenting skills and the fact that we

didn't

>follow her advice. For example, in her mind giving children milk and milk

products

>was essential to good health. Milk products give my daughter

hives--however,

>MIL didn't really believe me. I think it is the fact that my husband and I

>are " children " in her mind and she has successfully raised two children so

who

>would be the more knowledgeable about child rearing?

>

>When my daughter was much younger -- almost three she had to go into the

>hospital for one month of IV antibiotics around Thanksgiving and Christmas.

My

>MIL was very angry and upset at me and my husband because she thought this

was

>unnecessary. Even the pediatrician was not able to fully convince her of

the

>necessity. At this point, I realized that it was important for me to set

limits

>with my MIL in order to protect the health of my child.

>

>You know your child best and are in the best position to know what she

needs.

>

>Martha

>

>

>

>In a message dated 12/29/2005 10:45:23 AM Eastern Standard Time,

> writes:

>don't know what it is, but my mother-in-law will not recognize that my

>daughter has IgA Deficiency. I had to take my daughter to the Ped this

morning

>because she has had a sore throat and congestion, and I wanted to be sure

she

>doesn't have an ear infection, sinus infection, or Strep

>

>

>

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