Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hello, I am new to this board and this discussion of treating children who are on the spectrum. I am looking into whether my son's hypersensitive hearing, fluctuating inatentiveness, and slight sensory issues could be a result of metabolism, methylation, mercury, etc. I actually never would have been looking into this area except that when he was in school, he was inattentive. (He does well, however, on the Continuous Performance Tests of Attention.) We did the psychoeducational eval, and he was diagnosed with APD, phonological dyslexia, and eye-tracking issues. He is actually having a much better time of it in second grade. Auditory Integration Therapy helped a lot. Most people would have stopped there. But I read about the Neuroscience nuerotransmitter testing and amino acid therapy. We started that about 3 months ago. But it seemed to make his hypersensitivity come back. It turns out there are ingredients that cause detox, etc. So know I am wiating results of a urine mercury test (no challenge). I heard about Dr. Amy and posted my son's neurotransmitter test results. She responded and suggested that I stop the Neuroscience products and do the genetic testing. (I understand that sh is coming out with a book on treating these issues for children who have not been diagnosed as being on the spectrum.) I do not want to stop the Neuroscience products until I get a program in place. But I have to ask myself: should I be persuing this course for a child who is slightly affected. First, do no harm. My son is doing much better in the classroom. So the teacher may sometimes have to re-focus him. If he does have mercury, etc., could I do more harm by trying to remove it? What is your advice for a child who is only slightly affected by these issues? Thank you, 2NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 If you use a safe protocol and supplement carefully with lots of water, you should be okay. Remember, a lot of our kids struggle with yeast when they're chelating, so don't be surprised if you have to treat that throughout. Barb [ ] Treating Slightly Affected Children > Hello, > > I am new to this board and this discussion of treating children who > are on the spectrum. I am looking into whether my son's > hypersensitive hearing, fluctuating inatentiveness, and slight sensory > issues could be a result of metabolism, methylation, mercury, etc. > > I actually never would have been looking into this area except that > when he was in school, he was inattentive. (He does well, however, on > the Continuous Performance Tests of Attention.) We did the > psychoeducational eval, and he was diagnosed with APD, phonological > dyslexia, and eye-tracking issues. He is actually having a much > better time of it in second grade. Auditory Integration Therapy > helped a lot. > > Most people would have stopped there. But I read about the > Neuroscience nuerotransmitter testing and amino acid therapy. We > started that about 3 months ago. But it seemed to make his > hypersensitivity come back. It turns out there are ingredients that > cause detox, etc. So know I am wiating results of a urine mercury > test (no challenge). I heard about Dr. Amy and posted my son's > neurotransmitter test results. She responded and suggested that I stop > the Neuroscience products and do the genetic testing. (I understand > that sh is coming out with a book on treating these issues for > children who have not been diagnosed as being on the spectrum.) I do > not want to stop the Neuroscience products until I get a program in place. > > But I have to ask myself: should I be persuing this course for a > child who is slightly affected. First, do no harm. My son is doing > much better in the classroom. So the teacher may sometimes have to > re-focus him. If he does have mercury, etc., could I do more harm by > trying to remove it? What is your advice for a child who is only > slightly affected by these issues? > > Thank you, > 2NJ > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 > But I have to ask myself: should I be persuing this course for a > child who is slightly affected. First, do no harm. My son is doing > much better in the classroom. So the teacher may sometimes have to > re-focus him. If he does have mercury, etc., could I do more harm by > trying to remove it? What is your advice for a child who is only > slightly affected by these issues? > > Thank you, > 2NJ > Hi 2NJ, We stumbled into this mercury poisoning thing by chance. My youngest kid was emotionally volatile, irrational, angry and aggressive---although for all practical purposes neurotypical (NT). I was writing about her behavior on a parenting message board, and someone suggested I try Houston's enzymes. Son of a gun, if we didn't see a dramatic improvement! Over the next year, we fooled around with probiotics, enzymes, and diet changes, and it was suggested that I might want to consider doing a hair test on her. I was resistant, in part because I didn't think it applied to us. We're fine I thought. What does autism have to do with us? My youngest didn't like the idea of being the only one to do a hair test. She agreed when I said her older sister and I would have one too. I fully expected mine to come back normal, and for her perfect older sister's hair test to come back normal too. I guessed my youngest one's would be ambigious and listmates would suggest we do a trial of chelation anyways. Oh no, all three of us met the counting rules, suggesting a high probability of mercury poisoning. While I was trying to get over my shock, I ordered Andy's books and read up on Hg poisoning. I could definitely put together a case for exposure. My amalgam fillings, Rhogam shots, childhood vax's, extended nursing, proximity to a coal-fired power plant, and possibly exposure to lead via house renovations. I had the rest of my amalgams removed, and I decided to do a trial of chelation, ten rounds. We're on round 8 right now. The kids are doing oral DMSA + ALA and I'm doing DMSA alone. We're doing every 3 hours, 3 days on and 4 days off. I'm adding in ALA for myself next round. My youngest one is most definitely more cheerful. My older perfect, quiet, compliant kid seems more vibrant. The kids are handling the chelation on Andy's protocol very well, and it has not disrupted our lives as much as I imagined. I'm not sure I feel all that different myself, or maybe some of the positives are due to my excitement that we are actually doing something that is going to help us all in a big picture way. I've been humbled by reading this list and the adult chelation lists, where many people are suffering with serious health problems. The kids and I may only be moderately poisoned, yet I feel it's important to get this stuff out of us to prevent health problems down the line. At this point, I feel certain we'll continue chelating over the next year or two. I found it very helpful to read both of Andy Cutler's book (www.noamalgam.com) and read the Files section of this group, and Moria's site. This group is a great source of information and support. Hope that helps, in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 HI. I have twins - one with PDD, one with sensory and attention issues. I never thought to chelate the one twin, as he was neurotypical, even though we were doing all other aspects of biomedical intervention to help him (diet, supplementation, etc). However, after testing, we were convinced to chelate both. We have now been chelating both children and my one son that began with sensory issues is ready to stop OT and has no attention issues whatsoever. Each child is unique and I would look at your testing, use the counting rules (see onibasu.com) and see what you see. Or, you could just do a chelation trial of about 5 rounds to see what happens. Just remember to supplement properly (Andy make supplement recommendations - see onibasui.com.) Good Luck! Ruth > > Hello, > > I am new to this board and this discussion of treating children who > are on the spectrum. I am looking into whether my son's > hypersensitive hearing, fluctuating inatentiveness, and slight sensory > issues could be a result of metabolism, methylation, mercury, etc. > > I actually never would have been looking into this area except that > when he was in school, he was inattentive. (He does well, however, on > the Continuous Performance Tests of Attention.) We did the > psychoeducational eval, and he was diagnosed with APD, phonological > dyslexia, and eye-tracking issues. He is actually having a much > better time of it in second grade. Auditory Integration Therapy > helped a lot. > > Most people would have stopped there. But I read about the > Neuroscience nuerotransmitter testing and amino acid therapy. We > started that about 3 months ago. But it seemed to make his > hypersensitivity come back. It turns out there are ingredients that > cause detox, etc. So know I am wiating results of a urine mercury > test (no challenge). I heard about Dr. Amy and posted my son's > neurotransmitter test results. She responded and suggested that I stop > the Neuroscience products and do the genetic testing. (I understand > that sh is coming out with a book on treating these issues for > children who have not been diagnosed as being on the spectrum.) I do > not want to stop the Neuroscience products until I get a program in place. > > But I have to ask myself: should I be persuing this course for a > child who is slightly affected. First, do no harm. My son is doing > much better in the classroom. So the teacher may sometimes have to > re-focus him. If he does have mercury, etc., could I do more harm by > trying to remove it? What is your advice for a child who is only > slightly affected by these issues? > > Thank you, > 2NJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 I am planning on getting a hair test for my younger son who is 3 and techically NT. He has some signs of problems with metals though wouldn't be considered on the spectrum quite yet. His peds doctor says he maybe ADD but in a different way than I am. He is quite emotional, extremely shy with new people, and a little OCD. He isn't vaccinated at all but did have exposure through Rhogam and my metal load. I want to find out what is going on with him to help his symptoms and to prevent further problems. Shyness with a three year old is sort of cute but a child in school who clams up totally when asked a simple question isn't so cute. And if he really has a metal issue then detox is an issue that does need to resolved. People don't develop serious chronic diseases overnight. Diseases like that are caused by chronic toxin exposure. My son maybe healthy today but failure to help his body learn to detox can mean he is slowly developing something that will show up as an teenager or adult. I can't know this but I would rather not have to worry about it either. If you follow a good safe protocal you will not be harming your child and there is good possiblity for improvement. I also figure why be a 7, though a 7 is good, when you could be a 9 or 10. My opinion for what it is worth! breezin03 <mullen55@...> wrote: Hello, I am new to this board and this discussion of treating children who are on the spectrum. I am looking into whether my son's hypersensitive hearing, fluctuating inatentiveness, and slight sensory issues could be a result of metabolism, methylation, mercury, etc. I actually never would have been looking into this area except that when he was in school, he was inattentive. (He does well, however, on the Continuous Performance Tests of Attention.) We did the psychoeducational eval, and he was diagnosed with APD, phonological dyslexia, and eye-tracking issues. He is actually having a much better time of it in second grade. Auditory Integration Therapy helped a lot. Most people would have stopped there. But I read about the Neuroscience nuerotransmitter testing and amino acid therapy. We started that about 3 months ago. But it seemed to make his hypersensitivity come back. It turns out there are ingredients that cause detox, etc. So know I am wiating results of a urine mercury test (no challenge). I heard about Dr. Amy and posted my son's neurotransmitter test results. She responded and suggested that I stop the Neuroscience products and do the genetic testing. (I understand that sh is coming out with a book on treating these issues for children who have not been diagnosed as being on the spectrum.) I do not want to stop the Neuroscience products until I get a program in place. But I have to ask myself: should I be persuing this course for a child who is slightly affected. First, do no harm. My son is doing much better in the classroom. So the teacher may sometimes have to re-focus him. If he does have mercury, etc., could I do more harm by trying to remove it? What is your advice for a child who is only slightly affected by these issues? Thank you, 2NJ ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 I am looking into whether my son's > > hypersensitive hearing, fluctuating inatentiveness, and slight > sensory > > issues could be a result of metabolism, methylation, mercury, > etc. I have a son who has sensory integration dysfunction, and reducing phenol intake for him completely eliminated some of his symptoms, though not all. I have read over and over here that limiting phenols has helped many children with attention and other issues. For us, the gluten/casein free diet and low phenols + No-fenol enzyme has eliminated our hair cut and nail cut problems, constantly pushing on us (seeking deep pressure), hypersensitive eye problems, and an inability to tolerate unmet expectations. Maybe it could help some of your child's issues as well. We haven't chelated yet, but keep hearing how it helps people. www.feingold.com www.danasview.net\phenol www.houstonni.com We did the > > psychoeducational eval, and he was diagnosed with APD, phonological > > dyslexia, May I ask what phonological dyslexia is? My son will start sentences 3-5 times and different ways sometimes before completely forming and speaking a thought/sentence. I have wondered if this has a name? Thanks and all the best, Satia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 This coudl be verbal dyspraxia, which is a motor planning/sequencing issue with speech. MY son has this and he has a difficult time sequencing novel sentences. Ruth > > May I ask what phonological dyslexia is? My son will start sentences 3-5 times and different ways sometimes before completely forming and speaking a thought/sentence. I have wondered if this has a name? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 You might look at http://www.apraxia-kids.org/ to see if you see your son there. It is a pretty comprehensive website (from a diagnostic/therapy perspective) if you are dealing with apraxia (also called " verbal dyspraxia " and a whole host of other things). Anne > > > > May I ask what phonological dyslexia is? My son will start sentences > 3-5 times and different ways sometimes before completely forming and > speaking a thought/sentence. I have wondered if this has a name? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Shyness is common and " the norm " in three year olds. Not all kids, but a lot of them. Has to do with a developmental stage they are in. You really have to wait until he's four to tell if he is truly shy. Re: [ ] Treating Slightly Affected Children I am planning on getting a hair test for my younger son who is 3 and techically NT. He has some signs of problems with metals though wouldn't be considered on the spectrum quite yet. His peds doctor says he maybe ADD but in a different way than I am. He is quite emotional, extremely shy with new people, and a little OCD. He isn't vaccinated at all but did have exposure through Rhogam and my metal load. I want to find out what is going on with him to help his symptoms and to prevent further problems. Shyness with a three year old is sort of cute but a child in school who clams up totally when asked a simple question isn't so cute. And if he really has a metal issue then detox is an issue that does need to resolved. People don't develop serious chronic diseases overnight. Diseases like that are caused by chronic toxin exposure. My son maybe healthy today but failure to help his body learn to detox can mean he is slowly developing something that will show up as an teenager or adult. I can't know this but I would rather not have to worry about it either. If you follow a good safe protocal you will not be harming your child and there is good possiblity for improvement. I also figure why be a 7, though a 7 is good, when you could be a 9 or 10. My opinion for what it is worth! breezin03 <mullen55@...> wrote: Hello, I am new to this board and this discussion of treating children who are on the spectrum. I am looking into whether my son's hypersensitive hearing, fluctuating inatentiveness, and slight sensory issues could be a result of metabolism, methylation, mercury, etc. I actually never would have been looking into this area except that when he was in school, he was inattentive. (He does well, however, on the Continuous Performance Tests of Attention.) We did the psychoeducational eval, and he was diagnosed with APD, phonological dyslexia, and eye-tracking issues. He is actually having a much better time of it in second grade. Auditory Integration Therapy helped a lot. Most people would have stopped there. But I read about the Neuroscience nuerotransmitter testing and amino acid therapy. We started that about 3 months ago. But it seemed to make his hypersensitivity come back. It turns out there are ingredients that cause detox, etc. So know I am wiating results of a urine mercury test (no challenge). I heard about Dr. Amy and posted my son's neurotransmitter test results. She responded and suggested that I stop the Neuroscience products and do the genetic testing. (I understand that sh is coming out with a book on treating these issues for children who have not been diagnosed as being on the spectrum.) I do not want to stop the Neuroscience products until I get a program in place. But I have to ask myself: should I be persuing this course for a child who is slightly affected. First, do no harm. My son is doing much better in the classroom. So the teacher may sometimes have to re-focus him. If he does have mercury, etc., could I do more harm by trying to remove it? What is your advice for a child who is only slightly affected by these issues? Thank you, 2NJ ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 My suggestion would be: stick around on this list, read more about it, consider doing hair tests. I didn't come here with any plans to chelate, then learned that I was doing chelation but did not realize it, and now hope to someday remove my remaining fillings. So, from where I sit, the question isn't " should you remove toxins from your child if they are there? " (obviously, you should if you can do so safely). Instead, the question is " what do you need to do to educate yourself so that you will feel comfortable and self-assured that you are doing it right and not causing additional harm? " YMMV and HTH, -- Michele in Limbo (formerly in California) talithamichele@... Visit Michele's World! http://www.califmichele.com " Peace cannot be kept by force. It can only be achieved by understanding. " -- Albert Einstein Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 My mother's metal toxicity apparently resulted in depression in her teens and adulthood and early onset Alzheimer's Disease (at age 52). It affects different people differently but It would be easier to deal with it now than later. S S <tt> Hello,<BR> <BR> I am new to this board and this discussion of treating children who<BR> are on the spectrum. I am looking into whether my son's<BR> hypersensitive hearing, fluctuating inatentiveness, and slight sensory<BR> issues could be a result of metabolism, methylation, mercury, etc. <BR> <BR> I actually never would have been looking into this area except that<BR> when he was in school, he was inattentive. (He does well, however, on<BR> the Continuous Performance Tests of Attention.) We did the<BR> psychoeducational eval, and he was diagnosed with APD, phonological<BR> dyslexia, and eye-tracking issues. He is actually having a much<BR> better time of it in second grade. Auditory Integration Therapy<BR> helped a lot.<BR> <BR> Most people would have stopped there. But I read about the<BR> Neuroscience nuerotransmitter testing and amino acid therapy. We<BR> started that about 3 months ago. But it seemed to make his<BR> hypersensitivity come back. It turns out there are ingredients that<BR> cause detox, etc. So know I am wiating results of a urine mercury<BR> test (no challenge). I heard about Dr. Amy and posted my son's<BR> neurotransmitter test results. She responded and suggested that I stop<BR> the Neuroscience products and do the genetic testing. (I understand<BR> that sh is coming out with a book on treating these issues for<BR> children who have not been diagnosed as being on the spectrum.) I do<BR> not want to stop the Neuroscience products until I get a program in place.<BR> <BR> But I have to ask myself: should I be persuing this course for a<BR> child who is slightly affected. First, do no harm. My son is doing<BR> much better in the classroom. So the teacher may sometimes have to<BR> re-focus him. If he does have mercury, etc., could I do more harm by<BR> trying to remove it? What is your advice for a child who is only<BR> slightly affected by these issues?<BR> <BR> Thank you,<BR> 2NJ<BR> <BR> <BR> <BR> </tt> <!-- |**|begin egp html banner|**| --> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 > I am new to this board and this discussion of treating children who > are on the spectrum. I am looking into whether my son's > hypersensitive hearing, For my son, this was related to yeast overgrowth http://www.danasview.net/yeast.htm > But I have to ask myself: should I be persuing this course for a > child who is slightly affected. First, do no harm. My son is doing > much better in the classroom. So the teacher may sometimes have to > re-focus him. If he does have mercury, etc., could I do more harm by > trying to remove it? What is your advice for a child who is only > slightly affected by these issues? My #1 was only slightly affected. I started chelating him after I had already done about 20 rounds of ALA for the younger three kids who were more affected. I am close to the end of chelation for #1, but still not completed yet. Certain of his issues have resolved entirely, others are worse than before. However, with his younger siblings, it really was not the chelation that helped them, it was the supplements I gave AFTER chelation was finished. They did not tolerate the supplements until after chelation, so chelation was beneficial, but the supplements were key to recovery. Anyway, it is frustrating that certain issues are now really bad for him, but we are working on them. He responds to most of the supplements that helped his siblings. And the issues that have been resolved, have really improved his life. He is 11 years old. Dana Quote Link to comment Share on other sites More sharing options...
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