Re: We've solved our stim problem (!)

April 21, 2006

This has nothing to do with stims, but have you ever checked your

son's thyroid?

Anne

>

> We finally were able to see what our son would look like without

> stimming for an entire day. We owe it all to constipation! I'd be

a

> happy dance if I didn't know any better. This week he couldn't

poop

> until the end of each day. He could function normally all day

long, but

> was uncomfortable, yet with ZERO stimming!

>

> We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4

off,

> per AC protocol. I've been noticing that constipation started

becoming

> a problem on " on " days, so I could deal with it. This week, it

caught

> me off guard and spilled over to the rest of the week. So I have

to

> interrupt chelation this weekend to focus on his gut. I've upped

the

> ante with higher doses of GSE (6 drops, can't give more), Yeast

Aid (1

> cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

gr)...

> I know we have a moderate case of yeast/bacteria to deal with. OAT

> suggests high arabinose (possibly candida) and some *possible*

> bacterial issues.

>

> But why is it that his stims go down when he's constipated? Is it

> because he's too distracted by it to think of anything else (but

his

> therapies are going normally), or is it because he gets physically

> tired from it, or is it something else reklated to the gut? If it

were

> die-off wouldn't I be seeing worsening stims? Does this happen to

> anyone else? The only other time I see this happen to us (zero

stim,

> total calmness, lethargy) is when he runs a fever.

>

> TIA for your feedback.

> Beti

>

April 21, 2006

One needs to drink more water when chelating. Is he on enzymes or the gfcf

diet?

S S

We finally were able to see what our son would look like without

stimming for an entire day. We owe it all to constipation! I'd be a

happy dance if I didn't know any better. This week he couldn't poop

until the end of each day. He could function normally all day long, but

was uncomfortable, yet with ZERO stimming!

We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4 off,

per AC protocol. I've been noticing that constipation started becoming

a problem on " on " days, so I could deal with it. This week, it caught

me off guard and spilled over to the rest of the week. So I have to

interrupt chelation this weekend to focus on his gut. I've upped the

ante with higher doses of GSE (6 drops, can't give more), Yeast Aid (1

cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5 gr)...

I know we have a moderate case of yeast/bacteria to deal with. OAT

suggests high arabinose (possibly candida) and some *possible*

bacterial issues.

But why is it that his stims go down when he's constipated? Is it

because he's too distracted by it to think of anything else (but his

therapies are going normally), or is it because he gets physically

tired from it, or is it something else reklated to the gut? If it were

die-off wouldn't I be seeing worsening stims? Does this happen to

anyone else? The only other time I see this happen to us (zero stim,

total calmness, lethargy) is when he runs a fever.

TIA for your feedback.

Beti

<tt>

=======================================================

April 21, 2006

I have seen the same in our son. We dont cheliate yet. His gut was

healthy by then . the issue was for us he didnt get enough fiber .

We supplemented with that. That helped, no stimming for weeks.

Unfortunalty we has a gluten infraction and the the whole stimming

came back badly+ diarhea.The leaky gut came right back with the

gluten .We are 3 weeks Gluten free , he still stimms a bit but much

less already. I hope soon he will get rid of the gluten.Iam so

hapopy for you. I cant wait to gvet there again, the stimming drives

me nuts..

Bea

>

> We finally were able to see what our son would look like without

> stimming for an entire day. We owe it all to constipation! I'd be

a

> happy dance if I didn't know any better. This week he couldn't

poop

> until the end of each day. He could function normally all day

long, but

> was uncomfortable, yet with ZERO stimming!

>

> We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4

off,

> per AC protocol. I've been noticing that constipation started

becoming

> a problem on " on " days, so I could deal with it. This week, it

caught

> me off guard and spilled over to the rest of the week. So I have

to

> interrupt chelation this weekend to focus on his gut. I've upped

the

> ante with higher doses of GSE (6 drops, can't give more), Yeast

Aid (1

> cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

gr)...

> I know we have a moderate case of yeast/bacteria to deal with. OAT

> suggests high arabinose (possibly candida) and some *possible*

> bacterial issues.

>

> But why is it that his stims go down when he's constipated? Is it

> because he's too distracted by it to think of anything else (but

his

> therapies are going normally), or is it because he gets physically

> tired from it, or is it something else reklated to the gut? If it

were

> die-off wouldn't I be seeing worsening stims? Does this happen to

> anyone else? The only other time I see this happen to us (zero

stim,

> total calmness, lethargy) is when he runs a fever.

>

> TIA for your feedback.

> Beti

>

April 21, 2006

Hi Beti,

Sounds to me like it might actually be the chelation that's making the

stims go away. The timing of the constipation is sort of a coincidence,

more or less: the constipation is probably a temporary side effect of

chelation. So the more you chelate, the less you should see stims.

In the beginning gut issues wil flare up with chelation and that might

make it look like there's a connection between constipation and less

stimming. But actually it's continuing improvement from the chelation.

If you keep chelating, eventually the gut issues should improve too.

I'm an adult chelating myself (no ASD diagnosis, lots of chronic health

problems), and I've noticed similar patterns of mental/behavioural

improvement and gut-related side-effects due to chelation in myself.

Sometimes things happen at the same time, but they are not cause and

effect. They just both have the same cause.

Regards,

Beti wrote:

>We finally were able to see what our son would look like without

>stimming for an entire day. We owe it all to constipation! I'd be a

>happy dance if I didn't know any better. This week he couldn't poop

>until the end of each day. He could function normally all day long, but

>was uncomfortable, yet with ZERO stimming!

>

>We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4 off,

>per AC protocol. I've been noticing that constipation started becoming

>a problem on " on " days, so I could deal with it. This week, it caught

>me off guard and spilled over to the rest of the week. So I have to

>interrupt chelation this weekend to focus on his gut. I've upped the

>ante with higher doses of GSE (6 drops, can't give more), Yeast Aid (1

>cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5 gr)...

>I know we have a moderate case of yeast/bacteria to deal with. OAT

>suggests high arabinose (possibly candida) and some *possible*

>bacterial issues.

>

>But why is it that his stims go down when he's constipated? Is it

>because he's too distracted by it to think of anything else (but his

>therapies are going normally), or is it because he gets physically

>tired from it, or is it something else reklated to the gut? If it were

>die-off wouldn't I be seeing worsening stims? Does this happen to

>anyone else? The only other time I see this happen to us (zero stim,

>total calmness, lethargy) is when he runs a fever.

>

>TIA for your feedback.

>Beti

>

>=======================================================

>

April 22, 2006

> But why is it that his stims go down when he's constipated?

Depends on the reason behind his stims. What are the stims?

>>The only other time I see this happen to us (zero stim,

> total calmness, lethargy) is when he runs a fever.

This is highly suggestive of systemic virus issues. Have you ever

tried giving anti-virals?

Dana

April 22, 2006

Hi Anne, yes his TSH, T3, and T4 were checked many times since he

was born. They're normal. Should something else be checked as well?

I've thusfar ignored reading about thyroid issues, since they

*appeared* to be normal for him. Any specific reason you're asking

about them?

Beti

> >

> > We finally were able to see what our son would look like without

> > stimming for an entire day. We owe it all to constipation! I'd

be

> a

> > happy dance if I didn't know any better. This week he couldn't

> poop

> > until the end of each day. He could function normally all day

> long, but

> > was uncomfortable, yet with ZERO stimming!

> >

> > We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on,

4

> off,

> > per AC protocol. I've been noticing that constipation started

> becoming

> > a problem on " on " days, so I could deal with it. This week, it

> caught

> > me off guard and spilled over to the rest of the week. So I have

> to

> > interrupt chelation this weekend to focus on his gut. I've upped

> the

> > ante with higher doses of GSE (6 drops, can't give more), Yeast

> Aid (1

> > cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

> gr)...

> > I know we have a moderate case of yeast/bacteria to deal with.

OAT

> > suggests high arabinose (possibly candida) and some *possible*

> > bacterial issues.

> >

> > But why is it that his stims go down when he's constipated? Is

it

> > because he's too distracted by it to think of anything else (but

> his

> > therapies are going normally), or is it because he gets

physically

> > tired from it, or is it something else reklated to the gut? If

it

> were

> > die-off wouldn't I be seeing worsening stims? Does this happen

to

> > anyone else? The only other time I see this happen to us (zero

> stim,

> > total calmness, lethargy) is when he runs a fever.

> >

> > TIA for your feedback.

> > Beti

> >

>

April 22, 2006

Hi , he's well hydrated, I think. He drinks 5 to 6 large

bottles of fluids throughout the day. That's why this thing caught

me off guard this week. I've increased his fiber, magnesium, Vit C,

GSE, and probiotics quite a bit and yesterday and today we got good

poops again. Normal BMs with normal texture. But I'm not chelating.

Had I been, we'd probably be dealing with constipation again. BUT,

with normal poops, the stims are back too!!

He's on HNI enzymes (no bromelain etc), but off the diet since

February.

Beti

>

> We finally were able to see what our son would look like without

> stimming for an entire day. We owe it all to constipation! I'd be

a

> happy dance if I didn't know any better. This week he couldn't

poop

> until the end of each day. He could function normally all day

long, but

> was uncomfortable, yet with ZERO stimming!

>

> We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4

off,

> per AC protocol. I've been noticing that constipation started

becoming

> a problem on " on " days, so I could deal with it. This week, it

caught

> me off guard and spilled over to the rest of the week. So I have

to

> interrupt chelation this weekend to focus on his gut. I've upped

the

> ante with higher doses of GSE (6 drops, can't give more), Yeast

Aid (1

> cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

gr)...

> I know we have a moderate case of yeast/bacteria to deal with. OAT

> suggests high arabinose (possibly candida) and some *possible*

> bacterial issues.

>

> But why is it that his stims go down when he's constipated? Is it

> because he's too distracted by it to think of anything else (but

his

> therapies are going normally), or is it because he gets physically

> tired from it, or is it something else reklated to the gut? If it

were

> die-off wouldn't I be seeing worsening stims? Does this happen to

> anyone else? The only other time I see this happen to us (zero

stim,

> total calmness, lethargy) is when he runs a fever.

>

> TIA for your feedback.

> Beti

>

>

>

>

>

> <tt>

> =======================================================

>

April 22, 2006

Bea, by no means are we done and over with stims. I wish!!! He's

pooping normal again, and sure enough, the stims are back. I think

because he's relaxed and happy. He's running around, doing Tai Chi-

like movements with his hands (he really looks like he's doing Tai

Chi, maybe I should enroll him in classes to put them in good use,

lol!).

Beti

> >

> > We finally were able to see what our son would look like without

> > stimming for an entire day. We owe it all to constipation! I'd

be

> a

> > happy dance if I didn't know any better. This week he couldn't

> poop

> > until the end of each day. He could function normally all day

> long, but

> > was uncomfortable, yet with ZERO stimming!

> >

> > We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on,

4

> off,

> > per AC protocol. I've been noticing that constipation started

> becoming

> > a problem on " on " days, so I could deal with it. This week, it

> caught

> > me off guard and spilled over to the rest of the week. So I have

> to

> > interrupt chelation this weekend to focus on his gut. I've upped

> the

> > ante with higher doses of GSE (6 drops, can't give more), Yeast

> Aid (1

> > cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

> gr)...

> > I know we have a moderate case of yeast/bacteria to deal with.

OAT

> > suggests high arabinose (possibly candida) and some *possible*

> > bacterial issues.

> >

> > But why is it that his stims go down when he's constipated? Is

it

> > because he's too distracted by it to think of anything else (but

> his

> > therapies are going normally), or is it because he gets

physically

> > tired from it, or is it something else reklated to the gut? If

it

> were

> > die-off wouldn't I be seeing worsening stims? Does this happen

to

> > anyone else? The only other time I see this happen to us (zero

> stim,

> > total calmness, lethargy) is when he runs a fever.

> >

> > TIA for your feedback.

> > Beti

> >

>

April 22, 2006

, I sure hope you're right! Now that we've interrupted

chelation and escalated the war against candida and bacteria, he's

pooping normally with mucho stims! I hope they go away with

chelation. I'd be even happy if I see consistent reduction in them

over time. Thusfar, I've only seen reduced to no stims when he had a

fever or when he was constipated. I was just wondering if there was

perhaps a cause-effect relationship between constipation and low

stims, because I saw a pattern from Monday through Thursday. Eiter

a) as you said, chelation is helping and the two phenomena just

coincide, or they don't feel like stimming when they're

physically uncomfortable, or c) there's a physiological connection

between the two (which seems to be unlikely?)

Thanks, I hope you're right. That's the best-case scenario for all

our kiddos.

B.

>

> >We finally were able to see what our son would look like without

> >stimming for an entire day. We owe it all to constipation! I'd be

a

> >happy dance if I didn't know any better. This week he couldn't

poop

> >until the end of each day. He could function normally all day

long, but

> >was uncomfortable, yet with ZERO stimming!

> >

> >We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4

off,

> >per AC protocol. I've been noticing that constipation started

becoming

> >a problem on " on " days, so I could deal with it. This week, it

caught

> >me off guard and spilled over to the rest of the week. So I have

to

> >interrupt chelation this weekend to focus on his gut. I've upped

the

> >ante with higher doses of GSE (6 drops, can't give more), Yeast

Aid (1

> >cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

gr)...

> >I know we have a moderate case of yeast/bacteria to deal with.

OAT

> >suggests high arabinose (possibly candida) and some *possible*

> >bacterial issues.

> >

> >But why is it that his stims go down when he's constipated? Is it

> >because he's too distracted by it to think of anything else (but

his

> >therapies are going normally), or is it because he gets

physically

> >tired from it, or is it something else reklated to the gut? If it

were

> >die-off wouldn't I be seeing worsening stims? Does this happen to

> >anyone else? The only other time I see this happen to us (zero

stim,

> >total calmness, lethargy) is when he runs a fever.

> >

> >TIA for your feedback.

> >Beti

> >

> >=======================================================

> >

April 22, 2006

Dana, the stims are Tai Chi-like movements with hands and visual

stims on those movements with eyes (despite prism lenses), humming,

and occasional hand flapping.

Yes, I'm giving him GSE (which also has anti-viral properties I

believe), Virastop (3-4 capsules a day) and there is some OLE in his

Yeast Aid capsules from Kirkman. He was on Valtrex for 9 months and

nothing happened, so I didn't pursue this route anymore until

recently. Should I go even higher up with this stuff? Gosh, there's

only so much one can cram into a child's juice <:-)

Beti

> > But why is it that his stims go down when he's constipated?

>

> Depends on the reason behind his stims. What are the stims?

>

> >>The only other time I see this happen to us (zero stim,

> > total calmness, lethargy) is when he runs a fever.

>

> This is highly suggestive of systemic virus issues. Have you ever

> tried giving anti-virals?

>

> Dana

>

April 22, 2006

Beti,

As soon as I hear the word " constipation " I think thyroid. We have

had to deal with this for a while and three docs overlooked the fact

that my son was having thyroid issues because the lab gave us adult

values and my son was okay by those. Children should have much

higher Free T3 than adults. Treating this has made constipation not

quite such an issue. That is the only reason I asked. Sorry if it

was OT.

Anne

> > >

> > > We finally were able to see what our son would look like

without

> > > stimming for an entire day. We owe it all to constipation! I'd

> be

> > a

> > > happy dance if I didn't know any better. This week he couldn't

> > poop

> > > until the end of each day. He could function normally all day

> > long, but

> > > was uncomfortable, yet with ZERO stimming!

> > >

> > > We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3

on,

> 4

> > off,

> > > per AC protocol. I've been noticing that constipation started

> > becoming

> > > a problem on " on " days, so I could deal with it. This week, it

> > caught

> > > me off guard and spilled over to the rest of the week. So I

have

> > to

> > > interrupt chelation this weekend to focus on his gut. I've

upped

> > the

> > > ante with higher doses of GSE (6 drops, can't give more),

Yeast

> > Aid (1

> > > cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

> > gr)...

> > > I know we have a moderate case of yeast/bacteria to deal with.

> OAT

> > > suggests high arabinose (possibly candida) and some *possible*

> > > bacterial issues.

> > >

> > > But why is it that his stims go down when he's constipated? Is

> it

> > > because he's too distracted by it to think of anything else

(but

> > his

> > > therapies are going normally), or is it because he gets

> physically

> > > tired from it, or is it something else reklated to the gut? If

> it

> > were

> > > die-off wouldn't I be seeing worsening stims? Does this happen

> to

> > > anyone else? The only other time I see this happen to us (zero

> > stim,

> > > total calmness, lethargy) is when he runs a fever.

> > >

> > > TIA for your feedback.

> > > Beti

> > >

> >

>

April 22, 2006

my son has stimmed since beg of asd diag (he was 2.9 yrs. today, he is 9 yrs).

he is a constip kid. imo, more has to do with metal toxicity, in our case.

vicki

danasview <danasview@...> wrote:

> But why is it that his stims go down when he's constipated?

Depends on the reason behind his stims. What are the stims?

>>The only other time I see this happen to us (zero stim,

> total calmness, lethargy) is when he runs a fever.

This is highly suggestive of systemic virus issues. Have you ever

tried giving anti-virals?

Dana

=======================================================

April 23, 2006

>

> Dana, the stims are Tai Chi-like movements with hands

For my son, improper zinc/copper ratio.

>> and visual

> stims on those movements with eyes (despite prism lenses),

My son needed a LOT of supplements to eliminate that problem. I wrote

what he needed here

http://www.danasview.net/issues.htm

>> humming,

Yeast for my son.

> and occasional hand flapping.

Eliminated for my son with B vitamins and anti-virals.

Dana

April 23, 2006

I'm not convinced trading constipation for stims is a solution...maybe another

puzzle piece.

S S

>

> We finally were able to see what our son would look like without

> stimming for an entire day. We owe it all to constipation! I'd be

a

> happy dance if I didn't know any better. This week he couldn't

poop

> until the end of each day. He could function normally all day

long, but

> was uncomfortable, yet with ZERO stimming!

>

> We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on, 4

off,

> per AC protocol. I've been noticing that constipation started

becoming

> a problem on " on " days, so I could deal with it. This week, it

caught

> me off guard and spilled over to the rest of the week. So I have

to

> interrupt chelation this weekend to focus on his gut. I've upped

the

> ante with higher doses of GSE (6 drops, can't give more), Yeast

Aid (1

> cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

gr)...

> I know we have a moderate case of yeast/bacteria to deal with. OAT

> suggests high arabinose (possibly candida) and some *possible*

> bacterial issues.

>

> But why is it that his stims go down when he's constipated? Is it

> because he's too distracted by it to think of anything else (but

his

> therapies are going normally), or is it because he gets physically

> tired from it, or is it something else reklated to the gut? If it

were

> die-off wouldn't I be seeing worsening stims? Does this happen to

> anyone else? The only other time I see this happen to us (zero

stim,

> total calmness, lethargy) is when he runs a fever.

>

> TIA for your feedback.

> Beti

_______________________________________________

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April 25, 2006

> >

> > We finally were able to see what our son would look like without

> > stimming for an entire day. We owe it all to constipation! I'd

be

> a

> > happy dance if I didn't know any better. This week he couldn't

> poop

> > until the end of each day. He could function normally all day

> long, but

> > was uncomfortable, yet with ZERO stimming!

> >

> > We've compeleted our sixth round of TD-DMSA/TD-ALA combo, 3 on,

4

> off,

> > per AC protocol. I've been noticing that constipation started

> becoming

> > a problem on " on " days, so I could deal with it. This week, it

> caught

> > me off guard and spilled over to the rest of the week. So I have

> to

> > interrupt chelation this weekend to focus on his gut. I've upped

> the

> > ante with higher doses of GSE (6 drops, can't give more), Yeast

> Aid (1

> > cap), probiotics (225 billion), (magnesium 15oo mg), Vit C (5

> gr)...

> > I know we have a moderate case of yeast/bacteria to deal with.

OAT

> > suggests high arabinose (possibly candida) and some *possible*

> > bacterial issues.

> >

> > But why is it that his stims go down when he's constipated? Is

it

> > because he's too distracted by it to think of anything else (but

> his

> > therapies are going normally), or is it because he gets

physically

> > tired from it, or is it something else reklated to the gut? If

it

> were

> > die-off wouldn't I be seeing worsening stims? Does this happen

to

> > anyone else? The only other time I see this happen to us (zero

> stim,

> > total calmness, lethargy) is when he runs a fever.

> >

> > TIA for your feedback.

> > Beti

SAME THING JUST HAPPENED TO US!!!! OUR GUY ALWAYS BMS IN THE MORNING

ON THIS PARTICULAR DAY HE DIDNT GO TILL EVENING JUST ONE LITTLE LUMP

VERY FORMED/NORMAL NOT CONSTIPATION JUST NOT HIS REGULAR. HE WAS SO

GREAT ALL DAY AND THE NEXT AND THEN IT WAS SAME OLD SAME OLD. WE DID

TAKE 2 DAYS OFF OF DIFLUCAN WHEN THIS CAME ABOUT SO I MAY TRIAL THAT

AGAIN AS HE IS ALMOST THROUGH THE TREATMENT ANYWAY, MAYBE GUT

TEMPORARILY HEALED. DONT KNOW WHAT IT MEANS BUT INTERESTING TO SAY

THE LEAST.

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

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