RE: New member intro, insurance and testing?

[Guest guest]

It sounds like mercury to me. Those flu shots did have 25 mcg of

mercury. This would be in addition to whatever your children may

have recieved in previous vaccines, or in utero from you. A large

dose could cause them to be catatonic like that.

I have found references to celiac diseases and mercury. But the

symptoms you describe in the kids sounds familiar.The yogurt thing

was my son too. Now screening them for autism probably wouldn't

hurt anything. Remember that ADD, ADHD and other such disorders are

all under autism spectrum. If this were known more to the general

public, people would see that tons of kids are autistic. They try to

sugar coat it with other labels. It is all just varying degrees of

the same thing.

Look under the files section on this message board for supplements

that will help your kids. Mine are only on vites/minerals and

probiotics and EFA's right now, and have shown changes already. You

need to make sure to get the form of minerals suggested and figure

the doses for their weight. Second would be to clear their diet of

any artifical colors, flavors, preservatives etc that you can. This

may sound like a lot but I have found many products at the regular

market that are wholesome and not expensive.

As far as insurance goes, some testing may be covered, some may not.

You may need to see a DAN doctor or someone more rehearsed in autism

or metal toxicity. Unless you can get the ped or order the tests

under those codes. Sometimes it helps if the child is diagnosed as

autistic for insurance purposes. They may not cover a specific test

that a " regular " child would not need. In another words, the testing

being prescribed has to match the condition.

You could try the approach of having the kids screened for " heavy

metals " , most insurance plans accept that more easily that " mercury "

specifically. Just hint around that your house is old and may have

lead. I am sure you already know that most doc's don't recognize

that amalgams are dangerous or that vaccine mercury even exsists.

The next step would be hair mineral analysis from DDI. This will

show what metals your kids and which minerals are being disturbed by

it.

Most everyone here will tell you to get the hair tests done and then

you will know what supplements to add and how to go about

detoxifying your kids.

Hope this helps..please ask more if you need.

Jan

>

> My name is and I'm a newbie studying threads from this group

> day and night! I'm interested in this group because I am trying to

> be proactive in my approach to my children's health. Roughly 2 1/2

> ago my 2 boys (then 2 and 4) had a SEVERE reaction (like a 4 day

> catatonic like state) to the flu shot. We quit immunizing after

> that, the doctor dismissed us and I reported their reaction to the

> appropriate agencies. Since then I've noticed an ebb and flow of

> behaviors in both boys. The behaviors seem to be less in my

> oldest. In my youngest, however the behaviors seem to flow more

> than ebb these days. The behaviors that particularly concern me

> are, his anger outbursts with aggression, detachment from dad, his

> obsessiveness with Star Wars and his occassional inability to

> interact with world around him, a real space cadet! Also, if I

let

> him he'd eat yogurt 24/7! I let him eat it as much as he'd like

> between meals. He is also sensitive corn products that seem to

> amplify the behaviors. I've managed with diet up to this point in

> minimizing symptoms. There days that are great, but when bad days

> come they are usually longer spans and they are getting worse and

> worse! I feel like time is of the essence!! I could be

> overthinking all this but I figure I'll err on the side of

caution.

> Also, I have 5 amalgam fillings in my teeth that I'm planning to

> have removed, and I know enough now to wait on chelation for

myself

> until that is taken care of. I now know I played with mercury as

a

> child (didn't know better), and encountered it again as a

teenager,

> only that time I knew better than to play with it. I'm ready to

> tackle this, however I'm not sure that my finances are. My Ped is

> willing to test, and my PCP is at Chelation Centers of Texas.

> However I'm having trouble with the Ped's willingness to try

> insurance codes that will cover testing, and she wants to evaluate

> for Austism. Also, does anyone know of a link between celiac

> disease and heavy metal toxicity? I have it. My final question

is

> what can I do NOW for therapies to minimize symptoms. My boys can

> take tablets and sublingual drops. I haven't tried capsules but I

> think they could to them! Also, they take a daily mild calmative

> called Min-Tran (Standard Process Inc) It contains calcium

lactate

> & stearate (120 mg), kelp, magnesium 19 mg, and alfalfa.

>

> Thanks in advance!!

>

>

>

[Guest guest]

> Remember that ADD, ADHD and other such disorders are all under

autism spectrum.

Hmmmm, I didn't know this. My husband and I are both severe ADHD

and were currently taking Rx for it.

> Look under the files section on this message board for supplements

that will help your kids.

Thanks, I'll look at that.

>Second would be to clear their diet of any artifical colors,

flavors, preservatives etc that you can. This may sound like a lot

but I have found many products at the regular market that are

wholesome and not expensive.

Would you be able to suggest any brands, privately if need be?

> You could try the approach of having the kids screened for " heavy

> metals " , most insurance plans accept that more easily

that " mercury " specifically. Just hint around that your house is old

and may have lead.

I am using this approach because we bought my husbands childhood

home and we are remodeling!

>I am sure you already know that most doc's don't recognize

that amalgams are dangerous or that vaccine mercury even exsists.

Luckily my doc's are mixed in their view of this, they all admitt

it's there just differ on it's effects. I'm bringing lots of info

to the appointment!

> The next step would be hair mineral analysis from DDI. This will

show what metals your kids and which minerals are being disturbed by

it.

I'll do this myself if I have to! I'm searching for the cost, if I

go out of pocket on this.

> Hope this helps..please ask more if you need.

Yes, thanks!!

[Guest guest]

> >Second would be to clear their diet of any artifical colors,

> flavors, preservatives etc that you can. This may sound like a lot

> but I have found many products at the regular market that are

> wholesome and not expensive.

>

> Would you be able to suggest any brands, privately if need be?

If you join up at www.feingold.org you'll get a booklet listing safe

brands of processed food. Unfortunately, as most people following the

Feingold diet will tell you (from ugly experience), trying to avoid

the crap by reading labels doesn't work, because of all the loopholes

in labeling laws.

The good news is that lots of people can get off their ADHD meds by

following the diet.

Nell

[Guest guest]

You can order the DDI hair elements test yourself (if need be though it's more

expensive) without a doc through DLS (Direct Lab Services) and they'll give you

a discount if you mention autism or this list.

S S

> The next step would be hair mineral analysis from DDI. This will <BR>

show what metals your kids and which minerals are being disturbed by <BR>

it. <BR>

<BR>

I'll do this myself if I have to! I'm searching for the cost, if I <BR>

go out of pocket on this.<BR>

<BR>

> Hope this helps..please ask more if you need.<BR>

<BR>

Yes, thanks!!<BR>

<BR>

<BR>

<BR>

_______________________________________________

Join Excite! - http://www.excite.com

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[Guest guest]

> > Would you be able to suggest any brands, privately if need be?

>

> If you join up at www.feingold.org you'll get a booklet listing safe

> brands of processed food. Unfortunately, as most people following the

> Feingold diet will tell you (from ugly experience), trying to avoid

> the crap by reading labels doesn't work, because of all the loopholes

> in labeling laws.

>

> The good news is that lots of people can get off their ADHD meds by

> following the diet.

>

> Nell

>

Thanks Nell! That's 2 people tonight that have recommended feingold.

A friend who chelated a couple years ago mentioned it too! I'll work

on getting that!

)

[Guest guest]

I hope these doctors will co-operate, at least through the testing!

Beyond that I'm willing to go it alone if I have to!

Thanks for the info!

)

>

>

>

> You can order the DDI hair elements test yourself (if need be though

it's more expensive) without a doc through DLS (Direct Lab Services)

and they'll give you a discount if you mention autism or this list.

> S S

>

[Guest guest]

By the way..Feingold is charging to join up for this " information "

but I got it for free at the local library. He has a book on the

whole thing as well as a cookbook!

I mainly stick to brands that say right on the label " no

preservatives, no artifical colors, all natural, etc. Most foods in

the organic section of the store are ok. Mainly you got to go really

basic..some fruits, vegetables, poultry, meat. Make your own goodies

at home. However, if your going casein free, gluten free, that is a

whole different animal. Just set aside a time to go to the store

without the kids, and check out the labels on the types of foods you

eat and check for alternatives. Basically, the prepackaged, ready to

eat, nuke it up stuff is a no-no!

>

> > >Second would be to clear their diet of any artifical colors,

> > flavors, preservatives etc that you can. This may sound like a

lot

> > but I have found many products at the regular market that are

> > wholesome and not expensive.

> >

> > Would you be able to suggest any brands, privately if need be?

>

> If you join up at www.feingold.org you'll get a booklet listing

safe

> brands of processed food. Unfortunately, as most people following

the

> Feingold diet will tell you (from ugly experience), trying to avoid

> the crap by reading labels doesn't work, because of all the

loopholes

> in labeling laws.

>

> The good news is that lots of people can get off their ADHD meds by

> following the diet.

>

> Nell

>

[Guest guest]

>

> By the way..Feingold is charging to join up for this " information "

> but I got it for free at the local library.

Why the snark? The people who work for the Feingold organization have

to do a ton of work to keep that information current, because

manufacturers change their recipes all the time, and because they

aren't necessarily forthcoming about their ingredients and practices.

I think the membership fee is well worth it and supports an important

organization, one that pushes for less toxic food.

> I mainly stick to brands that say right on the label " no

> preservatives, no artifical colors, all natural, etc. Most foods in

> the organic section of the store are ok.

If you or your child is sensitive to preservatives, etc., reading

labels is not sufficient. For an example, BHA/BHT is one of the

forbidden preservatives on the FD. My son reacted to those with

screaming, crying, totally irrational behavior that would appear so

suddenly it was scary. But if a manufacturer doesn't put BHA/BHT

directly on the food but instead sprays the packaging with it, it

doesn't have to be on the list of ingredients -- even though the

BHA/BHT leaches from the packaging into the food. That's just one

example of many loopholes, and the House just passed a bill that will

weaken the current labeling laws even more.

Also, " all natural " is meaningless and you can legally put that on

anything.

Some people read labels and think they're giving the FD a try, but it

really has to be followed scrupulously for awhile with no corners cut

to find out which ingredients are problematic. It's typical for a

person to react to some things on the forbidden list but not all of

them. And chelation slowly expands the food choices -- after about 15

rounds my son could eat all the salicylates with NF, and now, at round

70, he can have occasional infractions with corn syrup without a

problem. I'm expecting/hoping that by round 100 he could eat anything

-- but I'm still not going to buy that nasty processed food. When I go

to a regular supermarket like Food Lion every once in a while it's

shocking how ill the people look who shop and work there.

Mainly you got to go really

> basic..some fruits, vegetables, poultry, meat. Make your own goodies

> at home.

Yes, if you're short on cash and/or don't want to replace one set of

processed foods with another, you can bypass joining Feingold and only

eat whole foods. You can find out which whole foods to eliminate for

while (the high-phenol salicylates) on the website for free. Then just

shop around the edge of the market and make everything yourself. It

really isn't hard, it's certainly cheaper and much better tasting.

Can you tell I'm a little crazed on the subject of food toxicity?

Nell

[Guest guest]

> ago my 2 boys (then 2 and 4) had a SEVERE reaction (like a 4 day

> catatonic like state) to the flu shot.

Well, I never had a SEVERE reaction, but a flu shot I had many years

ago gave me asthma, which I learned about two years ago was caused by

food intolerances. I use enzymes and avoid certain foods, plus take

several supplements, and I have not had an asthma attack now in almost

a year.

>>Also, if I let

> him he'd eat yogurt 24/7! I let him eat it as much as he'd like

> between meals. He is also sensitive corn products that seem to

> amplify the behaviors.

Try using HNI enzymes, which help me about 75% with those foods

http://www.houstonni.com/

>>Also, does anyone know of a link between celiac

> disease and heavy metal toxicity?

I know of three children who had celiac dx who were able to eat gluten

again after chelation.

Dana

[Guest guest]

Hi ,

My nephew had a severe reaction to the DPT vaccine.

Yogurt is a source of both probiotics and dairy. If he has dairy/casein issues

you may want to try Silk soy brand yogurt (providing he tolerates soy) (there

may be other soy yogurt ('s brand?) or a non-dairy probiotic. We use a

chewable banana flavored probiotic.

Try explaining to them that insurance isn't going to pay with an autism code but

might with a toxic metals code. Convince them to use DDI (Doctor's Data, Inc)

hair elements test or order it yourself through DLS (Direct Lab Services). If

you mention this group (or autism) DLS will give you a discount (but cheaper if

the doc will order it).

You might also want to try NAET. www.naet.com Sounds weird at first but works

for me and others on this list.

S S

My name is and I'm a newbie studying threads from this group <BR>

day and night! I'm interested in this group because I am trying to <BR>

be proactive in my approach to my children's health. Roughly 2 1/2 <BR>

ago my 2 boys (then 2 and 4) had a SEVERE reaction (like a 4 day <BR>

catatonic like state) to the flu shot.  We quit immunizing after <BR>

that, the doctor dismissed us and I reported their reaction to the <BR>

appropriate agencies.  Since then I've noticed an ebb and flow of <BR>

behaviors in both boys.  The behaviors seem to be less in my <BR>

oldest.  In my youngest, however the behaviors seem to flow more <BR>

than ebb these days.  The behaviors that particularly concern me <BR>

are, his anger outbursts with aggression, detachment from dad, his <BR>

obsessiveness with Star Wars and his occassional inability to <BR>

interact with world around him, a real space cadet!  Also, if I let <BR>

him he'd eat yogurt 24/7!  I let him eat it as much as he'd like <BR>

between meals.  He is also sensitive corn products that seem to <BR>

amplify the behaviors.  I've managed with diet up to this point in <BR>

minimizing symptoms.  There days that are great, but when bad days <BR>

come they are usually longer spans and they are getting worse and <BR>

worse!  I feel like time is of the essence!!  I could be <BR>

overthinking all this but I figure I'll err on the side of caution. <BR>

Also, I have 5 amalgam fillings in my teeth that I'm planning to <BR>

have removed, and I know enough now to wait on chelation for myself <BR>

until that is taken care of.  I now know I played with mercury as a <BR>

child (didn't know better), and encountered it again as a teenager, <BR>

only that time I knew better than to play with it.  I'm ready to <BR>

tackle this, however I'm not sure that my finances are.  My Ped is <BR>

willing to test, and my PCP is at Chelation Centers of Texas.  <BR>

However I'm having trouble with the Ped's willingness to try <BR>

insurance codes that will cover testing, and she wants to evaluate <BR>

for Austism.  Also, does anyone know of a link between celiac <BR>

disease and heavy metal toxicity?  I have it.  My final question is <BR>

what can I do NOW for therapies to minimize symptoms.  My boys can <BR>

take tablets and sublingual drops. I haven't tried capsules but I <BR>

think they could to them!  Also, they take a daily mild calmative <BR>

called Min-Tran (Standard Process Inc)  It contains calcium lactate <BR>

& stearate (120 mg), kelp, magnesium 19 mg, and alfalfa.  <BR>

<BR>

Thanks in advance!!<BR>

<BR>

<BR>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!